Guest guest Posted February 16, 2009 Report Share Posted February 16, 2009 Anne, I'm sorry to hear about your daughter. I am new also. What did they do to diagnose her if you don't mind sharing? My docs want to do a medicated MRI bc my child is only three and won't sit still for one. We just had our second " event " and they were totally distinct- the first was bad- limp, inability to bear wt, significant swelling and pain that started in the middle of the night. This one occurred during a virus and, honestly, I wouldn't have even known about it if my three year old hadn't offered up that his knees and feet hurt. Again, I am really sorry, I know how hard it is when this first starts...I am there with you, only I am probably going to get my diagnosis next month or in the coming months depending on how they diagnose. If they send me home to watch my lo again, I will be really wondering about them. I go to a very large ped teaching hospital so I hope they do something this time. I hate not knowing what is going on. Please share any details with me you can about your diagnostics. thanks! Chris > > Hello, > My name is Anne and my 9 year old girl was just diagnosed this week > with JIA. Although our dr's have been great I am still a bit > overwhelmed and unsure of what to expect. Actually, is there even any > way to know what to expect? > > Looking forward to learning from you all! > > Anne > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2009 Report Share Posted February 16, 2009 's diagnosis was also a bit of a process. First we went to our regular ped, then a couple months later back to the ped who referred us to ortho...then the ortho sent us to a ped rheumy. However, doesn't have typical flares/episodes....she is in continual pain. The diagnosis was made by ruling out other things and some of her symptoms are very classic: pain, hot joints, range of motion issues. So, we didn't have an MRI...just physical exams, labs, and s- rays. I hope you get an answer soon! I know it is hard to be patient. Peace, Anne > > > > Hello, > > My name is Anne and my 9 year old girl was just diagnosed this week > > with JIA. Although our dr's have been great I am still a bit > > overwhelmed and unsure of what to expect. Actually, is there even > any > > way to know what to expect? > > > > Looking forward to learning from you all! > > > > Anne > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2009 Report Share Posted February 16, 2009 Anne, Thanks, I didn't see this one til after I replied to the other one. I am sorry to hear she has so much pain. That's a lot to handle in your child. And a lot for your child to handle. My son has been guarding his knees and feet for as long as I can remember. He used to tip toe around or lean on stuff, lifting one leg off the ground, and tends to stand rather than sit. I can't wait to see what the rheumy says. I need to go to the hospital and do the SED recheck, but it has been a week since the second episode, so who knows what it will show. ttyl, Chris ---- annebacon64 <annebacon@...> wrote: > 's diagnosis was also a bit of a process. First we went to our > regular ped, then a couple months later back to the ped who referred > us to ortho...then the ortho sent us to a ped rheumy. However, > doesn't have typical flares/episodes....she is in continual > pain. The diagnosis was made by ruling out other things and some of > her symptoms are very classic: pain, hot joints, range of motion > issues. So, we didn't have an MRI...just physical exams, labs, and s- > rays. > > I hope you get an answer soon! I know it is hard to be patient. > > Peace, > Anne > > > > > > > > Hello, > > > My name is Anne and my 9 year old girl was just diagnosed this > week > > > with JIA. Although our dr's have been great I am still a bit > > > overwhelmed and unsure of what to expect. Actually, is there > even > > any > > > way to know what to expect? > > > > > > Looking forward to learning from you all! > > > > > > Anne > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2009 Report Share Posted February 18, 2009 Hello Anne, I am sorry to hear about you daughter. My son (2 1/2yr) was dx with jra (still's) in December. I know how overwhelming it can be. You never know what to expect but the way i look at it... You now know it's there and can treat it now. Which means less pain for your daughter. I hope you and your family the best. Remember there is always someone here who understand some of what your going through. Kris Ps. I found what made me feel better was learning as much as I could. > > Hello, > My name is Anne and my 9 year old girl was just diagnosed this week > with JIA. Although our dr's have been great I am still a bit > overwhelmed and unsure of what to expect. Actually, is there even any > way to know what to expect? > > Looking forward to learning from you all! > > Anne > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2009 Report Share Posted June 4, 2009 Welcome, ! Hope you will feel at home here. Marcia -- Introduction My name is and I