New to the list

[Guest guest]

Hi Lybbe

I looked at your blog and notice that you are a bit older like some

of us around here. Isn't it great getting healthier when many people

our age have just given up? I'm very impressed with your progress.

Just to let you know ....everyone here isn't in their 20s

and there are more than a few working on big over 100 lb weight losses

some who have succeeded very very well

Your journey is an inspiration

felicity

> I just joined yesterday - have been doing BFL exercise for one week

> today. I've lost 110 pounds and want to lose another 50 and figured

> that I needed to kick up both my weight lifting and my aerobic

> activity to get the job done. 20 minutes didn't seem like much until I

> tried jogging it...lol I had to do a lot of walking the first couple

> of times - but i'm finding that I'm able to jog further with every

> outing. Yay me! I hope to pick up some good tips here and mostly I

> hope to find the motivation to lift those heavy weights! I've been a

> bit of a wuss in that department.

>

> http://lybbe1631.blogspot.com/

>

> Lybbe

>

>

>

>

>

>

[Guest guest]

Hi Lybbe, it took me a while to find your before picture--it was under

" blah, blah, blah " .

Wow, you look so much healthier now! I bet you're feeling great, too.

How long did it take you to lose the 110 pounds?

Naomi

******

>

> > I just joined yesterday - have been doing BFL exercise for one week

> > today. I've lost 110 pounds and want to lose another 50 and figured

> > that I needed to kick up both my weight lifting and my aerobic

> > activity to get the job done. 20 minutes didn't seem like much until I

> > tried jogging it...lol I had to do a lot of walking the first couple

> > of times - but i'm finding that I'm able to jog further with every

> > outing. Yay me! I hope to pick up some good tips here and mostly I

> > hope to find the motivation to lift those heavy weights! I've been a

> > bit of a wuss in that department.

> >

> > http://lybbe1631.blogspot.com/

> >

> > Lybbe

>

> ------------------------------------------------------------------------

>

[Guest guest]

Lybbe! You've lost 110 pounds? Good heavens!! I certainly wouldn't call you a

" wuss " in ANY department! You got what it takes, woman! Congratulations!

E!!ie in Western land (http://elliesjourneys.blogspot.com)

http://www.fitday.com/WebFit/PublicJournals.html?Owner=ellirnrE!!ie

New to the List

I just joined yesterday - have been doing BFL exercise for one week

today. I've lost 110 pounds and want to lose another 50 and figured

that I needed to kick up both my weight lifting and my aerobic

activity to get the job done. 20 minutes didn't seem like much until I

tried jogging it...lol I had to do a lot of walking the first couple

of times - but i'm finding that I'm able to jog further with every

outing. Yay me! I hope to pick up some good tips here and mostly I

hope to find the motivation to lift those heavy weights! I've been a

bit of a wuss in that department.

http://lybbe1631.blogspot.com/

Lybbe

[Guest guest]

yes, welcome

also I wanted to say -- you've now find the diet that will take it off

and this is the good part of this one -- keep it off

many other diets may help you loose weight

but they set you up for a rebound

not this one

this one conditions your body to burn fat

so you are in the right place

felicity

> Lybbe! You've lost 110 pounds? Good heavens!! I certainly wouldn't

> call you a " wuss " in ANY department! You got what it takes, woman!

> Congratulations!

>

> E!!ie in Western land (http://elliesjourneys.blogspot.com)

> http://www.fitday.com/WebFit/PublicJournals.html?Owner=ellirnrE!!ie

>

>

> New to the List

>

>

> I just joined yesterday - have been doing BFL exercise for one week

> today. I've lost 110 pounds and want to lose another 50 and figured

> that I needed to kick up both my weight lifting and my aerobic

> activity to get the job done. 20 minutes didn't seem like much

> until I

> tried jogging it...lol I had to do a lot of walking the first couple

> of times - but i'm finding that I'm able to jog further with every

> outing. Yay me! I hope to pick up some good tips here and mostly I

> hope to find the motivation to lift those heavy weights! I've been a

> bit of a wuss in that department.

