Guest guest Posted May 1, 2002 Report Share Posted May 1, 2002 Hi Sandi, glad your son seems to be feeling a little better. Is it possible his body just needs more time to adjust to the Zoloft? Where you wrote in another post that some of your son's earlier behaviors : checking numbers on the clock and microwave, and turning light switches on and off many times. - This reminds me of my 13 y/o son, . There is SOMETHING about clocks. In one room he looks back and forth between the 2 clocks a few times before he can, say, get on the bed. And I've noticed him in other rooms sort of staring at them. And the light switches going on/off/on/off - same with his Game Boy or a TV or, and this hurts, the computer! But he's been better about this maybe the past couple months, seems to have eased up and I haven't seen him repeating. I wish I had some advice regarding school. I have an 11th grader and know how tough high school can be. I dread it with and hope he's more in control of himself/OCD by that time. By the way, I agree about dropping that doc, hope you can find someone understanding and knowledgeable about OCD. I saw where suggested you email Louis H., I'm sure you'll find someone in your area! Keep us posted and feel free to vent ANYTIME. This group is my best support! > > > Hello, > > > I am new member to this group. My son was recently went on > > medication for > > > OCD--Zoloft. He is really struggling right now and is no longer > > feels able > > > to go to school. Hello everyone, I will try to keep this as brief > > as > > > possible, but I'm an > > > emotional wreck and need your support. I have a 16 y.o. son with > > OCD. He > > > was diagnosed with mild OCD at a very early age (8-9). His > > compulsive > > > behaviors at that time were common including frequent hand washing, > > germ > > > phobia, checking whether the doors were locked, checking numbers > > on the > > > clock and microwave, and turning light switches on and off many > > times. > > > While he did have all these symptoms, he did not do them to extent > > that his > > > pediatrician felt he needed meds. His pediatrician gave him some > > behavioral > > > techniques to use to help control his OCD, and he was able to stop > > and/or > > > control many of these behaviors to the point that I felt he'd made > > a huge > > > step in controlling his OCD. During the middle school years, my > > son began > > > developing other symptoms mainly related to his appearance. He > > never looks > > > good enough, his hair and clothes have to be perfect, he hates his > > face, > > > teeth, body- size.....I mean, you name it, and he hates it about > > himself. > > > He's actually very handsome, but he doesn't think so. He's thinner > > than his > > > younger brother, and that bothers him too. Since the beginning of > > high > > > school, he has been chronically late or absent from school, but was > > always > > > able to recover missed school assignments and pass with mostly B's > > and the > > > occasional C. This has become more chronic since 10th grade (which > > he is in > > > now) that it is now affecting his grades. > > > > > > He saw a psychiatrist about a month ago and he fussed at me for not > > bringing > > > him sooner. They have put him on Zoloft, and he seemed to do > > better with no > > > absences for 2 weeks--then spring break came and the bottom fell > > out. Over > > > the last two weeks, he has only gone to school 3 days. His doctor > > is out of > > > town until May 1st, and I don't know what to do. He just sleeps > > all day and > > > complains of headaches and general malaise. His doctor told me to > > be his > > > support. If he didn't want to go that day or if he need to go in > > late than > > > I was simply relax about and not get upset....I was to support and > > comfort. > > > > > > My son doesn't feel like the medication (Zoloft 50 mg.) is working > > and his > > > doctor isn't available until next week to offer him any > > counseling. He just > > > stays in bed until the school day is over, to exhausted to get up > > to eat, > > > brush his teeth, etc. I bring him his food. He's such a sweet > > boy, kind > > > and loving, and genuinely sorry for all that's > > > happening. I know there's no magic wand I can wave, I just need to > > vent to > > > those that will understand. This has got me feeling so worried. > > > > > > The doctor returned from his vacation and called yesterday and > > wants me to > > > increase his meds from 50 to 75mg. over the next 3 days; then to > > 100 mg. > > > after that and to call him back on Monday. If the doctors on this > > list feel > > > this is increasing his med too rapidly, please tell me. My son saw > > this > > > doctor once before the doctor left on an extended vacation. I > > personally > > > did not care for the doctor's attitude during our phone > > conversation. He > > > was rude and arrogant. He said if he staying in his room all day > > and can't > > > pull it together (as he put it), I should tell him the doctor > > thinks he > > > should go into the hospital! Hospitalization, to me, seems like it > > should > > > be a last resort...but I don't know maybe I'm wrong. His harsh > > attitude > > > about this rubbed me the wrong way. Well, I shed a few tears > > during our > > > conversation and expressed how concerned I was for him. I > > said, " He's my > > > baby. " His response: " He's not your baby! " To which I > > responded, " Well, > > > you know what I mean...my kids will always be my babies. " He > > replied, " He's > > > not your baby...And you're part of the problem! " " Look, just > > increase his > > > medication like I said and call me Monday. " I just said, " Okay, " > > and hung > > > up. This really burned me up. This man doesn't know me. He > > doesn't know > > > my strengths but certainly assumed my weaknesses. Geez, I don't > > express my > > > worries and tears in front my son. I'm in the process of finding > > another > > > doctor in the Atlanta area. Your comments and support are > > appreciated. > > > > > > p.s. I did some research on the computer and read about BDD. The > > > psychiatrist he saw never mention this condition to us. It sounds > > like he > > > may be suffering from this as well. > > > > > > Thanks for listening, > > > Sandi - Atlanta, GA > > > > > > > > Archive URL: http://groups.yahoo.com/group// . > > Our list advisors are Tamar Chansky, Ph.D., Aureen Pinto Wagner, Ph.D., > and Dan Geller, M.D. Our list moderators are Birkhan, Chris Castle, > Kathy Hammes, Joye, Kathy Mac, Jule Monnens, Gail Pesses, Kathy > , Vivian Stembridge, and Jackie Stout. Subscription issues or > suggestions may be addressed to Louis Harkins, list owner, at > louisharkins@y... or louisharkins@h... . > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2002 Report Share Posted May 1, 2002 Hi Sandi, glad your son seems to be feeling a little better. Is it possible his body just needs more time to adjust to the Zoloft? Where you wrote in another post that some of your son's earlier behaviors : checking numbers on the clock and microwave, and turning light switches on and off many times. - This reminds me of my 13 y/o son, . There is SOMETHING about clocks. In one room he looks back and forth between the 2 clocks a few times before he can, say, get on the bed. And I've noticed him in other rooms sort of staring at them. And the light switches going on/off/on/off - same with his Game Boy or a TV or, and this hurts, the computer! But he's been better about this maybe the past couple