Guest guest Posted November 3, 2008 Report Share Posted November 3, 2008 Sat a.m. awoke early with a level 10 pain in her left hip, radiating to her knee. With pain meds and heating pad, she slept a bit more, but again the pain awoke her. On-call nurse and rheumy insisted we take her directly to ER to rule out infection in joint. After x-ray, lab testing, physical exam, meds for pain control, they said they felt it was a bad flare but not an infection and sent her home on pred and more pain meds. She has now developed her rash covering her thighs, a scarlet rash across her cheeks (no fever), and more joints involved, with her pain level back to 9-10 this afternoon. Her rheumy is out of town for a week+ but my rheumy said to take her back to ER for shot of steroids and pain control....we are waiting for my older nieces to get home from school to watch the toddler... Too often (99%) the drs at this ER seem lost as to what to do with jra/pidd pts.... would appreciate prayers for wisdom for the dr, a nurse with a touch of compassion, but mostly some relief for 's....(she hates the hospital and hates the ER, so for her to be willing to go twice in 3 days....she is in agony...) Thank you... nancy (amanda, poly) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2008 Report Share Posted November 4, 2008 Just curious, did she get a strep test while there? The symptoms sound like what my kids have gone through when they have had strep throat. had it once since his diagnosis and his joint pain was horrible. He flared something fierce, begging me to take him to the dr. My oldest one used to always get a rash like you are describing and have joint pain when she had strep. Sometimes you can have it and not have bad throat pain. Just a thought, if it does not resolve, Michele ( 21, spondy) ________________________________ From: [mailto: ] On Behalf Of nancy barnes Sent: Monday, November 03, 2008 4:46 PM Subject: 's flare Sat a.m. awoke early with a level 10 pain in her left hip, radiating to her knee. With pain meds and heating pad, she slept a bit more, but again the pain awoke her. On-call nurse and rheumy insisted we take her directly to ER to rule out infection in joint. After x-ray, lab testing, physical exam, meds for pain control, they said they felt it was a bad flare but not an infection and sent her home on pred and more pain meds. She has now developed her rash covering her thighs, a scarlet rash across her cheeks (no fever), and more joints involved, with her pain level back to 9-10 this afternoon. Her rheumy is out of town for a week+ but my rheumy said to take her back to ER for shot of steroids and pain control....we are waiting for my older nieces to get home from school to watch the toddler... Too often (99%) the drs at this ER seem lost as to what to do with jra/pidd pts.... would appreciate prayers for wisdom for the dr, a nurse with a touch of compassion, but mostly some relief for 's....(she hates the hospital and hates the ER, so for her to be willing to go twice in 3 days....she is in agony...) Thank you... nancy (amanda, poly) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2008 Report Share Posted November 4, 2008 Thank you, Sophie. You are so right, it never gets easier seeing our children in pain. Thank you again. From: slevindoski <slevindoski@...> Subject: Re: 's flare Date: Monday, November 3, 2008, 5:18 PM So sorry to hear that is hurting. It never gets easier seeing your child in pain. Hopefully this flare will be short. Take care. Sophie > > Sat a.m. awoke early with a level 10 pain in her left hip, radiating to her knee. With pain meds and heating pad, she slept a bit more, but again the pain awoke her. On-call nurse and rheumy insisted we take her directly to ER to rule out infection in joint. After x-ray, lab testing, physical exam, meds for pain control, they said they felt it was a bad flare but not an infection and sent her home on pred and more pain meds. She has now developed her rash covering her thighs, a scarlet rash across her cheeks (no fever), and more joints involved, with her pain level back to 9-10 this afternoon. Her rheumy is out of town for a week+ but my rheumy said to take her back to ER for shot of steroids and pain control....we are waiting for my older nieces to get home from school to watch the toddler... > > Too often (99%) the drs at this ER seem lost as to what to do with jra/pidd pts.... > would appreciate prayers for wisdom for the dr, a nurse with a touch of compassion, but mostly some relief for 's.... (she hates the hospital and hates the ER, so for her to be willing to go twice in 3 days....she is in agony...) > > Thank you... > > nancy (amanda, poly) > > > > > > Quote Link to comment Share on other sites More sharing options...
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