Guest guest Posted February 6, 2011 Report Share Posted February 6, 2011 I second this . But I think of you as more the " tough love " mom rather than the opinionated mom on this board I cannot express to you how helpful your post responses have been to me since entering this terrible disease-land. You are real and to the point, helping me (and I'm sure many others) be stronger as a caregiver than I ever could be without being on this board. So thank you from the heart. nn > > > We love you being an opinionated mother!!! Do Not Ever Stop!!!! You have been through more then many of us and have earned that right. I for one value your opinions. Thanks > > Veri & Jaye 17 poly > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2011 Report Share Posted February 6, 2011 Awe, thank you. That was very nice of you. When n was hospitalized for MAS, by the end of two weeks I had had it. I was exhausted, and n was in a regular room. The nurses only came by every couple of hours. I was doing all the work. I would get n sitting up and timing her each time. At first she could sit up for only several seconds. I would coax her to eat. I would have her blowing in that little device very often and recording the results. One of the nurses asked n if I used to be in the military. I was no nonsense and wanted n home. I knew she was out of danger and would heal much better at home under my love and attention. I was always nice, but firm. I am protective of me and mine. Physicians are not Gods. They make plenty of mistakes, and our job is to make sure they don't do it on our children. Sent from my iPhone On Feb 6, 2011, at 8:03 PM, " nn " <rosannwinn@...> wrote: > I second this . But I think of you as more the " tough love " mom rather than the opinionated mom on this board I cannot express to you how helpful your post responses have been to me since entering this terrible disease-land. You are real and to the point, helping me (and I'm sure many others) be stronger as a caregiver than I ever could be without being on this board. So thank you from the heart. > nn > > > > > > > > We love you being an opinionated mother!!! Do Not Ever Stop!!!! You have been through more then many of us and have earned that right. I for one value your opinions. Thanks > > > > Veri & Jaye 17 poly > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2011 Report Share Posted February 7, 2011 , You are so right on the mark with that. Yes we have to watch to make sure our kids are taken the best care of possible. I remember being in the hospital so many times with my Krisite Jo when she had pneumonia. She would be in for a week at a time or so and basically all the nurses did was to give her the injections she needed. I did the rest. I remember getting in a fight with a respitory therapist one night at about 3 a.m., (his first visit with us) he thought he had to do things all his way and that I would just sit and keep quiet. I knew as much as he did about giving breathing treatments and my baby was not interested in letting that man near her. I won. I had many a nurse comment that she wished other mothers stayed around more often when their kids were in the hospital and that they wished they were half as cooperative as me. I did not realize that I was cooperative. i was quiet demanding and I took care of my girl and got her what she needed when she needed it. Veri Re: Re: Awe, thank you. That was very nice of you. When n was hospitalized for MAS, by the end of two weeks I had had it. I was exhausted, and n was in a regular room. The nurses only came by every couple of hours. I was doing all the work. I would get n sitting up and timing her each time. At first she could sit up for only several seconds. I would coax her to eat. I would have her blowing in that little device very often and recording the results. One of the nurses asked n if I used to be in the military. I was no nonsense and wanted n home. I knew she was out of danger and would heal much better at home under my love and attention. I was always nice, but firm. I am protective of me and mine. Physicians are not Gods. They make plenty of mistakes, and our job is to make sure they don't do it on our children. Sent from my iPhone On Feb 6, 2011, at 8:03 PM, " nn " <rosannwinn@...> wrote: > I second this . But I think of you as more the " tough love " mom rather than the opinionated mom on this board I cannot express to you how helpful your post responses have been to me since entering this terrible disease-land. You are real and to the point, helping me (and I'm sure many others) be stronger as a caregiver than I ever could be without being on this board. So thank you from the heart. > nn > > > > > > > > We love you being an opinionated mother!!! Do Not Ever Stop!!!! You have been through more then many of us and have earned that right. I for one value your opinions. Thanks > > > > Veri & Jaye 17 poly > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2011 Report Share Posted February 7, 2011 You sound like my type of woman. When n was in ICU on life support, sometimes there were incidents. The alarms would go off and everyone would rush in to get n clear and breathing on the vent again. I would be right there stroking her hair and telling her that she would be okay. I figured