Cindy

[Guest guest]

Dixie,

Yes, she'll be thrilled when she sees all the posts. Last night before I

went to see her I printed out a whole bunch of them and as I was getting out of

my van to go into the hospital I realized I had left them at home on my kitchen

table, so she'll get to read them all in the comfort of her brand new

wonderful reclining chair. :-)

[Guest guest]

I know that she is antsy to get into her new chair and rest. I am sure

that it will help. And Have fun with your mom.

--

Snoopy

left implant 3G 7/19/02

right implant 3G 5/15/03

Bilateral and loving it!!

[Guest guest]

Hi i have had the worst ear implanted four years ago. And i have worn a

HA in the left ear for 10 years. It was recommended I implant my better ear

but I had the worst fear of losing all hearing. I have been with no hearing in

the worst ear for over 20 years and was told it would take alot longer to hear.

I do hear from it but not clear enough to go with out my HA. I am having

surgery July 6th for the better ear this time around and I am very excited,

and hopeful. I am having the new freedom implant and have heard nothing but

good so far on results. linda

M Jansen <nucleus24@...> wrote:Hi ,

As I mentioned in a previous post, I was implanted in an ear that had

no hearing and no stimulation for close to 20 years. The surgeon

suggested implanting that ear since if it didn't work, I was no worse off

than before. Makes sense to me. It took close to 3 months of listening

every day to get to where I hear the way I do now.

I have to wonder about folks whose professionals tell them to implant

the better ear, especially if they can still benefit from a HA in that

ear. Because for the most part you will lose residual hearing in the ear

that has an implant. Some folks swear they can still hear in the

implanted ear, and that may well be the case, but one also needs to

remember that the bones in your head conduct sound as well as your ears,

so they could be hearing with bone conduction rather than through the ear

itself. This is why they use a tuning fork on your skull when they test

hearing. Yes, bones do conduct sound.

I also have to laugh at the professionals who say to continue wearing

a hearing aid in an ear that has no hearing because it keeps the nerve

stimulated. Pardon me, but if the sound isn't getting there, how is the

nerve being stimulated. I figure if you haven't heard for years, the

nerve will be rested and ready to go, rather than atrophied from lack of

use. But then I'm not a Dr.

I am glad I decided to have the worse ear implanted, it turned out to

be a good decision for me. In some cases there is a medical reason why

the worse ear cannot be implanted, but the Dr. should tell you what that

medical contraindication is. So, my vote is implant the worse.

The Original

,

Thanks for your input. I'm interested in hearing how things worked out

for you by choosing the ear that you chose and how well did you begin

to hear with it? I've worn an aid in my R ear since I was 5, and for a

short period of time, maybe 2 years, an aid in my L ear but didn't

like it so I stopped. So I've been without amplified hearing in my

left ear for pretty much all 48 years of my life. (we have no clue

when my hearing loss started in that ear, only that it went unaided

for most of my life!) It is slightly worse than my R ear but not by

much. I have no early records (sigh) of my childhood audiograms. I'm

really interested in hearing how people decide which ear to implant.

[Guest guest]

I too am thinking about plastic surgery. Is he suggesting just protien

shakes for two weeks or in addition to what you eat?

Donna Pinto

December 9, 2003

273\189

5ft 9 1/2

Little Rock

Dr. Hargroder and Dr. Wilshire

[Guest guest]

Salem Don't discourage the poor woman *LOL* I know what you mean it's been a long 15 weeks and I'm not there yet . I wish I would of had this group prior to surgery. You guys have been more supportive and informational than the medical staff. You have all been a big help to me.

Hugs

a

--

Hi ,

Its me, Salem. From experience, don't sit to long at the computer it makes your leg swell up and cramp. Other than that how are you doing?

Soon........ (in about a year or so) LOL *just kidding* You'll feel like doing a HAPPY Dance...

