Jaye Update & Prom

[Guest guest]

Well, Jaye had an awesome time at prom last night. She called and wanted

to stay out all night and of course I said NO. But I did give her til 2 a.m. to

go with friends back into Wichita to IHOP. I know that I am a bit over

protective and all. She went into Wichita only 30 miles down the interstate for

dinner at the Olive Garden before prom with one girl I knew a little bit about

and two girls and a guy that I had never met before. Needless to say i was

worried. The girl driving and the one guy in the group made me a bit nervous

for some reason, I was not sure why. The worst part was that Jaye left

without her cell phone, so if she needed somethign she had to depend on someone

else to use their phone. They made it back to town for prom and I was a bit

relieved. Shortly after prom started I got a text from a different friend of

hers phone and Jaye said that she had changed groups to hang out with and

wanted to go to IHOP with them. She said she felt safer with the second group.

I think I felt quite a bit of relief because the girl driving after prom we have

known since grade school. I told her she could not go to IHOP unless she came

to pick up her cell phone which she did. She woke me up at 2 a.m. when she came

in the house and we talked for probably about 30 minutes. She had a wonderful

time. She was so beautiful. She had no aches or pains and she felt beautiful.

My heart swells as I think about it, I nearly choke up as I think back just a

few months ago before Enbrel and she would have been totally out of it the day

after. Also, a few months back she would have gone to prom in pain. This was

wonderful. Today, she did not get up for Sunday School but she did go to

worship service with us. Four of my five children and four of my grandchildren

were at church with us this morning as well. We celebrated Easter a week early

with a cookout and Easter Egg hunt and had a great time. Jaye is napping

now but I would if I could too. Next weekend we are headed back to Kansas City

to see the rheumy and the opthamologist for her check up. We will have

my grandson with us and we are going to go up on Saturday and search for a mall

that has an Easter Bunny hopping around. Then on either Saturday night or

Sunday morning we will let Gabe go back to his mom's. I am confident that the

rheumy will be very pleased with Jaye's progress. At our last visit she

had only minor swelling in one ankle and knee I think. I am not ready to wein

med's yet it has only been four months of doing this good and I am not ready to

rock the boat. But I trust our rheumy and will go with his wishes. Jaye

has been having alot of headaches and we are not sure what it is caused from. We

are hoping that it is not seizure related but have ruled out nearly every thing

else. Could be just that she is exhausted, or if she is over tired she could be

having break through seizures. GRRRR, one thing settles and another rears its

head. But today after a long night she did not have a headache so maybe it is

over adn we will not have to worry about it any more. Only 5 1/2 weeks of

school left for us here and then she can sleep later to eliminate the tired. She

has not adjusted since the time change last month.

Veri & Jaye 17 poly & Post Prom Exhaustion