Intro

[Guest guest]

Hi Judy,

High dose IFN induction therapy followed by pegIFN and Ribavirin would

be ideal, provided your HCV is high.

Liver biopsy is not necessary, you already had gr 3 changes earlier.

[Guest guest]

I have known had hep c since Aug of 99....have

been on combo about 3 months. Seen my GI 2 times,

otherwise talk to his nurse and I know as much as

her most times from my reading. I don't know how

to read my blood tests. I have had all of them

sent to me. My orig test showed AST/SGOT AS BEING

133 Pand alkaline phos. as 110 H. That was in

Aug. Had a biopsy and was told through the mail

that I have cirrhosis. October test showed

ALT/SGPT AS 66 H AND AST/SGOT AS 96 H...I don't

know what these mean. for the first 2 months on

combo they have had blood tests done weekly due

to low plateletts. Plateletts have gone from 139

down to 112. Please if anyone can explain test

results in laymans terms???? I would appreciate

it . Have other numbers but not going to include

all here.

Dawn

--- Doc <gidoc@...> wrote:

>

> Hi Judy,

> High dose IFN induction therapy followed by

> pegIFN and Ribavirin would

> be ideal, provided your HCV is high.

> Liver biopsy is not necessary, you already had

> gr 3 changes earlier.

>

>

[Guest guest]

<A HREF= " http://www.carbonbased.com/cbcblood.htm " >CBC Blood Chemistry

Definitions</A>

[Guest guest]

Dear Judy,

Sorry to hear that you failed the Combo. It's been my experience, and only

through what others have told me, hitting HCV hard and fast through daily

dosing is the key to being a sustained responder. You're so fortunate to be

going on the Peg Interferon. I think if I were you, I'd wait for another

biopsy. It hasn't been that long since the last one.

Love,

Bren

[Guest guest]

Re: Intro

> From: goez@...

>

> <A HREF= " http://www.carbonbased.com/cbcblood.htm " >CBC Blood Chemistry

> Definitions</A>

>

> ---------------------------

[Guest guest]

Re: Intro

> From: goez@...

>

> <A HREF= " http://www.carbonbased.com/cbcblood.htm " >CBC Blood Chemistry

> Definitions</A>

>

> ---------------------------

[Guest guest]

Re: Intro

> From: goez@...

>

> Dear Judy,

> Sorry to hear that you failed the Combo. It's been my experience, and

only

> through what others have told me, hitting HCV hard and fast through daily

> dosing is the key to being a sustained responder. You're so fortunate to

be

> going on the Peg Interferon. I think if I were you, I'd wait for another

> biopsy. It hasn't been that long since the last one.

> Love,

> Bren

>

> ---------------------------

[Guest guest]

Re: Intro

> From: goez@...

>

> Dear Judy,

> Sorry to hear that you failed the Combo. It's been my experience, and

only

> through what others have told me, hitting HCV hard and fast through daily

> dosing is the key to being a sustained responder. You're so fortunate to

be

> going on the Peg Interferon. I think if I were you, I'd wait for another

> biopsy. It hasn't been that long since the last one.

> Love,

> Bren

>

> ---------------------------

[Guest guest]

Dear Dr. Misra,

I have another question ....

Some doctors are saying that fibrosis is reversed when on Interferon.

Is this

true ?

Judy

http://community.webtv.net/jcmmo/Affirmation

[Guest guest]

Dear Dr. Misra,

I have another question ....

Some doctors are saying that fibrosis is reversed when on Interferon.

Is this

true ?

Judy

http://community.webtv.net/jcmmo/Affirmation

[Guest guest]

Dear Dr. Misra,

I have another question ....

Some doctors are saying that fibrosis is reversed when on Interferon.

Is this

true ?

Judy

http://community.webtv.net/jcmmo/Affirmation

[Guest guest]

Dear Dr. Misra,

I have another question ....

Some doctors are saying that fibrosis is reversed when on Interferon.

Is this

true ?

Judy

http://community.webtv.net/jcmmo/Affirmation

[Guest guest]

Did any body else see this? What a hoot!?! And to think just a few

days ago everybody was hot under the collar about the mere mention of a

person's sexual orientation. I can't wait to see the fall out over

this entry. Let the Hoo- Ha begin.

Happy Ranting and Raving,

Dayna

P.S. Dear Angelslave, Honey, You, unfortunately picked a mostly

conservative group to announce your proclivities to. Try a club better

suited to your, umm, er, " extracurricular activities " .

This group is only interested in your dwarfism/ short stature issues.