live in the UK (distance is no barrier). I am 48 and have Achondroplasia. Looking for friendship Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2009 Report Share Posted June 4, 2009 Da (Yes in Romanian) and ditto to what Marcia also said, . ~grady > Welcome, ! Hope you will feel at home here. > Marcia > > -- Introduction > > My name is and I live in the UK (distance is no barrier). I am 48 and have Achondroplasia. Looking for friendship Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2009 Report Share Posted June 9, 2009 In a message dated 10/06/2009 08:32:08 GMT Daylight Time, ad-in@... writes: I have not had a good night sleep since. Many nights sleeping only 2-3 hours starting at about 7:00am. If anyone has any suggestions that could help me, I would appreciate it. Also, since this time I have not been able to stop eating or could Hi from Uk check your house with a good meter and try to set up deflective sheilds especially on windows less emf has a range of good sheilding materials. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2009 Report Share Posted June 10, 2009 Hello Jennie I produce a magazine called Rewire.me You can download an electronic copy here http://www.rewire.me It's made for people that are EHS and want to inform others that are becoming EHS by passing on the free magazine. I have been ehs for 15 years and I have been to hell and back. As a TV producer I had a betacam camera to my head for 20 years and the magnets that imprint the signals onto the video tape had allowed the mercury from my fillings to pass the blood brain barrier. - then I got my fillings taken out the wrong way and I could not work for 2 years. For my recovery - I did landscaping of my house. I dug ponds and that seemed to help a great deal. At that time I did not know what was wrong with me - the doctor said that I had a nervous breakdown. When I felt better - I went back to work and got a contract to do a TV travel show about europe. I was well enough to work but not perfect. We rented a motor home and traveled europe and stayed at campsites. After 2 months I was pretty much cured of the problem even though I was still putting the camera to my head. When I got back home - to canada - it all came back. So I had to stop traveling - and figure out what the problem was. By trial and error - and eliminating the wireless dect phones, WIFI - portable computers - rewiring the ground to my house - things got better. But not normal. Then I put the two and tow together - digging the pond and traveling in the camper van. Being close to the earth. For me being grounded seems to work. taking off my shoes and standing in the forest, laying on a granite rock - and burried in sand. I went to Israel to the Dead sea and they have plenty of healing spas where you plug yourself into the mud and float in the highly conductive salt water and then lay in the sand. You soak up the earth frequency. In Virginia Beach - there is a University called ARE that is devoted to healing the Mind and body and it was located there because of the sand on the beach. Many of the remedies are massage - and then salt water and then burried in the sand. It worked for me. In sedona arizona - the native indians went there because they could feel the healing powers of the desert oasis. The indians stood barefoot on the ground on the vortexes that are said to rise out if the ground because of the iron in the red rocks. It made me feel much better. Redfield wrote the Celestine Prophesy there. I went to Australia to study the natives at ayers rock. They still do not wear shoes. I went to Peru to the amazon and the many natives still walk on the ground without shoes. The easiest way to test this process for yourself is to go camping in a tent. lay close to the ground. Choose a site far away from any electrical wires and cell towers. Then when you sleep - your body will rebuild the cells that are damaged through the week. You need to be away from the fields of radiation to heal. the longer the better. Try doing this on weekends at first. Everyday go into a forest barefoot for one hour. Before you go to sleep go into your backyard barefoot for one hour to ground yourself. Spend as much time as to can gardening - touching the soil - connecting to the earth. That is what has helped me. Lessons learned from the natives that understand the healing energy of the earth. We have all just got disconnected from it. Time to reconnect. On 10-Jun-09, at 3:31 AM, Jennie Wassenaar wrote: > > > Hello, my name is Jennie. I recently joined the group and have > received some e-mails and posted some questions. I am now following > the suggestion to send out an e-mail of introduction. > > I am 49 years old and have been struggling with Multiple Chemical > Sensitivity (MCS) and Electromagnetic Sensitivity (EMS) for about 5 > years. Looking back I can see through my life that I have always > been sensitive to some degree. Many things that I have never cared > to do, now I can not do - it's as if my body instinctively > recognized things that were harmful to me. > > For the first 20 months of my symptoms I went to every medical > specialist imaginable. No one could help me or had any idea what my > underlying problem was. All I heard was " we don't know, but take > this pill " . Here is some irony - thank goodness for the internet! > With some investigation and close observation of my symptoms I was > able to diagnose myself with MCS, EMS, Allergies and Food > Sensitivities. > > I have actively done as much as I can to limit my exposure to the > substances that harm me. I have come to the conclusion that I will > never be " healed " unless I move to the outskirts of civilization and > that would probably only be temporary. With all the chemicals, > electronics and wireless our society uses it is just to pervasive > and invasive to avoid. I don't say this to be negative or depressing > but understanding this is going to be a life long process of trying > to eliminate and maintain helps me to keep things in prospective. > > I also believe that MCS, EMS, Allergies and Food Sensitivities are > going to be on the rise and explode in the general public! God made > us with incredible bodies but we (as a society) have abused them. I > believe our bodies are so amazing that when we start treating them > well they have a great capacity to heal. Anyway as I stated I > started with my problems in my mid 40s. I have 3 grown children who > developed allergies in their late teens/early 20s and are now > starting to show signs or MCS. I have 2 grandsons who have developed > allergies as pre-schoolers. There seem to be a pattern, at least in > my family. My husband is the only one in the family who has > maintained good health - and he's thin to boot! > > I would rate myself as highly sensitive to both MCS & EMS. I would > also say that I have a good handle on MCS & EMS as a whole. Time > will tell, after interacting with the group I may find out I > know very little. > > I did make this request on a previous e-mail. Six weeks ago a new > cell tower was placed 1/2 mile away from our home (much bigger than > the one that was previously there). I have not had a good night > sleep since. Many nights sleeping only 2-3 hours starting at about > 7:00am. If anyone has any suggestions that could help me, I would > appreciate it. Also, since this time I have not been able to stop > eating or could that just be a Freudian thing?! > > Marc, thank you for creating this forum. > > Best to you all, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2009 Report Share Posted June 10, 2009 > Also, since this time I have not been able to stop eating or could > that just be a Freudian thing?! Actually, I've had this problem at work -- I'm sure there is some sort of compensation mechanism for eating making one feel better when overexposed to EMF. Since my EMF symptoms seem to be the same as if I were mobilizing toxins, eating may simply stop that, as the body doesn't mobilize as many toxins if it is busy digesting food. Interestingly however, if I'm recovering from a cold or a flu, my constant appetite goes away, even when overexposed to EMF. Also, although I'm primarily a vegetarian, I've found that eating meat will effectively kill my appetite for quite a while. Also, antioxidant supplements might help. I think foods high in Vitamin A are good for me, and I've got some " super antioxidants " that are good for ES symptoms (H-Minus from e3Live and Amrit Ambrosia tablets from MAPI). And if you can find a good " toxin binder " that works for you (activated charcoal? bentonite? liquid zeolite?), that might help as well. And of course, there are EMF protection devices, which have the potential to make you feel like you are not being assaulted by so many frequencies, and possibly eliminate the need to move to the outskirts of civilization. But these are so hit and miss with people. Marc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2009 Report Share Posted June 10, 2009 In a message dated 10/06/2009 15:34:14 GMT Daylight Time, marc@... writes: Also, since this time I have not been able to paul uk - since it is likely that your cellular mechanism are being disrupted it might be the bodies way of saying hey the fire is going out lets get some more fule in quick- however it might be a double whammy as you may then be fueling the poor metabolic shambles that is being induced by the emf, reduced calories might be more sensible, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2009 Report Share Posted June 10, 2009 Try taking some melatonin supplements to assist sleep problems. Helen Aust. On Wed, Jun 10, 2009 at 6:13 PM, <paulpjc@...> wrote: > > > In a message dated 10/06/2009 08:32:08 GMT Daylight Time, > ad-in@... <ad-in%40ameritech.net> writes: > > I have not had a good night sleep since. Many nights sleeping only 2-3 > hours starting at about 7:00am. If anyone has any suggestions that could > help > me, I would appreciate it. Also, since this time I have not been able to > stop eating or could > Hi from Uk > check your house with a good meter and try to set up deflective sheilds > especially on windows less emf has a range of good sheilding materials. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2009 Report Share Posted June 11, 2009 hi jennie,  i can relate--been mcs forever and fully es for going on 4 years now (and partially es forever). B12 has helped w my sleeping. i was a " vibrator " and B12 totally cured that for me too. i take a good quality sublingual B12--1000 mcg. otherwise you need intrinsic factor to assimmilate B12. magnesium also helped. they both help best taking before bed.  no, your overeating is not Freudian--it is anxiety caused by emfs. when i am in hi emfs i want to eat non-stop. i can't say it will help you, but i have been recently helped by using the Quantum Pro device--i was remodeling a house i could not sleep in until i bought this device. i sleep better in this house now than in my old home. the Pro is expensive ($500), but what is sleep worth? i can send the site for this if you need it--it was suggested to me by Marc, the moderator of this forum. ok! evie overkill is done now--sorry for answering almost every post! lol can you tell i have not been getting out much?  diane aka evie From: Jennie Wassenaar <ad-in@...> Subject: Introduction Date: Wednesday, June 10, 2009, 3:31 AM Hello, my name is Jennie. I recently joined the group and have received some e-mails and posted some questions. I am now following the suggestion to send out an e-mail of introduction. I am 49 years old and have been struggling with Multiple Chemical Sensitivity (MCS) and Electromagnetic Sensitivity (EMS) for about 5 years. Looking back I can see through my life that I have always been sensitive to some degree. Many things that I have never cared to do, now I can not do - it's as if my body instinctively recognized things that were harmful to me. For the first 20 months of my symptoms I went to every medical specialist imaginable. No one could help me or had any idea what my underlying problem was. All I heard was " we don't know, but take this pill " . Here is some irony - thank goodness for the internet! With some investigation and close observation of my symptoms I was able to diagnose myself with MCS, EMS, Allergies and Food Sensitivities. I have actively done as much as I can to limit my exposure to the substances that harm me. I have come to the conclusion that I will never be " healed " unless I move to the outskirts of civilization and that would probably only be temporary. With all the chemicals, electronics and wireless our society uses it is just to pervasive and invasive to avoid. I don't say this to be negative or depressing but understanding this is going to be a life long process of trying to eliminate and maintain helps me to keep things in prospective. I also believe that MCS, EMS, Allergies and Food Sensitivities are going to be on the rise and explode in the general public! God made us with incredible bodies but we (as a society) have abused them. I believe our bodies are so amazing that when we start treating them well they have a great capacity to heal. Anyway as I stated I started with my problems in my mid 40s. I have 3 grown children who developed allergies in their late teens/early 20s and are now starting to show signs or MCS. I have 2 grandsons who have developed allergies as pre-schoolers. There seem to be a pattern, at least in my family. My husband is the only one in the family who has maintained good health - and he's thin to boot! I would rate myself as highly sensitive to both MCS & EMS. I would also say that I have a good handle on MCS & EMS as a whole. Time will tell, after interacting with the group I may find out I know very little. I did make this request on a previous e-mail. Six weeks ago a new cell tower was placed 1/2 mile away from our home (much bigger than the one that was previously there). I have not had a good night sleep since. Many nights sleeping only 2-3 hours starting at about 7:00am. If anyone has any suggestions that could help me, I would appreciate it. Also, since this time I have not been able to stop eating or could that just be a Freudian thing?! Marc, thank you for creating this forum. Best to you all, jw Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2009 Report Share Posted June 11, 2009 > the Pro is expensive ($500), but what is sleep worth? Well, maybe not everyone needs the expensive " Pro " model. My sleep is vastly improved just with their $30 3-outlet power conditioner! Marc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2009 Report Share Posted July 9, 2009 *thank u anne* *that is a nice intro* *hope we njoy your company as we njoy this forum* *thank you* truly yours عبدالرازق بنتونامبوڠقاسسيم بنتونعبدالله بنتونØÂاج Ù…ØÂمد يوسÙ بنØÂاج اسØÂاق بناورڠكايكايتونØÂاج مهمود mckk60 life member 1004 ahmad house " Believe nothing, no matter where you read it or who has said it, not even if I have said it, unless it agrees with your own reason and your own common sense. " Stay within the bounds of our nation's LAWS & ORDERS or face the consequences of CHAOS looking at us stark naked in the face AS WE ARE NOW DOING! On Thu, Jul 9, 2009 at 7:15 AM, Sylvia <LadyofYorkies@...