months, seems to have eased up and I haven't seen him repeating. I wish I had some advice regarding school. I have an 11th grader and know how tough high school can be. I dread it with and hope he's more in control of himself/OCD by that time. By the way, I agree about dropping that doc, hope you can find someone understanding and knowledgeable about OCD. I saw where suggested you email Louis H., I'm sure you'll find someone in your area! Keep us posted and feel free to vent ANYTIME. This group is my best support! > > > Hello, > > > I am new member to this group. My son was recently went on > > medication for > > > OCD--Zoloft. He is really struggling right now and is no longer > > feels able > > > to go to school. Hello everyone, I will try to keep this as brief > > as > > > possible, but I'm an > > > emotional wreck and need your support. I have a 16 y.o. son with > > OCD. He > > > was diagnosed with mild OCD at a very early age (8-9). His > > compulsive > > > behaviors at that time were common including frequent hand washing, > > germ > > > phobia, checking whether the doors were locked, checking numbers > > on the > > > clock and microwave, and turning light switches on and off many > > times. > > > While he did have all these symptoms, he did not do them to extent > > that his > > > pediatrician felt he needed meds. His pediatrician gave him some > > behavioral > > > techniques to use to help control his OCD, and he was able to stop > > and/or > > > control many of these behaviors to the point that I felt he'd made > > a huge > > > step in controlling his OCD. During the middle school years, my > > son began > > > developing other symptoms mainly related to his appearance. He > > never looks > > > good enough, his hair and clothes have to be perfect, he hates his > > face, > > > teeth, body- size.....I mean, you name it, and he hates it about > > himself. > > > He's actually very handsome, but he doesn't think so. He's thinner > > than his > > > younger brother, and that bothers him too. Since the beginning of > > high > > > school, he has been chronically late or absent from school, but was > > always > > > able to recover missed school assignments and pass with mostly B's > > and the > > > occasional C. This has become more chronic since 10th grade (which > > he is in > > > now) that it is now affecting his grades. > > > > > > He saw a psychiatrist about a month ago and he fussed at me for not > > bringing > > > him sooner. They have put him on Zoloft, and he seemed to do > > better with no > > > absences for 2 weeks--then spring break came and the bottom fell > > out. Over > > > the last two weeks, he has only gone to school 3 days. His doctor > > is out of > > > town until May 1st, and I don't know what to do. He just sleeps > > all day and > > > complains of headaches and general malaise. His doctor told me to > > be his > > > support. If he didn't want to go that day or if he need to go in > > late than > > > I was simply relax about and not get upset....I was to support and > > comfort. > > > > > > My son doesn't feel like the medication (Zoloft 50 mg.) is working > > and his > > > doctor isn't available until next week to offer him any > > counseling. He just > > > stays in bed until the school day is over, to exhausted to get up > > to eat, > > > brush his teeth, etc. I bring him his food. He's such a sweet > > boy, kind > > > and loving, and genuinely sorry for all that's > > > happening. I know there's no magic wand I can wave, I just need to > > vent to > > > those that will understand. This has got me feeling so worried. > > > > > > The doctor returned from his vacation and called yesterday and > > wants me to > > > increase his meds from 50 to 75mg. over the next 3 days; then to > > 100 mg. > > > after that and to call him back on Monday. If the doctors on this > > list feel > > > this is increasing his med too rapidly, please tell me. My son saw > > this > > > doctor once before the doctor left on an extended vacation. I > > personally > > > did not care for the doctor's attitude during our phone > > conversation. He > > > was rude and arrogant. He said if he staying in his room all day > > and can't > > > pull it together (as he put it), I should tell him the doctor > > thinks he > > > should go into the hospital! Hospitalization, to me, seems like it > > should > > > be a last resort...but I don't know maybe I'm wrong. His harsh > > attitude > > > about this rubbed me the wrong way. Well, I shed a few tears > > during our > > > conversation and expressed how concerned I was for him. I > > said, " He's my > > > baby. " His response: " He's not your baby! " To which I > > responded, " Well, > > > you know what I mean...my kids will always be my babies. " He > > replied, " He's > > > not your baby...And you're part of the problem! " " Look, just > > increase his > > > medication like I said and call me Monday. " I just said, " Okay, " > > and hung > > > up. This really burned me up. This man doesn't know me. He > > doesn't know > > > my strengths but certainly assumed my weaknesses. Geez, I don't > > express my > > > worries and tears in front my son. I'm in the process of finding > > another > > > doctor in the Atlanta area. Your comments and support are > > appreciated. > > > > > > p.s. I did some research on the computer and read about BDD. The > > > psychiatrist he saw never mention this condition to us. It sounds > > like he > > > may be suffering from this as well. > > > > > > Thanks for listening, > > > Sandi - Atlanta, GA > > > > > > > > Archive URL: http://groups.yahoo.com/group// . > > Our list advisors are Tamar Chansky, Ph.D., Aureen Pinto Wagner, Ph.D., > and Dan Geller, M.D. Our list moderators are Birkhan, Chris Castle, > Kathy Hammes, Joye, Kathy Mac, Jule Monnens, Gail Pesses, Kathy > , Vivian Stembridge, and Jackie Stout. Subscription issues or > suggestions may be addressed to Louis Harkins, list owner, at > louisharkins@y... or louisharkins@h... . > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2002 Report Share Posted May 1, 2002 Hi Sandi, glad your son seems to be feeling a little better. Is it possible his body just needs more time to adjust to the Zoloft? Where you wrote in another post that some of your son's earlier behaviors : checking numbers on the clock and microwave, and turning light switches on and off many times. - This reminds me of my 13 y/o son, . There is SOMETHING about clocks. In one room he looks back and forth between the 2 clocks a few times before he can, say, get on the bed. And I've noticed him in other rooms sort of staring at them. And the light switches going on/off/on/off - same with his Game Boy or a TV or, and this hurts, the computer! But he's been better about this maybe the past couple months, seems to have eased up and I haven't seen him repeating. I wish I had some advice regarding school. I have an 11th grader and know how tough high school can be. I dread it with and hope he's more in control of himself/OCD by that time. By the way, I agree about dropping that doc, hope you can find someone understanding and knowledgeable about OCD. I saw where suggested you email Louis H., I'm sure you'll find someone in your area! Keep us posted and feel free to vent ANYTIME. This group is my best support! > > > Hello, > > > I am new member to this group. My son was recently went on > > medication for > > > OCD--Zoloft. He is really struggling right now and is no longer > > feels able > > > to go to school. Hello everyone, I will try to keep