Best wishes, Salem

Canter <cindyj4652@...> wrote:

Hi everyone, I'm baaack.I made it home from the hospital this afternoon. I have been at the computer all evening going through emails and I'm very tired. Thanks for all the prayers and well wishes. I know this helps with healing. I am going to get ready for bed now. I'll post more tomorrow. Take care,

Start your day with - make it your home page

[Guest guest]

You guys have been more supportive and informational than the medical staff. >>> One can have a degree and advise a patient of what's what.... but knowing the personal insight of the experience, the worries before, during & after, helpful hints for the recovery process etc. don't come from the text books. I'm one big on don't tell me what's what unless you know first hand what your talking about~ I can read about anything but that don't make me feel comfortable knowing the personal side of it all. Suppose that's why I'm so big telling my story on the boards and encouraging others to stay & post their experiences with surgery. The medical staff that worked around me was great but it's still a benefit when your talking to someone that knows all steps of the process and don't seemed "too rushed" to help answer your inquiries.

[Guest guest]

Thank you You worded it nicely. My feelings exactly

a

-- Re:

You guys have been more supportive and informational than the medical staff. >>> One can have a degree and advise a patient of what's what.... but knowing the personal insight of the experience, the worries before, during & after, helpful hints for the recovery process etc. don't come from the text books. I'm one big on don't tell me what's what unless you know first hand what your talking about~ I can read about anything but that don't make me feel comfortable knowing the personal side of it all. Suppose that's why I'm so big telling my story on the boards and encouraging others to stay & post their experiences with surgery. The medical staff that worked around ! me was great but it's still a benefit when your talking to someone that knows all steps of the process and don't seemed "too rushed" to help answer your inquiries.

[Guest guest]

,

I hope you get well soon. Blood infections suck. It laid me up for 6

months. I know what you are going through and it cant be fun, You will be in

my

thoughts and prayers,

Kimi

In a message dated 8/8/2005 11:47:02 P.M. Eastern Daylight Time,

twoonwheels2003@... writes:

Sorry if I rammbled on folks but i've been in the hospital for over 3 weeks

now with a blood infection. My friend snuck in her laptop, don't know when

i'll be able to write again Best wishes to everybody.

[Guest guest]

Hi Salem,

I love a good ice pack. I have a big reuseable one that wraps around my knee and has velcro tabs to hold it in place. Nice. It feels so good after doing exercises or just moving around. I go out when I feel like it, but staying in is better when I hurt a lot.

Salem Saglime <salem3p@...> wrote:

,

I am glad you are getting out of the house. You can get kinda crazy if you are stuck in the house for long periods. You are definitly doing it right. Even if you go out and grab a burger somewhere and then go home, it perks up your spirits. ..... As you heal, we are healing with you because whether we had TKR or THR we have been there and understand the pain you are going thru. You are definitly right about wusses not handling this surgery...In the past I have worked with people who scream/cry over a little scratch... Boy, would they freak out if they had to go thru this. LOL

Don't forget to ice ice ice after any activities. AAAAHHHHHH!!!! It felt so wonderful...This time of year while it is hot as Hell...... Ice is better than sex...Well....at least close....LOL!!!

You sound like you are coming along great!!! We are all thinking of you.

Blessings! Salem Bill and Canter <cindyj4652@...> wrote:

Yes, I am getting along pretty well. I'm hurting of course, but the pain meds help with this. This surgery is NOT for a wuss, though.

I made it to church this morning, and it felt good to be there. I have been out to PT and a couple small trips to the store, so getting out of the house is great. I still get tired easily and I start hurting so I know when to get home and take it easy. I'm working hard to get back to full go, but I know it takes time to heal.

Take care,

jane <laeticia_demorte@...> wrote: Hi So glad to see you on the other side feeling so positive,Keep on getting betterbest wishesjane - in WalesGod bless you! __________________________________________________

[Guest guest]

Way to go, ! Maybe we can be roommates? LOL Congratulations and all

the very best!

