Guest guest Posted April 13, 2011 Report Share Posted April 13, 2011 Hi everyone, My daughter, Amelia has a follow up appointment this week with her rheumatologist. I have a few questions to pose to all the parents who have much more experience with this disease than myself; we just began this journey two months ago. Amelia has been on steroids and Sulindac, but they are not helping. I had to pick her up from school yesterrday because of pain in her hands and knees; for the first time I have actually seen her cry from the pain. The rheumatologist said she did not want to start her on narcotics, which I do agree with, but this pain has totally taken charge of her life. She can barely walk, and her hands are so sore at night I often have to transcribe her homework. This is not to mention the many days of school she has missed. In your experience, when do most of the rheumatologists finally make the decision to put them on methotrexate? She is such a happy child, with an upbeat attitude, but this is taking such a toll on her. She is 13 years old, and should be out having fun with her friends, not stuck in the house with me all the time! Any of your experiences would be helpful! Jeanette Quote Link to comment Share on other sites More sharing options...
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