she would know my voice even in her sedation. The nurse told me that most parents couldn't do that. They would be freaking out. I didn't understand that. If n was going to pass away, I was going to be right there talking her thru it. She wasn't going to be alone. We double teamed it when she was in the hospital. Either Bill or I were at her side at all times. On Feb 7, 2011, at 6:44 AM, veristroud@... wrote: > > , > > You are so right on the mark with that. Yes we have to watch to make sure our kids are taken the best care of possible. I remember being in the hospital so many times with my Krisite Jo when she had pneumonia. She would be in for a week at a time or so and basically all the nurses did was to give her the injections she needed. I did the rest. I remember getting in a fight with a respitory therapist one night at about 3 a.m., (his first visit with us) he thought he had to do things all his way and that I would just sit and keep quiet. I knew as much as he did about giving breathing treatments and my baby was not interested in letting that man near her. I won. I had many a nurse comment that she wished other mothers stayed around more often when their kids were in the hospital and that they wished they were half as cooperative as me. I did not realize that I was cooperative. i was quiet demanding and I took care of my girl and got her what she needed when she needed it. > > Veri > > Re: Re: > > Awe, thank you. That was very nice of you. > When n was hospitalized for MAS, by the end of two weeks I had had it. I was exhausted, and n was in a regular room. The nurses only came by every couple of hours. I was doing all the work. I would get n sitting up and timing her each time. At first she could sit up for only several seconds. I would coax her to eat. I would have her blowing in that little device very often and recording the results. One of the nurses asked n if I used to be in the military. I was no nonsense and wanted n home. I knew she was out of danger and would heal much better at home under my love and attention. I was always nice, but firm. I am protective of me and mine. > Physicians are not Gods. They make plenty of mistakes, and our job is to make sure they don't do it on our children. > > Sent from my iPhone > > On Feb 6, 2011, at 8:03 PM, " nn " <rosannwinn@...> wrote: > > > I second this . But I think of you as more the " tough love " mom rather than the opinionated mom on this board I cannot express to you how helpful your post responses have been to me since entering this terrible disease-land. You are real and to the point, helping me (and I'm sure many others) be stronger as a caregiver than I ever could be without being on this board. So thank you from the heart. > > nn > > > > > > > > > > > > > We love you being an opinionated mother!!! Do Not Ever Stop!!!! You have been through more then many of us and have earned that right. I for one value your opinions. Thanks > > > > > > Veri & Jaye 17 poly > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2011 Report Share Posted February 7, 2011 I totally agree with you . I told my daughter the same thing when her little guy had his open heart operation. She has to be his advocate and speak for him as our little ones have no voice but ours. As they grow, they need to be taught to be proactive when it comes to their health and learn to take care of and speak up for themselves. As parents it is our job to make sure our kids get the best care we can find, and fight when we need to for it. Michele ( 23, spondy) From: [mailto: ] On Behalf Of Price Sent: Sunday, February 06, 2011 10:44 PM Subject: Re: Re: Awe, thank you. That was very nice of you. When n was hospitalized for MAS, by the end of two weeks I had had it. I was exhausted, and n was in a regular room. The nurses only came by every couple of hours. I was doing all the work. I would get n sitting up and timing her each time. At first she could sit up for only several seconds. I would coax her to eat. I would have her blowing in that little device very often and recording the results. One of the nurses asked n if I used to be in the military. I was no nonsense and wanted n home. I knew she was out of danger and would heal much better at home under my love and attention. I was always nice, but firm. I am protective of me and mine. Physicians are not Gods. They make plenty of mistakes, and our job is to make sure they don't do it on our children. Sent from my iPhone On Feb 6, 2011, at 8:03 PM, " nn " <rosannwinn@...<mailto:rosannwinn%40gmail.com>> wrote: > I second this . But I think of you as more the " tough love " mom rather than the opinionated mom on this board I cannot express to you how helpful your post responses have been to me since entering this terrible disease-land. You are real and to the point, helping me (and I'm sure many others) be stronger as a caregiver than I ever could be without being on this board. So thank you from the heart. > nn > > > > > > > > We love you being an opinionated mother!!! Do Not Ever Stop!!!! You have been through more then many of us and have earned that right. I for one value your opinions. Thanks > > > > Veri & Jaye 17 poly > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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