It always has to be something!

[Guest guest]

The specialty pharmacy called Friday to send Avery's medicine for this month and

told me they needed a refill and hadn't heard back from the Dr. So I called the

Dr and the nurse was reading the notes to herself and I heard her say something

about blood test results. So I asked if they were normal, because they call if

they aren't. And no, his kidney test was high again. The same #'s as when he was

in the hospital. It was high in February after his flair but the Dr called me

and we weren't surprised because of the flair. I expected it to be normal in

April because he was doing so well. In Jan the kidney Dr said he was fine and

could take advil again if he needed to. We haven't taken it but relaxed some. So

I called the kidney dr's nurse and she was upset they didn't have the results

and gave me the fax number. She said she'd let the Dr know they were coming and

if she wanted to see him sooner than his July follow up they'd call me. I hate

this disease.