>

> http://lybbe1631.blogspot.com/

>

> Lybbe

>

>

>

>

>

>

[Guest guest]

I am always so saddened, angry and scared when I see posts like yours. When my husband was diagnosed with HCV/cirrhosis in 2001, we were living in a back asswards town in the central valley of California. Our Doctor at the time (an actual "specialist" referred to us by our primary) came in, sat in a chair across the room, and said, "well, you have cirrhosis". As we sat in shock he then said, "well, you come from the Bay Area, just be glad you don't have aids". He then recommended we get set up with  a transplant facility in L.A. I know a dip shit when I see one and even though Los Angeles has some good facilities, if we were looking at a long term deal, it made no sense for us. In addition, "good" isn't good enough. I wanted the BEST. We are from No. CA, that would put us miles away from home or from any kind of support. The insurance company was supporting this because (I figured out as we went along) the costs in L.A. are cheaper. We set up the evaluation with the transplant facility in SF, while I continued to fight the insurance company. Eventually, they agreed. Once we got our bearings we also moved back here. My husband has some of the best care in the world. They told me, "we don't just sit back and do nothing, we treat aggressively".  Although we aren't naive and we know the score, never one time has anyone ever told me that my husband was going to die. The attitude we have always gotten is "your husband will live and this is how". In 2003, we all agreed to try the combo therapy to attempt to slow down the cirrhosis. The Doctor told us exactly what we were in for and he had him going in for lab work every week.  He was deathly ill, crazy as a loon and his labs were worse than they'd ever been. He did it for a year, and the virus came roaring back shortly after he was finished with the treatment. He was sicker than ever. It took about a year for him to get"normal" again. Today, post treatment he is stable, which means he functions at about 65% capacity. He has his labs done monthly, they have been good for awhile. Having been through this so many times, I know that it can all change in a minute. I believe he is OK, in big part because he has competent, knowladgeble Doctors who monitor him closely and prescribe the right medications.Transplant patients have choices. I researched to find the best, and I've since found out that a person can be on the list at more than one hospital.  We don't have to accept sub standard care. We know quite a few peoplewho have had transplants and are doing well. There are support groups available through the hospitals for both patients and families. It helps to have people tell us about our new "normal" and to know we aren't alone. Find and choose the right facility based on your family situation.Best, KelliOn Jun 11, 2006, at 10:19 AM, noelanif wrote:Hi, I am new to this list and found this list by accident.My husband was diagnosed in 1993 with Hepatitis C and throughbad information and bad doctors, I believe that we are in thesituation that we are in today.He was on pegasus for 7 weeks and everything went wrong, he startedto bloat and was in so much pain.We went to the doctor, who pulled him off the meds, said that it wastoo far gone and that he needs to have a liver transplant.I am wondering if anyone on the list has had to have a liver transplant.As you can guess the family is so shook up. I am leaving out a lot, don't want to bore anyone with the details. He spent the week in the hospital to have liquid removed from his abdomen and to stabalize him. He is home and we are trying to stabalize him at home with the regimen of meds that he has to take.Any thoughts out there???Thanks,N Kelli   12-17-87

[Guest guest]

well first off,, WELCOME! Im glad you found us altho Im not happy that your husband had hep c. Sounds like you have had a rough year! Its possible that your husbands disease might have progressed this far just on its own. What you can do is to learn as much as possible and to make sure he eats right, watch his protein as when a person reaches the stage that they are talking transplant, and IF his liver is decompensating, then he needs to watch to make sure he doesnt get a lot of protein as that will raise his ammonia and make for more problems. But good diet, lots of filtered water, exercise, and talk with your doc about any supplements or vitamins just to be safe. Milk Thistle is a good anti-inflammatory but since he is looking at TP, I dont know if that is safe for him. Im sure that lots of others will come along and give you their opinions,,, and remember, we are not doctors, just a group of ppl who want to help,, check everything out

with his doc,, jaxnoelanif <noelanif@...> wrote: Hi, I am new to this list and found this list by accident.My husband was diagnosed in 1993 with Hepatitis C and throughbad information and bad doctors, I believe that we are in thesituation that we are in today.He was on pegasus for 7 weeks and everything went wrong, he startedto bloat and was in so much pain.We went to the doctor, who pulled him off the meds, said that it wastoo far gone and that he needs to have a liver transplant.I am wondering if anyone on

the list has had to have a liver transplant.As you can guess the family is so shook up. I am leaving out a lot, don't want to bore anyone with the details. He spent the week in the hospital to have liquid removed from his abdomen and to stabalize him. He is home and we are trying to stabalize him at home with the regimen of meds that he has to take.Any thoughts out there???Thanks,NJackie

