Guest guest Posted July 25, 2009 Report Share Posted July 25, 2009 SHOOT! Lets hope its not lupus. But isnt lupus more of an organ type of arthritis annie.? I knew a lady with lupus and yes she did hurt, but not that bad. What lupus was doing was attacking her organs, but she had it for years and years and years. They did a study, my mother particvipated years back. And the medical community were trying to connect a severe emotional upset with the onset of a immune disorder like RA. It hasnt been very long since that awful thing happened to you. I hope it didnt trigger something. > > they already ruled out LYME 2 times. > Annie > > A poet is, after all, to see > > > > > > > > From: grasshopperx_10 <woody1014@> > > Subject: Re: I'm waiting for the guru? > > neck pain > > Date: Friday, July 24, 2009, 1:57 PM > > > > > > Where do you go DEBBIE? I was thinking of you. And presto there you appear.Yes I always have creep news. The latest is this: CREEP said he wrote in his wife's name, on my fathers insurance form. Creep wrote in HIS wife as beneficiary. Actaully WROTE his wife in there.And he admits it too! he has pancreatic cancer now! We filed a court order to go to his house to look for all our things, and they are not letting us go in. So next week the judge is going to decide, and he'll probably wonder what they are hiding? and let us in with a court order. > > Lets see, my stupid neck is still the same(bad), it has been raining since MAY, i'm not kidding only 4 sunny days, i am sitting here in winter clothes! Two pairs of socks, a turtleneck and a flannel shirt, and i'm still cold. DONT anyone ever move to MAINE. There is no sun, its worse than seattle! > > How is your neck and dizziness DEB? cindy > > > > > > > > Hello! After all this time, and this is the first post I read, LMAO! > > > How ya doing everyone? I'm okay, still hanging on and think about all of you. Just not as much computer time as I'd like lately. Dealt with a mega-bout of depression recently but trying to crawl my way out of that hole and learn to smile again. I need not even say how crying can kick in all the other stuff we all have going on. Hope everybody is okay out there too. > > > First Q..., any creep news? What happened with that? > > > HUGS!!! > > > Debbie > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >Where is he? I thought that would be fun? You got him Annie? cindy > > > > > I'm waiting for him to join. He requested to join, then when I was > > > > > ready to approve him he changed his email address 2X. I sent him an > > > > > invite to his latest email address, but have received no answer. so > > > > > the mystery thickens. Dave > > > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2009 Report Share Posted July 25, 2009 this came ON SUDDENLY IN jUNE-- i WAS fine IN ALL THE MONTHS FROM JAN-maY THEN I GOT SICK OVERNIGHT-- THE DR THOUGHT IS WAS PMR-- BUT NOW HE DOES NOT THINK SO, I AM SO ALONE AND LIVE ALONE AN FEEL SO DEPRESSED TOMORROW IS THE 1 ST YEAR ANNIVERSARY OF MY BEST FRIENFD'S DEATH TOO-- THE 26 OF JULY I FOUND HIS BODY. ANNIE A poet is, after all, to see > > > > > > From: grasshopperx_10 <woody1014@> > > Subject: Re: I'm waiting for the guru? > > neck pain > > Date: Friday, July 24, 2009, 1:57 PM > > > > > > Where do you go DEBBIE? I was thinking of you. And presto there you appear.Yes I always have creep news. The latest is this: CREEP said he wrote in his wife's name, on my fathers insurance form. Creep wrote in HIS wife as beneficiary. Actaully WROTE his wife in there.And he admits it too! he has pancreatic cancer now! We filed a court order to go to his house to look for all our things, and they are not letting us go in. So next week the judge is going to decide, and he'll probably wonder what they are hiding? and let us in with a court order. > > Lets see, my stupid neck is still the same(bad), it has been raining since MAY, i'm not kidding only 4 sunny days, i am sitting here in winter clothes! Two pairs of socks, a turtleneck and a flannel shirt, and i'm still cold. DONT anyone ever move to MAINE. There is no sun, its worse than seattle! > > How is your neck and dizziness DEB? cindy > > > > > > > > Hello! After all this time, and this is the first post I read, LMAO! > > > How ya doing everyone? I'm okay, still hanging on and think about all of you. Just not as much computer time as I'd like lately. Dealt with a mega-bout of depression recently but trying to crawl my way out of that hole and learn to smile again. I need not even say how crying can kick in all the other stuff we all have going on. Hope everybody is okay out there too. > > > First Q..., any creep news? What happened with that? > > > HUGS!!! > > > Debbie > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >Where is he? I thought that would be fun? You got him Annie? cindy > > > > > I'm waiting for him to join. He requested to join, then when I was > > > > > ready to approve him he changed his email address 2X. I sent him an > > > > > invite to his latest email address, but have received no answer. so > > > > > the mystery thickens. Dave > > > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2009 Report Share Posted July 25, 2009 this came ON SUDDENLY IN jUNE-- i WAS fine IN ALL THE MONTHS FROM JAN-maY THEN I GOT SICK OVERNIGHT-- THE DR THOUGHT IS WAS PMR-- BUT NOW HE DOES NOT THINK SO, I AM SO ALONE AND LIVE ALONE AN FEEL SO DEPRESSED TOMORROW IS THE 1 ST YEAR ANNIVERSARY OF MY BEST FRIENFD'S DEATH TOO-- THE 26 OF JULY I FOUND HIS BODY. ANNIE A poet is, after all, to see > > > > > > From: grasshopperx_10 <woody1014@> > > Subject: Re: I'm waiting for the guru? > > neck pain > > Date: Friday, July 24, 2009, 1:57 PM > > > > > > Where do you go DEBBIE? I was thinking of you. And presto there you appear.Yes I always have creep news. The latest is this: CREEP said he wrote in his wife's name, on my fathers insurance form. Creep wrote in HIS wife as beneficiary. Actaully WROTE his wife in there.And he admits it too! he has pancreatic cancer now! We filed a court order to go to his house to look for all our things, and they are not letting us go in. So next week the judge is going to decide, and he'll probably wonder what they are hiding? and let us in with a court order. > > Lets see, my stupid neck is still the same(bad), it has been raining since MAY, i'm not kidding only 4 sunny days, i am sitting here in winter clothes! Two pairs of socks, a turtleneck and a flannel shirt, and i'm still cold. DONT anyone ever move to MAINE. There is no sun, its worse than seattle! > > How is your neck and dizziness DEB? cindy > > > > > > > > Hello! After all this time, and this is