Better Luck next time.

angelslave@... wrote:

>

> i would like to introduce myself. i am a 36 yr old wheel chair bound

> chronically disabled female submissive with strong slave tendencies. i

> am 4 feet 2 inches tall, and am located in NY State. There are always

> special issues for people with disabilities and, in the area of BDSM,

> many practical and mental concerns which do not affect abled people.

>

> A club has recently opened which is accessible to disabled males and

> females and abled devotees, Dom/me or sub/slave. It is intended to act

> as a forum for 'no-limits' discussion of any aspect of BDSM in relation

> to disablities and relationships between people, one or both of whom are

> disabled.

>

> The URL to the club is:

> BDSM_DOM_sub_4_those_with_Disabilities

>

> Respectfully,

> angelslave@...

>

> ------------------------------------------------------------------------

> Who invented Gatorade -- and what part did it play in

> winning the1967 Orange Bowl? Find out the true facts at

> 1/6212/11/_/77518/_/962899118/

> ------------------------------------------------------------------------

[Guest guest]

Hi ,

First - drink lots of water. You need to get your genotype and viral

load checked before you start the meds. My viral load was

undetectable at two weeks. If that happens with you there will not

be enough RNA material to get an accurate reading. Your genotype

will determine how long you will be on the meds. Ask lots of

questions, there is a huge wealth of knowledge here and on the web.

Your profile is rather slim, a little more about you would help the

rest of us get to know you.

Keep in touch, Glenn

> Hi everyone,

>

> I am new to the group, been lurking for the past week or so. I was

first

> diagnosed with Hep C in 1987 when it was called non A non B

hepatitis. I

> have been living symptom free until the last year or so when the

fatigue

> really began to hit me.

>

> Well, I have decided to start the PegIntron combo meds starting

this Friday,

> and I am a bit scared. I do not know at this time what my genotype

is, but

> will find out when I get my first blood test after two weeks on the

meds.

> Not sure why my Dr did not order that test in the first place.

>

> Anyway, wanted to say I am glad this list is here and would

appreciate any

> advice or thoughts anyone has to help me get through this.

>

> Hugs,

>

>

>

>

>

[Guest guest]

In a message dated 12/4/02 9:41:17 PM Pacific Standard Time,

grisley4@... writes:

> First - drink lots of water. You need to get your genotype and viral

> load checked before you start the meds.

My last test said my viral load was 1,000,000. I really don't want to put

off starting the medicine any longer, I have to get through the worst part of

the sides before tax season hits (I am a CPA). Is it that important that I

know the genotype before hand? Obviously, my Dr did not think so (but that

does not necessarily make it right).

> Your profile is rather slim, a little more about you would help the

> rest of us get to know you.

What more would you like to know? I am 43 years young, have a 12 year old

son, eternaly engaged to a wonderful man (tax laws have prevented marriage

LOL), one dog and one cat. I live in Orange County California. Hmmmmmm,

is there anything else you would like to know?

Thanks for the info Glenn,

[Guest guest]

Hi ,

Welcome. I agree with Glenn, you need to have your genotype done

first. Genotypes 2 & 3 typically require HALF the time on treatment

than genotype 1;so why go through a longer period of treatment if it

is not necessary. That's one of the first tests my gastro doc did

before determining treatment. Make sure your specialist has a large %

of his practice treating hep c patients, or he may not be up on the

latest information. You may want a second opinion from another

specialist. (Just some food for thought).

> Hi everyone,

>

> I am new to the group, been lurking for the past week or so. I was

first

> diagnosed with Hep C in 1987 when it was called non A non B

hepatitis. I

> have been living symptom free until the last year or so when the

fatigue

> really began to hit me.

>

> Well, I have decided to start the PegIntron combo meds starting

this Friday,

> and I am a bit scared. I do not know at this time what my genotype

is, but

> will find out when I get my first blood test after two weeks on the

meds.

> Not sure why my Dr did not order that test in the first place.

>

> Anyway, wanted to say I am glad this list is here and would

appreciate any

> advice or thoughts anyone has to help me get through this.

>

> Hugs,

>

>

>

>

>

[Guest guest]

In a message dated 12/5/02 9:53:45 AM Pacific Standard Time,

runyonc2001@... writes:

> I agree with Glenn, you need to have your genotype done

> first. Genotypes 2 & 3 typically require HALF the time on treatment

> than genotype 1;so why go through a longer period of treatment if it

> is not necessary.

My Dr had said I would be on it for three months, but knowing what I know

now, it seems that six months is the minimum. I half suspect he said three

months so it would not seem as daunting.