[Guest guest]

Lots of info here...

http://dreliaz.com//resources_inside.php?rid=1 & fid=1 & fkid=7

Bill Asenjo, PhD, CRCwww.billasenjo.combasenjo@...(P/F) 319-351-1528

Outside of a dog, a book is man's best friend. Inside of a dog, it's too dark to read Groucho Marx

Re: new to the list

well first off,, WELCOME! Im glad you found us altho Im not happy that your husband had hep c. Sounds like you have had a rough year! Its possible that your husbands disease might have progressed this far just on its own.

What you can do is to learn as much as possible and to make sure he eats right, watch his protein as when a person reaches the stage that they are talking transplant, and IF his liver is decompensating, then he needs to watch to make sure he doesnt get a lot of protein as that will raise his ammonia and make for more problems. But good diet, lots of filtered water, exercise, and talk with your doc about any supplements or vitamins just to be safe. Milk Thistle is a good anti-inflammatory but since he is looking at TP, I dont know if that is safe for him. Im sure that lots of others will come along and give you their opinions,,, and remember, we are not doctors, just a group of ppl who want to help,, check eve rything out with his doc,,

jaxnoelanif <noelanif@...> wrote:

Hi, I am new to this list and found this list by accident.My husband was diagnosed in 1993 with Hepatitis C and throughbad information and bad doctors, I believe that we are in thesituation that we are in today.He was on pegasus for 7 weeks and everything went wrong, he startedto bloat and was in so much pain.We went to the doctor, who pulled him off the meds, said that it wastoo far gone and that he needs to have a liver transplant.I am wondering if anyone on the list has had to have a liver transplant.As you can guess the family is so shook up. I am leaving out a lot, don't want to bore anyone with the details. He spent the week in the hospital to have liquid removed from his abdomen and to stabalize him. He is home and we are trying to stabalize him at home with the regimen of meds that he has to take.Any thoughts out there???Thanks,NJackie

[Guest guest]

I have a 35 year old son with Aspergers. I would be interested in what you are doing. There is insurance but how would this work with me living in Minnesota? rainysnana <rainysnana@...> wrote: I am new to the list, but not to AS. I have an 18 year old son whowas diagnosed 6 years ago. He now lives with my mother and is finallydoing better. We found that living with his siblings and all thechaos that goes on with 6 kids in the house was causing dailymeltdowns. He is living in relative peace and a lot of quiet!Recently I

started studying to be a Bioresonance Feedback Therapist.Long title, simple practice. I will go for my Certification inAugust. I started my son on the Bioresonance Feedback programson Monday and already am seeing a difference. He usually will fightus on doing things that he sees are important to him and not to us.I.E. following through on committments and arrangements we have allagreed on previously are not as important to him as doing somethingelse that has become important, like going to a friends home.(I knowthat is just kids, but it has been a serious issue with ) Thedifference I am seeing is that the combative element wasn't thereyesterday. He listened to what I had to say and didn't ague with me!So what I am wanting to do is to focus my practice on working with ASclients. After I have done this for a short while and can documentchanges ( hopefully all positive )I am wanting to apply for a

grantto further study the effects of the Bioresonance Feedback in thetreatment of AS. Insurance companies pay for Biofeedback therapy! Ifthis works as well as I'm hoping...what a relief and help for ourAspie kids, family and friends.I live in Ogden, UT and if anyone is willing to give it a try let meknow! Kernan __________________________________________________

[Guest guest]

I know many people who have had successful transplants .One of my friends just had her 8 yr transplant anniversary , and she is doing great . Did your husband have a biopsy ? Your husband doesn't have to give up on treatment yet , there are many more new medications he can try before he transplants ( like infergen, albuferon ,etc) , and he should always get a second opinion before making a big decision like transplanting . Oh and welcome to the group.