the first post I read, LMAO! > > > How ya doing everyone? I'm okay, still hanging on and think about all of you. Just not as much computer time as I'd like lately. Dealt with a mega-bout of depression recently but trying to crawl my way out of that hole and learn to smile again. I need not even say how crying can kick in all the other stuff we all have going on. Hope everybody is okay out there too. > > > First Q..., any creep news? What happened with that? > > > HUGS!!! > > > Debbie > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >Where is he? I thought that would be fun? You got him Annie? cindy > > > > > I'm waiting for him to join. He requested to join, then when I was > > > > > ready to approve him he changed his email address 2X. I sent him an > > > > > invite to his latest email address, but have received no answer. so > > > > > the mystery thickens. Dave > > > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2009 Report Share Posted July 25, 2009 I know how you feel, but Dont think about it Annie, and try not to think about being ALONE either. When you feel upset about being alone, put it right out of your mind. Dont dwell on that. Push those thoughts right OUT. When i get those kind of thoughts i put them right out of my mind. Because those kind of thoughts are bad for your health physically too. Just remember things usually work out. I know you have been having a ruff time lately. The worse thing you can do is get panicky. I know cause i am like that myself. ok? cindy > > > this came ON SUDDENLY IN jUNE-- i WAS fine IN ALL THE MONTHS FROM JAN-maY THEN I GOT SICK OVERNIGHT-- THE DR THOUGHT IS WAS PMR-- BUT NOW HE DOES NOT THINK SO, > I AM SO ALONE AND LIVE ALONE AN FEEL SO DEPRESSED > TOMORROW IS THE 1 ST YEAR ANNIVERSARY OF MY BEST FRIENFD'S DEATH TOO-- THE 26 OF JULY I FOUND HIS BODY. > ANNIE > > > A poet is, after all, to see > > > > > > > > > > > From: grasshopperx_10 <woody1014@> > > > Subject: Re: I'm waiting for the guru? > > > neck pain > > > Date: Friday, July 24, 2009, 1:57 PM > > > > > > > > > Where do you go DEBBIE? I was thinking of you. And presto there you appear.Yes I always have creep news. The latest is this: CREEP said he wrote in his wife's name, on my fathers insurance form. Creep wrote in HIS wife as beneficiary. Actaully WROTE his wife in there.And he admits it too! he has pancreatic cancer now! We filed a court order to go to his house to look for all our things, and they are not letting us go in. So next week the judge is going to decide, and he'll probably wonder what they are hiding? and let us in with a court order. > > > Lets see, my stupid neck is still the same(bad), it has been raining since MAY, i'm not kidding only 4 sunny days, i am sitting here in winter clothes! Two pairs of socks, a turtleneck and a flannel shirt, and i'm still cold. DONT anyone ever move to MAINE. There is no sun, its worse than seattle! > > > How is your neck and dizziness DEB? cindy > > > > > > > > > > > Hello! After all this time, and this is the first post I read, LMAO! > > > > How ya doing everyone? I'm okay, still hanging on and think about all of you. Just not as much computer time as I'd like lately. Dealt with a mega-bout of depression recently but trying to crawl my way out of that hole and learn to smile again. I need not even say how crying can kick in all the other stuff we all have going on. Hope everybody is okay out there too. > > > > First Q..., any creep news? What happened with that? > > > > HUGS!!! > > > > Debbie > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >Where is he? I thought that would be fun? You got him Annie? cindy > > > > > > I'm waiting for him to join. He requested to join, then when I was > > > > > > ready to approve him he changed his email address 2X. I sent him an > > > > > > invite to his latest email address, but have received no answer. so > > > > > > the mystery thickens. Dave > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2009 Report Share Posted July 25, 2009 I know how you feel, but Dont think about it Annie, and try not to think about being ALONE either. When you feel upset about being alone, put it right out of your mind. Dont dwell on that. Push those thoughts right OUT. When i get those kind of thoughts i put them right out of my mind. Because those kind of thoughts are bad for your health physically too. Just remember things usually work out. I know you have been having a ruff time lately. The worse thing you can do is get panicky. I know cause i am like that myself. ok? cindy > > > this came ON SUDDENLY IN jUNE-- i WAS fine IN ALL THE MONTHS FROM JAN-maY THEN I GOT SICK OVERNIGHT-- THE DR THOUGHT IS WAS PMR-- BUT NOW HE DOES NOT THINK SO, > I AM SO ALONE AND LIVE ALONE AN FEEL SO DEPRESSED > TOMORROW IS THE 1 ST YEAR ANNIVERSARY OF MY BEST FRIENFD'S DEATH TOO-- THE 26 OF JULY I FOUND HIS BODY. > ANNIE > > > A poet is, after all, to see > > > > > > > > > > > From: grasshopperx_10 <woody1014@> > > > Subject: Re: I'm waiting for the guru? > > > neck pain > > > Date: Friday, July 24, 2009, 1:57 PM > > > > > > > > > Where do you go DEBBIE? I was thinking of you. And presto there you appear.Yes I always have creep news. The latest is this: CREEP said he wrote in his wife's name, on my fathers insurance form. Creep wrote in HIS wife as beneficiary. Actaully WROTE his wife in there.And he admits it too! he has pancreatic cancer now! We filed a court order to go to his house to look for all our things, and they are not letting us go in. So next week the judge is going to decide, and he'll probably wonder what they are hiding? and let us in with a court order. > > > Lets see, my stupid neck is still the same(bad), it has been raining since MAY, i'm not kidding only 4 sunny days, i am sitting here in winter clothes! Two pairs of socks, a turtleneck and a flannel shirt, and i'm still cold. DONT anyone ever move to MAINE. There is no sun, its worse than seattle! > > > How is your neck and dizziness DEB? cindy > > > > > > > > > > > Hello! After all this time, and this is the first post I read, LMAO! > > > > How ya doing everyone? I'm okay, still hanging on and think about all of you. Just not as much computer time as I'd like lately. Dealt with a mega-bout of depression recently but trying to crawl my way out of that hole and learn to smile again. I need not even say how crying can kick in all the other stuff we all have going on. Hope everybody is okay out there too. > > > > First Q..., any creep news? What happened with that? > > > > HUGS!!! > > > > Debbie > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >Where is he? I thought that would be fun? You got him