Guest guest Posted July 7, 2002 Report Share Posted July 7, 2002 Jill, Imagine before the internet....going to the library and looking at books copyrighted in 1989....finding old information about non-A, non-B. Wow, this internet is some wonderful crap. The posters here will keep you well informed. Get ready to bookmark many, many sites. To everyone...remember me telling you April 1st that I finally got a prescription for pegylated interferon and ribavirin from the University of Nebraska Medical Center via the VA? Well, I've just returned home from vacation and am hoping it's at the post office where my mail has been held this past week. Will know tomorrow. It's been three months, so I have my fingers crossed. I've failed monotherapy twice because of low white blood count and platelets. The last time I took injections for 9 months. That's been a few years ago. The nurse had told me, since I work 6 days, that I should take the injection on Saturday nights, Sunday being my day off. I may not be able to wait if I come home with the goods tomorrow. Welcome, Jill. Try to get rest each afternoon, if possible. That will help if you have fatigue. Eat well. Keep your spirits up and be positive. There are smart people out there working on better treatments. I think I've had this since Vietnam, which would be 32 years now. I feel fine when I'm rested (really cranky if I'm not, though). Your friend, Gene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2002 Report Share Posted July 7, 2002 Jill, Imagine before the internet....going to the library and looking at books copyrighted in 1989....finding old information about non-A, non-B. Wow, this internet is some wonderful crap. The posters here will keep you well informed. Get ready to bookmark many, many sites. To everyone...remember me telling you April 1st that I finally got a prescription for pegylated interferon and ribavirin from the University of Nebraska Medical Center via the VA? Well, I've just returned home from vacation and am hoping it's at the post office where my mail has been held this past week. Will know tomorrow. It's been three months, so I have my fingers crossed. I've failed monotherapy twice because of low white blood count and platelets. The last time I took injections for 9 months. That's been a few years ago. The nurse had told me, since I work 6 days, that I should take the injection on Saturday nights, Sunday being my day off. I may not be able to wait if I come home with the goods tomorrow. Welcome, Jill. Try to get rest each afternoon, if possible. That will help if you have fatigue. Eat well. Keep your spirits up and be positive. There are smart people out there working on better treatments. I think I've had this since Vietnam, which would be 32 years now. I feel fine when I'm rested (really cranky if I'm not, though). Your friend, Gene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2002 Report Share Posted July 7, 2002 Jill, Imagine before the internet....going to the library and looking at books copyrighted in 1989....finding old information about non-A, non-B. Wow, this internet is some wonderful crap. The posters here will keep you well informed. Get ready to bookmark many, many sites. To everyone...remember me telling you April 1st that I finally got a prescription for pegylated interferon and ribavirin from the University of Nebraska Medical Center via the VA? Well, I've just returned home from vacation and am hoping it's at the post office where my mail has been held this past week. Will know tomorrow. It's been three months, so I have my fingers crossed. I've failed monotherapy twice because of low white blood count and platelets. The last time I took injections for 9 months. That's been a few years ago. The nurse had told me, since I work 6 days, that I should take the injection on Saturday nights, Sunday being my day off. I may not be able to wait if I come home with the goods tomorrow. Welcome, Jill. Try to get rest each afternoon, if possible. That will help if you have fatigue. Eat well. Keep your spirits up and be positive. There are smart people out there working on better treatments. I think I've had this since Vietnam, which would be 32 years now. I feel fine when I'm rested (really cranky if I'm not, though). Your friend, Gene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2002 Report Share Posted July 8, 2002 Hi Jill, I think you have already found the best place on the web, not just for info, but for the wonderful people you will meet here. I'm glad you found us! I'm sure if you just found out you must still be in shock. I know it took me quite a while before it all really sunk into my head. Luckily, this is usually a slowly progressing disease, so you have plenty of time to learn all you can, and you really should do that. Knowledge is you