Re: Anemia? and Steroids, Mtx, and Skin Side Effects?

[Guest guest]

Sharon,

I know that being on Mtx can make kids sensitive to sunlight. As a matter

of fact, now that Bradley is on it again, I make sure if he is going to be

outside he is wearing a hat and sunscreen! He is VERY fair with LOTS of

freckles so I don't want him ever to get burned! My guess is probably the

Mtx.

Happy Tuesday to you too!

marie (mommy to Bradley-Pauci,ANA+ and Uveitis)

On Tue, Mar 29, 2011 at 7:53 AM, sharon.peabody <swaleans@...>wrote:

>

>

> Hey there, everyone!

>

> Happy Tuesday to all. I hope that today is a happy, pain free day for all

> of us and our little ones.

>

> I have another few questions I wanted to send out there.

>

> is currently on Prelone (1/2 tsp 2x a day), iron supplements (2x a

> day) and Mtx (0.3mL 1x a week). A week and a few days ago (not this past

> weekend but the weekend before) the whole family went to the zoo wtih

> grandma. Well, he got a bad sunburn on his face (even with having been in

> the stroller). He takes after my complexion (read absolutely no coloring...

> lol) and he got a worse burn than his two brother (who just got a touch pink

> in the cheeks and the back of the neck) who were walking in the sun the

> whole time. It's gradually clearing up but even now, a week after the

> incident, he still has some pink patches. Could the fact that he burned so

> quickly and is taking longer to clear out a possible side effect of any of

> those medications? My sister (who is married to a doc) seems to think it's

> likely but she doesn't know which one would have been a culprit. I'm still

> wracked with guilt over it and his pink cheeks and forehead is a constant

> reminder (yeah, the mommy guilt is bad on this one... lol)

>

> Also, how many of you are dealing with anemia with your child's JRA/your

> JRA? is still very anemic, even with having been on some treatment

> since December. I'm just wondering how common the anemia is and curious as

> to how long it might take for that to start resolving itself - our rheum

> says that the anemia is common with JRA.

>

> Thanks all!

>

> Cheers.

> Sharon (, 17 months old, systemic)

>

>

>

--

~marie~

[Guest guest]

It is probably the mtx.

On the anemia question: It is my understanding that you can throw all the iron

you want at the anemia, but it is part of the inflammation of the

disease-especially with systemic. If you get the disease under control, the

anemia usually resolves itself. I think the docs prescribe the iron, but it is

really like peeing in the wind. (n, 22, systemic)

On Mar 29, 2011, at 7:53 AM, sharon.peabody wrote:

> Hey there, everyone!

>

> Happy Tuesday to all. I hope that today is a happy, pain free day for all of

us and our little ones.

>

> I have another few questions I wanted to send out there.

>

> is currently on Prelone (1/2 tsp 2x a day), iron supplements (2x a day)

and Mtx (0.3mL 1x a week). A week and a few days ago (not this past weekend but

the weekend before) the whole family went to the zoo wtih grandma. Well, he got

a bad sunburn on his face (even with having been in the stroller). He takes

after my complexion (read absolutely no coloring... lol) and he got a worse burn

than his two brother (who just got a touch pink in the cheeks and the back of

the neck) who were walking in the sun the whole time. It's gradually clearing up

but even now, a week after the incident, he still has some pink patches. Could

the fact that he burned so quickly and is taking longer to clear out a possible

side effect of any of those medications? My sister (who is married to a doc)

seems to think it's likely but she doesn't know which one would have been a

culprit. I'm still wracked with guilt over it and his pink cheeks and forehead

is a constant reminder (yeah, the mommy guilt is bad on this one... lol)

>

> Also, how many of you are dealing with anemia with your child's JRA/your JRA?

is still very anemic, even with having been on some treatment since

December. I'm just wondering how common the anemia is and curious as to how long

it might take for that to start resolving itself - our rheum says that the

anemia is common with JRA.

>

> Thanks all!

>

> Cheers.

> Sharon (, 17 months old, systemic)

>

>

[Guest guest]

Hi Sharon, Sensitivity to sunlight can be a side effect of the Mtx. Maybe it

was a combination of that and his fair skin. We do a lot of sunscreen since my

daughter is on Mtx, and we live in Colorado. She's never been burned, but her

cheeks can get pink pretty quickly if I haven't applied sunscreen.

As far as the anemia, the disease needs to get under control and the anemia will

resolve. My daughter's blood counts were terrible for a year - nothing would

touch the anemia because it was caused by the inflammation - " anemia of chronic

disease " . In our case, within 2 weeks on Kineret her hemoglobin and hematocrit

were normal. It was unbelievable, actually. I hope you find the correct

combination of meds to bring 's disease under control, and I hope he's

feeling better than he was a few weeks ago.

nn (, 9, systemic)

>

> > Hey there, everyone!