new to the list

Hi, I am new to this list and found this list by accident.My husband was diagnosed in 1993 with Hepatitis C and throughbad information and bad doctors, I believe that we are in thesituation that we are in today.He was on pegasus for 7 weeks and everything went wrong, he startedto bloat and was in so much pain.We went to the doctor, who pulled him off the meds, said that it wastoo far gone and that he needs to have a liver transplant.I am wondering if anyone on the list has had to have a liver transplant.As you can guess the family is so shook up. I am leaving out a lot, don't want to bore anyone with the details. He spent the week in the hospital to have liquid removed from his abdomen and to stabalize him. He is home and we are trying to stabalize him at home with the regimen of meds that he has to take.Any thoughts out there???Thanks,N

[Guest guest]

I know many people who have had successful transplants .One of my friends just had her 8 yr transplant anniversary , and she is doing great . Did your husband have a biopsy ? Your husband doesn't have to give up on treatment yet , there are many more new medications he can try before he transplants ( like infergen, albuferon ,etc) , and he should always get a second opinion before making a big decision like transplanting . Oh and welcome to the group.

new to the list

Hi, I am new to this list and found this list by accident.My husband was diagnosed in 1993 with Hepatitis C and throughbad information and bad doctors, I believe that we are in thesituation that we are in today.He was on pegasus for 7 weeks and everything went wrong, he startedto bloat and was in so much pain.We went to the doctor, who pulled him off the meds, said that it wastoo far gone and that he needs to have a liver transplant.I am wondering if anyone on the list has had to have a liver transplant.As you can guess the family is so shook up. I am leaving out a lot, don't want to bore anyone with the details. He spent the week in the hospital to have liquid removed from his abdomen and to stabalize him. He is home and we are trying to stabalize him at home with the regimen of meds that he has to take.Any thoughts out there???Thanks,N

[Guest guest]

Thanks Jackie for the information.

We are desperately trying to find out everything about liver

transplants and I must say that it seems as though it is who you know

that gets the ball rolling, so to speak, no one knows anything or no

one wants to help. We found someone who is a patient advocate but she

is 5 hours away from us and will try to help, but it doesn't look like

she can do too much because she is so far away. I am really thinking

that even though we have found these good doctors, we stand a better

chance of a transplant by going to her doctor up north.

Recently they had an article in the newspaper about liver transplants

and it was not saying much for the big cities, such as New York, Los

Angeles, San Francisco etc. They say that it is much easier to get a

liver transplant in smaller cities. Any thoughts on this, or has anyone

had to have a liver transplant? I think that most of this has to do

with mind over matter. My husband has a good day and everything goes

well then, for instance some one at the GI doctor's office talked to

him and told him today that his chances of getting a liver transplant

here in Los Angeles is slim to none, that sent him into a tail spin and

now I am left to pick up the pieces, woe is me, thanks for listening.

NoeLani

[Guest guest]

Thank you for your welcome to the list.

This was his second go around with the medication, he tried pegasus

this time by roche and the first time around he tried to do it solo,

did not want me or anyone in the family to know what was really going

on. The doctor gave him the medication, he had to inject 3 times a

week and gave him no therapy, no meds to cope with the depression, so

he has been through it.

The reason they pulled him off the meds this time was because his

abdomen started to collect fluid. They pulled him into the hospital

and removed 1 and 1/2 quarts of liquid, trouble was he was not

holding any nutrition in his body, I personally think that he was in

denial and didn't want to think about what was going on.

You talked about your friend who celebrated 8 yrs. where did she have

the transplant, if I might ask.

Seems like we are having a hard time getting in to the doctor who is

on the transplant team, we are working with UCLA and I hear it is

hard to get in because the list is so long.

I hear we should go to UC or some other out lying areas that do

liver transplants.

Does anyone have any thoughts on the matter???

Thanks in advance for any help you can give me.

NoeLani

[Guest guest]

Kelli,

Thank you for your information, it really helps, tell me where did you

go to find out all the information about the liver transplants?

I tried to find out information but didn't get very far. I am not that

literate on the computer, so if you wouldn't mind, letting me know....

Did your husband have to have a liver transplant?

Now we were told that UC is the area to go to because they for

some reason have a shorter list and more organ donations.