best tool against this disease. Here are some links to sites that may be helpful to you. Learn all you can, but be cautious about some of what you read - if it sounds too good to be true, it probably is! And don't let yourself be drug down by some people's negativity. Most people with HCV will NOT die from it, and many people are able to get rid of this disease with the newest treatments. Things are greatly improved over what was available just a few years ago. Ask anything, there are no dumb questions. Again, welcome to the group! Claudine http://www.geocities.com/TheTropics/Shores/4259 LeighAnn's Hepatitis C Home http://www.hepcprimer.com/ #1 Hepatitis C Primer - Information about the Hepatitis C Virus http://hepatitis-central.com (Hepatitis-Central) http://hepcnet.net HepCnet - a very upbeat, positive site, lots of info, and a very active bulletin board. http://www.hepatitisneighborhood.com/ Hepatitis Neighborhood (This is a Priority Health Care site, fairly new and still under construction, but they have some very good moderated chats with various hepatitis specialists.) http://www.hcvadvocate.org/ (An 'on-line' monthly HCV magazine. Great articles every month.) http://www.carbonbased.com/cbcblood.htm (Basic info on basic blood test results, normal and abnormal.) http://www.hepatitisdoctor.com/ Hepatitis Doctor http://liverdisease.com/diet.html (Dr. Palmer's site.) http://www.rxlist.com/ RX Drug info (a very good site to look up information on any prescription or non-prescription drug. Even some info on herbs can be found.) __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2002 Report Share Posted July 8, 2002 Hi Jill, I think you have already found the best place on the web, not just for info, but for the wonderful people you will meet here. I'm glad you found us! I'm sure if you just found out you must still be in shock. I know it took me quite a while before it all really sunk into my head. Luckily, this is usually a slowly progressing disease, so you have plenty of time to learn all you can, and you really should do that. Knowledge is you best tool against this disease. Here are some links to sites that may be helpful to you. Learn all you can, but be cautious about some of what you read - if it sounds too good to be true, it probably is! And don't let yourself be drug down by some people's negativity. Most people with HCV will NOT die from it, and many people are able to get rid of this disease with the newest treatments. Things are greatly improved over what was available just a few years ago. Ask anything, there are no dumb questions. Again, welcome to the group! Claudine http://www.geocities.com/TheTropics/Shores/4259 LeighAnn's Hepatitis C Home http://www.hepcprimer.com/ #1 Hepatitis C Primer - Information about the Hepatitis C Virus http://hepatitis-central.com (Hepatitis-Central) http://hepcnet.net HepCnet - a very upbeat, positive site, lots of info, and a very active bulletin board. http://www.hepatitisneighborhood.com/ Hepatitis Neighborhood (This is a Priority Health Care site, fairly new and still under construction, but they have some very good moderated chats with various hepatitis specialists.) http://www.hcvadvocate.org/ (An 'on-line' monthly HCV magazine. Great articles every month.) http://www.carbonbased.com/cbcblood.htm (Basic info on basic blood test results, normal and abnormal.) http://www.hepatitisdoctor.com/ Hepatitis Doctor http://liverdisease.com/diet.html (Dr. Palmer's site.) http://www.rxlist.com/ RX Drug info (a very good site to look up information on any prescription or non-prescription drug. Even some info on herbs can be found.) __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2002 Report Share Posted July 8, 2002 Hi Jill, I think you have already found the best place on the web, not just for info, but for the wonderful people you will meet here. I'm glad you found us! I'm sure if you just found out you must still be in shock. I know it took me quite a while before it all really sunk into my head. Luckily, this is usually a slowly progressing disease, so you have plenty of time to learn all you can, and you really should do that. Knowledge is you best tool against this disease. Here are some links to sites that may be helpful to you. Learn all you can, but be cautious about some of what you read - if it sounds too good to be true, it probably is! And don't let yourself be drug down by some people's negativity. Most people with HCV will NOT die from it, and many people are able to get rid of this disease with the newest treatments. Things are greatly improved over what was available just a few years ago. Ask anything, there are no dumb questions. Again, welcome to the group! Claudine http://www.geocities.com/TheTropics/Shores/4259 LeighAnn's Hepatitis C Home http://www.hepcprimer.com/ #1 Hepatitis C Primer - Information about the Hepatitis C Virus http://hepatitis-central.com (Hepatitis-Central) http://hepcnet.net HepCnet - a very upbeat, positive site, lots of info, and a very active bulletin board. http://www.hepatitisneighborhood.com/ Hepatitis Neighborhood (This is a Priority Health Care site, fairly new and still under construction, but they have some very good moderated chats with various hepatitis specialists.) http://www.hcvadvocate.org/ (An 'on-line' monthly HCV magazine. Great articles every month.) http://www.carbonbased.com/cbcblood.htm (Basic info on basic blood test results, normal and abnormal.) http://www.hepatitisdoctor.com/ Hepatitis Doctor http://liverdisease.com/diet.html (Dr. Palmer's site.) http://www.rxlist.com/ RX Drug info (a very good site to look up information on any prescription or non-prescription drug. Even some info on herbs can be found.) __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2002 Report Share Posted July 8, 2002 Hi Jill, I think you have already found the best place on the web, not just for info, but for the wonderful people you will meet here. I'm glad you found us! I'm sure if you just found out you must still be in shock. I know it took me quite a while before it all really sunk into my head. Luckily, this is usually a slowly progressing disease, so you have plenty of time to learn all you can, and you really should do that. Knowledge is you best tool against this disease. Here are some links to sites that may be helpful to you. Learn all you can, but be cautious about some of what you read - if it sounds too good to be true, it probably is! And don't let yourself be drug down by some people's negativity. Most people with HCV will NOT die from it, and many people are able to get rid of this disease with the newest treatments. Things are greatly improved over what was available just a few years ago. Ask anything, there are no dumb questions. Again, welcome to the group! Claudine http://www.geocities.com/TheTropics/Shores/4259 LeighAnn's Hepatitis C Home http://www.hepcprimer.com/ #1 Hepatitis C Primer - Information about the Hepatitis C Virus http://hepatitis-central.com (Hepatitis-Central) http://hepcnet.net HepCnet - a very upbeat, positive site, lots of info, and a very active bulletin board. http://www.hepatitisneighborhood.com/ Hepatitis Neighborhood (This is a Priority Health Care site, fairly new and still under construction, but they have some very good moderated chats with various hepatitis specialists.) http://www.hcvadvocate.org/ (An 'on-line' monthly HCV magazine. Great articles every month.) http://www.carbonbased.com/cbcblood.htm (Basic info on basic blood test results, normal and abnormal.) http://www.hepatitisdoctor.com/ Hepatitis Doctor http://liverdisease.com/diet.html (Dr. Palmer's site.) http://www.rxlist.com/ RX Drug info (a very good site to look up information on any prescription or non-prescription drug. Even some info on herbs can be found.) __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2002 Report Share Posted July 8, 2002 I hear ya. When I was diagnosed with Hep C back in 1990, I wouldn't have said I had symptoms but I did and didn't realize it. I'd be covering them up for a long time by eating aspirin. My hep symptoms vary. They aren't always the same. If I get overtired, I get diarhea (so I keep lots of books in the bathroom . Fatigue of course, it comes and goes. Sometimes achey joints, kind of a random thing - this week the shoulder, next week the pelvis, etc. Unable to get good stage 4 sleep, so I take Elavil at nite, sometimes I need a sleeping pill but not often. When I was working and on my feet all the time my legs and feet used to hurt so much I'd cry at nite. I started taking a potassium, zinc, magnesium combination and that helped some. But still sometimes it felt like I'd been beat all over. Heat and sun intolerance. I'm in Grand Praire, Tx, between Dallas and Ft. Worth. I would suggest you find a good hep doctor. I found mine by going to local support groups and listening to the docs who would speak at them and asking people who they liked. I think in the HIV scare, when I found out I had hep b and hep c antibodies I was relieved it wasn't HIV or syphilis or something like that. Weird how we prioritize our fears, but somehow I understood even then that things could be much worse than what I had. Ok here's my opinion... Every hepper needs the antibody test of course, then a viral load (how much virus in your blood), a genotype, then a liver biopsy. If you don't have all that info, you can't make an informed decision on whether to treat the hep or let is slide. Usually, if the liver is in good shape, it's best to wait. Treatment isn't fun and some of the sides of treatment can be permanent, not often, but it happens. Good