this as brief > > as > > > possible, but I'm an > > > emotional wreck and need your support. I have a 16 y.o. son with > > OCD. He > > > was diagnosed with mild OCD at a very early age (8-9). His > > compulsive > > > behaviors at that time were common including frequent hand washing, > > germ > > > phobia, checking whether the doors were locked, checking numbers > > on the > > > clock and microwave, and turning light switches on and off many > > times. > > > While he did have all these symptoms, he did not do them to extent > > that his > > > pediatrician felt he needed meds. His pediatrician gave him some > > behavioral > > > techniques to use to help control his OCD, and he was able to stop > > and/or > > > control many of these behaviors to the point that I felt he'd made > > a huge > > > step in controlling his OCD. During the middle school years, my > > son began > > > developing other symptoms mainly related to his appearance. He > > never looks > > > good enough, his hair and clothes have to be perfect, he hates his > > face, > > > teeth, body- size.....I mean, you name it, and he hates it about > > himself. > > > He's actually very handsome, but he doesn't think so. He's thinner > > than his > > > younger brother, and that bothers him too. Since the beginning of > > high > > > school, he has been chronically late or absent from school, but was > > always > > > able to recover missed school assignments and pass with mostly B's > > and the > > > occasional C. This has become more chronic since 10th grade (which > > he is in > > > now) that it is now affecting his grades. > > > > > > He saw a psychiatrist about a month ago and he fussed at me for not > > bringing > > > him sooner. They have put him on Zoloft, and he seemed to do > > better with no > > > absences for 2 weeks--then spring break came and the bottom fell > > out. Over > > > the last two weeks, he has only gone to school 3 days. His doctor > > is out of > > > town until May 1st, and I don't know what to do. He just sleeps > > all day and > > > complains of headaches and general malaise. His doctor told me to > > be his > > > support. If he didn't want to go that day or if he need to go in > > late than > > > I was simply relax about and not get upset....I was to support and > > comfort. > > > > > > My son doesn't feel like the medication (Zoloft 50 mg.) is working > > and his > > > doctor isn't available until next week to offer him any > > counseling. He just > > > stays in bed until the school day is over, to exhausted to get up > > to eat, > > > brush his teeth, etc. I bring him his food. He's such a sweet > > boy, kind > > > and loving, and genuinely sorry for all that's > > > happening. I know there's no magic wand I can wave, I just need to > > vent to > > > those that will understand. This has got me feeling so worried. > > > > > > The doctor returned from his vacation and called yesterday and > > wants me to > > > increase his meds from 50 to 75mg. over the next 3 days; then to > > 100 mg. > > > after that and to call him back on Monday. If the doctors on this > > list feel > > > this is increasing his med too rapidly, please tell me. My son saw > > this > > > doctor once before the doctor left on an extended vacation. I > > personally > > > did not care for the doctor's attitude during our phone > > conversation. He > > > was rude and arrogant. He said if he staying in his room all day > > and can't > > > pull it together (as he put it), I should tell him the doctor > > thinks he > > > should go into the hospital! Hospitalization, to me, seems like it > > should > > > be a last resort...but I don't know maybe I'm wrong. His harsh > > attitude > > > about this rubbed me the wrong way. Well, I shed a few tears > > during our > > > conversation and expressed how concerned I was for him. I > > said, " He's my > > > baby. " His response: " He's not your baby! " To which I > > responded, " Well, > > > you know what I mean...my kids will always be my babies. " He > > replied, " He's > > > not your baby...And you're part of the problem! " " Look, just > > increase his > > > medication like I said and call me Monday. " I just said, " Okay, " > > and hung > > > up. This really burned me up. This man doesn't know me. He > > doesn't know > > > my strengths but certainly assumed my weaknesses. Geez, I don't > > express my > > > worries and tears in front my son. I'm in the process of finding > > another > > > doctor in the Atlanta area. Your comments and support are > > appreciated. > > > > > > p.s. I did some research on the computer and read about BDD. The > > > psychiatrist he saw never mention this condition to us. It sounds > > like he > > > may be suffering from this as well. > > > > > > Thanks for listening, > > > Sandi - Atlanta, GA > > > > > > > > Archive URL: http://groups.yahoo.com/group// . > > Our list advisors are Tamar Chansky, Ph.D., Aureen Pinto Wagner, Ph.D., > and Dan Geller, M.D. Our list moderators are Birkhan, Chris Castle, > Kathy Hammes, Joye, Kathy Mac, Jule Monnens, Gail Pesses, Kathy > , Vivian Stembridge, and Jackie Stout. Subscription issues or > suggestions may be addressed to Louis Harkins, list owner, at > louisharkins@y... or louisharkins@h... . > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2002 Report Share Posted May 2, 2002 Hi Sandi, well you certainly have *my* permission to ditch this doc :-) after of course you find another with a civil attitude and who is current with OCD treatment. Fill whatever prescriptions you have from this guy, to tide you over until you can get your son in to see another psychiatrist, sometimes this can take a couple of months. BTW, the idea that Mom can cause OCD or any other brain disorder was disproved some time ago... :-) Reading your post about your son's recent problems and behavior, I thought about depression which is a common comorbid problem with OCD. Your son's Zoloft dose is pretty low and both OCD and any depression he may be suffering may improve with an increased dose. I am not a doctor, but I think you are spot on about BDD, which many docs believe either is just another flavor of OCD, or is in the same spectrum. It is also treated with SSRIs and/or Cognitive Behavior Therapy as OCD is. (((Hugs))) You and your son will get through this hard time, keep us updated, Kathy R. in Indiana ----- Original Message ----- From: Sandi I am new member to this group. My son was recently went on medication for OCD--Zoloft. He is really struggling right now and is no longer feels able to go to school. Hello everyone, I will try to keep this as brief as possible, but I'm an emotional wreck and need your support. I have a 16 y.o. son with OCD. He was diagnosed with mild OCD at a very early age (8-9). His compulsive behaviors at that time were common including frequent hand washing, germ phobia, checking whether the doors were locked, checking numbers on the clock and microwave, and turning light switches on and off many times. While he did have all these symptoms, he did not do them to extent that his pediatrician felt he needed meds. His pediatrician gave him some behavioral techniques to use to help control his OCD, and he was able to stop and/or control many of these behaviors to the point that I felt he'd made a huge step in controlling his OCD. During the middle school years, my son began developing other symptoms mainly related to his appearance. He never looks good enough, his hair and clothes have to be perfect, he hates his face, teeth, body- size.....I mean, you name it, and