Thanks in advance for any information you might have

NoeLani

[Guest guest]

UC Sacramento is supposed to be good and last I heard the list moves faster. On Jun 13, 2006, at 11:22 PM, noelanif wrote:Thanks Jackie for the information.We are desperately trying to find out everything about liver transplants and I must say that it seems as though it is who you knowthat gets the ball rolling, so to speak, no one knows anything or no one wants to help. We found someone who is a patient advocate but she is 5 hours away from us and will try to help, but it doesn't look like she can do too much because she is so far away. I am really thinking that even though we have found these good doctors, we stand a better chance of a transplant by going to her doctor up north.Recently they had an article in the newspaper about liver transplants and it was not saying much for the big cities, such as New York, Los Angeles, San Francisco etc. They say that it is much easier to get a liver transplant in smaller cities. Any thoughts on this, or has anyone had to have a liver transplant? I think that most of this has to do with mind over matter. My husband has a good day and everything goes well then, for instance some one at the GI doctor's office talked to him and told him today that his chances of getting a liver transplant here in Los Angeles is slim to none, that sent him into a tail spin and now I am left to pick up the pieces, woe is me, thanks for listening.NoeLani Kelli   12-17-87

[Guest guest]

NoeLani, I posted the info about before I read this. There must be something to it though if we are both hearing it. I will dig around and find the ratings site and whatever else I can and get back to you asap.No, my husband is still on the list at Cal Pacific SF.  We have been involved with them as well as liver supportgroups for about five years now, so we see the results as well as hear about all the different facilities. We know a gal who was transplanted at UCLA and she is doing excellent, she just went back to work recently. UCSF is alsoshowing good results these days. Has he had an evaluation yet? KelliOn Jun 13, 2006, at 11:37 PM, noelanif wrote:Kelli,Thank you for your information, it really helps, tell me where did you go to find out all the information about the liver transplants?I tried to find out information but didn't get very far. I am not that literate on the computer, so if you wouldn't mind, letting me know....Did your husband have to have a liver transplant?Now we were told that UC is the area to go to because they for some reason have a shorter list and more organ donations.Thanks in advance for any information you might haveNoeLani

[Guest guest]

NoeLani, There is a lot of good information at: UNOS United Network for Organ Sharinghttp://www.unos.org/Here are the websites to the facilities mentioned:UCSFhttp://www.ucsfhealth.org/livertransplant/CA Pacific (SF)http://www.cpmc.org/advanced/liver/UC http://www.ucdmc.ucdavis.edu/transplant/I would contact them and ask what the wait time for an evaluation is. That will help you make a decision on where to go. Since you live in L.A. I would get him listed at a facility in So. CA as well as No. CA. Because they are in different regions it is perfectly acceptable to be listed at two.Once we did the evaluation, life got better. The meds he is on keep the amonia levels down which had been making him crazy. When a person is told they need a transplant they automatically think they are going to die, which makes everything worse. Seeing others who have been transplanted made a HUGE difference for us. We could actually see life beyond it all. Sometimes now when we go the facility for an appointment my husband makes it a point to go to the transplant unit and talk with others who have been transplanted. This shows him first hand that people do recover and keeps him out of the fear and terror.There are also good results these days with live donors. That's when someone agrees to give part of their liver to another.Although people will mention herbs and vitamins, once HCV goes into cirrhosis, it's a whole different ball game. For instance, I have HCV and still have wiggle room with alternative medicine, i.e. vitamins, herbs et. My husband on the other hand was taken off all of it. We were told that there isn't enough known by the Doctor's about herbs, so if there was an emergency, say a drug/herb interaction it could be dangerous. Best Thoughts, Kelli On Jun 13, 2006, at 11:37 PM, noelanif wrote:Kelli,Thank you for your information, it really helps, tell me where did you go to find out all the information about the liver transplants?I tried to find out information but didn't get very far. I am not that literate on the computer, so if you wouldn't mind, letting me know....Did your husband have to have a liver transplant?Now we were told that UC is the area to go to because they for some reason have a shorter list and more organ donations.Thanks in advance for any information you might haveNoeLani Kelli   12-17-87

[Guest guest]