luck and let us know what happens!! alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2002 Report Share Posted July 8, 2002 I hear ya. When I was diagnosed with Hep C back in 1990, I wouldn't have said I had symptoms but I did and didn't realize it. I'd be covering them up for a long time by eating aspirin. My hep symptoms vary. They aren't always the same. If I get overtired, I get diarhea (so I keep lots of books in the bathroom . Fatigue of course, it comes and goes. Sometimes achey joints, kind of a random thing - this week the shoulder, next week the pelvis, etc. Unable to get good stage 4 sleep, so I take Elavil at nite, sometimes I need a sleeping pill but not often. When I was working and on my feet all the time my legs and feet used to hurt so much I'd cry at nite. I started taking a potassium, zinc, magnesium combination and that helped some. But still sometimes it felt like I'd been beat all over. Heat and sun intolerance. I'm in Grand Praire, Tx, between Dallas and Ft. Worth. I would suggest you find a good hep doctor. I found mine by going to local support groups and listening to the docs who would speak at them and asking people who they liked. I think in the HIV scare, when I found out I had hep b and hep c antibodies I was relieved it wasn't HIV or syphilis or something like that. Weird how we prioritize our fears, but somehow I understood even then that things could be much worse than what I had. Ok here's my opinion... Every hepper needs the antibody test of course, then a viral load (how much virus in your blood), a genotype, then a liver biopsy. If you don't have all that info, you can't make an informed decision on whether to treat the hep or let is slide. Usually, if the liver is in good shape, it's best to wait. Treatment isn't fun and some of the sides of treatment can be permanent, not often, but it happens. Good luck and let us know what happens!! alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2002 Report Share Posted July 8, 2002 I hear ya. When I was diagnosed with Hep C back in 1990, I wouldn't have said I had symptoms but I did and didn't realize it. I'd be covering them up for a long time by eating aspirin. My hep symptoms vary. They aren't always the same. If I get overtired, I get diarhea (so I keep lots of books in the bathroom . Fatigue of course, it comes and goes. Sometimes achey joints, kind of a random thing - this week the shoulder, next week the pelvis, etc. Unable to get good stage 4 sleep, so I take Elavil at nite, sometimes I need a sleeping pill but not often. When I was working and on my feet all the time my legs and feet used to hurt so much I'd cry at nite. I started taking a potassium, zinc, magnesium combination and that helped some. But still sometimes it felt like I'd been beat all over. Heat and sun intolerance. I'm in Grand Praire, Tx, between Dallas and Ft. Worth. I would suggest you find a good hep doctor. I found mine by going to local support groups and listening to the docs who would speak at them and asking people who they liked. I think in the HIV scare, when I found out I had hep b and hep c antibodies I was relieved it wasn't HIV or syphilis or something like that. Weird how we prioritize our fears, but somehow I understood even then that things could be much worse than what I had. Ok here's my opinion... Every hepper needs the antibody test of course, then a viral load (how much virus in your blood), a genotype, then a liver biopsy. If you don't have all that info, you can't make an informed decision on whether to treat the hep or let is slide. Usually, if the liver is in good shape, it's best to wait. Treatment isn't fun and some of the sides of treatment can be permanent, not often, but it happens. Good luck and let us know what happens!! alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2002 Report Share Posted July 8, 2002 I hear ya. When I was diagnosed with Hep C back in 1990, I wouldn't have said I had symptoms but I did and didn't realize it. I'd be covering them up for a long time by eating aspirin. My hep symptoms vary. They aren't always the same. If I get overtired, I get diarhea (so I keep lots of books in the bathroom . Fatigue of course, it comes and goes. Sometimes achey joints, kind of a random thing - this week the shoulder, next week the pelvis, etc. Unable to get good stage 4 sleep, so I take Elavil at nite, sometimes I need a sleeping pill but not often. When I was working and on my feet all the time my legs and feet used to hurt so much I'd cry at nite. I started taking a potassium, zinc, magnesium combination and that helped some. But still sometimes it felt like I'd been beat all over. Heat and sun intolerance. I'm in Grand Praire, Tx, between Dallas and Ft. Worth. I would suggest you find a good hep doctor. I found mine by going