Any how, thanks to you and Glenn, I called my Dr's office today and insisted

on getting a blood test to determine my genotype. Just got back from having

my blood drawn so I can start the meds tomorrow as planned. Will find out

the results next week.

> Make sure your specialist has a large %

> of his practice treating hep c patients, or he may not be up on the

> latest information. You may want a second opinion from another

> specialist. (Just some food for thought).

I know he has other patients with hep c as they were in the class the drug

manufacturer put on. I discussed talking to another Dr with my primary care

Dr and he said the one I have is the best in my group. From what I have read

about available treatment, I don't think I would be doing anything else then

the combo I am going to start (unless I wait for Pegasys which I understand

is Peg Interferon too), so I will just try and keep informed for now. If

necessary, I can always go outside my group for treatment, but the costs

could be prohibitive.

Anyway, I thank you and Glenn very much for the suggestion that I test for

the genotype prior to treatment. It may have been unfortunate to have waited

the two weeks after treatment began only to find out it was undeterminable.

Then again, if it was undetectable, then that would be a good thing huh!

Big warm hugs,

[Guest guest]

In a message dated 12/5/02 6:14:53 AM Pacific Standard Time,

giglebutt2002@... writes:

> I'm Debbie and have been on treatment going on shot # 7 and doing pretty

> good. at first it is very scarey cause you do not know how the meds are

> going to effect the body so you just go with it,

I am hoping that I am scared about nothing. Do you remember how sick you

were with shot #1? Should I plan on my weekend being shot (no pun intended

LOL)?

Your doctors will monitor you the first couple of weeks to see how you are

> responding if they see that you cant do treatment for some reason they will

> stop it, You really get use to the side effects fast.and some go away but

> you do feel tired alot try to take little cat naps and that will help,also

> drinks TONS of water it really is detremental to this therapy, good luck

> and lets keep our progress positive and posted. Hope I helped Debbie in

> chicago

Yes, it helps alot. I am so tired now with the Hep C, I can't imagine that

the meds would be any worse (of course that could mean I lack imagination

LOL).

Thanks for the welcome,

[Guest guest]

, Ok, now that you have the genotype test done treatment is

next if you want. The 12 week test will check to see if you are

responding. If you are type 2 or 3 and are responding, you will

continue for 24 weeks. If you are type 2 or 3 and not responding you

may need to go 48 weeks. If you are type 1 or 4 and are responding

you will probably go for 48 weeks. But if you are type 1 or 4 and are

not responding your Dr. will have a talk with you about continuing

treatment. A type 1 or 4 non-responder may want to wait for the next

generation of medications to debute.

Drink lots of water, ask your Dr. for copies of all your labs, drink

lots of water, keep a side effects log (if you see your Dr. once a

month you may not remember everything), drink lots of water, check in

with this group often.

Take care of yourself, Glenn

> In a message dated 12/5/02 6:14:53 AM Pacific Standard Time,

> giglebutt2002@y... writes:

>

>

> > I'm Debbie and have been on treatment going on shot # 7 and doing

pretty

> > good. at first it is very scarey cause you do not know how the

meds are

> > going to effect the body so you just go with it,

>

> I am hoping that I am scared about nothing. Do you remember how

sick you

> were with shot #1? Should I plan on my weekend being shot (no pun

intended

> LOL)?

>

> Your doctors will monitor you the first couple of weeks to see how

you are

> > responding if they see that you cant do treatment for some reason

they will

> > stop it, You really get use to the side effects fast.and some go

away but

> > you do feel tired alot try to take little cat naps and that will

help,also

> > drinks TONS of water it really is detremental to this therapy,

good luck

> > and lets keep our progress positive and posted. Hope I helped

Debbie in

> > chicago

>

>

> Yes, it helps alot. I am so tired now with the Hep C, I can't

imagine that

> the meds would be any worse (of course that could mean I lack

imagination

> LOL).

>

> Thanks for the welcome,

>

>

>

>

>

>

>

>

>

[Guest guest]

Hi , me again. I just read all the posts again and noticed you

did not mention a liver biopsy. Once you start treatment you

probably don't want to have a biopsy. A biopsy is highly recommended

before treatment but it can be done after. LeighAnn has a very good

explaination of biopsy proceedures and results on her website:

www.geocities.com/1LeighAnn/

Glenn

> In a message dated 12/5/02 9:53:45 AM Pacific Standard Time,

> runyonc2001@y... writes:

>

> > I agree with Glenn, you need to have your genotype done

> > first. Genotypes 2 & 3 typically require HALF the time on

treatment

> > than genotype 1;so why go through a longer period of treatment

if it

> > is not necessary.