Annie? cindy > > > > > > I'm waiting for him to join. He requested to join, then when I was > > > > > > ready to approve him he changed his email address 2X. I sent him an > > > > > > invite to his latest email address, but have received no answer. so > > > > > > the mystery thickens. Dave > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2009 Report Share Posted July 27, 2009 I am sure that no one is bummed out and of course we all hope to be able to help all of our members needs.. : ) Tom In a message dated 7/25/2009 6:23:40 A.M. Mountain Daylight Time, gatorma1@... writes: Dear Cold as you are up there it is hot and sticky here in Florida and I might have LUPUS! getting tested at least 10 times now. I have been sick since June 1 st and they cant find the problem-- cant walk, strange sensations in my skin, throat, ears, dermatitis, depressions, panics, all over body aches, flus that are ten times worse than a normal flu - -all indicators of an autoimmune disease but which one? They don't know there are over 80 of them-- my face feels like it is on fire too. I am waiting to see a specialist in August 12, that is still far off and i am living with all of this-- it has been horrible and I having problems without any help as usual because I am so isolated! So there you have it NO family! Dont mean to bum you al, out-- Love, Annie A poet is, after all, to see From: grasshopperx_Fro<_woody1014@myfairpoiwoody1_ (mailto:woody1014@...) > Subject: [PainInTheNeck-Subject: [PainInTheNeck-<WBR>Ba _PainInTheNeck-PainInTheNeck-<WPain_ (mailto:neck pain ) Date: Friday, July 24, 2009, 1:57 PM Where do you go DEBBIE? I was thinking of you. And presto there you appear.Yes I always have creep news. The latest is this: CREEP said he wrote in his wife's name, on my fathers insurance form. Creep wrote in HIS wife as beneficiary. Actaully WROTE his wife in there.And he admits it too! he has pancreatic cancer now! We filed a court order to go to his house to look for all our things, and they are not letting us go in. So next week the judge is going to decide, and he'll probably wonder what they are hiding? and let us in with a court order. Lets see, my stupid neck is still the same(bad), it has been raining since MAY, i'm not kidding only 4 sunny days, i am sitting here in winter clothes! Two pairs of socks, a turtleneck and a flannel shirt, and i'm still cold. DONT anyone ever move to MAINE. There is no sun, its worse than seattle! How is your neck and dizziness DEB? cindy > > Hello! After all this time, and this is the first post I read, LMAO! > How ya doing everyone? I'm okay, still hanging on and think about all of you. Just not as much computer time as I'd like lately. Dealt with a mega-bout of depression recently but trying to crawl my way out of that hole and learn to smile again. I need not even say how crying can kick in all the other stuff we all have going on. Hope everybody is okay out there too. > First Q..., any creep news? What happened with that? > HUGS!!! > Debbie > > > > > > > > > > > > > > >Where is he? I thought that would be fun? You got him Annie? cindy > > > I'm waiting for him to join. He requested to join, then when I was > > > ready to approve him he changed his email address 2X. I sent him an > > > invite to his latest email address, but have received no answer. so > > > the mystery thickens. Dave > > > > > > ------------------------------------ Groups Links [Non-text portions of this message have been removed] **************A bad credit score is 600 & below. Checking won't affect your score. See now! (http://pr.atwola.com/promoclk/100126575x1221823322x1201398723/aol?redir=http://\ www.freecreditreport.com/pm/default.aspx?sc=668072 & hmpgI D=62 & bcd=JulyBadfooterNO62) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2009 Report Share Posted July 27, 2009 I am sure that no one is bummed out and of course we all hope to be able to help all of our members needs.. : ) Tom In a message dated 7/25/2009 6:23:40 A.M. Mountain Daylight Time, gatorma1@... writes: Dear Cold as you are up there it is hot and sticky here in Florida and I might have LUPUS! getting tested at least 10 times now. I have been sick since June 1 st and they cant find the problem-- cant walk, strange sensations in my skin, throat, ears, dermatitis, depressions, panics, all over body aches, flus that are ten times worse than a normal flu - -all indicators of an autoimmune disease but which one? They don't know there are over 80 of them-- my face feels like it is on fire too. I am waiting to see a specialist in August 12, that is still far off and i am living with all of this-- it has been horrible and I having problems without any help as usual because I am so isolated! So there you have it NO family! Dont mean to bum you al, out-- Love, Annie A poet is, after all, to see From: grasshopperx_Fro<_woody1014@myfairpoiwoody1_ (mailto:woody1014@...) > Subject: [PainInTheNeck-Subject: [PainInTheNeck-<WBR>Ba _PainInTheNeck-PainInTheNeck-<WPain_ (mailto:neck pain ) Date: Friday, July 24, 2009, 1:57 PM Where do you go DEBBIE? I was thinking of you. And presto there you appear.Yes I always have creep news. The latest is this: CREEP said he wrote in his wife's name, on my fathers insurance form. Creep wrote in HIS wife as beneficiary. Actaully WROTE his wife in there.And he admits it too! he has pancreatic cancer now! We filed a court order to go to his house to look for all our things, and they are not letting us go in. So next week the judge is going to decide, and he'll probably wonder what they are hiding? and let us in with a court order. Lets see, my stupid neck is still the same(bad), it has been raining since MAY, i'm not kidding only 4 sunny days, i am sitting here in winter clothes! Two pairs of socks, a turtleneck and a flannel shirt, and i'm still cold. DONT anyone ever move to MAINE. There is no sun, its worse than seattle! How is your neck and dizziness DEB? cindy > > Hello! After all this time, and this is the first post I read, LMAO! > How ya doing everyone? I'm okay, still hanging on and think about all of you. Just not as much computer time as I'd like lately. Dealt with a mega-bout of depression recently but trying to crawl my way out of that hole and learn to smile again. I need not even say how crying can kick in all the other stuff we all have going on. Hope everybody is okay out there too. > First Q..., any creep news? What happened with that? > HUGS!!! > Debbie > > > > > > > > > > > > > > >Where is he? I thought that would be fun? You got him Annie? cindy > > > I'm waiting for him to join. He requested to join, then when I was > > > ready to approve him he changed his email address 2X. I sent him an > > > invite to his latest email address, but have received no answer. so > > > the mystery thickens. Dave > > > > > > ------------------------------------ Groups Links [Non-text portions of this message have been removed] **************A bad credit score is 600 & below. Checking won't affect your score. See now! (http://pr.atwola.com/promoclk/100126575x1221823322x1201398723/aol?redir=http://\ www.freecreditreport.com/pm/default.aspx?sc=668072 & hmpgI D=62 & bcd=JulyBadfooterNO62) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2009 Report Share Posted August 1, 2009 how DO you know ????????????????????? I have all but two symptoms. Annie A poet is, after all, to see > > > From: grasshopperx_10 <woody1014@...