Guest guest Posted October 29, 2000 Report Share Posted October 29, 2000 Welcome, Elin.... Everyone here is just wonderful so you'll feel right at home before you know it. And we all know what you are going through...it's a very difficult time when you frist learn that you are sharing your life with Hep C. But you do learn to live with it. There are so many different philosophies when determining how you are going to treat this disease. Some people put themselves in the hands of western medicine, some in the hands of eastern philosophies, some go completely natural and some combine all the different paths. But regardless of which path you follow, no one path has all the answers. Here is Dr. Cabot's link to her original site: http://www.whas.com.au/index.html Over the last year+ she has developed a liver health site and here is the link to that site: http://www.liverdoctor.com/liverquestionnaire.shtml Her books are great and when she finally came out with the second book it picked up right where her first book has left off. My personal belief is that the way to managing Hep C is with nutrition and lifestyle. Everything we eat, breathe, absorb needs to be processed by the liver. I'm in treatment at this time after a year of working with eastern and herbal treatment plans. I haven't given up those philosophies, but have only added treatment to my regime. I've had no side effects to the treatment until recently which I attribute to my diet and lifestyle. However, it seems I'm starting to deal with the side effect from the rebetron destroying the neurotransmitters in my brain and am becoming increasingly irritable. But I'll work through this too. Glad to have you with us...you'll find a lot of support here. Tatezi Elin L Criswell wrote: > Hi everyone! Thought it was time to introduce myself to the group. > > I just signed up with this list a few days ago. My husband, Danny, was > recently diagnosed with Hep C. It's been a crazy month. First, the > physical with the results of the blood work coming back, giving us this > news. Then, our first meeting with a gastro doctor, where he had us > schedule the liver biopsy. The biopsy was done this past Wednesday. > Next step is to see the gastro. doctor again on Nov. 9. > > So you all know what we are going through, as we start down this road. > > During the last few years, I have found myself in different " caregiving " > roles. I entered into helping with my parents, as my Mom fought uterine > cancer for 2 1/2 years. She died five years ago this December. My Dad > (who is now 87 years old) was able to live alone for 2 years, but in > March, 1998, he fell and broke his leg. Then my husband and our family > entered in as his caregivers. So that he could continue to live in his > own home (he didn't want to live with us in town)... we moved in with him > and we have been here now for 2 1/2 years. > > Being a caregiver for an elderly parent .... what can I say? There are > so many responsibilities. It's like caring for a child, only opposite. > When your babies are little, you take care of them, doing so much for > them that they can't do themselves. It's the same thing caring for a > parent, with the much-added stress of knowing that you never know when > their time on this earth will end. > > But then, Hep C entered our lives and it's a whole different ballgame. > It's not my parents we're talking about now ........ it's my husband. > > To tell you a little more about our family, Danny and I have been married > for 14 years, and we have three children, Becky, 11, , 9, and > , 9 months. I've always been a stay-at-home Mom, and we also > homeschool. > > Hope ....yall.... (we live in Central Texas, ya know) don't mind me > being so wordy. I've spoken from the heart, and I'm " wordy " to begin > with. Take after my Ma. > > I've done alot of research on the web. I've gotten overwhelmed alot over > the different things I've been reading. Does this apply? Does that > apply? What? What? What? It's been very confusing at times. > > But I guess I'm beginning to adjust. Beginning to accept where we are at > with this. > > What we do know for sure at this point, is that after we met again with > the gastro. doctor .... if he doesn't meet our definition of a doctor who > will work with us........ we're dropping him and trying another. Thank > goodness (and Shalleen w/NHCC, Texas), we have a referral for a doctor > that does sound promising. > > I do have a couple of questions to throw out. > > What are the current thoughts on good amounts of Vitamin C & E, to take? > > Also, I could look this back up, but you someone save me time by telling > me the direct website of the lady doctor who has written a couple of > books on the subject of Hep C and diet. > > Elin > ________________________________________________________________ > YOU'RE PAYING TOO MUCH FOR THE INTERNET! > Juno now offers FREE Internet Access! > Try it today - there's no risk! For your FREE software, visit: > http://dl.www.juno.com/get/tagj. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2000 Report Share Posted October 29, 2000 Welcome, Elin.... Everyone here is just wonderful so you'll feel right at home before you know it. And we all know what you are going through...it's a very difficult time when you frist learn that you are sharing your life with Hep C. But you do learn to live with it. There are so many different philosophies when determining how you are going to treat this disease. Some people put themselves in the hands of western medicine, some in the hands of eastern philosophies, some go completely natural and some combine all the different paths. But regardless of which path you follow, no one path has all the answers. Here is Dr. Cabot's link to her original site: http://www.whas.com.au/index.html Over the last year+ she has developed a liver health site and here is the link to that site: http://www.liverdoctor.com/liverquestionnaire.shtml Her books are great and when she finally came out with the second book it picked up right where her first book has left off. My personal belief is that the way to managing Hep C is with nutrition and lifestyle. Everything we eat, breathe, absorb needs to be processed by the liver. I'm in treatment at this time after a year of working with eastern and herbal treatment plans. I haven't given up those philosophies, but have only added treatment to my regime. I've had no side effects to the treatment until recently which I attribute to my diet and lifestyle. However, it seems I'm starting to deal with the side effect from the rebetron destroying the neurotransmitters in my brain and am becoming increasingly irritable. But I'll work through this too. Glad to have you with us...you'll find a lot of support here. Tatezi Elin L Criswell wrote: > Hi everyone! Thought it was time to introduce myself to the group. > > I just signed up with this list a few days ago. My husband, Danny, was > recently diagnosed with Hep C. It's been a crazy month. First, the > physical with the results of the blood work coming back, giving us this > news. Then, our first meeting with a gastro doctor, where he had us > schedule the liver biopsy. The biopsy was done this past Wednesday. > Next step is to see the gastro. doctor again on Nov. 9. > > So you all know what we are going through, as we start down this road. > > During the last few years, I have found myself in different " caregiving " > roles. I entered into helping with my parents, as my Mom fought uterine > cancer for 2 1/2 years. She died five years ago this December. My Dad > (who is now 87 years old) was able to live alone for 2 years, but in > March, 1998, he fell and broke his leg. Then my husband and our family > entered in as his caregivers. So that he could continue to live in his > own home (he didn't want to live with us in town)... we moved in with him > and we have been here now for 2 1/2 years. > > Being a caregiver for an elderly parent .... what can I say? There are > so many responsibilities. It's like caring for a child, only opposite. > When your babies are little, you take care of them, doing so much for > them that they can't do themselves. It's the same thing caring for a > parent, with the much-added stress of knowing that you never know when > their time on this earth will end. > > But then, Hep C entered our lives and it's a whole different ballgame. > It's not my parents we're talking about now ........ it's my husband. > > To tell you a little more about our family, Danny and I have been married > for 14 years, and we have three children, Becky, 11, , 9, and > , 9 months. I've always been a stay-at-home Mom, and we also > homeschool. > > Hope ....yall.... (we live in Central Texas, ya know) don't mind me > being so wordy. I've spoken from the heart, and I'm " wordy " to begin > with. Take after my Ma. > > I've done alot of research on the web. I've gotten overwhelmed alot over > the different things I've been reading. Does this apply? Does that > apply? What? What? What? It's been very confusing at times. > > But I guess I'm beginning to adjust. Beginning to accept where we are at > with this. > > What we do know for sure at this point, is that after we met again with > the gastro. doctor .... if he doesn't meet our definition of a doctor who > will work with us........ we're dropping him and trying another. Thank > goodness (and Shalleen w/NHCC, Texas), we have a referral for a doctor > that does sound promising. > > I do have a couple of questions to throw out. > > What are the current thoughts on good amounts of Vitamin C & E, to take? > > Also, I could look this back up, but you someone save me time by telling > me the direct website of the lady doctor who has written a couple of > books on the subject of Hep C and diet. > > Elin > ________________________________________________________________ > YOU'RE PAYING TOO MUCH FOR THE INTERNET! > Juno now offers FREE Internet Access! > Try it today - there's no risk! For your FREE software, visit: > http://dl.www.juno.com/get/tagj. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2000 Report Share Posted October 30, 2000 Elin Welcome to this list you will find it so much help in the journey you are beginning. Please reach out to us and vent if needed because that is why we are here to help and sooth each other. My husband is the one with Hep C also and has been on the Rebetron for 14 months we are waiting to go back to the doctor on the 13th of November and we are hoping he will be off of it then. I will be thinking of you on the 9th of this month and hoping you get good news about the biopsy. this is a great bunch of people!!!!! Try to stay positive!! You seem to have your hands full already without this latest development so let us help you through it. Winne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2000 Report Share Posted October 30, 2000 Elin Welcome to this list you will find it so much help in the journey you are beginning. Please reach out to us and vent if needed because that is why we are here to help and sooth each other. My husband is the one with Hep C also and has been on the Rebetron for 14 months we are waiting to go back to the doctor on the 13th of November and we are hoping he will be off of it then. I will be thinking of you on the 9th of this month and hoping you get good news about the biopsy. this is a great bunch of people!!!!! Try to stay positive!! You seem to have your hands full already without this latest development so let us help you through it. Winne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2000 Report Share Posted October 31, 2000 Elin, Welcome to the group! Sounds like you have your hands full too, Good luck with your doc and hope he/she meets yours needs and good luck Suzy _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2002 Report Share Posted July 6, 2002 Jill, Welcome to the group! Sorry to hear you have hep C, but I'm glad you found us I tell people that the " C " in hep c means " Change " because it changes our lifestyles and makes us more concious of our health and mortality. We adjust and adapt thru diet, excercise, rest, and sometimes treatment, as well as in other ways. Do you have any symptoms? Where are ya located? What doctor will you see? I'm in the Dallas/Ft. Worth area of Texas. I'm a wife, grandmother of 3, and have known about my hep about 10 years. You're right. Doesn't matter how we got it. What matters is where we go from here. Nice to meet you! Ask any questions and we will try to answer. big hugs, alley Grand Prairie, Tx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2002 Report Share Posted July 6, 2002 Hi Jill, and welcome to our family. We'll all help you through this...sorta the ole 'been there,done that " routine <g> How are you handling this emotionally? I know when I first found out I was in denial and then I was angry and depressed. Whew, I remember now....it was an emotional roller coaster. Knowledge is your best friend right now. Everyone seems to experience different things so it's nice being part of a group with so many people...there is probably someone who has gone through what you are experiencing at any given time. Several times when I thought I was losing my mind and came to the group with what was going on, I'd discover it wasn't me personally ... it was all part of it. Until you go through the process of the seeing liver guy and getting additional testing, honor the emotions you'll experience because it's part of being diagnosed with something like this. Make sure you get copies of all medical records from the intial testing on. It's important to have these in your possession at all times...and it's your right. If you don't know how to read your records, either ask us or go to the web. http://www.Hepatitis Caware.org/blood_chemistry.html (you can access the whole site with the frame on the left side of the page) is pretty good and I'm sure others will post a bunch of other sites. (BTW everyone, I just went to http://hepatitis-central.com/ and the site is for sale and will close down 12/2002 without a buyer...did you know about that?) Don't know what else to say...feel free to ask anything. Get copies of your labs and stay educated. And don't be afraid to come to us with anything...that's why we are here. (Every now and then we get a little off topic but that's only natural.) Blessings Tatezi introduction Hello. I wanted to introduce myself. I hope that is okay. My name is Jill. I am 31 yrs old. I am married and have 3 children. I found out Wednesday (7/3) that I have Hep C. I want to learn as much as I can about it. I have been trying to figure out how I could have contracted it but can only come up with the fact that 3/4 of my back is tattooed, or maybe it goes back to when I had CMV in 95. I just don't know. I guess now " how " is not as important as " what do I do next " . I can't get in to see my Dr. until 7/29 and I don't want to wait that long for some answers. Maybe you can help. Anyway, Thanks, Jill Michigan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2002 Report Share Posted July 6, 2002 Hi Jill, and welcome to our family. We'll all help you through this...sorta the ole 'been there,done that " routine <g> How are you handling this emotionally? I know when I first found out I was in denial and then I was angry and depressed. Whew, I remember now....it was an emotional roller coaster. Knowledge is your best friend right now. Everyone seems to experience different things so it's nice being part of a group with so many people...there is probably someone who has gone through what you are experiencing at any given time. Several times when I thought I was losing my mind and came to the group with what was going on, I'd discover it wasn't me personally ... it was all part of it. Until you go through the process of the seeing liver guy and getting additional