New to this with lots of questions

[Guest guest]

Ok , I am not so new, 6 months since DX, my daughter is 11.

Do you find that they tend to medicate- a lot, when so much of the time she

seems fine, yet sometimes flares. Not extreme flares, we both have

HBL -27, the gene marker so am personally familiar with RA. i live with a lot of

the issues myself, but in a child it can cause damage. I know what a mega flare

up is as opposed to some pains.

I realize the goal is to control and limit damage in a child, but my kid is on a

biologic shot, methotrexate and now celebrex.

So much of the time, she is pain free Thank G-D and with decent only slightly

elevated labs. Yet will complain of pains or tinges and then go about her life,

yet we keep medicating. So , now I wonder if it is too much, each drug has so

many side effects and causes other issues. At her age, she can tell me I would

rather have my ankles hurt a little but not feel so nauseous or have stomach

aches.

So, I want to hear from others,

Do you feel kids are being overmedicated for RA? or is this the norm and

Other non medical aspects of dealing with pain?

Not necessarily, herbals or supplements, which can contraindicate meds, but like

avoiding night shades.

or good old fashioned remedies

thank you so much for sharing.

Truth is we are all in this together so what ever we have learned, it is for us

to share and benefit. others

Mindy