Re: our appointment with the rheum

[Guest guest]

Happy Birthday ! Hope the trip goes well and the dr can give your

daughter some relief. It does seem like adding to the mtx might be what your

daughter needs. Although the meds are scary, they do seem to help many. Perhaps

remission will be in the near future?

Enjoy the pool and the time with your daughter as much as you can, Michele

( 23, spondy)

From: [mailto: ] On Behalf Of

watt_melanie

Sent: Wednesday, March 16, 2011 8:06 AM

Subject: our appointment with the rheum

Today we are leaving for a 4 and a half our trip to see our rheum for the 12th

time in just over a yr and a half, my daughter is on naprosyn, methotrexate

injections and prednisone ... She is having a bone density test done and we are

seeing the rheumatologist to deterime in the injections are helping or we have

to move to Enbrel which scares me to death...but I will do it if it will help

improve my daughters arthritis. she has had 8 injections of meth so far and was

on oral meth for over 6 months... with little improvement, she was good from

about the 4th injection til about a week ago when she started complaining of

pain and swelling and stiffness again ... I am hoping to get some answers

tomorrow.... I get to spend my 32nd birthday traveling in the car with my

daughter ...tonight when we get there we always go out for supper and swim at

the hotel pool. try to make it fun and not just all about going to the hospital.

I wish , I pray for all of our children and hope someday for al of them to be

well !!!

Thanks for listening ,

( mom to Sophie 6 yrs old, JIA and iga deficiency )

[Guest guest]

First off, Happy Birthday, ! I am sorry that you have to spend your

birthday on the road and visiting a doctor, but I hope that you are able to take

some down time to enjoy the day with your family. I'm still very new to the JRA

world, but I hope that the rheum is able to get your daughter some relief. And

I know how scary the meds are (I was a wreck when starting the methotrexate with

) but I also believe that if a trusted ped. rheum feels it's the right

choice, it is worth trying it.

Good luck and please keep us posted.

Sharon (, systemic, 16 months old)

>

> Today we are leaving for a 4 and a half our trip to see our rheum for the 12th

time in just over a yr and a half, my daughter is on naprosyn, methotrexate

injections and prednisone ... She is having a bone density test done and we are

seeing the rheumatologist to deterime in the injections are helping or we have

to move to Enbrel which scares me to death...but I will do it if it will help

improve my daughters arthritis. she has had 8 injections of meth so far and was

on oral meth for over 6 months... with little improvement, she was good from

about the 4th injection til about a week ago when she started complaining of

pain and swelling and stiffness again ... I am hoping to get some answers

tomorrow.... I get to spend my 32nd birthday traveling in the car with my

daughter ...tonight when we get there we always go out for supper and swim at

the hotel pool. try to make it fun and not just all about going to the hospital.

I wish , I pray for all of our children and hope someday for al of them to be

well !!!

>

>

> Thanks for listening ,

>

> ( mom to Sophie 6 yrs old, JIA and iga deficiency )

>

[Guest guest]

Happy (belated) Birthday . Hoping your appointment goes well and you

find the proper drug combo to help your daughter.

As I have posted many times...Enbrel has been our 'miracle' drug. responded

almost immediately after the first injection...he's come so far in the two years

since being diagnosed. He started Enbrel in July 09 and by his November 09

appointment was showing no signs of active disease.

All the best,

& , 7, poly...nystagmus...SPD...

Sent from my iPhone

[Guest guest]

,

I pray that the trip and appointment went well. I have for years also been

trying to make the trips fun. We only drive 3 hours up to see our rheumy and

that is far enough. But for this rheumy I would go further. Let us know what

the rheumy said.

Veri & Jaye 17 poly

our appointment with the rheum

Today we are leaving for a 4 and a half our trip to see our rheum for the 12th

time in just over a yr and a half, my daughter is on naprosyn, methotrexate

injections and prednisone ... She is having a bone density test done and we are

seeing the rheumatologist to deterime in the injections are helping or we have

to move to Enbrel which scares me to death...but I will do it if it will help

improve my daughters arthritis. she has had 8 injections of meth so far and was

on oral meth for over 6 months... with little improvement, she was good from

about the 4th injection til about a week ago when she started complaining of

pain and swelling and stiffness again ... I am hoping to get some answers

tomorrow.... I get to spend my 32nd birthday traveling in the car with my

daughter ...tonight when we get there we always go out for supper and swim at

the hotel pool. try to make it fun and not just all about going to the hospital.

I wish , I pray for all of our children and hope someday for al of them to be

well !!!

Thanks for listening ,

( mom to Sophie 6 yrs old, JIA and iga deficiency )

[Guest guest]

Thanks for the birthday wishes.... well we are back from our long trip to see

our rhumatologist.... my daughter is not any better since last time we saw her

in jan , and since starting the mtx injections. She did have a throat infection

in jan that she was put on 28 days of antibiotics for , they re tested to see if

it helped ..will take a week or so to get the results back, if it is still

positive for the infection she will have to go on more antibiotics, which they

say this kinda of infection can keep the arthritis medications from helping so

that maybe why she is not seeing any relief. So its another wait and see game.

if the infection is gone they will have to decide to up her medication to enbrel

at that time.

( Sophie, 6 yrs, JIA)

>

> Happy (belated) Birthday . Hoping your appointment goes well and you

find the proper drug combo to help your daughter.

>

> As I have posted many times...Enbrel has been our 'miracle' drug.

responded almost immediately after the first injection...he's come so far in the

two years since being diagnosed. He started Enbrel in July 09 and by his

November 09 appointment was showing no signs of active disease.

>

> All the best,

> & , 7, poly...nystagmus...SPD...

>

> Sent from my iPhone

>