) Jackie

[Guest guest]

,

Congratulations on your insurance approval! You must be so excited! I will

be crossing my fingers hoping you receive a surgery date soon so we can all

begin the big countdown! <smile>

Implanted: 12/22/04 Activated: 1/18/05

Deafblind/Postlingual

BTE hearing aid user 20 years

Severe-profound hearing loss 10 years

[Guest guest]

Flash!? Are you the same Flash I talk to in chat?

Sure if you wanna be roommates that would be cool! Although I

certainly hope I won't have to stay any longer than necessary!

Congratulations for you too! Wow....surround sound is just around the

corner for ya

> Way to go, ! Maybe we can be roommates? LOL Congratulations

and all

> the very best!

> ) Jackie

>

>

>

[Guest guest]

Hi, ,

Yep, I'm the Flash from Chat, so you know I take showers and would be a

fine roommate. I warn you, though, my hubby says I snore. Of course, neither

of us will be sleeping much OR wearing our CI so it doesn't matter! LOL

Looking forward to going through this along with you!

) Jackie (Flash)

[Guest guest]

Hi

Her doctor told us that they consider it cronique when they have it

about 6 times/year but he said if I wanted a referral to an

ears/nose/throat specialist just to say the word. He never called me

back Friday saying it was strep so I'm assuming it wasn't this time.

But each time she comes down with this affliction it appears that it

is......white stripes on the throat, swollen glands, etc. Whether it's

strep or not, it still puts her out of school for at least 3 days. We

went thru this in her Junior year, too. So if she gets it again within

a 4 month period I'm opting for the specialist. BTW, how many days did

your son lose from school when they removed his tonsils?

RE: School

Ahh , hope she feels better soon....btdt...my 19yo ds got his

tonsils out summer before senior year because he got strep five times

during Junior year.

Our school year has started slowwwwww. I'm homeschooling again, and

" emergencies " keep coming up...ggrr

B

> So.....how did everyone's first day of school go for those of you who

> have school-aged kids? Well, she wasn't> feeling too good Tuesday

night and I heard her throwing up at 5:00 AM

> Wednesday (first day of school).

>

[Guest guest]

We did the tonsils during the summer, but I had mine out in the middle

of 10th grade, and only lost about a week of school. Actually the

summer he had them out, he also had a cast on his arm and a broken

toe....and I had just had two foot surgeries and a hernia surgery. What

a summer!!!!

I hope your daughter gets some resolution soon....I know I always HATE

being sick, esp. the head and throat.

BTW, how many days did

> your son lose from school when they removed his tonsils?

>

>

[Guest guest]

Oops, you DID say in your email that it was during the summer. I'm not

sure when the BEST time for her would be if she did have it done. I'm

sure she'll want to get a summer job after graduating but yet I'd hate

to have her find out that she needs them out once she starts college. I

guess we'll have to play it by ear and see what happens the during her

Senior year.

Boy, you really DID have an awful summer that year. I've had surgery on

both of my feet, too. Boy, I NEVER want to go thru that again!! I had

a huge tumor that was growing between my toes on one foot and I was out

of work for 8 weeks with that. Then the next year they had to break and

remove some bone in my toes on the other foot and I was out of work for

10 weeks. I NEVER want to see those crutches again!!

RE:

We did the tonsils during the summer, but I had mine out in the middle

of 10th grade, and only lost about a week of school. Actually the

summer he had them out, he also had a cast on his arm and a broken

toe....and I had just had two foot surgeries and a hernia surgery. What

a summer!!!!

I hope your daughter gets some resolution soon....I know I always HATE

being sick, esp. the head and throat.

BTW, how many days did

> your son lose from school when they removed his tonsils?

>

>

[Guest guest]

, go safely and have fun!!!!

Shaye

[Guest guest]

Way cool, . congratulations on an amazing hook-up. continued success -

it only gets better!

) Jackie

[Guest guest]

Hey, ,

It sounds as though things are going really well for you. Your

experience is helping me to keep things in perspective, as well, so thanks for

sharing! Continued success. We KNOW it gets even better!