he hates it about himself. He's actually very handsome, but he doesn't think so. He's thinner than his younger brother, and that bothers him too. Since the beginning of high school, he has been chronically late or absent from school, but was always able to recover missed school assignments and pass with mostly B's and the occasional C. This has become more chronic since 10th grade (which he is in now) that it is now affecting his grades. He saw a psychiatrist about a month ago and he fussed at me for not bringing him sooner. They have put him on Zoloft, and he seemed to do better with no absences for 2 weeks--then spring break came and the bottom fell out. Over the last two weeks, he has only gone to school 3 days. His doctor is out of town until May 1st, and I don't know what to do. He just sleeps all day and complains of headaches and general malaise. His doctor told me to be his support. If he didn't want to go that day or if he need to go in late than I was simply relax about and not get upset....I was to support and comfort. My son doesn't feel like the medication (Zoloft 50 mg.) is working and his doctor isn't available until next week to offer him any counseling. He just stays in bed until the school day is over, to exhausted to get up to eat, brush his teeth, etc. I bring him his food. He's such a sweet boy, kind and loving, and genuinely sorry for all that's happening. I know there's no magic wand I can wave, I just need to vent to those that will understand. This has got me feeling so worried. The doctor returned from his vacation and called yesterday and wants me to increase his meds from 50 to 75mg. over the next 3 days; then to 100 mg. after that and to call him back on Monday. If the doctors on this list feel this is increasing his med too rapidly, please tell me. My son saw this doctor once before the doctor left on an extended vacation. I personally did not care for the doctor's attitude during our phone conversation. He was rude and arrogant. He said if he staying in his room all day and can't pull it together (as he put it), I should tell him the doctor thinks he should go into the hospital! Hospitalization, to me, seems like it should be a last resort...but I don't know maybe I'm wrong. His harsh attitude about this rubbed me the wrong way. Well, I shed a few tears during our conversation and expressed how concerned I was for him. I said, " He's my baby. " His response: " He's not your baby! " To which I responded, " Well, you know what I mean...my kids will always be my babies. " He replied, " He's not your baby...And you're part of the problem! " " Look, just increase his medication like I said and call me Monday. " I just said, " Okay, " and hung up. This really burned me up. This man doesn't know me. He doesn't know my strengths but certainly assumed my weaknesses. Geez, I don't express my worries and tears in front my son. I'm in the process of finding another doctor in the Atlanta area. Your comments and support are appreciated. p.s. I did some research on the computer and read about BDD. The psychiatrist he saw never mention this condition to us. It sounds like he may be suffering from this as well. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2002 Report Share Posted May 2, 2002 Thank you Kathy and Everyone I haven't replied to-- I appreciate all the kind words of encouragement and support. This is a great bunch and I'm so glad Louis Harkins directed me here. Thanks ! My son is on the last of his 3 day increase to 75mg., and I will be increasing the meds to 100 mg. tomorrow. He had one evening with a minor display of his 'ole self, but since then, he's back to being an introvert--not talking much. He describes the feeling from the medication as being muddle headed, like he can't think straight, and complains of extreme fatigue. I am still concerned these are side effects and not transient effects of the meds. The one positive thing I can report is his appetite has improved. Over the last two weeks, nothing sounded good to him and with him sleeping most of the day away; he has lost weight. This is something that may complicate his BDD as he doesn't like his thin frame. He's about 5' 9 " and is down to 125lbs. I think I have located a psychologist. He was so nice to speak with today. He also suggested a psychiatrist. So I'm on the way. The only stinker is they're not on my insurance which means my benefits will be reduce and I may have a separate deductible to meet. I don't know what to do about that. I really want to get my son in with someone that specializes in OCD. I'm sure we'll work it out. Since my son basically stopped going to school the last 3 weeks, it appears he'll be going to summer school in order to complete the 10 grade. The counselor has been wonderful, but my son is worried about what the kids will say and think if and when he finally returns. Here's a *HUG* for all of you, Sandi > Hi Sandi, well you certainly have *my* permission to ditch this doc :-) after of course you find another with a civil attitude and who is current with OCD treatment. Fill whatever prescriptions you have from this guy, to tide you over until you can get your son in to see another psychiatrist, sometimes this can take a couple of months. BTW, the idea that Mom can cause OCD or any other brain disorder was disproved some time ago... :-) > > Reading your post about your son's recent problems and behavior, I thought about depression which is a common comorbid problem with OCD. Your son's Zoloft dose is pretty low and both OCD and any depression he may be suffering may improve with an increased dose. > > I am not a doctor, but I think you are spot on about BDD, which many docs believe either is just another flavor of OCD, or is in the same spectrum. It is also treated with SSRIs and/or Cognitive Behavior Therapy as OCD is. > > (((Hugs))) You and your son will get through this hard time, keep us updated, > > Kathy R. in Indiana > > ----- Original Message ----- > From: Sandi > > I am new member to this group. My son was recently went on medication for > OCD--Zoloft. He is really struggling right now and is no longer feels able > to go to school. Hello everyone, I will try to keep this as brief as > possible, but I'm an > emotional wreck and need your support. I have a 16 y.o. son with OCD. He > was diagnosed with mild OCD at a very early age (8-9). His compulsive > behaviors at that time were common including frequent hand washing, germ > phobia, checking whether the doors were locked, checking numbers on the > clock and microwave, and turning light switches on and off many times. > While he did have all these symptoms, he did not do them to extent that his > pediatrician felt he needed meds. His pediatrician gave him some behavioral > techniques to use to help control his OCD, and he was able to stop and/or > control many of these behaviors to the point that I felt he'd made a huge > step in controlling his OCD. During the middle school years, my son began > developing other symptoms mainly related to his appearance. He never looks > good enough, his hair and clothes have to be perfect, he hates his face, > teeth, body- size.....I mean, you name it, and he hates it about himself. > He's actually very handsome, but he doesn't think so. He's thinner than his > younger brother, and that bothers him too. Since the beginning of high > school, he has been chronically late or absent from school, but was always > able to recover missed school assignments and pass with mostly B's and the > occasional