Guest guest Posted July 21, 2008 Report Share Posted July 21, 2008 Hi guys attended hospital on Tuesday last week.... im awfully confused and feeling very down about the whole thing. We dont have a set Paed Rhuemy... they see one of 3 doctors at the clinic .... anyhoo i digress We went in and he asked for a wee note of how she was doing and what problems she had. Shes having problems walking distance... but they wont give her crutches or any other aids as its the new thinking. Anyhoo he examined her and said he cant find any signs of active arthritis but that her enthesitis is running riot. She is in huge amounts of pain daily and he said she is following the patterns for Enthesitis... huge amounts of pain little stiffness.... Im kinda *insert an expletive here please* off that this seems to be the way we are now going to live. Huge pain levels daily. I told him we were sick of it and we wanted something done... but pain meds is all they can advise. He upped her Enbrel to 0.7 and has finally changed her methotrexate to injection so she will get the full 20mg and hopefully wont vomit half as much. I guess im just feeling defeated and rather upset that she cant be " fixed " Am i expecting too much ..... i know there is no magic fairy wand. but im just frustrated i guess and in need of breakfast and a cup of coffee... (my kettle blew up today lol have to go buy a new one) Im off my soapbox now if anyone else wants a shot of it lol and ERA HLA B27+ SW Scotland Quote Link to comment Share on other sites More sharing options...
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