> >

> > Happy Tuesday to all. I hope that today is a happy, pain free day for all of

us and our little ones.

> >

> > I have another few questions I wanted to send out there.

> >

> > is currently on Prelone (1/2 tsp 2x a day), iron supplements (2x a

day) and Mtx (0.3mL 1x a week). A week and a few days ago (not this past weekend

but the weekend before) the whole family went to the zoo wtih grandma. Well, he

got a bad sunburn on his face (even with having been in the stroller). He takes

after my complexion (read absolutely no coloring... lol) and he got a worse burn

than his two brother (who just got a touch pink in the cheeks and the back of

the neck) who were walking in the sun the whole time. It's gradually clearing up

but even now, a week after the incident, he still has some pink patches. Could

the fact that he burned so quickly and is taking longer to clear out a possible

side effect of any of those medications? My sister (who is married to a doc)

seems to think it's likely but she doesn't know which one would have been a

culprit. I'm still wracked with guilt over it and his pink cheeks and forehead

is a constant reminder (yeah, the mommy guilt is bad on this one... lol)

> >

> > Also, how many of you are dealing with anemia with your child's JRA/your

JRA? is still very anemic, even with having been on some treatment since

December. I'm just wondering how common the anemia is and curious as to how long

it might take for that to start resolving itself - our rheum says that the

anemia is common with JRA.

> >

> > Thanks all!

> >

> > Cheers.

> > Sharon (, 17 months old, systemic)

> >

> >

>

>

>

>

[Guest guest]

was anemic prior to getting the disease under control. He is extremely fair

(he was actually thought to be Albino due to his skin, eye, & hair all being so

fair...plus nystagmus is a sign of Albinism)...so he is always covered in baby

sunscreen...SPF 50. Being on the MTX just adds to it.

Don't beat yourself up...it's all so new and we all have a learning curve. Hang

in there.

& , 7, poly...nystagmus...SPD...

Sent from my iPhone

[Guest guest]

Thanks for all the feedback and support, folks. I appreciate it.

Now I know going forward that we'll have to be ever so careful with him and the

sunlight. Makes me not look forward to a trip to Hershey Park we have coming up

- I think I'll stress about his exposure the entire time.

Now if the rest of the redness would fade I'd feel a lot better. I bet that the

mtx makes it longer for skin to heal up too, huh?

Thanks again, all!

>

> was anemic prior to getting the disease under control. He is extremely

fair (he was actually thought to be Albino due to his skin, eye, & hair all

being so fair...plus nystagmus is a sign of Albinism)...so he is always covered

in baby sunscreen...SPF 50. Being on the MTX just adds to it.

>

> Don't beat yourself up...it's all so new and we all have a learning curve.

Hang in there.

>

> & , 7, poly...nystagmus...SPD...

>

> Sent from my iPhone

>

[Guest guest]

My daughter Rose has become extremely sun sensitive too. I can not recall if it

happened after she was on prednisone or an immune suppressant called Imuran.

She is no longer on prednisone, so I suspect imuran, which is to treat both the

arthritis and a liver issue that she has. In her case, I keep having the doctor

check for Lupus, but it continues to come out negative. I just get 100

sunscreen in the summer and keep reapplying. In the case of your son, ask what

kind of sunscreen you should use on him since he is much younger than Rose (11).

Jo

Jo

Jo

> >

> > > Hey there, everyone!

> > >

> > > Happy Tuesday to all. I hope that today is a happy, pain free day for all

of us and our little ones.

> > >

> > > I have another few questions I wanted to send out there.

> > >

> > > is currently on Prelone (1/2 tsp 2x a day), iron supplements (2x a

day) and Mtx (0.3mL 1x a week). A week and a few days ago (not this past weekend

but the weekend before) the whole family went to the zoo wtih grandma. Well, he

got a bad sunburn on his face (even with having been in the stroller). He takes

after my complexion (read absolutely no coloring... lol) and he got a worse burn

than his two brother (who just got a touch pink in the cheeks and the back of

the neck) who were walking in the sun the whole time. It's gradually clearing up

but even now, a week after the incident, he still has some pink patches. Could

the fact that he burned so quickly and is taking longer to clear out a possible

side effect of any of those medications? My sister (who is married to a doc)

seems to think it's likely but she doesn't know which one would have been a

culprit. I'm still wracked with guilt over it and his pink cheeks and forehead

is a constant reminder (yeah, the mommy guilt is bad on this one... lol)

> > >

> > > Also, how many of you are dealing with anemia with your child's JRA/your

JRA? is still very anemic, even with having been on some treatment since

December. I'm just wondering how common the anemia is and curious as to how long

it might take for that to start resolving itself - our rheum says that the

anemia is common with JRA.

> > >

> > > Thanks all!

> > >

> > > Cheers.

> > > Sharon (, 17 months old, systemic)

> > >

> > >

> >

> >

> >

> >