to local support groups and listening to the docs who would speak at them and asking people who they liked. I think in the HIV scare, when I found out I had hep b and hep c antibodies I was relieved it wasn't HIV or syphilis or something like that. Weird how we prioritize our fears, but somehow I understood even then that things could be much worse than what I had. Ok here's my opinion... Every hepper needs the antibody test of course, then a viral load (how much virus in your blood), a genotype, then a liver biopsy. If you don't have all that info, you can't make an informed decision on whether to treat the hep or let is slide. Usually, if the liver is in good shape, it's best to wait. Treatment isn't fun and some of the sides of treatment can be permanent, not often, but it happens. Good luck and let us know what happens!! alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2002 Report Share Posted July 8, 2002 Thank you Donna. Yes, finding out that you have something chronically wrong takes the wind out of your sails. Especially when you don't feel like there is anything wrong.... Jill Re: introduction Hi Jill and welcome, My name is Donna and I just started my treatment and am doing very well. It is good for you to reach out. Finding out you are chronically ill is a hard pill to swallow. But I myself have learned so much about life, love and happiness when I finally came to grips with my illness. You will only grow to be a better person from it I pray. Sincerely, Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2002 Report Share Posted July 8, 2002 Thank you Donna. Yes, finding out that you have something chronically wrong takes the wind out of your sails. Especially when you don't feel like there is anything wrong.... Jill Re: introduction Hi Jill and welcome, My name is Donna and I just started my treatment and am doing very well. It is good for you to reach out. Finding out you are chronically ill is a hard pill to swallow. But I myself have learned so much about life, love and happiness when I finally came to grips with my illness. You will only grow to be a better person from it I pray. Sincerely, Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2002 Report Share Posted July 8, 2002 Thank you Donna. Yes, finding out that you have something chronically wrong takes the wind out of your sails. Especially when you don't feel like there is anything wrong.... Jill Re: introduction Hi Jill and welcome, My name is Donna and I just started my treatment and am doing very well. It is good for you to reach out. Finding out you are chronically ill is a hard pill to swallow. But I myself have learned so much about life, love and happiness when I finally came to grips with my illness. You will only grow to be a better person from it I pray. Sincerely, Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2002 Report Share Posted July 8, 2002 Thank you Donna. Yes, finding out that you have something chronically wrong takes the wind out of your sails. Especially when you don't feel like there is anything wrong.... Jill Re: introduction Hi Jill and welcome, My name is Donna and I just started my treatment and am doing very well. It is good for you to reach out. Finding out you are chronically ill is a hard pill to swallow. But I myself have learned so much about life, love and happiness when I finally came to grips with my illness. You will only grow to be a better person from it I pray. Sincerely, Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2002 Report Share Posted July 10, 2002 Welcome, sort of-if you get my drift-I am sorry to see new people here, but here is a good place to be for heppers. Oh yeah, to your Army vacs as a possible source-I would suspect them over the tattoos. But-let me stay off that subject. You will probably go through several rounds of testing to determine whether or not you should consider treatment. Your symptoms sound fairly typical to HCV. It is NOT necessarily an indication of liver damage. For many of us HCV is not a life-threatening illness, but rather a lousy disease that we learn to deal with. Many of us use 'alternative' (herbal, vitamin/mineral, chinese herbs, acupuncture, etc) to deal with it-not to cure it. Anyway, welcome again. Get ready to start reading! gail From: " Anuci " <anuci@...