C. This has become more chronic since 10th grade (which he is in > now) that it is now affecting his grades. > > He saw a psychiatrist about a month ago and he fussed at me for not bringing > him sooner. They have put him on Zoloft, and he seemed to do better with no > absences for 2 weeks--then spring break came and the bottom fell out. Over > the last two weeks, he has only gone to school 3 days. His doctor is out of > town until May 1st, and I don't know what to do. He just sleeps all day and > complains of headaches and general malaise. His doctor told me to be his > support. If he didn't want to go that day or if he need to go in late than > I was simply relax about and not get upset....I was to support and comfort. > > My son doesn't feel like the medication (Zoloft 50 mg.) is working and his > doctor isn't available until next week to offer him any counseling. He just > stays in bed until the school day is over, to exhausted to get up to eat, > brush his teeth, etc. I bring him his food. He's such a sweet boy, kind > and loving, and genuinely sorry for all that's > happening. I know there's no magic wand I can wave, I just need to vent to > those that will understand. This has got me feeling so worried. > > The doctor returned from his vacation and called yesterday and wants me to > increase his meds from 50 to 75mg. over the next 3 days; then to 100 mg. > after that and to call him back on Monday. If the doctors on this list feel > this is increasing his med too rapidly, please tell me. My son saw this > doctor once before the doctor left on an extended vacation. I personally > did not care for the doctor's attitude during our phone conversation. He > was rude and arrogant. He said if he staying in his room all day and can't > pull it together (as he put it), I should tell him the doctor thinks he > should go into the hospital! Hospitalization, to me, seems like it should > be a last resort...but I don't know maybe I'm wrong. His harsh attitude > about this rubbed me the wrong way. Well, I shed a few tears during our > conversation and expressed how concerned I was for him. I said, " He's my > baby. " His response: " He's not your baby! " To which I responded, " Well, > you know what I mean...my kids will always be my babies. " He replied, " He's > not your baby...And you're part of the problem! " " Look, just increase his > medication like I said and call me Monday. " I just said, " Okay, " and hung > up. This really burned me up. This man doesn't know me. He doesn't know > my strengths but certainly assumed my weaknesses. Geez, I don't express my > worries and tears in front my son. I'm in the process of finding another > doctor in the Atlanta area. Your comments and support are appreciated. > > p.s. I did some research on the computer and read about BDD. The > psychiatrist he saw never mention this condition to us. It sounds like he > may be suffering from this as well. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2002 Report Share Posted May 2, 2002 Thank you Kathy and Everyone I haven't replied to-- I appreciate all the kind words of encouragement and support. This is a great bunch and I'm so glad Louis Harkins directed me here. Thanks ! My son is on the last of his 3 day increase to 75mg., and I will be increasing the meds to 100 mg. tomorrow. He had one evening with a minor display of his 'ole self, but since then, he's back to being an introvert--not talking much. He describes the feeling from the medication as being muddle headed, like he can't think straight, and complains of extreme fatigue. I am still concerned these are side effects and not transient effects of the meds. The one positive thing I can report is his appetite has improved. Over the last two weeks, nothing sounded good to him and with him sleeping most of the day away; he has lost weight. This is something that may complicate his BDD as he doesn't like his thin frame. He's about 5' 9 " and is down to 125lbs. I think I have located a psychologist. He was so nice to speak with today. He also suggested a psychiatrist. So I'm on the way. The only stinker is they're not on my insurance which means my benefits will be reduce and I may have a separate deductible to meet. I don't know what to do about that. I really want to get my son in with someone that specializes in OCD. I'm sure we'll work it out. Since my son basically stopped going to school the last 3 weeks, it appears he'll be going to summer school in order to complete the 10 grade. The counselor has been wonderful, but my son is worried about what the kids will say and think if and when he finally returns. Here's a *HUG* for all of you, Sandi > Hi Sandi, well you certainly have *my* permission to ditch this doc :-) after of course you find another with a civil attitude and who is current with OCD treatment. Fill whatever prescriptions you have from this guy, to tide you over until you can get your son in to see another psychiatrist, sometimes this can take a couple of months. BTW, the idea that Mom can cause OCD or any other brain disorder was disproved some time ago... :-) > > Reading your post about your son's recent problems and behavior, I thought about depression which is a common comorbid problem with OCD. Your son's Zoloft dose is pretty low and both OCD and any depression he may be suffering may improve with an increased dose. > > I am not a doctor, but I think you are spot on about BDD, which many docs believe either is just another flavor of OCD, or is in the same spectrum. It is also treated with SSRIs and/or Cognitive Behavior Therapy as OCD is. > > (((Hugs))) You and your son will get through this hard time, keep us updated, > > Kathy R. in Indiana > > ----- Original Message ----- > From: Sandi > > I am new member to this group. My son was recently went on medication for > OCD--Zoloft. He is really struggling right now and is no longer feels able > to go to school. Hello everyone, I will try to keep this as brief as > possible, but I'm an > emotional wreck and need your support. I have a 16 y.o. son with OCD. He > was diagnosed with mild OCD at a very early age (8-9). His compulsive > behaviors at that time were common including frequent hand washing, germ > phobia, checking whether the doors were locked, checking numbers on the > clock and microwave, and turning light switches on and off many times. > While he did have all these symptoms, he did not do them to extent that his > pediatrician felt he needed meds. His pediatrician gave him some behavioral > techniques to use to help control his OCD, and he was able to stop and/or > control many of these behaviors to the point that I felt he'd made a huge > step in controlling his OCD. During the middle school years, my son began > developing other symptoms mainly related to his appearance. He never looks > good enough, his hair and clothes have to be perfect, he hates his face, > teeth, body- size.....I mean, you name it, and he hates it about himself. > He's actually very handsome, but he doesn't think so. He's thinner than his > younger brother, and that bothers him too. Since the beginning of high > school, he has been chronically late or absent from school, but was always > able to recover missed school assignments and pass with mostly B's and the > occasional C. This has become more chronic since 10th grade (which he is in > now) that it is now affecting his grades. > > He saw a psychiatrist about a month ago and he fussed at me for not bringing > him sooner. They have put him on Zoloft, and he seemed to do