Re: A little off topic, but...

April 9, 2011

My son, Aidan, had a skin biopsy about 4 years ago when he was about 18-20

months old. He develops some really unusual blisters (still diagnosed as

" unidentified blistering skin disease " ). I think he had two stitches on his

upper thigh that were the disolvable type. I remember we kept the area covered

with a large bandaid for several days and used an antibiotic ointment to keep it

moist to reduce scarring. I would follow the doctor's recommendations until

Monday and call and double check with the office. Telling a child no running for

2 weeks seems a little long - kids typically heal faster than adults.

Aidan is is's twin brother, she is the one with JIA, but we've been through

alot with both children in the last 5 1/2 years.

, mommy to is (5) pauci

>

> Has anyone's child (or anyone here...) ever had a skin biopsy done? Ella had

one done on Thursday. Her ped rheum was concerned about these bruise like skin

lesions she gets from time to time and said next time she got them he wanted

them biopsied. She hadn't gotten them since November (over Thanksgiving

actually) but they showed up on Tuesday. She went to see her ped (since the

rheum is almost 4 hours away) and she said she wasn't sure if they needed to be

biopsied because they didn't look like what the rheum thought they might be.

She called but couldn't talk to him at the time. She talked to another dr there

who said to do some blood work...so they did. Then they called Tuesday night to

tell me that she had talked to Ella's rheum and he wanted her to look at them

the next day and if they got darker they did need to be biopsied and he wanted

some more blood tests done. So we went back Wednesday and they drew more blood

and since the spots did get darker (and the ones that had gone away left a light

brown discoloration...) she said they did need to set up an appointment with a

dermatologist to have them biopsied. Thankfully they found a doctor who could

work her in the next day because the spots were already starting to go away.

They did it on Thursday and told me to keep it bandaged...a gauze pad with

antibiotic ointment (they gave her a prescription) and then wrap it with a gauze

roll from her foot to her knee (she has 4 stitches at the site and its just

under her knee). Well I can't keep the darn gauze on. I've got her whole leg

just about covered in tape trying to keep the gauze from falling/drooping.

She's not walking much (the dr said absolutely no running or rough playing for 2

weeks and to limit how much she walks). So I was wondering if maybe I could put

an ace bandage or something like that over the gauze. I wouldn't wrap it tight

or anything. I'm going to call on Monday and ask but of course its the

weekend... They said to make sure we kept her whole leg wrapped for the 2 weeks

until her appointment (they they'll decide whether they'll take them out then or

leave them another week... Hopefully they'll come out then!). Does anyone have

any experience and know if that would be okay? Thanks!

>

> -Mom to five beautiful little girls!

>

April 9, 2011

Its only been 2 days and its nearly impossible for her to stay calm. Its not

hurting her or bothering her any...so she, being the energetic 3 year old that

she is, wants to run and play and climb, etc. We ended up going to the mall to

walk around so I could keep her strapped in the stroller yesterday. I asked if

I could just use a large bandaid after a few days and the dr specifically said

no...keep it wrapped from her foot to her knee or higher for the whole 2 weeks.

Seems a little excessive to me, but I don't know... My oldest daughter has an

appointment on Wednesday with the same dermatologist for a rash she has on her

arms, legs, and face (we think its eczema, but the creams her pediatrician have

given us haven't helped much, if at all) and I'm hoping he'll look at Ella while

we are there and tell me we can ease up on the restrictions and just use a

bandaid... That might be wishful thinking... They really preached the keeping

it covered and wrapped for 2 weeks (unless she's taking a shower which she can

do this evening since it will have been 48 hours by then and we have to clean it

and put ointment on it and change the bandage twice a day) and absolutely no

running or rough playing.

-Mom to five beautiful little girls!

On Apr 9, 2011, at 9:03 AM, wrote:

> My son, Aidan, had a skin biopsy about 4 years ago when he was about 18-20

months old. He develops some really unusual blisters (still diagnosed as

" unidentified blistering skin disease " ). I think he had two stitches on his

upper thigh that were the disolvable type. I remember we kept the area covered

with a large bandaid for several days and used an antibiotic ointment to keep it

moist to reduce scarring. I would follow the doctor's recommendations until

Monday and call and double check with the office. Telling a child no running for

2 weeks seems a little long - kids typically heal faster than adults.

> Aidan is is's twin brother, she is the one with JIA, but we've been

through alot with both children in the last 5 1/2 years.

> , mommy to is (5) pauci

>

> >

> > Has anyone's child (or anyone here...) ever had a skin biopsy done? Ella had

one done on Thursday. Her ped rheum was concerned about these bruise like skin

lesions she gets from time to time and said next time she got them he wanted

them biopsied. She hadn't gotten them since November (over Thanksgiving

actually) but they showed up on Tuesday. She went to see her ped (since the

rheum is almost 4 hours away) and she said she wasn't sure if they needed to be

biopsied because they didn't look like what the rheum thought they might be. She

called but couldn't talk to him at the time. She talked to another dr there who

said to do some blood work...so they did. Then they called Tuesday night to tell

me that she had talked to Ella's rheum and he wanted her to look at them the

next day and if they got darker they did need to be biopsied and he wanted some

more blood tests done. So we went back Wednesday and they drew more blood and

since the spots did get darker (and the ones that had gone away left a light

brown discoloration...) she said they did need to set up an appointment with a

dermatologist to have them biopsied. Thankfully they found a doctor who could

work her in the next day because the spots were already starting to go away.

They did it on Thursday and told me to keep it bandaged...a gauze pad with

antibiotic ointment (they gave her a prescription) and then wrap it with a gauze

roll from her foot to her knee (she has 4 stitches at the site and its just

under her knee). Well I can't keep the darn gauze on. I've got her whole leg

just about covered in tape trying to keep the gauze from falling/drooping. She's

not walking much (the dr said absolutely no running or rough playing for 2 weeks

and to limit how much she walks). So I was wondering if maybe I could put an ace

bandage or something like that over the gauze. I wouldn't wrap it tight or

anything. I'm going to call on Monday and ask but of course its the weekend...

They said to make sure we kept her whole leg wrapped for the 2 weeks until her

appointment (they they'll decide whether they'll take them out then or leave

them another week... Hopefully they'll come out then!). Does anyone have any

experience and know if that would be okay? Thanks!

> >

> > -Mom to five beautiful little girls!

> >

>

April 10, 2011

My daughter had something on her ear biopsied. She was not good about keeping

the bandage on and it seemed like some of the stitches were removed, but it

healed ok. She had a period when she picked at her ear due to a boo-boo and she

caused an autoimmune problem there called lichens sclerosis. It's not serious,

but in her case, she needs to be good about putting sunscreen on her ear, as it

is more prone to become skin cancer. Your daughter's situation sounds a little

different. Hopefully, she'll leave the skin alone and follow doctor's orders

not to move around too much. Do the best you can to keep it covered and clean.

Good Luck,

Jo