> Reply-Hepatitis C Date: Sun, 7 Jul 2002 10:48:48 -0400 <Hepatitis C > Subject: Re: introduction Alley, Do you have any symptoms? I am not sure what symptoms I have. I wasn' t aware that anything was wrong... or was I. I would say that from the beginning of January til the middle of April I had not been sick for about a total of 2 weeks. I also run and walk a lot and since May my calves have really hurt. Even when I took 3 weeks off they still ache and I get sharp pains throughout my calves. I am tired a lot. I never associated it with anything til now. Maybe it's all related, maybe it isn't. I was a medic in the Army 92-96. (another possible source of the cause). Where are ya located? I am located in the small town of White Cloud, Michigan. What doctor will you see? I don't have a clue. I just want to get in to see my PCP right now. Jill Re: introduction Jill, Welcome to the group! Sorry to hear you have hep C, but I'm glad you found us I tell people that the " C " in hep c means " Change " because it changes our lifestyles and makes us more concious of our health and mortality. We adjust and adapt thru diet, excercise, rest, and sometimes treatment, as well as in other ways. Do you have any symptoms? Where are ya located? What doctor will you see? I'm in the Dallas/Ft. Worth area of Texas. I'm a wife, grandmother of 3, and have known about my hep about 10 years. You're right. Doesn't matter how we got it. What matters is where we go from here. Nice to meet you! Ask any questions and we will try to answer. big hugs, alley Grand Prairie, Tx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2002 Report Share Posted July 10, 2002 Thanks Gail! I have often wondered about the vaccines they gave us in Basic. They were in those guns and we were shuffeled through these lines and given one shot right after another. Do those things use the same needles or does it rotate a new one in every time? Does anyone know? Just curious. Anyway, thank you again. I am actually anxious to get to the Dr. on Monday to see what he has to say. I am hoping I don't have to wait another month to get results from the tests they will do then. Jill Re: introduction Jill, Welcome to the group! Sorry to hear you have hep C, but I'm glad you found us I tell people that the " C " in hep c means " Change " because it changes our lifestyles and makes us more concious of our health and mortality. We adjust and adapt thru diet, excercise, rest, and sometimes treatment, as well as in other ways. Do you have any symptoms? Where are ya located? What doctor will you see? I'm in the Dallas/Ft. Worth area of Texas. I'm a wife, grandmother of 3, and have known about my hep about 10 years. You're right. Doesn't matter how we got it. What matters is where we go from here. Nice to meet you! Ask any questions and we will try to answer. big hugs, alley Grand Prairie, Tx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2002 Report Share Posted July 11, 2002 My first husband went into the military right after we married. They used airguns. He got deathly ill in basic, they hospitalized him for 5 weeks and then sent him home to recoup for another 5. They had no idea what he had, they called it " non a non b " hepatitis. I was pregnant at the time with our first. I had a c section and rho gam shots from the same military hospital on the base. I just can't help but think that infected blood was spread around there. X won't go get tested now. He says he is fine. Just my history and some thots to share. alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2002 Report Share Posted July 11, 2002 Thanks Alley. Jill Re: introduction My first husband went into the military right after we married. They used airguns. He got deathly ill in basic, they hospitalized him for 5 weeks and then sent him home to recoup for another 5. They had no idea what he had, they called it " non a non b " hepatitis. I was pregnant at the time with our first. I had a c section and rho gam shots from the same military hospital on the base. I just can't help but think that infected blood was spread around there. X won't go get tested now. He says he is fine. Just my history and some thots to share. alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2002 Report Share Posted July 11, 2002 Thanks Alley. Jill Re: introduction My first husband went into the military right after we married. They used airguns. He got deathly ill in basic, they hospitalized him for 5 weeks and then sent him home to recoup for another 5. They had no idea what he had, they called it " non a non b " hepatitis. I was pregnant at the time with our first. I had a c section and rho gam shots from the same military hospital on the base. I just can't help but think that infected blood was spread around there. X won't go get tested now. He says he is fine. Just my history and some thots to share. alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2002 Report Share Posted July 11, 2002 Thanks Alley. Jill Re: introduction My first husband went into the military right after we married. They used airguns. He got deathly ill in basic, they hospitalized him for 5 weeks and then sent him home to recoup for another 5. They had no idea what he had, they called it " non a non b " hepatitis. I was pregnant at the time with our first. I had a c section and rho gam