better with no > absences for 2 weeks--then spring break came and the bottom fell out. Over > the last two weeks, he has only gone to school 3 days. His doctor is out of > town until May 1st, and I don't know what to do. He just sleeps all day and > complains of headaches and general malaise. His doctor told me to be his > support. If he didn't want to go that day or if he need to go in late than > I was simply relax about and not get upset....I was to support and comfort. > > My son doesn't feel like the medication (Zoloft 50 mg.) is working and his > doctor isn't available until next week to offer him any counseling. He just > stays in bed until the school day is over, to exhausted to get up to eat, > brush his teeth, etc. I bring him his food. He's such a sweet boy, kind > and loving, and genuinely sorry for all that's > happening. I know there's no magic wand I can wave, I just need to vent to > those that will understand. This has got me feeling so worried. > > The doctor returned from his vacation and called yesterday and wants me to > increase his meds from 50 to 75mg. over the next 3 days; then to 100 mg. > after that and to call him back on Monday. If the doctors on this list feel > this is increasing his med too rapidly, please tell me. My son saw this > doctor once before the doctor left on an extended vacation. I personally > did not care for the doctor's attitude during our phone conversation. He > was rude and arrogant. He said if he staying in his room all day and can't > pull it together (as he put it), I should tell him the doctor thinks he > should go into the hospital! Hospitalization, to me, seems like it should > be a last resort...but I don't know maybe I'm wrong. His harsh attitude > about this rubbed me the wrong way. Well, I shed a few tears during our > conversation and expressed how concerned I was for him. I said, " He's my > baby. " His response: " He's not your baby! " To which I responded, " Well, > you know what I mean...my kids will always be my babies. " He replied, " He's > not your baby...And you're part of the problem! " " Look, just increase his > medication like I said and call me Monday. " I just said, " Okay, " and hung > up. This really burned me up. This man doesn't know me. He doesn't know > my strengths but certainly assumed my weaknesses. Geez, I don't express my > worries and tears in front my son. I'm in the process of finding another > doctor in the Atlanta area. Your comments and support are appreciated. > > p.s. I did some research on the computer and read about BDD. The > psychiatrist he saw never mention this condition to us. It sounds like he > may be suffering from this as well. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2002 Report Share Posted November 22, 2002 Hi , Welcome to the list. I have a son that hasn't been diagnosed either. In my situation the label wouldn't make a difference as far as school is concerned. I think many of the same teaching and learning strategies apply to all children with DS. I may not exactly belong to this list but everyone is so clever and I learn from them daily. Charlyne Mom to Zeb 9 DS/OCD ? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2002 Report Share Posted November 22, 2002 hi ricka i'm stacie i'm in indiana to i have my secound defibrillator/pacemake i got my firsted one in 1998 and secound one this year i've been shocked over 300 times i have v-tach v-fib a-tach a-fib av-tach and av-fib and will help with qeustions or whatever you need you can email on list or at rcsejt@... or smiley46203@... i will help to answer any questions i can stacie,19 shocking life for shocking people New To The List > Hi All! > > Been lurking for a few days, and finally find the time for a short > intro. > > I'm Rick in Indiana - had my MI July 21 of this year and > received my ICD/pacemaker the first week in August. > > I've got lots of questions about *everything* but I'll check out the > archives, etc so's not to make a pest of myself by asking oft asked > questions > > Seems like a great group, glad to have found you-all! > > Best, > > Ricka > > > > Please visit the Zapper homepage at > http://www.ZapLife.org > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2002 Report Share Posted November 22, 2002 Hi , I have a 12 yr. old son named Brook that we had diagnosed last December when he was 11 yrs. We knew he had the autism diagnosis for several years, but in our situation at the time it didn't make a difference in his services. We were fortunate that his teacher accepted and recognized the autism readily and used appropriate teaching techniques with him prior to the diagnosis. But, it has opened up some new areas for us to explore, like medication for example. We started Brook on Risperdal back in February and have seen a great deal of improvement in his behavior. Also for getting the amount of respite I want, it helps that he has the dual diagnosis. I am also positive that there will be many times in the future that the autism diagnosis will help him get services that he needs. Right now his Dr. wants him to have a sensory integration program done at school, it's helpful that the Dr. (autism specialist) is recommending it. This year the OT strongly agrees with the Dr, last year even though he had the diagnosis and the Dr. recommended it, the OT did not think he needed it. So, it doesn't always get you what you need, but it is definitely something to look into when you are ready. I would recommend it for Jimmy based on what you have told us about him. Also it is comforting to have a reason why our kids learn and behave differently. Marisa, Miles 15, Brook 12, Genevieve 5 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2002 Report Share Posted November 22, 2002 Hi, Rick. Welcome to the . If you have questions or just need some morale support, there are a lot of people on this list who are more than willing to help out. Mike New To The List Hi All! Been lurking for a few days, and finally find the time for a short intro. I'm Rick in Indiana - had my MI July 21 of this year and received my ICD/pacemaker the first week in August. I've got lots of questions about *everything* but I'll check out the archives, etc so's not to make a pest of myself by asking oft asked questions Seems like a great group, glad to have found you-all! Best, Ricka Please visit the Zapper homepage at http://www.ZapLife.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2002 Report Share Posted November 22, 2002 Rick...Hello and welcome!! My name is and I am from Iowa. I am on my 5th ICD unit...which I guess makes me one of the "old- timers". I prefer to think of myself as "seasoned and experienced!!" You will find answers to your questions...and emotional support, whenever you need it. This is a wonderful, strong, supportive group that looks forward to your contributions. Just wanted to say hello and welcome! Love give me Strength, and Strength shall help afford... Shakespeare Romeo and t Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2002 Report Share Posted November 22, 2002 hi laura!!! wow my nathan is 11yrs too. heheh i know of that video rewind rewind and computer over and over. As for the Dx, it mainly hleps with appropriate services, and if jimmy allready receives them, or you feel they are adequate its up to you if you want to venture for the actual dx. Some really have to venture other like in my case, got it without any idea of autism. shawna. New to the list > Hello, all! My name is Khederian - I may have " met " some of > you