> > Subject: Here it is The stuck valve???????????????? > neck pain > Date: Friday, July 31, 2009, 1:09 PM > > > http://www.barrettsinfo.com/content/info_2b1_les.cfm I totally FORGOT to ask. I really did( I'm an idiot) but look here is a page on it. > I love GOOGLE. One of my friends calls it DR. GOOGLE. cindy > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2009 Report Share Posted August 1, 2009 how DO you know ????????????????????? I have all but two symptoms. Annie A poet is, after all, to see > > > From: grasshopperx_10 <woody1014@...> > Subject: Here it is The stuck valve???????????????? > neck pain > Date: Friday, July 31, 2009, 1:09 PM > > > http://www.barrettsinfo.com/content/info_2b1_les.cfm I totally FORGOT to ask. I really did( I'm an idiot) but look here is a page on it. > I love GOOGLE. One of my friends calls it DR. GOOGLE. cindy > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2009 Report Share Posted August 1, 2009 The symptoms you have could be anything. Example. If i were to look at a symptom list for MS. I have them all. I dont have ms tho. Symptoms are funny. They can fit many diseases. I will pray you dont have it. But i would be scared too Annie. But that would be the worse case scenerio. How long will you have to wait to find out for sure? If you get scared and need to talk, i am always home. Dont forget that. > > how DO you know ????????????????????? > I have all but two symptoms. > Annie > A poet is, after all, to see > > > > > > > > From: grasshopperx_10 <woody1014@> > > Subject: Here it is The stuck valve???????????????? > > neck pain > > Date: Friday, July 31, 2009, 1:09 PM > > > > > > http://www.barrettsinfo.com/content/info_2b1_les.cfm I totally FORGOT to ask. I really did( I'm an idiot) but look here is a page on it. > > I love GOOGLE. One of my friends calls it DR. GOOGLE. cindy > > > > > > > > ------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2009 Report Share Posted August 1, 2009 The symptoms you have could be anything. Example. If i were to look at a symptom list for MS. I have them all. I dont have ms tho. Symptoms are funny. They can fit many diseases. I will pray you dont have it. But i would be scared too Annie. But that would be the worse case scenerio. How long will you have to wait to find out for sure? If you get scared and need to talk, i am always home. Dont forget that. > > how DO you know ????????????????????? > I have all but two symptoms. > Annie > A poet is, after all, to see > > > > > > > > From: grasshopperx_10 <woody1014@> > > Subject: Here it is The stuck valve???????????????? > > neck pain > > Date: Friday, July 31, 2009, 1:09 PM > > > > > > http://www.barrettsinfo.com/content/info_2b1_les.cfm I totally FORGOT to ask. I really did( I'm an idiot) but look here is a page on it. > > I love GOOGLE. One of my friends calls it DR. GOOGLE. cindy > > > > > > > > ------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2009 Report Share Posted August 3, 2009 YES Rochelle is always right on the money! Well rochelle knows more than any MD around my neck of the woods! Well reason I mention that oyster thing is.. You never know now a days. It seems ever since that incident, you havent been feeling well. You dont know, if it is connected. And doctors may not know either. Gosh gees maybe there is a bug in your system from that effecting your whole system. . Make ****sure*** you mention that. Who the heck knows? maybe you ate red tide. Seems like you have an infection of some type. But the itchy skin? hows your liver? do they ever do any blood work up on your liver?(must). I am praying for you. I am worried too! your my favorite poet. Heck your the only poet i know annie! > > kyes it is not related I don't think-- it was from raw oysters--(poisoning) this is more lymph system breakdown and they are ruling out Lymphoma- Wednesday I drink barium and they take photos of my G1-- pray for me > Hat did you think OF WHAT ROCHELLE SAID ABOUT YOUR NECK--- SOUNDS LIKE YOUR SITUATION > ANNIE > > I am very scred Love Annie > > A poet is, after all, to see > > > > > From: grasshopperx_10 <woody1014@...> > Subject: Annie > neck pain > Date: Sunday, August 2, 2009, 2:42 PM > > > what happened to you earlier this year? You ate something and got real sick? what was that? Was that like some kind of bizaare shellfish posioning? I cant remember. > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2009 Report Share Posted August 3, 2009 YES Rochelle is always right on the money! Well rochelle knows more than any MD around my neck of the woods! Well reason I mention that oyster thing is.. You never know now a days. It seems ever since that incident, you havent been feeling well. You dont know, if it is connected. And doctors may not know either. Gosh gees maybe there is a bug in your system from that effecting your whole system. . Make ****sure*** you mention that. Who the heck knows? maybe you ate red tide. Seems like you have an infection of some type. But the itchy skin? hows your liver? do they ever do any blood work up on your liver?(must). I am praying for you. I am worried too! your my favorite poet. Heck your the only poet i know annie! > > kyes it is not related I don't think-- it was from raw oysters--(poisoning) this is more lymph system breakdown and they are ruling out Lymphoma- Wednesday I drink barium and they take photos of my G1-- pray for me > Hat did you think OF WHAT ROCHELLE SAID ABOUT YOUR NECK--- SOUNDS LIKE YOUR SITUATION > ANNIE > > I am very scred Love Annie > > A poet is, after all, to see > > > > > From: grasshopperx_10 <woody1014@...> > Subject: Annie > neck pain > Date: Sunday, August 2, 2009, 2:42 PM > > > what happened to you earlier this year? You ate something and got real sick? what was that? Was that like some kind of bizaare shellfish posioning? I cant remember. > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2009 Report Share Posted August 3, 2009 I adore you Tell Dave hello from me too, Is it cold up there for I am hot and sick! Annie A poet is, after all, to see > > > From: grasshopperx_10 <woody1014@...