testing, honor the emotions you'll experience because it's part of being diagnosed with something like this. Make sure you get copies of all medical records from the intial testing on. It's important to have these in your possession at all times...and it's your right. If you don't know how to read your records, either ask us or go to the web. http://www.Hepatitis Caware.org/blood_chemistry.html (you can access the whole site with the frame on the left side of the page) is pretty good and I'm sure others will post a bunch of other sites. (BTW everyone, I just went to http://hepatitis-central.com/ and the site is for sale and will close down 12/2002 without a buyer...did you know about that?) Don't know what else to say...feel free to ask anything. Get copies of your labs and stay educated. And don't be afraid to come to us with anything...that's why we are here. (Every now and then we get a little off topic but that's only natural.) Blessings Tatezi introduction Hello. I wanted to introduce myself. I hope that is okay. My name is Jill. I am 31 yrs old. I am married and have 3 children. I found out Wednesday (7/3) that I have Hep C. I want to learn as much as I can about it. I have been trying to figure out how I could have contracted it but can only come up with the fact that 3/4 of my back is tattooed, or maybe it goes back to when I had CMV in 95. I just don't know. I guess now " how " is not as important as " what do I do next " . I can't get in to see my Dr. until 7/29 and I don't want to wait that long for some answers. Maybe you can help. Anyway, Thanks, Jill Michigan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2002 Report Share Posted July 7, 2002 Wecome Jill You'll find tons of information here....the doc who runs the forum is travelling now, but he still finds time to check in....Claudine is a fountain of information. Any questions you have, just ask...and I'm sure someone will help. And you're right, it doesn't matter how you got HepC, it only matters what happens from here on. Carol jranuci49349 wrote: > Hello. > I wanted to introduce myself. I hope that is okay. > My name is Jill. I am 31 yrs old. I am married and have 3 children. > I found out Wednesday (7/3) that I have Hep C. I want to learn as > much as I can about it. I have been trying to figure out how I could > have contracted it but can only come up with the fact that 3/4 of my > back is tattooed, or maybe it goes back to when I had CMV in 95. I > just don't know. I guess now " how " is not as important as " what do I > do next " . I can't get in to see my Dr. until 7/29 and I don't want > to wait that long for some answers. Maybe you can help. > Anyway, > Thanks, > Jill > Michigan > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2002 Report Share Posted July 7, 2002 Wecome Jill You'll find tons of information here....the doc who runs the forum is travelling now, but he still finds time to check in....Claudine is a fountain of information. Any questions you have, just ask...and I'm sure someone will help. And you're right, it doesn't matter how you got HepC, it only matters what happens from here on. Carol jranuci49349 wrote: > Hello. > I wanted to introduce myself. I hope that is okay. > My name is Jill. I am 31 yrs old. I am married and have 3 children. > I found out Wednesday (7/3) that I have Hep C. I want to learn as > much as I can about it. I have been trying to figure out how I could > have contracted it but can only come up with the fact that 3/4 of my > back is tattooed, or maybe it goes back to when I had CMV in 95. I > just don't know. I guess now " how " is not as important as " what do I > do next " . I can't get in to see my Dr. until 7/29 and I don't want > to wait that long for some answers. Maybe you can help. > Anyway, > Thanks, > Jill > Michigan > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2002 Report Share Posted July 7, 2002 HI Jill.Welcome to this group.I.am a relative new member also and got a lot of knowledge from it.You can ask any question and for sure you.ll get an answer,there is a lot of knowledge on this group.You.re young and a woman,depending on your geno-type,your changes of getting cured with the new combi treatment hve greatly improved.This group will tell you all about it.Don.t ask yourself how you.hve got it.There.s nothing you can do about it now anyway.In a way you.re lucky it was diagnosed so early,it greatly improves your changes of recovery.. introduction Hello. I wanted to introduce myself. I hope that is okay. My name is Jill. I am 31 yrs old. I am married and have 3 children. I found out Wednesday (7/3) that I have Hep C. I want to learn as much as I can about it. I have been trying to figure out how I could have contracted it but can only come up with the fact that 3/4 of my back is tattooed, or maybe it goes back to when I had CMV in 95. I just don't know. I guess now " how " is not as important as " what do I do next " . I can't get in to see my Dr. until 7/29 and I don't want to wait that long for some answers. Maybe you can help. Anyway, Thanks, Jill Michigan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2002 Report Share Posted July 7, 2002 Jill, I am so very sorry that you have had to find us. This is a wonderful group. I have been on this list since I first