already on the list or the MosaicDS list....but thought > I'd post a quick hello to those of you that I don't know yet. > > I live in Rochester, NY - have a DH, Steve, and 3 kids - Aubrey (13), > Jimmy (11) and Hannah (10). Jimmy has Down syndrome and, I am > beginning to suspect, also has autism at some level. My > understanding is that there is a spectrum of symptoms - he displays > some, but not all. I know that a lot of parents with kids with DS > say that their child has " autistic tendencies " - and I guess I'm to > the point of questioning what the heck the difference is between > having " tendencies " and having autism.....! > > So, I've joined this list to see what's what and make sure that I am > doing right by my boy if, in fact, he does have autism in addition to > the DS. Specifically, I want to make sure that we're taking > advantage of all the information out there on " best practices " > regarding teaching kids with DS and autism. > > Jimmy has had a lot of behavior issues at school - his behavior > management plan was developed by a specialist at an autism clinic. > He likes his life very predictable....the more routine, the better. > He is usually very friendly and social. He talks - has a lot of > problems with artic, but is willing to interact. His eye contact is > not the best, but he will look at you at least half the time on his > own and all the time if you remind him. He will play with other > kids, but prefers activities like computer games (where he will play > the same game over and over and over again), videos (where he will > rewind and play the same segment over and over and over again), and > doing puzzles. He receives sensory integration therapy once a week, > which is very helpful. He has " vocalizations " when he is > concentrating on something - sort of like " ayuh....ayuh......ayuh " . > > He's never gotten a formal dual diagnosis. Do you all think it's > important to get that defined on your child's IEP? Any suggestions > for me? > > I'm happy to be a part of this list! > > > > > -------------------------------------------------- > Checkout our homepage for information, bookmarks, and photos of our kids. Share favorite bookmarks, ideas, and other information by including them. Don't forget, messages are a permanent record of the archives for our list. > -------------------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2002 Report Share Posted November 22, 2002 > > stacie,19 shocking life for shocking people Stacie, I LOVE that sig line!!!! Bridget - who shall remain impossible as long as those who are possible remain possible. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2002 Report Share Posted November 22, 2002 Hello and welcome aboard. You have come to the right place for answers, support and just plain ole understanding. My name is and I live in Vermont. Thank goodness I found the Zapper group. Vermont/New Hampshire aren't known for there " heart care " capabilities. Glad to meet you, in Vermont Quoting ricsmith2002 <ricsmith@...>: > Hi All! > > Been lurking for a few days, and finally find the time for a short > intro. > > I'm Rick in Indiana - had my MI July 21 of this year and > received my ICD/pacemaker the first week in August. > > I've got lots of questions about *everything* but I'll check out the > archives, etc so's not to make a pest of myself by asking oft asked > questions > > Seems like a great group, glad to have found you-all! > > Best, > > Ricka > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2002 Report Share Posted November 22, 2002 Welcome To the Family Ricka; This is the best group anywhere. Keep posting and don't be afraid to ask questions we can only learn from you. If you are stressed out for any reason tell us that too we'll try to help you get thru it. Good Luck, Good Health and Good Heart. Love TURK >From: " ricsmith2002 " <ricsmith@...> >Reply- > >Subject: New To The List >Date: Fri, 22 Nov 2002 06:01:43 -0000 > >Hi All! > >Been lurking for a few days, and finally find the time for a short >intro. > >I'm Rick in Indiana - had my MI July 21 of this year and >received my ICD/pacemaker the first week in August. > >I've got lots of questions about *everything* but I'll check out the >archives, etc so's not to make a pest of myself by asking oft asked >questions > >Seems like a great group, glad to have found you-all! > >Best, > >Ricka > _________________________________________________________________ The new MSN 8: advanced junk mail protection and 2 months FREE* http://join.msn.com/?page=features/junkmail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2002 Report Share Posted November 22, 2002 Hi Again! Just want to say thanks for the warm welcome - makes a person feel right at home I'm making a list (and checking it twice) of questions ... expect to have your ears bent just about off! Ricka Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2002 Report Share Posted December 28, 2002 Welcome to the zoo...I mean list! Cheers Tom G lover of fine single malt former jumper out of airplanes >From: " Mark " <tintin@...> >Reply- >< > >Subject: NEW TO THE LIST >Date: Sat, 28 Dec 2002 18:03:37 -0000 > >Hi Folks > >I have just joined the group. My name is Mark and I live in a place >called Bollington in Cheshire, England. I am a Combat Medical Technician >in the Royal Army Medical Corps (Volunteers). > >I used to be in the Parachute Squadron until I obtained a matching pair of >smashed up heel bone, so the wife grounded me and the Army agreed with >her!!! I am now involved with the Battlefield Advanced Trauma Life Support >Training Team. > >I did the first Wilderness Emergency Medical Technician course this side of >the " pond " in Dublin in 1996 and have been involved with the coursed ever >since. > >Best regards > >Mark aka Tin Tin > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2002 Report Share Posted December 29, 2002 Mark, Welcome to the list. Rgs Ian NEW TO THE LIST Hi Folks I have just joined the group. My name is Mark and I live in a place called Bollington in Cheshire, England. I am a Combat Medical Technician in the Royal Army Medical Corps (Volunteers). I used to be in the Parachute Squadron until I obtained a matching pair of smashed up heel bone, so the wife grounded me and the Army agreed with her!!! I am now involved with the Battlefield Advanced Trauma Life Support Training Team. I did the first Wilderness Emergency Medical Technician course this side of the " pond " in Dublin in 1996 and have been involved with the coursed ever since. Best regards Mark aka Tin Tin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2003 Report Share Posted March 18, 2003 Hi , My name is Carmen and I am in California for another month and then on to Michigan. Welcome to our wonderful, supportive, caring and funny group. I never thought about not taking antiinflamitories because of taking blood thinners. That's too bad as I'm sure they would be a help to you but I guess your Rheumatologist knows best. It's nice to meet you and I hope you continue to keep in touch with us. Where do you live? Ca. Carmen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2003 Report Share Posted March 18, 2003 Hi Patti in Canada, That was such a nice thing to say about our group....how helpful we are without even knowing it. That makes me feel very good. We do try to help one another as much as we can and I truly believe that most of us know more about how to get ourselves feeling better than our doctors. Until I joined this group, I don't believe my