> wrote: > > > Hi! I joined a couple of weeks back and have just been reading what comes > my way. My name is Sylvia and since you already have a Sylvia here, I will > also add my middle name. Hopefully, I will always remember. LOL That would > be Sylvia Anne. I am married, have been for 33 years. We have 5 adult > children, 15 living grandchildren and one that passed away at 4 1/2 months. > We are raising our 3 oldest grandchildren as our own, we have legal custody > of them. I was born and raised in AZ and our 2 daughters are still out > there. We live in MO now and I love it! I love all the green! Coming from > the desert, it is a wonder everytime we go for a drive. All 3 of our sons > are out here with us and 2 of them have had to move home with their > families. That gives us 12 people in a 4 bdrm 2100 sq ft house. It used to > seem so big with only the 5 of us rattling around in it. Now, it's starting > to feel a little crowded. LOL Both sons have jobs now and one d-i-l. We have > hopes that our younger son will be saving money and moving out soon. > > I am an animal lover and have always had pets around except for a short > period of time just before we moved out here. Now I have Yorkies and Maltese > and I'm trying to become a breeder. At this time I have over 50 dogs > including puppies. > > I also enjoy crocheting, reading, paintshoppro and I have 3 knitting > machines in their boxes. LOL I think that covers it. LOL Sylvia > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2009 Report Share Posted July 15, 2009 I would love to be able to give advice but I have none.. The age you are at should mean that with the advancement in the medical field are promising, but for now take your meds and try to stay out of bed as much as possible. But be careful not to do those things that may cause you pain.. Once started the pain becomes really hard to control.. Best Wishes Tom In a message dated 7/15/2009 6:40:49 A.M. Mountain Daylight Time, damgalnuna@... writes: Hello, I have been dealing with problems with my back since I was 12 years old. At 12 I had a spinal fusion with Harrington rod implantation. While participating in dance class at 16 years old, while performing a move I felt an incredible pain in my back and down my left leg. I herniated a lumbar disc (I don't remember the level. My orthopedic surgeon removed parts of the rods, thinking they were causing the pain, and that obviously didn't help. Then he referred me to a neurosurgeon who performed a microdiscectomy. That helped a little, but it got worse again within a few months. During college and the years following, my back was still causing me pain, but I was able to manage with just some advil, ice packs, and rest. In 2007 I gave birth to my daughter. Around 15 months later, the pain in my back because increasingly worse, to the point where I could barely walk around and ended up in my primary care doctor's office in tears. I was given tramadol and was sent to PT. I did PT for around 3 months, with limited benefit. The PT also gave me a TENS unit, which does help a bit when I need to be on my feet for a while. Around 3 months ago, my primary care doctor referred me to a physiatrist, who first ordered an MRI. It showed herniated discs/spinal stenosis at L4/L5 and L5/S1. He has performed two nerve root blocks so far, with each only lasting around two weeks. He also added neurontin (900 mg 3x/day) and codeine (as needed) to my meds. My pain is still not under control, and actually seems to be getting worse. I meet with him again in a week and a half, so hopefully he'll have some better suggestions. P.S. - In full disclosure, I posted this same message on another medical list a few days ago. But I would like to get advice from as many people as possible. **************Performance you need and the value you want! Check out great laptop deals from Dell! (http://pr.atwola.com/promoclk/100126575x1223081934x1201714279/aol?redir=http:%2\ F%2Faltfarm.mediaplex.com%2Fad%2Fck%2F12309%2D819 39%2D1629%2D4) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2009 Report Share Posted July 15, 2009 Hi.. I am a nurse, and I have heard of this as being a medical doctor who is specialized in physical medicine,pain medication and rehab. DM **************Performance you need and the value you want! Check out great laptop deals from Dell! (http://pr.atwola.com/promoclk/100126575x1223081934x1201714279/aol?redir=http:%2\ F%2Faltfarm.mediaplex.com%2Fad%2Fck%2F12309%2D819 39%2D1629%2D4) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2009 Report Share Posted July 15, 2009 What is a physiatrist, have an appt next week with one. neck pain From: damgalnuna@... Date: Wed, 15 Jul 2009 12:40:20 +0000 Subject: Introduction Hello, I have been dealing with problems with my back since I was 12 years old. At 12 I had a