found out about my HepC too. It is the only group I have stuck with. I have learned lots. This is a pretty tight group. They have helped me through some tough times. I found out I had HepC just over 2 years ago. This group helped me with the emotional roller coaster that followed. I had no close friends or relatives near me at the time, so this was my only outlet. I am also married with 2 kids. I was so worried I had passed this disease to my hubby and kids....but it wasn't true. Then, I went on treatment....worked out for me (so far anyway). I found good support here while on treatment, and would of still found good support here even if I had decided not to try the treatment. Don't be shy here, ask questions, and ask them over and over again if you don't understand. Edie San , TX introduction Hello. I wanted to introduce myself. I hope that is okay. My name is Jill. I am 31 yrs old. I am married and have 3 children. I found out Wednesday (7/3) that I have Hep C. I want to learn as much as I can about it. I have been trying to figure out how I could have contracted it but can only come up with the fact that 3/4 of my back is tattooed, or maybe it goes back to when I had CMV in 95. I just don't know. I guess now " how " is not as important as " what do I do next " . I can't get in to see my Dr. until 7/29 and I don't want to wait that long for some answers. Maybe you can help. Anyway, Thanks, Jill Michigan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2002 Report Share Posted July 7, 2002 Alley, Do you have any symptoms? I am not sure what symptoms I have. I wasn' t aware that anything was wrong... or was I. I would say that from the beginning of January til the middle of April I had not been sick for about a total of 2 weeks. I also run and walk a lot and since May my calves have really hurt. Even when I took 3 weeks off they still ache and I get sharp pains throughout my calves. I am tired a lot. I never associated it with anything til now. Maybe it's all related, maybe it isn't. I was a medic in the Army 92-96. (another possible source of the cause). Where are ya located? I am located in the small town of White Cloud, Michigan. What doctor will you see? I don't have a clue. I just want to get in to see my PCP right now. Jill Re: introduction Jill, Welcome to the group! Sorry to hear you have hep C, but I'm glad you found us I tell people that the " C " in hep c means " Change " because it changes our lifestyles and makes us more concious of our health and mortality. We adjust and adapt thru diet, excercise, rest, and sometimes treatment, as well as in other ways. Do you have any symptoms? Where are ya located? What doctor will you see? I'm in the Dallas/Ft. Worth area of Texas. I'm a wife, grandmother of 3, and have known about my hep about 10 years. You're right. Doesn't matter how we got it. What matters is where we go from here. Nice to meet you! Ask any questions and we will try to answer. big hugs, alley Grand Prairie, Tx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2002 Report Share Posted July 7, 2002 Jill, I am so very sorry that you have had to find us. This is a wonderful group. I have been on this list since I first found out about my HepC too. It is the only group I have stuck with. I have learned lots. This is a pretty tight group. They have helped me through some tough times. I found out I had HepC just over 2 years ago. This group helped me with the emotional roller coaster that followed. I had no close friends or relatives near me at the time, so this was my only outlet. I am also married with 2 kids. I was so worried I had passed this disease to my hubby and kids....but it wasn't true. Then, I went on treatment....worked out for me (so far anyway). I found good support here while on treatment, and would of still found good support here even if I had decided not to try the treatment. Don't be shy here, ask questions, and ask them over and over again if you don't understand. Edie San , TX introduction Hello. I wanted to introduce myself. I hope that is okay. My name is Jill. I am 31 yrs old. I am married and have 3 children. I found out Wednesday (7/3) that I have Hep C. I want to learn as much as I can about it. I have been trying to figure out how I could have contracted it but can only come up with the fact that 3/4 of my back is tattooed, or maybe it goes back to when I had CMV in 95. I just don't know. I guess now " how " is not as important as " what do I do next " . I can't get in to see my Dr. until 7/29 and I don't want to wait that long for some answers. Maybe you can help. Anyway, Thanks, Jill Michigan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2002 Report Share Posted July 7, 2002 Alley, Do you have any symptoms? I am not sure what symptoms I have. I wasn' t aware that anything was wrong... or was I. I would say that from the beginning of January til the middle of April I had not been sick for about a total of 2 weeks. I also run and walk a lot and since May my calves have really hurt. Even when I took 3 weeks off they still ache and I get sharp pains throughout my calves. I am tired a lot. I never associated it with anything til now. Maybe it's all related, maybe it isn't. I was a medic in the Army 92-96. (another possible source of the cause). Where are ya