Let me know IF you find out that UC is really shorter, I live close to UCD and actually I go there for my eyes.. Know others who need tp and might be able to suggest that if its truenoelanif <noelanif@...> wrote: Kelli,Thank you for your information, it really helps, tell me where did you go to find out all the information about the liver transplants?I tried to find out information but didn't get very far. I am not that literate on the computer, so if you wouldn't mind, letting me know....Did your husband have to have a liver

transplant?Now we were told that UC is the area to go to because they for some reason have a shorter list and more organ donations.Thanks in advance for any information you might haveNoeLaniJackie

[Guest guest]

Let me know IF you find out that UC is really shorter, I live close to UCD and actually I go there for my eyes.. Know others who need tp and might be able to suggest that if its truenoelanif <noelanif@...> wrote: Kelli,Thank you for your information, it really helps, tell me where did you go to find out all the information about the liver transplants?I tried to find out information but didn't get very far. I am not that literate on the computer, so if you wouldn't mind, letting me know....Did your husband have to have a liver

transplant?Now we were told that UC is the area to go to because they for some reason have a shorter list and more organ donations.Thanks in advance for any information you might haveNoeLaniJackie

[Guest guest]

My friend is there in California and had her transplant through UCLA back in 1997 , she still goes there for her follow up . If I decided to transplant that is where I will go . I am surprised to hear your husband wasnt on any antidepressants , it seems now days to be almost required while on treatment . Is your husband seeing a hepatologist or a gastroenterologist ?

Re: new to the list

Thank you for your welcome to the list.This was his second go around with the medication, he tried pegasus this time by roche and the first time around he tried to do it solo, did not want me or anyone in the family to know what was really going on. The doctor gave him the medication, he had to inject 3 times a week and gave him no therapy, no meds to cope with the depression, so he has been through it.The reason they pulled him off the meds this time was because his abdomen started to collect fluid. They pulled him into the hospital and removed 1 and 1/2 quarts of liquid, trouble was he was not holding any nutrition in his body, I personally think that he was in denial and didn't want to think about what was going on.You talked about your friend who celebrated 8 yrs. where did she have the transplant, if I might ask. Seems like we are having a hard time getting in to the doctor who is on the transplant team, we are working with UCLA and I hear it is hard to get in because the list is so long.I hear we should go to UC or some other out lying areas that do liver transplants.Does anyone have any thoughts on the matter???Thanks in advance for any help you can give me.NoeLani

[Guest guest]

,

We were just called today by the hepatologists office in UCLA to

schedule an appt. We waited for 3 weeks to hear from them.

Does your friend lead a " normal " life today?? I hate to be so nosey but

I am curious.

Everything is coming at me so fast, it is hard to think of anything

else.

Thanks for the information

N

[Guest guest]

Kelli,

We are still waiting for the appointment to get the evaluation at UCLA.

Have you been on the list for 5 years or is your husband still doing

good without the transplant.

I hope that it's alright to ask these questions, I am trying to

understand this whole ordeal. There is so much to learn and I am

thankful for your help.

NoeLani

[Guest guest]

She sure does , she even makes it out here to Las Vegas once a year . She runs a transplant forum on delphi . There is nothing that woman couldnt do ! lol

Re: new to the list

,We were just called today by the hepatologists office in UCLA to schedule an appt. We waited for 3 weeks to hear from them.Does your friend lead a "normal" life today?? I hate to be so nosey but I am curious.Everything is coming at me so fast, it is hard to think of anything else.Thanks for the informationN

[Guest guest]

Hi Ulla

am a single mom living in Denmark with my 2 ASD kids.We have done diet and biomeds since year 2000 and I am also a member of chelatingkids2.I have some questions:Where do you guys buy the TD-LDN ??

>>I get mine through the Breakspear now and that comes via College Pharmacy in the USA. I know a source of the tablets with which you can make your own 'LD' out of the 'N' which is what we did for Sam initially. That is by far the cheapest way to get it.

Dr De Mio will do distance stuff and he works with Lee Silsby and then will send anything anywhere for patients of his - according to them at Autism One

What about detoxamin - any alternatives as this is a very expensive product - isnt it ??

