Re: Camp experiences...for a younger child (7 yo)- severity of the disease

[Guest guest]

With the better medicines, most of the kids look great. There are a coupleof

kids at our camp with jaws that didn't grow correctly, one with hands not so

strong, and one with a really bad crooked ankle. But the others mostly look

" normal " .

I'll be honest. It may be good for them to see how the disease can effect

others. Each case is very individual. They can see both sides of the coin.

They can also learn to appreciate what they have. They can also learn to be

kind to others who don't have it as well as they do.

I have learned from my kids, the greatest advantage is just being around kids

like themselves. They have made lifetime friendships. They absolutely love it.

Audra

14 poly 07

Peyton 13 poly 08

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> > > > On Monday saw the rheumy...thankfully he's still doing well on

Enbrel, MTX, and folic acid...yay!

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> > > > While there the rheumy mentioned Camp Boggy Creek (we are in South

Florida) For him this summer. It's a year round camp that allows kids with

different chronic and life threatening illness to spend a week at camp with kids

who share their same disease. So in mid June they are having arthritis/rheumatic

kids...for a week...for free...for ages 7-16. will be almost 8 by that

time.

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> > > > The only drawback is we aren't allowed to go. Our rheumy is typically

there (but may not be there this year) so he wouldn't know anyone. He is a shy

child..but he REALLY wants to go...he'd be 5 hours from home but only two hours

from his grandparents.

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> > > > Has anyone had experience with a camp like this? Especially with a

younger child? I've heard nothing but great things about this camp...but I am a

mom and I worry. But i also think it would be great for him to spend time with

other kids with JIA...a great boost for his self esteem.

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> > > > Thanks.

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> > > > & , 7, poly...nystagmus...SPD...

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[Guest guest]

Thanks for everyone's responses. I am going to look into camp for my daughter.

Jo

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> > > > > On Monday saw the rheumy...thankfully he's still doing well on

Enbrel, MTX, and folic acid...yay!

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> > > > > While there the rheumy mentioned Camp Boggy Creek (we are in South

Florida) For him this summer. It's a year round camp that allows kids with

different chronic and life threatening illness to spend a week at camp with kids

who share their same disease. So in mid June they are having arthritis/rheumatic

kids...for a week...for free...for ages 7-16. will be almost 8 by that

time.

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> > > > > The only drawback is we aren't allowed to go. Our rheumy is typically

there (but may not be there this year) so he wouldn't know anyone. He is a shy

child..but he REALLY wants to go...he'd be 5 hours from home but only two hours

from his grandparents.

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> > > > > Has anyone had experience with a camp like this? Especially with a

younger child? I've heard nothing but great things about this camp...but I am a

mom and I worry. But i also think it would be great for him to spend time with

other kids with JIA...a great boost for his self esteem.

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> > > > > Thanks.

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> > > > > & , 7, poly...nystagmus...SPD...

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