> > Subject: Annie > neck pain > Date: Sunday, August 2, 2009, 2:42 PM > > > what happened to you earlier this year? You ate something and got real sick? what was that? Was that like some kind of bizaare shellfish posioning? I cant remember. > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2009 Report Share Posted August 3, 2009 I adore you Tell Dave hello from me too, Is it cold up there for I am hot and sick! Annie A poet is, after all, to see > > > From: grasshopperx_10 <woody1014@...> > Subject: Annie > neck pain > Date: Sunday, August 2, 2009, 2:42 PM > > > what happened to you earlier this year? You ate something and got real sick? what was that? Was that like some kind of bizaare shellfish posioning? I cant remember. > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2009 Report Share Posted October 31, 2009 At 18,Kristie Jo is still in one of the priority groups to receive the vaccine - that age group ranges from 6 months to 24 years. From what I understand, the first shipment was sent & each state Health Department received a small amount of the vaccine. That was distributed according to the plan developed in the state. (Did prisons in Texas actually recieve it? That is appalling, in my opinion.) In land, for a physician's office to received and be able to immunize their staff and provide it to the public, they had to register with the state, let them know how many they were interested in receiving and sign an agreement that was several pages long. land has distributed their first shipment, and from what I understand the amounts were very small. A second distribution is expected from the state sometime next week. Much of the vaccine received went to public health sites - and the lines have been very long from what I understand - with one Baltimore County location closing hours early because they ran out. Val Rob's Mom(12,systemic) Fwd: , Does this mean that not even the health care workers in Oregon are getting it yet. I know that there is a big stink in Texas over the prison inmates getting it before the general public. I wonder why some states are getting it and not others. I had my injection two weeks ago. When the clinic got the injection and flu mist in this week I asked for permission for my girls to get it and permission was granted. I am not sure why they said yes to Kristie Jo since she is 18 but they did. We are not a site for this to be given to the general public. We only received 10 doses of the injectable vaccine and 50 doses of the flumist. We will be out before the end of next week and we will not even advertise. Veri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2009 Report Share Posted October 31, 2009 Did Rob get his yet? He is high priority. On Oct 31, 2009, at 7:34 AM, carneyval@... wrote: > > At 18,Kristie Jo is still in one of the priority groups to receive > the vaccine - that age group ranges from 6 months to 24 years. > From what I understand, the first shipment was sent & each state > Health Department received a small amount of the vaccine. That was > distributed according to the plan developed in the state. (Did > prisons in Texas actually recieve it? That is appalling, in my > opinion.) In land, for a physician's office to received and be > able to immunize their staff and provide it to the public, they had > to register with the state, let them know how many they were > interested in receiving and sign an agreement that was several > pages long. land has distributed their first shipment, and from > what I understand the amounts were very small. A second > distribution is expected from the state sometime next week. Much of > the vaccine received went to public health sites - and the lines > have been very long from what I understand - with one Baltimore > County location closing hours early because they ran out. > Val > Rob's Mom(12,systemic) > > Fwd: > > , > > Does this mean that not even the health care workers in Oregon are > getting it yet. I know that there is a big stink in Texas over the > prison inmates getting it before the general public. I wonder why > some states are getting it and not others. I had my injection two > weeks ago. When the clinic got the injection and flu mist in this > week I asked for permission for my girls to get it and permission > was granted. I am not sure why they said yes to Kristie Jo since > she is 18 but they did. We are not a site for this to be given to > the general public. We only received 10 doses of the injectable > vaccine and 50 doses of the flumist. We will be out before the end > of next week and we will not even advertise. > > Veri > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2009 Report Share Posted October 31, 2009 Not yet, but he will be getting it through the group I work for - probably next week, they registered with the state of land and received a small amount - are currently vaccinating their front line staff, and the small amount left is being made available to our kids. (Not everyone with kids in our company is having their kids vaccinated) so the Clinical Director at each of our locations is providing what is left to patients according to the recommendations of the CDC. Since I work in our corporate office & rarely even go to the clinical sites, I am not receiving it with this shipment - though when further shipments arrive I will be able to get it, as I have a medical issue that puts me in the priority group. We will see how all of that goes. I hope it becomes available for n soon. Val Rob's Mom (12, systemic) Fwd: > > , > > Does this mean that not even the health care workers in Oregon are > getting it yet. I know that there is a big stink in Texas over the > prison inmates getting it before the general public. I wonder why > some states are getting it and not others. I had my injection two > weeks ago. When the clinic got the injection and flu mist in this > week I asked for permission for my girls to get it and permission > was granted. I am not sure why they said yes to Kristie Jo since > she is 18 but they did. We are not a site for this to be given to > the general public. We only received 10 doses of the injectable > vaccine and 50 doses of the flumist. We will be out before the end > of next week and we will not even advertise. > > Veri > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2009 Report Share Posted October 31, 2009 That is great news that he will be receiving it soon. The three kids and