spinal fusion with Harrington rod implantation. While participating in dance class at 16 years old, while performing a move I felt an incredible pain in my back and down my left leg. I herniated a lumbar disc (I don't remember the level. My orthopedic surgeon removed parts of the rods, thinking they were causing the pain, and that obviously didn't help. Then he referred me to a neurosurgeon who performed a microdiscectomy. That helped a little, but it got worse again within a few months. During college and the years following, my back was still causing me pain, but I was able to manage with just some advil, ice packs, and rest. In 2007 I gave birth to my daughter. Around 15 months later, the pain in my back because increasingly worse, to the point where I could barely walk around and ended up in my primary care doctor's office in tears. I was given tramadol and was sent to PT. I did PT for around 3 months, with limited benefit. The PT also gave me a TENS unit, which does help a bit when I need to be on my feet for a while. Around 3 months ago, my primary care doctor referred me to a physiatrist, who first ordered an MRI. It showed herniated discs/spinal stenosis at L4/L5 and L5/S1. He has performed two nerve root blocks so far, with each only lasting around two weeks. He also added neurontin (900 mg 3x/day) and codeine (as needed) to my meds. My pain is still not under control, and actually seems to be getting worse. I meet with him again in a week and a half, so hopefully he'll have some better suggestions. P.S. - In full disclosure, I posted this same message on another medical list a few days ago. But I would like to get advice from as many people as possible. _________________________________________________________________ Windows Liveâ„¢ SkyDriveâ„¢: Get 25 GB of free online storage. http://windowslive.com/online/skydrive?ocid=TXT_TAGLM_WL_SD_25GB_062009 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2009 Report Share Posted July 15, 2009 Hi , I'm sorry you have to deal with back pain at such a young age. Did you have the spinal fusion because of scoliosis? I'm thinking that you got the herniated lumbar discs because the fusion in the upper segments of your spine puts more stress on the lower segments when you are twisting and bending your back and that resulted in the lumbar herniations. Herniations and further degeneration in segment above and below fusions is common. I'm also thinking that you should see a reconstructive spine surgeon who treats scoliosis patients -- not for more surgery at this point -- but to see what your best alternatives would be. Also make sure your bed is firmer rather than softer for more support. Also check that your posture is good-- chest out, back not hunched. These things made a difference for my low back pain. Keep in touch and share with us your progress. Take care, Rochelle -- In neck pain , " damgalnuna@... " <damgalnuna@...> wrote: > > Hello, > > I have been dealing with problems with my back since I was 12 years old. At 12 I had a spinal fusion with Harrington rod implantation. While participating in dance class at 16 years old, while performing a move I felt an incredible pain in my back and down my left leg. I herniated a lumbar disc (I don't remember the level. My orthopedic surgeon removed parts of the rods, thinking they were causing the pain, and that obviously didn't help. Then he referred me to a neurosurgeon who performed a microdiscectomy. That helped a little, but it got worse again within a few months. > > During college and the years following, my back was still causing me pain, but I was able to manage with just some advil, ice packs, and rest. In 2007 I gave birth to my daughter. Around 15 months later, the pain in my back because increasingly worse, to the point where I could barely walk around and ended up in my primary care doctor's office in tears. I was given tramadol and was sent to PT. I did PT for around 3 months, with limited benefit. The PT also gave me a TENS unit, which does help a bit when I need to be on my feet for a while. > > Around 3 months ago, my primary care doctor referred me to a physiatrist, who first ordered an MRI. It showed herniated discs/spinal stenosis at L4/L5 and L5/S1. He has performed two nerve root blocks so far, with each only lasting around two weeks. He also added neurontin (900 mg 3x/day) and codeine (as needed) to my meds. My pain is still not under control, and actually seems to be getting worse. I meet with him again in a week and a half, so hopefully he'll have some better suggestions. > > > > P.S. - In full disclosure, I posted this same message on another medical list a few days ago. But I would like to get advice from as many people as possible. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2010 Report Share Posted May 8, 2010 Cheryl, The band requires more after care then the sleeve. The only thing I have my primary do is monitor my blood glucose and hypertension…both or which are improving as I lose weight. If your MD objects, I would change doctors. It is your health and your money, doctors are like any other service and they work for you!! If they won't support you, find another one. This is a big step and you are wise for getting all the facts before having surgery. It is not a quick fix, you still have to eat better and exercise. The value is you no longer have the never-ending hunger and a healthy meal will fill you up for hours. Congratulations on taking this big step, it won't be easy and it is the first step not the last in a life changing journey. However, the rewards are wonderful. I love how I have more energy and am happier in general. -Dennis From: [mailto: ] On Behalf Of CherylH Sent: Saturday, May 08, 2010 12:39 PM To: Subject: Introduction Hello all, My name is Cheryl and I am in pre-surgery investigation mode. I have decided on the vertical gastric sleeve WLS and Dr. Aceves comes SO highly recommended that I have decided to go with him for my surgery. I do have one question - did anyone have a problem getting their primary care physician to do their after-surgery care / follow-up since your surgery was done out of the country? I've been warned about that but not by anyone who actually DID it this way, so I'd like some real feedback on the subject. Thank you for letting me join the group and I look forward to learning more from all of your experiences. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2010 Report Share Posted May 8, 2010 I talked to mine doctor shortly before I decided to have it done. I explained everything I had done to make my decision, what the process was, and  the background of the Dr. A who was going to perform it. She listened carefully and agreed it was a good idea. I should note that had she immediately dismissed my idea; I was going to look for a new doctor. It was a great chance to find out if your gp is open minded and willing to learn about new stuff. On Sat, May 8, 2010 at 10:38 AM, CherylH <harrison.cheryl@...> wrote:  Hello all,My name is Cheryl and I am in pre-surgery investigation mode. I have decided on the vertical gastric sleeve WLS and Dr. Aceves comes SO highly recommended that I have decided to go with him for my surgery. I do have one question - did anyone have a problem getting their primary care physician to do their after-surgery care / follow-up since your surgery was done out of the country? I've been warned about that but not by anyone who actually DID it this way, so I'd like some real feedback on the subject. Thank you for letting me join the group and I look forward to learning more from all of your experiences. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2010 Report Share Posted May 8, 2010 There's really no after-care required. This isn't like getting the band with all the fill/unfill issues. After 3 months have your labs done (bloodwork) and make sure everything is fine with that; send the results to Dr. Aceves for your file. My PC technician (she's a NP, not a doc) takes care of me and gives me the blood workup sheet so ins. will cover it. No problems at all. Other than that, there's really no after-care to be done. You can do your labs again at 9 months just to be on track if you wish. Some do and some don't. I'm 8 mos. post-op and don't think it's necessary for more bloodwork, but you can ask Dr. Aceves about that if you wish. > > Hello all, > My name is Cheryl and I am in pre-surgery investigation mode. I have decided on the vertical gastric sleeve WLS and Dr. Aceves comes SO highly recommended that I have decided to go with him for my surgery. > > I do have one question - did anyone have a problem getting their primary care physician to do their after-surgery care / follow-up since your surgery was done out of the country? I've been warned about that but not by anyone who actually DID it this way, so I'd like some real feedback on the subject. > > Thank you for letting me join the group and I look forward to learning more from all of your experiences. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2010 Report Share Posted May 8, 2010 Well, I don't know why it sent my message before I was finished. Sometimes you just have to take matter into your own hands and do what is best for you. This is all about your and NO one else. I love it. Suzanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2010 Report Share Posted May 8, 2010 I didn't tell mine what I was doing until after the fact. By then I had lost 35 pounds. He was thrilled for me and has no problem taking care of me. All that amounts to is blood work once in a while. I didn't require any post op care. Go home and follow Dr. Aceves' dischargee instructions. That's it. We had discussed WLS prior when I was trying to get insurance approval so he knew what I was planning to do. Just not where. LOL He said and I quote "Marilou you have bigger cajones than me!" He also said he was going to have to re-think his old ideas on Mexican medical care. MarilouDr. AcevesVSG~February 5, 2010 On May 8, 2010, at 10:38 AM, CherylH wrote:Hello all,My name is Cheryl and I am in pre-surgery investigation mode. I have decided on the vertical gastric sleeve WLS and Dr. Aceves comes SO highly recommended that I have decided to go with him for my surgery.I do have one question - did anyone have a problem getting their primary care physician to do their after-surgery care / follow-up since your surgery was done out of the country? I've been warned about that but not by anyone who actually DID it this way, so I'd like some real feedback on the subject.Thank you for letting me join the group and I look forward to learning more from all of your experiences. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2010 Report Share Posted May 8, 2010 Hi Cheryl, Welcome, to our group and it is so nice to have you. Sure I had a lot of thoughts just about like you are having. I took all the information I could gather up and went and talked to my doctor. I thought it was time to have that talk with her and educate her a little. I find the most Primary Care doctors know very little about Weight Loss Surgery. I can tell you that she was really against the lapband and said right up front that she didn't think it was safe. And I told her I had NO intentions of having the lapband. Before I got on this board I had thought about it, but after being on here there is no way I would consider it. She said to leave my information with her and come back in a week. She was very impressed with Dr. Aceves and what he had achieved and how highly qualified he is. She also said his hospital had less of an infection rate than any US hospital. She gave me a thumbs up and said go for it, and she would be there for me when I got home. I had very little need for any after care. Some blood draws to check my levels and that was it for the first 3 months, after that I never had a need to go back for anything. The last time I saw her she said "I hope you are about finished losing weight." I said yes I am. My potassium was low, but corrected with medication. It was low before I had the surgery and it is fine now that I take the medication. That was a easy as simple fix. You will never have one regret. We all mourned the loss of food at first. That is normal to see how other people are eating and you will never eat all that food ever again. That is more a less a head game I feel. Who needs all that food--it only made me fat. I eat excellent food, never feel deprived and feel so healthy and happy with where I am now in life. I did ask myself one day what in the world did I do to myself--that is pretty normal to feel like that during the first month. I promise you that the first month is the most difficult, but as time goes on the lifestyle change is so easy to deal with and you know that each day and each month just keeps getting better and better all the time. We will be here for you every step of the way. The are no silly or bad questions, just keep asking us. Congratulations for making this step, you are on your way to making your life soooooooooooo much better. Hugs, Suzanne 225 120 125 Start Now Goal Sleeved 10/28/08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2010 Report Share Posted May 9, 2010 Hi Cheryl, I am from Canada and I worried about this too. I went to my doctor first and asked him if he thought I was absolutely nuts for considering surgery in Mexico. He told me of course he couldn't tell me to go there because he'd get in hot water with AHC. He said, " Would I go to Mexico for surgery? Yes I would. They have good hospitals too. " The next time I went he told me he was glad I was doing this. I think it all depends on how you approach your PCP. Just tell him straight up that you are planning/thinking about this surgery and you need his support. And just see what he says. If you don't like his answer, I would shop for a new doc. In Canada they cannot refuse you treatment if you need it. No matter what the problem is. They may not like it if you have problems (which you aren't likely to have if you've checked out Dr. Aceves credentials)but too bad. The way I see it is this: If an alcoholic or drug user or a suicide attempter can get non judgemental care so can we! Albeit self inflicted but an attempt on making our lives healthier! Of course people who no nothing about this and are worried about you are going to come up with every possible scenario to scare you into not doing this surgery. It's just the way it is. By the way I had surgery on Apr. 27. I am doing very well. I weighed 250 April 19 before the preop diet and am now down to 224. I can run up the stairs with out thinking I am goin to die now! Good luck to you. 'I do have one question - did anyone have a problem getting their primary care physician to do their after-surgery care / follow-up since your surgery was done out of the country? I've been warned about that but not by anyone who actually DID it this way, so I'd like some real feedback on the subject.' Quote Link to comment Share on other sites More sharing options...
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