Rheumatologist knew anything about Stills and now if I suggest a new treatment or drug, he is willing to try it with me. Gosh darn, we are some smart cookies, yes? I hope you are feeling better now that warmer weather seems to be coming out way. The weather plays no part in my feeling good or bad but it probably does for some of us. Take care, Ca. Carmen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2003 Report Share Posted March 18, 2003 Hello and welcome your symtoms sound very much like AOSD allrite or the DRAGON as we refer it it.I am d. and on my onset of stills i had all the symtoms you just described was very painful as we all know espcailly when the fevers come.My rash was sooo bad that they thought i was clotting too,but i wasnt just very bad lookin rash they were giving me a sht in the belly which wasnt too bad but also not needed was gettin it for bout 2 weeks in hospital after my doctor told me it wasnt blood clotting lol.I told the nurses that i didnt think that i was supposed to be gettin it anymore but even then it still continued for few days till i saw my interalist.U take care and really hope u can get the help u need. d.Canada New to the list Hello everyone. My name is and I'm 24 years old and have recently been diagnosed with Stills. I have several blood clotting disorderv and had a pulmonary embolism in December and another one in February. These embolisms were different than the ones in the past because before I always got sick went to the hospital for at least 5 days and then I would start to get better. This time I spent much more time in the hospital and kept landing back in the ER becuase of high fevers, a rash, pleurisy, and now pericarditis. I've had symptoms with the clotting disorders for over five years but at least then I knew what to expect of my body. Currently I feel like I'm falling apart. I haven't started any treatments because everyone is afraid to prescribe them because of the three blood thinners I take daily. The antiinflamatories they tried caused me to have internal bleeding. I look forward to talking to all of you and wish you good health. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2003 Report Share Posted March 18, 2003 Just want to say welcome to . I have only been hooked up with this group for about a month. They are really helpful in more ways than they even know! Patti~Canada >From: Roseman <sroseman@...> >Reply-Stillsdisease > " 'stillsdisease ' " <stillsdisease > >Subject: New to the list >Date: Tue, 18 Mar 2003 08:22:11 -0500 > > Hello everyone. My name is and I'm 24 years old and have >recently been diagnosed with Stills. I have several blood clotting >disorderv >and had a pulmonary embolism in December and another one in February. These >embolisms were different than the ones in the past because before I always >got sick went to the hospital for at least 5 days and then I would start to >get better. This time I spent much more time in the hospital and kept >landing back in the ER becuase of high fevers, a rash, pleurisy, and now >pericarditis. > I've had symptoms with the clotting disorders for over five years but >at >least then I knew what to expect of my body. Currently I feel like I'm >falling apart. I haven't started any treatments because everyone is afraid >to prescribe them because of the three blood thinners I take daily. The >antiinflamatories they tried caused me to have internal bleeding. > I look forward to talking to all of you and wish you good health. > > Please take the time to check out my homepage at http://www.angelfire.com/hi2/peppermintp and leave me a message there or just email me back. Love you all PattiPike<IMG height=12 src= " http://g _________________________________________________________________ The new MSN 8: advanced junk mail protection and 2 months FREE* http://join.msn.com/?page=features/junkmail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2003 Report Share Posted March 18, 2003 Hi , I am glad you found us, but sorry you have the Stills Disease. You have a unique situation with the blood clotting problems, and not being able to take NSAIDS. Has your doctor put you on any steroids as of yet? Hopefully they will find something that you can take that will bring you comfort from the Stills Disease. What do you take for the pain? Welcome to this support group ! Where do you live? Tricia Wisconsin ************************************************************* -- New to the list Hello everyone. My name is and I'm 24 years old and have recently been diagnosed with Stills. I have several blood clotting disorderv and had a pulmonary embolism in December and another one in February. These embolisms were different than the ones in the past because before I always got sick went to the hospital for at least 5 days and then I would start to get better. This time I spent much more time in the hospital and kept landing back in the ER becuase of high fevers, a rash, pleurisy, and now pericarditis. I've had symptoms with the clotting disorders for over five years but at least then I knew what to expect of my body. Currently I feel like I'm falling apart. I haven't started any treatments because everyone is afraid to prescribe them because of the three blood thinners I take daily. The antiinflamatories they tried caused me to have internal bleeding. I look forward to talking to all of you and wish you good health. .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2003 Report Share Posted March 18, 2003 Hi back at you , I'm very sorry you got this disease but you are most welcome here. I've had Stills for 25 years, a lot of those years it's been in remission. We still have health problems to live with but a better life than the onset for sure. I did get a clot almost two years ago and had to stop my estrogen and NSAIDS. It was really a wake up in many ways for me. We also have a long standing member in Canada that has been on thinners for many years. I hope they can get you stable and work out a medicine plan so that you feel better. Sometimes it takes a little while but there is always hope for remission. Nice to meet you and look forward to knowing you better, Patty (my nickname is Melt) in So. Cal. New to the list > Hello everyone. My name is and I'm 24 years old and have > recently been diagnosed with Stills. I have several blood clotting disorderv > and had a pulmonary embolism in December and another one in February. These > embolisms were different than the ones in the past because before I always > got sick went to the hospital for at least 5 days and then I would start to > get better. This time I spent much more time in the hospital and kept > landing back in the ER becuase of high fevers, a rash, pleurisy, and now > pericarditis. > I've had symptoms with the clotting disorders for over five years but at > least then I knew what to expect of my body. Currently I feel like I'm > falling apart. I haven't started any treatments because everyone is afraid > to prescribe them because of the three blood thinners I take daily. The > antiinflamatories they tried caused me to have internal bleeding. > I look forward to talking to all of you and wish you good health. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2003 Report Share Posted March 18, 2003 , do you have the factor v leiden gene mutation or the anticardiolipin antibodies? If so they are related to your stills disease. GO DAWGS !!!!! Quote Link to comment Share on other sites More sharing options...
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