myself have had the flu already. In August, Tulane University was on the front page of the NY Times because they were so hard hit by the swine flu. Of ALL of the universities in the U.S. we could have sent our child to-we sent her to Tulane. Katelyn quickly came down with it. She is an asthmatic. She did not go in to get checked out. It quickly went to her lungs. She started on her inhalers immediately. She ended up on high dose steroids for an extended period of time to get it under control. And she did end up at the doctor's office with breathing issues. n caught it the following week-as soon as her college began. We screamed at her to go into the health clinic. I emailed the clinic, reminding them of her past history. Systemic and MAS. She walked in, they confirmed it, gave her Tamiflu and quarantined her. The Tamiflu was a Godsend. got it next. 1/3 of his class was out for a week. Then I got it from him. It went straight to my lungs, too. On an interesting sidenote: my mother lives with us. I am her caretaker. She is deaf. I have to scream into her left ear. So I was in her face all of the time with this flu. She never got it. She was born in January of 1916. (she is almost 94) I guess she must have been exposed to the original 1918 swine flu and have immunity. I worry about the 120 children in our support group. I view all of those children as family and want desperately for them all to be protected against it. That is why I am on pins and needles. On Oct 31, 2009, at 7:50 AM, carneyval@... wrote: > > > Not yet, but he will be getting it through the group I work for - > probably next week, they registered with the state of land and > received a small amount - are currently vaccinating their front > line staff, and the small amount left is being made available to > our kids. (Not everyone with kids in our company is having their > kids vaccinated) so the Clinical Director at each of our locations > is providing what is left to patients according to the > recommendations of the CDC. Since I work in our corporate office & > rarely even go to the clinical sites, I am not receiving it with > this shipment - though when further shipments arrive I will be able > to get it, as I have a medical issue that puts me in the priority > group. We will see how all of that goes. I hope it becomes > available for n soon. > Val > Rob's Mom (12, systemic) > > Fwd: > > > > , > > > > Does this mean that not even the health care workers in Oregon are > > getting it yet. I know that there is a big stink in Texas over the > > prison inmates getting it before the general public. I wonder why > > some states are getting it and not others. I had my injection two > > weeks ago. When the clinic got the injection and flu mist in this > > week I asked for permission for my girls to get it and permission > > was granted. I am not sure why they said yes to Kristie Jo since > > she is 18 but they did. We are not a site for this to be given to > > the general public. We only received 10 doses of the injectable > > vaccine and 50 doses of the flumist. We will be out before the end > > of next week and we will not even advertise. > > > > Veri > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2009 Report Share Posted November 2, 2009 Hi, . Haven't seen you posting in a while and was wondering how you were doing. I'm just getting through my email so perhaps you posted an update? Hope you are feeling well. You know my son, like yours, won't even get a regular flu shot either. Not sure what happens to these guys. I'm right there with you on my knees, Michele ________________________________ From: [mailto: ] On Behalf Of and Schulz Sent: Saturday, October 31, 2009 1:52 PM Subject: Are you kidding me? He won't even get his flu shot. He applied for the military 2 weeks ago and won't listen to a word I tell him. That is a whole story in itself. I'm wearing out my knees in prayer for him. , RA and Rob 20 JAS Fwd: > > > > , > > > > Does this mean that not even the health care workers in Oregon > are > > getting it yet. I know that there is a big stink in Texas over > the > > prison inmates getting it before the general public. I wonder > why > > some states are getting it and not others. I had my injection > two > > weeks ago. When the clinic got the injection and flu mist in > this > > week I asked for permission for my girls to get it and > permission > > was granted. I am not sure why they said yes to Kristie Jo > since > > she is 18 but they did. We are not a site for this to be given > to > > the general public. We only received 10 doses of the > injectable > > vaccine and 50 doses of the flumist. We will be out before the > end > > of next week and we will not even advertise. > > > > Veri > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2009 Report Share Posted December 29, 2009 Dear , I'm glad you prevailed over the creep and got your stuff back. Here's to a great New Year. Rochelle > > > > > > From: grasshopperx_10 <woody1014@> > > Subject: Coleens post made me think of something > > neck pain > > Date: Sunday, December 27, 2009, 1:48 PM > > > > > > You know a couple of you, like Annie, have been told you have fibro pain related to cervical issues. Well dont get discouraged, cause it just may go away. > > I seem to go thru spells of that. I may hurt all over for 6 months, then it sort of goes away and may not come back for a few years. Then its back, then its gone. Very weird. > > Tried glucosamine, Nothing. Tried MSM. I thought that worked. Went on magnisium. I thought that helped some. Runs in cycles sort of. Cycles of pain and cycles of little pain. Is anyone else like this? cindy > > > > > > > > ------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2009 Report Share Posted December 29, 2009 Happy new year to you too Rochelle! How have you been feeling? I dont know Rochelle, if i take these winters much longer! this weekend they are threatening us with 2 feet of snow. My achey old body doesnt like shovels! cindy > > Dear , > > I'm glad you prevailed over the creep and got your stuff back. Here's to a great New Year. > > Rochelle > > > > > > > > > > > > > From: grasshopperx_10 <woody1014@> > > > Subject: Coleens post made me think of something > > > neck pain > > > Date: Sunday, December 27, 2009, 1:48 PM > > > > > > > > > You know a couple of you, like Annie, have been told you have fibro pain related to cervical issues. Well dont get discouraged, cause it just may go away. > > > I seem to go thru spells of that. I may hurt all over for 6 months, then it sort of goes away and may not come back for a few years. Then its back, then its gone. Very weird. > > > Tried