so frustrated...

[Guest guest]

Hi everyone,

I posted last week that we were going to see our rheumatologist on Friday. The

visit did not go very well, in my opinion. She stated she did still have some

fluid in one of her knees, some synovial thickening in her left wrist, swelling

in her ankle, and atrophy in one of her calves. However, she was hesitant to

make a change in her medications. She said she needs physical therapy, which I

do agree with. However, she was not even going to change her meds, until I

insisted that what she was on was not working. She has been on various NSAIDS

for about three months, and they have not worked at all. She just switched her

from Sulindac to Indocin. Today she has been in as much pain as ever. We do

not hve a follow up visit until July! I think this is crazy. We are leaving

for Florida on Thursday from Michigan, and I have made an appointment to see a

rheumy in Cincinatti on our way down. Does anyone have any experience with the

very large group there? It is five hours from our house, but if they are able

to help, I would drive it every week if I needed to. I feel she needs to be on

methotrexate at this point, as she can barely walk and her hands are just kiling

her. She also has very severe Raynauds. Today, her family doctor did prescribe

Ultram; hopefully that will give her some relief. I just want to ge her going

on some meds beore she gets any permanent joint damage!

Jeanette