located? I am located in the small town of White Cloud, Michigan. What doctor will you see? I don't have a clue. I just want to get in to see my PCP right now. Jill Re: introduction Jill, Welcome to the group! Sorry to hear you have hep C, but I'm glad you found us I tell people that the " C " in hep c means " Change " because it changes our lifestyles and makes us more concious of our health and mortality. We adjust and adapt thru diet, excercise, rest, and sometimes treatment, as well as in other ways. Do you have any symptoms? Where are ya located? What doctor will you see? I'm in the Dallas/Ft. Worth area of Texas. I'm a wife, grandmother of 3, and have known about my hep about 10 years. You're right. Doesn't matter how we got it. What matters is where we go from here. Nice to meet you! Ask any questions and we will try to answer. big hugs, alley Grand Prairie, Tx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2002 Report Share Posted July 7, 2002 Tatezi, I am doing fine emotionally right now, I think. When I first heard 2 weeks ago that the labs thought this is what I had I was very scared, but started reading up on Hep C on the internet to get a better understanding of what was going on. When I was officially told (when the 3rd test came back pos also). I felt just fine. All I wanted to do at that point was get on with finding out how far it had progressed and also what the next steps were. A friend of mine was unsettled with how " okay " I was with it. It is just surreal. I look in the mirror and can't believe it because I can't see it. Thank you for your support. Jill introduction Hello. I wanted to introduce myself. I hope that is okay. My name is Jill. I am 31 yrs old. I am married and have 3 children. I found out Wednesday (7/3) that I have Hep C. I want to learn as much as I can about it. I have been trying to figure out how I could have contracted it but can only come up with the fact that 3/4 of my back is tattooed, or maybe it goes back to when I had CMV in 95. I just don't know. I guess now " how " is not as important as " what do I do next " . I can't get in to see my Dr. until 7/29 and I don't want to wait that long for some answers. Maybe you can help. Anyway, Thanks, Jill Michigan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2002 Report Share Posted July 7, 2002 Tatezi, I am doing fine emotionally right now, I think. When I first heard 2 weeks ago that the labs thought this is what I had I was very scared, but started reading up on Hep C on the internet to get a better understanding of what was going on. When I was officially told (when the 3rd test came back pos also). I felt just fine. All I wanted to do at that point was get on with finding out how far it had progressed and also what the next steps were. A friend of mine was unsettled with how " okay " I was with it. It is just surreal. I look in the mirror and can't believe it because I can't see it. Thank you for your support. Jill introduction Hello. I wanted to introduce myself. I hope that is okay. My name is Jill. I am 31 yrs old. I am married and have 3 children. I found out Wednesday (7/3) that I have Hep C. I want to learn as much as I can about it. I have been trying to figure out how I could have contracted it but can only come up with the fact that 3/4 of my back is tattooed, or maybe it goes back to when I had CMV in 95. I just don't know. I guess now " how " is not as important as " what do I do next " . I can't get in to see my Dr. until 7/29 and I don't want to wait that long for some answers. Maybe you can help. Anyway, Thanks, Jill Michigan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2002 Report Share Posted July 7, 2002 Hi Jill... Glad to hear this hasn't thrown you into an emotional tizzy. Makes life a lot easier. Now for the waiting for the additional tests...that to me was the hardest part. Of course, I'm not a very patient person and want to know things right now! I've heard of White Cloud...isn't it an hour or so north of Grand Rapids? I had family in Grand Rapids that has died off but as a child we used to go up there several times a year (I'm in Chicago). Also have family still living in the East Lansing area. As I recall, it's pretty much small towns all around White Cloud...am I remembering right? Let us know when we can help with anything... Tatezi introduction Hello. I wanted to introduce myself. I hope that is okay. My name is Jill. I am 31 yrs old. I am married and have 3 children. I found out Wednesday (7/3) that I have Hep C. I want to learn as much as I can about it. I have been trying to figure out how I could have contracted it but can only come up with the fact that 3/4 of my back is tattooed, or maybe it goes back to when I had CMV in 95. I just don't know. I guess now " how " is not as important as " what do I do next " . I can't get in to see my Dr. until 7/29 and I don't want to wait that long for some answers. Maybe you can help. Anyway, Thanks, Jill Michigan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2002 Report Share Posted July 7, 2002 Hi Jill... Glad to hear this hasn't thrown you into an emotional tizzy. Makes life a lot easier. Now for the waiting for the additional tests...that to me was the hardest part. Of course, I'm not a very patient person and want to