) Jackie

[Guest guest]

,

Thank you so much! As always, your caring radiates through the computer!

I will certainly let him know

> ,

>

> If your husband would like to ask me questions about my CI

experiences as a

> totally blind person, he's more than welcome to e-mail me.

>

>

> Implanted: 12/22/04 Activated: 1/18/05

> Deafblind/Postlingual

> BTE hearing aid user 20 years

> Severe-profound hearing loss 10 years

[Guest guest]

,

No problem! I don't know what I would have done without the information,

support and encouragement everyone on this list gave me this time last year.

I'm glad I can return the favor! <smile>

Implanted: 12/22/04 Activated: 1/18/05

Deafblind/Postlingual

BTE hearing aid user 20 years

Severe-profound hearing loss 10 years

[Guest guest]

Hi, ,

You are just crazy.

Hahahaha - teasing you - our tinnitus is so erratic, sometimes roaring,

sometimes a clicking sound, so I don't see why it shouldn't seem to boost our

hearing a bit at times, as well. For years my unpredictable womanly cycles

could

only be predicted by my husband, by how I was hearing suddenly worse. No audi

or company we called could validate this and I was considered crazy, too. My

husband and I knew the truth, which I am hearing more of from other woman

these days. So hang in there, and smile for no reason, just to keep them

guessing!

) Jackie

[Guest guest]

Wow, ! You understood in a Chineese restaurant? Way cool, girl!

Continued success. And watch out, I'm catching up. <smiles>

) Jackie

[Guest guest]

In a message dated 10/21/2005 8:18:48 PM Eastern Daylight Time,

cindy4baskets@... writes:

Hi Lori,

Welcome to the group! There are some very helpful and experienced

people here that have helped me along the way. I was recently

implanted in September, activated on the 21st and it is going

wonderfully for me!

I grew up deaf, have a deaf sister, and am married to deaf man. I am

also a teacher assistant for deaf/hh children in a public school.

You are doing the best thing for Karleigh in that you are using ASL

with her. Language is a critical part of childrens lives, beginning at

birth. With the absence of hearing, it is so important that she have a

means of communication. Because you are signing to her, she should be

able to develop her language skills, through sign and later, verbally.

Did you know that even hearing babies who are exposed to sign language

from birth can have IQ's on average, 15 points higher than babies not

exposed to sign language? Since motor skills develop prior to verbal

skills, infants realize that all that crying is unnecessary if they

can get the message across! I have seen babies as young as 7 months

signing milk. One infant would pat his diaper, indicating it was wet

and time for a change at 9 months!

I wrote a research paper on Language development and cochlear implants

in children. If you'd like to read it, feel free to email me off the

list and I will send it your way!

You sound like a busy mom! Once again, welcome

Freedom, 9/21/05 HOOKED!!

thanks for the welcome cindy & yes, i'd love to read your paper

~ THE SHEPLERS ~

~ Spike & Lori ~

~ , Brit, Kiara, Ruby & Karleigh ~

" What I've said, that will I bring about & what I've planned, THAT WILL I DO. "

Isaiah 46:11 †

+ + + + + + + + + + + + + + + + + +

~ join & read about our family ~

thesheplercrew

[Guest guest]

Hi, ,

Getting 90% of what is said at an all day workshop is amazing!

Congratulations! When I went bilateral I had to rely on my one CI for 3 weeks

before

hook-up. I didn't think I was going to get much in the way of speech. I was

amazed to find I did better than I ever did with just the one CI that I had

been using in conjunction with my hearing aid. Now, what was my " bad " ear for

most of my life, has become my good ear. My Freedom, the latest implant for me,

is in training and doing quite well. Thanks for sharing your success!

) Jackie

Implanted - right ear - Oct.2002 - Nucleus 24/3G

Reimplanted - right ear - Jan.2005 - Nucleus 24C/3G

Implanted - left ear - Sept.2005 - Nucleus-Freedom