>>>I know a very reduced price source of original Detoximin - let me know if you want that info

Are there any doctors in Europe doing IV´s on autistic children ?

>>Not in the UK

How many DAN - docs are there in UK ??

>>5, but one does not do DAN! but he doesn't agree with it (!!!), 2 run waiting lists, the new clinic in Scotland has not long opened so is still taking new patients and one is London who costs more than the others and is grumpy sort LOLI am having a DAN doctor here in Denmark, but she is not very interested in chelation, which is our main focus.

>>We did chelation with no DAN! at all 4 years. Why do you want to do IV's?

Are you still doing the TD-EDTA? Have you looked into NCD?

Several here are trying or about to try the Norweigan EDTA - would you consider writing a bit about how you discovered this and what you saw with it for the folks on this side of the pond?

Thanks Ulla - glad to have you here

Mandi x

[Guest guest]

>

> Hi

>

> I am a single mom living in Denmark with my 2 ASD kids.

> We have done diet and biomeds since year 2000 and I am also a

member of

> chelatingkids2.

> I have some questions:

>

> Where do you guys buy the TD-LDN ??

> What about detoxamin - any alternatives as this is a very

expensive

> product - isnt it ??

> Are there any doctors in Europe doing IV´s on autistic children ?

> How many DAN - docs are there in UK ??

>

> I am having a DAN doctor here in Denmark, but she is not very

> interested in chelation, which is our main focus.

>

> Ulla Denmark

>

Hello Ulla, I am also new to the list, and the whole world of

chelation. Have 6 yr old with autism and chronic speech delay. I

am living in netherlands close to German border, and although I cant

find a DAN Dr in Netherlands or Belgium, there is one in Germany who

is fully trained, been to all conferences/seminars etc. I found her

through Generationrescue.org==>what to do==>find a doctor....from

there it lists Drs per country. Her details/what is available from

her is on there and she is doing chelation. I tracked that if you

live in the area of Copenhagen it would take c 7 hrs by car (if you

dont want to fly with the children) though such a journey is also no

easy thing with kids - however she might be an option. In total

desperation for help with the chelation(too afraid to go it alone) I

am trying to get to see her over the summer holidays(Aug) and will

kepp you posted via this site. All the best to you and yours, C

[Guest guest]

Hi

Are you talking about Dr. Frau Esser ?? I know her and she is good. She has worked with Dr. Shaw (from Great plains Laboratory). And yes she is on my mind as a possibility. I just wanted to know if anybody of the DANs here in Europe are already doing IV chelation as my children are already so big. I know that Dr. Esser is wanting to learn IV for autistic children, but she still has not had the training by a doctor in US.

Further more she is married to Herr Esser, who is an Pharmacist living in the netherlands and who has www.cenaverde.com , where you can buy supps and get chelating agents like TD.Dmps.

But thank you anyway - I will check the list you are talking about too - and good luck with starting the chelation - how old is your child ??

Ulla Denmark

Re: New to the list

>> Hi> > I am a single mom living in Denmark with my 2 ASD kids.> We have done diet and biomeds since year 2000 and I am also a member of > chelatingkids2.> I have some questions:> > Where do you guys buy the TD-LDN ??> What about detoxamin - any alternatives as this is a very expensive > product - isnt it ??> Are there any doctors in Europe doing IV´s on autistic children ?> How many DAN - docs are there in UK ??> > I am having a DAN doctor here in Denmark, but she is not very > interested in chelation, which is our main focus.> > Ulla Denmark>Hello Ulla, I am also new to the list, and the whole world of chelation. Have 6 yr old with autism and chronic speech delay. I am living in netherlands close to German border, and although I cant find a DAN Dr in Netherlands or Belgium, there is one in Germany who is fully trained, been to all conferences/seminars etc. I found her through Generationrescue.org==>what to do==>find a doctor....from there it lists Drs per country. Her details/what is available from her is on there and she is doing chelation. I tracked that if you live in the area of Copenhagen it would take c 7 hrs by car (if you dont want to fly with the children) though such a journey is also no easy thing with kids - however she might be an option. In total desperation for help with the chelation(too afraid to go it alone) I am trying to get to see her over the summer holidays(Aug) and will kepp you posted via this site. All the best to you and yours, C