know things right now! I've heard of White Cloud...isn't it an hour or so north of Grand Rapids? I had family in Grand Rapids that has died off but as a child we used to go up there several times a year (I'm in Chicago). Also have family still living in the East Lansing area. As I recall, it's pretty much small towns all around White Cloud...am I remembering right? Let us know when we can help with anything... Tatezi introduction Hello. I wanted to introduce myself. I hope that is okay. My name is Jill. I am 31 yrs old. I am married and have 3 children. I found out Wednesday (7/3) that I have Hep C. I want to learn as much as I can about it. I have been trying to figure out how I could have contracted it but can only come up with the fact that 3/4 of my back is tattooed, or maybe it goes back to when I had CMV in 95. I just don't know. I guess now " how " is not as important as " what do I do next " . I can't get in to see my Dr. until 7/29 and I don't want to wait that long for some answers. Maybe you can help. Anyway, Thanks, Jill Michigan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2002 Report Share Posted July 7, 2002 Hi Jill. I remember geting my initial diagnosis, then the long wait for a specialist, that seemed horrible at the time to have to wait so long. The good news is, HCV progresses very slowly, so while decades matter months are not a big deal. You have had a confirming diagnosis by PCR? There are things you can do immediately in terms of diet and taking supplements, things your specialist probably won't tell you anyway, so it is okay to start coping with your condition immediately. While there are laundry lists of things to do, and you will hear different opinions from many on what they are, two things I am sure everyone will agree on are to start taking milk thistle and STOP DRINKING ALCOHOL. The MT is an antinflammatory with proven liver protecting properties that will slow (not cure) the progression of fibrosis. Alcohol, on the other hand, is a liver damaging agent in it's own right and in concert with the HCV they don't add to each others contribution, they multiply each other so please please please stop drinking alcohol. If you don't drink, YEAH, don't start :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2002 Report Share Posted July 7, 2002 Tatezi Yes, White Cloud is north of GR. And yes, it is all small towns in Newaygo County. I like it, but hate being so far away from everything when we want to do some real shopping... lol Jill Re: introduction Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2002 Report Share Posted July 7, 2002 Tatezi Yes, White Cloud is north of GR. And yes, it is all small towns in Newaygo County. I like it, but hate being so far away from everything when we want to do some real shopping... lol Jill Re: introduction Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2002 Report Share Posted July 7, 2002 Hi Jill and welcome, My name is Donna and I just started my treatment and am doing very well. It is good for you to reach out. Finding out you are chronically ill is a hard pill to swallow. But I myself have learned so much about life, love and happiness when I finally came to grips with my illness. You will only grow to be a better person from it I pray. Sincerely, Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2002 Report Share Posted July 7, 2002 Hi Jill and welcome, My name is Donna and I just started my treatment and am doing very well. It is good for you to reach out. Finding out you are chronically ill is a hard pill to swallow. But I myself have learned so much about life, love and happiness when I finally came to grips with my illness. You will only grow to be a better person from it I pray. Sincerely, Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2002 Report Share Posted July 7, 2002 Jill, Imagine before the internet....going to the library and looking at books copyrighted in 1989....finding old information about non-A, non-B. Wow, this internet is some wonderful crap. The posters here will keep you well informed. Get ready to bookmark many, many sites. To everyone...remember me telling you April 1st that I finally got a prescription for pegylated interferon and ribavirin from the University of Nebraska Medical Center via the VA? Well, I've just returned home from vacation and am hoping it's at the post office where my mail has been held this past week. Will know tomorrow. It's been three months, so I have my fingers crossed. I've failed monotherapy twice because of low white blood count and platelets. The last time I took injections for 9 months. That's been a few years ago. The nurse had told me, since I work 6 days, that I should take the injection on Saturday nights, Sunday being my day off. I may not be able to wait if I come home with the goods tomorrow. Welcome, Jill. Try to get rest each afternoon, if possible. That will help if you have fatigue. Eat well. Keep your spirits up and be positive. There are smart people out there working on better treatments. I think I've had this since Vietnam, which would be 32 years now. I feel fine when I'm rested (really cranky if I'm not, though). Your friend, Gene Quote Link to comment Share on other sites More sharing options...
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