Re: Viral Crud, will it ever go away

[Guest guest]

Veri I'm sorry!  I would try allergy meds just to make sure.  What has your

reg pedi said? 

Amy mom to Avery 17 systemic

________________________________

From: " veristroud@... " <veristroud@...>

Sent: Thursday, May 5, 2011 6:31 AM

Subject: Re: Viral Crud, will it ever go away

 

OK, frustration is back full force. It seems to always be there for us on the

edges but now has come back 100%. Jaye has been battling this viral crud

for over six weeks. Her symptoms have changed a bit through out it but she can

not kick it. Cold & cough to start with, over two weeks of headache, now that

the headache is basically gone she is left with the exhaustion. She has no

energy to do anything. Sinus xrays eliminated the possiblity of a sinus

infection, we saw the rheumy a week and a half ago and he checked her out good

and found nothing to give antibiotic for. He said it has to be just something

viral. I think she has missed at least one day per week of school through this

and some weeks more. She comes home and just has zero energy and lays around.

She can watch television of course and listen to music so she is not totally

bored out of her mind. But she does not want to go much at all or do much at

all. She has this light

nagging cough and some stuffyness in her nose but the do not believe she is

haveign problems with her allergies. She has never had a problem with allergies

which is nice. Two days ago I went back in and asked what else we can look for

so they drew more blood and sent it off. Looking for mono and something else I

can not remember but of course they are not next day results. Two weeks of

school left and then she can sleep all day if necessary but that sure is not the

way to spend her summer. Besides she is set to have her widom teeth extracted

on May 25th and I do not want them to have to cancel that.

Veri & Jaye 17 poly

[Guest guest]

She is not sure but viral and they do not think it is allergies. Allergy meds

make her more tired as well. So are we going to get anywhere giving them to

her????

Veri

Re: Viral Crud, will it ever go away

OK, frustration is back full force. It seems to always be there for us on the

edges but now has come back 100%. Jaye has been battling this viral crud

for over six weeks. Her symptoms have changed a bit through out it but she can

not kick it. Cold & cough to start with, over two weeks of headache, now that

the headache is basically gone she is left with the exhaustion. She has no

energy to do anything. Sinus xrays eliminated the possiblity of a sinus

infection, we saw the rheumy a week and a half ago and he checked her out good

and found nothing to give antibiotic for. He said it has to be just something

viral. I think she has missed at least one day per week of school through this

and some weeks more. She comes home and just has zero energy and lays around.

She can watch television of course and listen to music so she is not totally

bored out of her mind. But she does not want to go much at all or do much at

all. She has this light

nagging cough and some stuffyness in her nose but the do not believe she is

haveign problems with her allergies. She has never had a problem with allergies

which is nice. Two days ago I went back in and asked what else we can look for

so they drew more blood and sent it off. Looking for mono and something else I

can not remember but of course they are not next day results. Two weeks of

school left and then she can sleep all day if necessary but that sure is not the

way to spend her summer. Besides she is set to have her widom teeth extracted on

May 25th and I do not want them to have to cancel that.

Veri & Jaye 17 poly

[Guest guest]

The mono test is a good idea. Peyton had dust mite allergies and she sounded a

lot like this. We put allergy covers on her pillows and mattress, started on

Allegra, and now she is great. Also, the Enbrel made my kids catch every " bug "

and it is harder for them to fight. I wish it were just the arthritis they deal

with, unfortunately it effects everything else!

Hope she feels better soon.

Audra

14 poly 07

Peyton 13 poly 08

>

>

> OK, frustration is back full force. It seems to always be there >

>

>

>

>

>

[Guest guest]

Yes, I wonder if it is mono. Mono is a same day test. n has had the test,

and we found out right away. (about 1/2 hour later)

On May 5, 2011, at 5:04 AM, veristroud@... wrote:

>

> She is not sure but viral and they do not think it is allergies. Allergy meds

make her more tired as well. So are we going to get anywhere giving them to

her????

>

> Veri

>

> Re: Viral Crud, will it ever go away

>

> OK, frustration is back full force. It seems to always be there for us on the

edges but now has come back 100%. Jaye has been battling this viral crud

for over six weeks. Her symptoms have changed a bit through out it but she can

not kick it. Cold & cough to start with, over two weeks of headache, now that

the headache is basically gone she is left with the exhaustion. She has no

energy to do anything. Sinus xrays eliminated the possiblity of a sinus

infection, we saw the rheumy a week and a half ago and he checked her out good

and found nothing to give antibiotic for. He said it has to be just something

viral. I think she has missed at least one day per week of school through this

and some weeks more. She comes home and just has zero energy and lays around.

She can watch television of course and listen to music so she is not totally

bored out of her mind. But she does not want to go much at all or do much at

all. She has this light

> nagging cough and some stuffyness in her nose but the do not believe she is

haveign problems with her allergies. She has never had a problem with allergies

which is nice. Two days ago I went back in and asked what else we can look for

so they drew more blood and sent it off. Looking for mono and something else I

can not remember but of course they are not next day results. Two weeks of

school left and then she can sleep all day if necessary but that sure is not the

way to spend her summer. Besides she is set to have her widom teeth extracted on

May 25th and I do not want them to have to cancel that.

>

> Veri & Jaye 17 poly

>

>

[Guest guest]

Sorry she is having such a hard time. The crud sounds kinda like what Kaylee had

a few weeks back.

She was so exhausted she didn't do anything and that is totally unusual for her.

Kaylee is in a bad

flare though and that may have contributed to some of her's. She did have a

cough and runny nose

too though. I know how you feel about not wanting her to have to spend her

summer exhausted and

not have fun. Hopefully things will get better and she will be able to enjoy

herself.