glucosamine, Nothing. Tried MSM. I thought that worked. Went on magnisium. I thought that helped some. Runs in cycles sort of. Cycles of pain and cycles of little pain. Is anyone else like this? cindy > > > > > > > > > > > > ------------------------------------ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2010 Report Share Posted September 14, 2010 Tears are flowing. You are an amazing woman. So glad to count you among friends I would not have if not for Rob's JRA. Thanks for your pact with Mother . Everyone benefits. Bless you. , mom to Rob, JAS in remission Re: laughing > Oh, I have lots of memories. Good and bad. I imagine > I have post traumatic syndrome after her MAS episode. I > recently read an article in the NY Times of near misses with > your children. You are never the same as a parent. It > isn't like a terrible accident where they get better. It > is an episode which may happen again. So...... how do you > handle the MAS or the possibility of MAS? It is kind of > rare. But...... what I did and what I would counsel other > systemic parents to do is to print off information on MAS, and > keep a file of it on your desk. That is what we did. > And that fateful day, we grabbed the folder as we headed to the > ER. I would always make sure your docs are communicating > with one another. If blood tests are taken by your ped, > then make sure your ped rheumy gets copies immediately. > That is one thing I learned with the MAS > > You can't live in fear of it. You have to learn about it, > respect it, and pray that it never occurs. We are > vigilant, but I don't stress over it. It mimics the flu so > if your child is feeling well, then no worries. > > I started running when n was diagnosed. When she got > MAS, I started running. I mean, this time I really > ran. I run 5-6 times a week. 6-10 miles a day. > I love it. I run in a forest. If I can't run, I walk > in the forest. That is what works for me, but everyone is > different. I ran so much that I got hurt running a couple of > months ago. My knee meniscus got chewed up like > cabbage. Not pretty. It was painful. Had > surgery and now recovering. Am I running from > something? Probably, but that is how I deal with things. > > Yesterday, I was out with our ped rheumy. I run with her. > She said to me, " , look who you are. Look at your > life. Your friends. What you do. None of that would have > occurred if n didn't have jra. " She is right. > Yes, I want her health, but I have morphed into this person who > never would have come into being without this disease. I > have so many jra friends. I have the ped rheumy who is now > a good friend. My life would be totally different. > > So.... long answer, short. I haven't accepted it. I > doubt if I ever will. I try to channel my worries, my > anger, and my frustrations into something constructive. > > And the fatigue has been constantly with n for 11 > years. So when she visits and retires to her room at 7 or > 8 pm, I go in her room, crawl up next to her, and we watch > movies together on her laptop. I wouldn't trade those > times for a million dollars. She is feeling crummy, but I > drink up that time with her. I soak it up like a > sponge. I revel in it. I cherish it. > > I am a Mother fan. So I have made a bargain with her. (I > sure hope she is aware of it.) If n is allowed to > live, I have promised to forever help the children of Oregon and > SW Washington. (n, 21, systemic) > > > On Sep 14, 2010, at 6:04 PM, nn wrote: > > > Thank you for the reminder to laugh , that really helped > me today. I can't imagine how many stories you have with 11 > years of dealing with JIA. I'm coming up on that 1 year > anniversary of onset and remembering the sometimes ridiculous > things that have happened so far. It's a weird kind of feeling > to laugh about any of this but it's all so overwhelming > sometimes. Do you have any more tips for dealing with it, for > accepting it? > > > > It seems when is doing better clinically I have to keep > myself very much more busy to not let the fears of " what could > happen " overwhelm me? It's the " no cure " part of this disease > that's hard to accept. Particularly, with having systemic, > the MAS worry is always on my mind. Even if we put her on > Kineret next week and it works, the MAS fear is always there. Or > the thought that we could find a med that works for her and then > she can't tolerate it. I know, I know - what's the use in that > type of thinking?! I know we just need to stay alert for > problems and be thankful for the good days. > > > > Today had her TB test for starting the biologic; maybe > it's the " test " that got me thinking. It brings back all the > other tests and those terrible times when she was so, so sick. > cried a lot with just the tiny TB needle, she cried a lot > with the injected MTX last week. Putting her on Kineret is going > to be rough for a while, I'm telling myself that. But I figure > if it works that eventually she will be able to deal with the > shots. I just hate seeing the apprehension and fear in her eyes > BEFORE the shot. She works herself up, and the stress of that > causes the systemic rash to appear before my eyes. But then she > recovers and starts playing with her sister after 20 minutes or > so. So I shrug it off and go on with the day to day until the > next needle poke and we do it again. > > > > Sorry to be ranting and I hope this post isn't too long. It's > just that on the outside looks to family, friends, > neighbors to be doing so well, but in our lives we are > struggling with continued labs and more aggressive medicine. > It's a strange and funny place to be. > > > > nn (, 9, systemic since Oct 09) > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2010 Report Share Posted September 15, 2010 , I thank you so much for your support and encouragement also. It is a wonderful relationship you have with your daughter and i am sure that JRA has helped to build that relationship to what it is. I know the time I spend with Jaye is so very special. I get to spend time with her that I did not get to have with my other children. The hours of sitting in the waiting room for one doctor or another can never be counted. We use that time to talk and laugh and sometimes even sing. The hours we spend in the car between here and KC going tfo her appointments and back are numerous also. I have been so fortunate to have so much of that time with my other daughter Kristie Jo also because she likes to go to KC with us. She still does and is 19 now and in her second year of college. When Kristie was still in highschool I allowed her to miss a full day of