>

> My Dr had said I would be on it for three months, but knowing what

I know

> now, it seems that six months is the minimum. I half suspect he

said three

> months so it would not seem as daunting.

>

> Any how, thanks to you and Glenn, I called my Dr's office today and

insisted

> on getting a blood test to determine my genotype. Just got back

from having

> my blood drawn so I can start the meds tomorrow as planned. Will

find out

> the results next week.

>

>

> > Make sure your specialist has a large %

> > of his practice treating hep c patients, or he may not be up on

the

> > latest information. You may want a second opinion from another

> > specialist. (Just some food for thought).

>

> I know he has other patients with hep c as they were in the class

the drug

> manufacturer put on. I discussed talking to another Dr with my

primary care

> Dr and he said the one I have is the best in my group. From what I

have read

> about available treatment, I don't think I would be doing anything

else then

> the combo I am going to start (unless I wait for Pegasys which I

understand

> is Peg Interferon too), so I will just try and keep informed for

now. If

> necessary, I can always go outside my group for treatment, but the

costs

> could be prohibitive.

>

> Anyway, I thank you and Glenn very much for the suggestion that I

test for

> the genotype prior to treatment. It may have been unfortunate to

have waited

> the two weeks after treatment began only to find out it was

undeterminable.

> Then again, if it was undetectable, then that would be a good thing

huh!

>

> Big warm hugs,

>

>

[Guest guest]

I'll just tell you I've been fat forever. I wore a size

> 13 -- in 6th grade.

>

> Helen

Helen- The requirement for the PNW group is that you needed to have

worn it in the 5th grade. Just joking. Welcome. Hope to meet you at

soup nite. joanne in seattle

[Guest guest]

>From: " seajoan " <seajoan@...>

>

>Helen- The requirement for the PNW group is that you needed to have

>worn it in the 5th grade.

LOL! Thanks for the welcome, Joanie.

Helen

_________________________________________________________________

Protect your PC - get McAfee.com VirusScan Online

http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963

[Guest guest]

In a message dated 12/6/02 12:59:52 AM Pacific Standard Time,

grisley4@... writes:

> The 12 week test will check to see if you are

> responding. If you are type 2 or 3 and are responding, you will

> continue for 24 weeks. If you are type 2 or 3 and not responding you

> may need to go 48 weeks. If you are type 1 or 4 and are responding

> you will probably go for 48 weeks. But if you are type 1 or 4 and are

> not responding your Dr. will have a talk with you about continuing

> treatment. A type 1 or 4 non-responder may want to wait for the next

> generation of medications to debute.

Thanks for the info Glenn, I will have to ask my Doctor why he told me I

would be on the treatment for three months, you confirmed what I have read,

that the mininum treatment time is six months. I hope I can continue during

tax season, as that will be at three months. Does anyone know what happens

if you take it for three months, go off for three months and then start

again? Does the six month clock start all over again?

> Drink lots of water, ask your Dr. for copies of all your labs, drink

> lots of water, keep a side effects log (if you see your Dr. once a

> month you may not remember everything), drink lots of water, check in

> with this group often.

>

For some reason I am thirsty....where is that glass of water???? LOL

Glenn also wrote:

>I just read all the posts again and noticed you

>did not mention a liver biopsy.

My Dr talked to me about having a biopsy and did not seem concerned either

way. I asked him if my treatment would change based on the results of the

biopsy and he said no. Therefore, I decided not to go through a procedure

that would have no effect on my treatment.

Thanks again for the information and your support Glenn.

Hugs,

[Guest guest]

,

Personally, I would recommend getting a biopsy. The biopsy is the

only way to accurately determine damage to the liver. Also, I

wouldn't start, then stop treatment. If the tax season is something

you must work through,(I'm assuming you are an accountant), then I

would wait until after the season to start. No point is adding

additional stress to your life. Both tax season and the treatment are

stressful enough in and of themselves!

>

> >I just read all the posts again and noticed you

> >did not mention a liver biopsy.

>

> My Dr talked to me about having a biopsy and did not seem concerned

either

> way. I asked him if my treatment would change based on the results

of the

> biopsy and he said no. Therefore, I decided not to go through a

procedure

> that would have no effect on my treatment.

>

> Thanks again for the information and your support Glenn.

>

> Hugs,

>

>

>

>

>

>

[Guest guest]

The only side effect I have is jaw clenching, and I'm on 15mg's. So far lexapro has helped me soooo much. I'm thrilled with it. What are you taking it for again?