shots from the same military hospital on the base. I just can't help but think that infected blood was spread around there. X won't go get tested now. He says he is fine. Just my history and some thots to share. alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2002 Report Share Posted July 11, 2002 Thanks Alley. Jill Re: introduction My first husband went into the military right after we married. They used airguns. He got deathly ill in basic, they hospitalized him for 5 weeks and then sent him home to recoup for another 5. They had no idea what he had, they called it " non a non b " hepatitis. I was pregnant at the time with our first. I had a c section and rho gam shots from the same military hospital on the base. I just can't help but think that infected blood was spread around there. X won't go get tested now. He says he is fine. Just my history and some thots to share. alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2002 Report Share Posted July 12, 2002 Dear Jill, welcome. Sorry you have to be here, but glad you found the site. There is a wealth of information here and at other sites(i.e. Hepatitis-Central) I understand how you are feeling. I remember it well. That was 6 yrs ago for me. Having completed 13 months of standard combo therapy(interferon & ribavirin), I am now undectable, which means the virus is at a lower level than the tests can see. This is good news. I am 9 months post treatment. Try and keep peaceful. Although this is incredibly frightening, we ARE living with Hepatitis C. Yes, this is a dangerous disease, no doubt about it, but we are survivors and you can be one too. Learn all you can. Ask Ask Ask....as much as you want, as many times as you need. Get copies of all your lab tests, proceedures etc. Keep a folder of your medical stuff and bring it with you to your appointments. Don't let a doc give you a 'bum's rush' appointment or 'pooh-pooh' your symptoms. You feel what you feel. And one more thing...you are not crazy or a hypochondriac. Hep C has symptoms. We are all here to help in any way we can. God bless you as you begin this path. There are lots of us to walk it with you. Love, mzgee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2002 Report Share Posted July 12, 2002 Dear Jill, welcome. Sorry you have to be here, but glad you found the site. There is a wealth of information here and at other sites(i.e. Hepatitis-Central) I understand how you are feeling. I remember it well. That was 6 yrs ago for me. Having completed 13 months of standard combo therapy(interferon & ribavirin), I am now undectable, which means the virus is at a lower level than the tests can see. This is good news. I am 9 months post treatment. Try and keep peaceful. Although this is incredibly frightening, we ARE living with Hepatitis C. Yes, this is a dangerous disease, no doubt about it, but we are survivors and you can be one too. Learn all you can. Ask Ask Ask....as much as you want, as many times as you need. Get copies of all your lab tests, proceedures etc. Keep a folder of your medical stuff and bring it with you to your appointments. Don't let a doc give you a 'bum's rush' appointment or 'pooh-pooh' your symptoms. You feel what you feel. And one more thing...you are not crazy or a hypochondriac. Hep C has symptoms. We are all here to help in any way we can. God bless you as you begin this path. There are lots of us to walk it with you. Love, mzgee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2002 Report Share Posted July 12, 2002 Dear Jill, welcome. Sorry you have to be here, but glad you found the site. There is a wealth of information here and at other sites(i.e. Hepatitis-Central) I understand how you are feeling. I remember it well. That was 6 yrs ago for me. Having completed 13 months of standard combo therapy(interferon & ribavirin), I am now undectable, which means the virus is at a lower level than the tests can see. This is good news. I am 9 months post treatment. Try and keep peaceful. Although this is incredibly frightening, we ARE living with Hepatitis C. Yes, this is a dangerous disease, no doubt about it, but we are survivors and you can be one too. Learn all you can. Ask Ask Ask....as much as you want, as many times as you need. Get copies of all your lab tests, proceedures etc. Keep a folder of your medical stuff and bring it with you to your appointments. Don't let a doc give you a 'bum's rush' appointment or 'pooh-pooh' your symptoms. You feel what you feel. And one more thing...you are not crazy or a hypochondriac. Hep C has symptoms. We are all here to help in any way we can. God bless you as you begin this path. There are lots of us to walk it with you. Love, mzgee Quote Link to comment Share on other sites More sharing options...
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