Praying things get better for you,

and Kaylee

Viral Crud, will it ever go away

OK, frustration is back full force. It seems to always be there for us on the

edges but now has come back 100%. Jaye has been battling this viral crud

for over six weeks. Her symptoms have changed a bit through out it but she can

not kick it. Cold & cough to start with, over two weeks of headache, now that

the headache is basically gone she is left with the exhaustion. She has no

energy to do anything. Sinus xrays eliminated the possiblity of a sinus

infection, we saw the rheumy a week and a half ago and he checked her out good

and found nothing to give antibiotic for. He said it has to be just something

viral. I think she has missed at least one day per week of school through this

and some weeks more. She comes home and just has zero energy and lays around.

She can watch television of course and listen to music so she is not totally

bored out of her mind. But she does not want to go much at all or do much at

all. She has this light nagging cough and som e stuffyness in her nose but the

do not believe she is haveign problems with her allergies. She has never had a

problem with allergies which is nice. Two days ago I went back in and asked what

else we can look for so they drew more blood and sent it off. Looking for mono

and something else I can not remember but of course they are not next day

results. Two weeks of school left and then she can sleep all day if necessary

but that sure is not the way to spend her summer. Besides she is set to have her

widom teeth extracted on May 25th and I do not want them to have to cancel that.

Veri & Jaye 17 poly

[Guest guest]

Veri, I hope that starts to be on the mend soon. I know has been

dealing with a constant stuffy nose but it seems like all of us have a touch of

something running around.

Sending lots of good thoughts your way that she starts to turn around.

Sharon

>

>

> She is not sure but viral and they do not think it is allergies. Allergy meds

make her more tired as well. So are we going to get anywhere giving them to

her????

>

> Veri

>

>

>

>

>

>

>

> Re: Viral Crud, will it ever go away

>

>

>

> OK, frustration is back full force. It seems to always be there for us on the

edges but now has come back 100%. Jaye has been battling this viral crud

for over six weeks. Her symptoms have changed a bit through out it but she can

not kick it. Cold & cough to start with, over two weeks of headache, now that

the headache is basically gone she is left with the exhaustion. She has no

energy to do anything. Sinus xrays eliminated the possiblity of a sinus

infection, we saw the rheumy a week and a half ago and he checked her out good

and found nothing to give antibiotic for. He said it has to be just something

viral. I think she has missed at least one day per week of school through this

and some weeks more. She comes home and just has zero energy and lays around.

She can watch television of course and listen to music so she is not totally

bored out of her mind. But she does not want to go much at all or do much at

all. She has this light

> nagging cough and some stuffyness in her nose but the do not believe she is

haveign problems with her allergies. She has never had a problem with allergies

which is nice. Two days ago I went back in and asked what else we can look for

so they drew more blood and sent it off. Looking for mono and something else I

can not remember but of course they are not next day results. Two weeks of

school left and then she can sleep all day if necessary but that sure is not the

way to spend her summer. Besides she is set to have her widom teeth extracted on

May 25th and I do not want them to have to cancel that.

>

> Veri & Jaye 17 poly

>

>

[Guest guest]

I did not know that Epstein Barr was the same as mono. But yes that is one of

which they are testing her for. We sent it to our hospital and the lab there

sent it out so it hopefully will be back by the first of the week. It helps

alot working in the clinic here that I can visit with the doctors regular and

keep them updated. This time we were able to just get the lab drawn without an

appointment with the doc. She has seen enough of them over the past six weeks

including opth, rheum, neuro, ped, other md, and one of our arnp's. We will

find something or she will get better soon I am sure. Thanks. Veri

Viral Crud, will it ever go away

Hi Veri,

I am sorry to hear of Jaye's struggles and I hope she gets to feeling

better soon. I read what some said about mono and that crossed my mind

also.. had it her sophomore year in h.s. but what I wanted to tell you is

something we didn't know - apparently it isn't uncommon to get a false negative

for the mono test at first. Although was really ill with it, the initial

test was negative, but when symptoms had not subsided nearly 3 months later, her

doctor retested her and she tested positive for the Epstein Barr virus (i.e.

mono).

Thought it might be helpful to know - if she tests negative but symptoms

persist.

Will be thinking of you both. Please keep us posted.

& (poly, PIDD, Hashimotos)

[Guest guest]

Veri, Sending good thoughts that Jaye will be feeling better soon.

nn

>

> I did not know that Epstein Barr was the same as mono. But yes that is one of

which they are testing her for. We sent it to our hospital and the lab there

sent it out so it hopefully will be back by the first of the week. It helps

alot working in the clinic here that I can visit with the doctors regular and

keep them updated. This time we were able to just get the lab drawn without an

appointment with the doc. She has seen enough of them over the past six weeks

including opth, rheum, neuro, ped, other md, and one of our arnp's. We will

find something or she will get better soon I am sure. Thanks. Veri

>

>

>

>

>

> Viral Crud, will it ever go away

>

>

>

>

> Hi Veri,

> I am sorry to hear of Jaye's struggles and I hope she gets to feeling

better soon. I read what some said about mono and that crossed my mind

also.. had it her sophomore year in h.s. but what I wanted to tell you is

something we didn't know - apparently it isn't uncommon to get a false negative

for the mono test at first. Although was really ill with it, the initial

test was negative, but when symptoms had not subsided nearly 3 months later, her

doctor retested her and she tested positive for the Epstein Barr virus (i.e.

mono).

> Thought it might be helpful to know - if she tests negative but symptoms

persist.

> Will be thinking of you both. Please keep us posted.

>

> & (poly, PIDD, Hashimotos)

>

>

>

>

>

>

>