school often so she could make the trip with us. She loves her sister and is a great support for her so we are all three very close. You commented that you had made a pact to always help the kids of Oregon and SW Washington, but you help so many more. Because of your committment to your local Arthritis group you help so many people across the globe. Just being on this list you will never know the number of lives you have impacted. I know that you have a very strong committment to the people on this list as well and I thank you for it. As I think back I do not remember many posts prior to n having MAS. I know I was on the list before that but the support, encouragement and prayers you received from this list amazed me and had a huge impact on me. This list has become a lifeline of support for me, it has become a family to me and you and many others have made that possible. Veri & Jaye 16 poly Re: Tears are flowing. You are an amazing woman. So glad to count you among friends I would not have if not for Rob's JRA. Thanks for your pact with Mother . Everyone benefits. Bless you. , mom to Rob, JAS in remission Re: laughing > Oh, I have lots of memories. Good and bad. I imagine > I have post traumatic syndrome after her MAS episode. I > recently read an article in the NY Times of near misses with > your children. You are never the same as a parent. It > isn't like a terrible accident where they get better. It > is an episode which may happen again. So...... how do you > handle the MAS or the possibility of MAS? It is kind of > rare. But...... what I did and what I would counsel other > systemic parents to do is to print off information on MAS, and > keep a file of it on your desk. That is what we did. > And that fateful day, we grabbed the folder as we headed to the > ER. I would always make sure your docs are communicating > with one another. If blood tests are taken by your ped, > then make sure your ped rheumy gets copies immediately. > That is one thing I learned with the MAS > > You can't live in fear of it. You have to learn about it, > respect it, and pray that it never occurs. We are > vigilant, but I don't stress over it. It mimics the flu so > if your child is feeling well, then no worries. > > I started running when n was diagnosed. When she got > MAS, I started running. I mean, this time I really > ran. I run 5-6 times a week. 6-10 miles a day. > I love it. I run in a forest. If I can't run, I walk > in the forest. That is what works for me, but everyone is > different. I ran so much that I got hurt running a couple of > months ago. My knee meniscus got chewed up like > cabbage. Not pretty. It was painful. Had > surgery and now recovering. Am I running from > something? Probably, but that is how I deal with things. > > Yesterday, I was out with our ped rheumy. I run with her. > She said to me, " , look who you are. Look at your > life. Your friends. What you do. None of that would have > occurred if n didn't have jra. " She is right. > Yes, I want her health, but I have morphed into this person who > never would have come into being without this disease. I > have so many jra friends. I have the ped rheumy who is now > a good friend. My life would be totally different. > > So.... long answer, short. I haven't accepted it. I > doubt if I ever will. I try to channel my worries, my > anger, and my frustrations into something constructive. > > And the fatigue has been constantly with n for 11 > years. So when she visits and retires to her room at 7 or > 8 pm, I go in her room, crawl up next to her, and we watch > movies together on her laptop. I wouldn't trade those > times for a million dollars. She is feeling crummy, but I > drink up that time with her. I soak it up like a > sponge. I revel in it. I cherish it. > > I am a Mother fan. So I have made a bargain with her. (I > sure hope she is aware of it.) If n is allowed to > live, I have promised to forever help the children of Oregon and > SW Washington. (n, 21, systemic) > > > On Sep 14, 2010, at 6:04 PM, nn wrote: > > > Thank you for the reminder to laugh , that really helped > me today. I can't imagine how many stories you have with 11 > years of dealing with JIA. I'm coming up on that 1 year > anniversary of onset and remembering the sometimes ridiculous > things that have happened so far. It's a weird kind of feeling > to laugh about any of this but it's all so overwhelming > sometimes. Do you have any more tips for dealing with it, for > accepting it? > > > > It seems when is doing better clinically I have to keep > myself very much more busy to not let the fears of " what could > happen " overwhelm me? It's the " no cure " part of this disease > that's hard to accept. Particularly, with having systemic, > the MAS worry is always on my mind. Even if we put her on > Kineret next week and it works, the MAS fear is always there. Or > the thought that we could find a med that works for her and then > she can't tolerate it. I know, I know - what's the use in that > type of thinking?! I know we just need to stay alert for > problems and be thankful for the good days. > > > > Today had her TB test for starting the biologic; maybe > it's the " test " that got me thinking. It brings back all the > other tests and those terrible times when she was so, so sick. > cried a lot with just the tiny TB needle, she cried a lot > with the injected MTX last week. Putting her on Kineret is going > to be rough for a while, I'm telling myself that. But I figure > if it works that eventually she will be able to deal with the > shots. I just hate seeing the apprehension and fear in her eyes > BEFORE the shot. She works herself up, and the stress of that > causes the systemic rash to appear before my eyes. But then she > recovers and starts playing with her sister after 20 minutes or > so. So I shrug it off and go on with the day to day until the > next needle poke and we do it again. > > > > Sorry to be ranting and I hope this post isn't too long. It's > just that on the outside looks to family, friends, > neighbors to be doing so well, but in our lives we are > struggling with continued labs and more aggressive medicine. > It's a strange and funny place to be. > > > > nn (, 9, systemic since Oct 09) > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2011 Report Share Posted February 5, 2011 We love you being an opinionated mother!!! Do Not Ever Stop!!!! You have been through more then many of us and have earned that right. I for one value your opinions. Thanks Veri & Jaye 17 poly Quote Link to comment Share on other sites More sharing options...
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