Re: Appoint with the Ped. Rheum Tomorrow - Questions?

[Guest guest]

The moon face and flushing is from the steroids. When his labs get in the normal

range, most likely you will start to taper on the steroids.

Keep a copy of all labs and put it in a 3 ring binder.

Sent from my iPhone

On Apr 13, 2011, at 8:43 AM, " sharon.peabody " <swaleans@...> wrote:

> Hi everyone!

>

> I hope that all is well with y'all today.

>

> Tomorrow has his next appointment with the ped. rheum. This will be the

first follow-up since he's stared his mtx regime. I have a list of questions

and/or discussion topics to bring to him but I wanted to see if y'all see

anything that I've missed or anything else I should bring up with him.

>

> * Discuss the appointment we had with the ped. opthamol. last week and see how

often he wants us to be monitored by her

> * Discuss 's apparent sun sensitivity (after the sunburn incident) and

see what he thinks we need to do as far as outside guidelines for daycare (other

than sunscreen - what spf - and hats)

> * Discuss 's flushing incidents. Caused by the meds? Is it a new symptom,

etc.

> * 1 fever incident since our last checkup. Last Friday had a highly

flushed cheek (one side only) and ran a fever of around 101.8 for the evening.

By Saturday am it was gone.

> * Discuss the " moon face " he's gotten since being on the steroids

> * What is the plan for reduction in his steroid dosage?

> * Is the ~300mg of Folic Acid he's getting from is Flintstones My First

Vitamin adequate or should we get the liquid FA and up the dosage?

>

> I haven't talked with him yet about the flushing incidents has had. It's

weird - there are times I would swear he got sunburned again when picking him up

from daycare but it's just a flush that creeps up his face and head. It's

happened even on days when he doesn't go outside. We can't tell if it's just

when he gets warm or during activity, but we've definitely noticed something.

Dr. Google has mentioned in a few places that facial flushing can be a side

effect of the Prelone but I also know that Dr. Google isn't always accurate...

So I want to talk that over with him.

>

> Is there anything else that y'all think I should bring up with him? I know

it's a somewhat vague question to pose.

>

> Thanks and hugs to all.

>

> Sharon (, 17 months old, systemic)

>

>

[Guest guest]

Hi !

Thanks for confirming our suspicion that the facial flushing was because of the

steroids. My husband was about to go bonkers with my thinking it was the

sunburn that wasn't resolving. lol

Can the flushing really come and go, both in duration and severity from day to

day?

>

> > Hi everyone!

> >

> > I hope that all is well with y'all today.

> >

> > Tomorrow has his next appointment with the ped. rheum. This will be

the first follow-up since he's stared his mtx regime. I have a list of questions

and/or discussion topics to bring to him but I wanted to see if y'all see

anything that I've missed or anything else I should bring up with him.

> >

> > * Discuss the appointment we had with the ped. opthamol. last week and see

how often he wants us to be monitored by her

> > * Discuss 's apparent sun sensitivity (after the sunburn incident) and

see what he thinks we need to do as far as outside guidelines for daycare (other

than sunscreen - what spf - and hats)

> > * Discuss 's flushing incidents. Caused by the meds? Is it a new

symptom, etc.

> > * 1 fever incident since our last checkup. Last Friday had a highly

flushed cheek (one side only) and ran a fever of around 101.8 for the evening.

By Saturday am it was gone.

> > * Discuss the " moon face " he's gotten since being on the steroids

> > * What is the plan for reduction in his steroid dosage?

> > * Is the ~300mg of Folic Acid he's getting from is Flintstones My First

Vitamin adequate or should we get the liquid FA and up the dosage?

> >

> > I haven't talked with him yet about the flushing incidents has had.

It's weird - there are times I would swear he got sunburned again when picking

him up from daycare but it's just a flush that creeps up his face and head. It's

happened even on days when he doesn't go outside. We can't tell if it's just

when he gets warm or during activity, but we've definitely noticed something.

Dr. Google has mentioned in a few places that facial flushing can be a side

effect of the Prelone but I also know that Dr. Google isn't always accurate...

So I want to talk that over with him.

> >

> > Is there anything else that y'all think I should bring up with him? I know

it's a somewhat vague question to pose.

> >

> > Thanks and hugs to all.

> >

> > Sharon (, 17 months old, systemic)

> >

> >

>

>

>

[Guest guest]

Oh, also thought of another one.

* Do we need to be concerned and/or do anything special to protect 's teeth

while on the Prelone? I have heard from some friends who have asthma that their

ped dentist feels that their teeth were damaged by the amounts of steroids they

were taking. already has an enamel issue (our middle son has it as well)

but we're hoping it doesn't progress as far as that.

>

> > Hi everyone!

> >

> > I hope that all is well with y'all today.

> >

> > Tomorrow has his next appointment with the ped. rheum. This will be

the first follow-up since he's stared his mtx regime. I have a list of questions

and/or discussion topics to bring to him but I wanted to see if y'all see

anything that I've missed or anything else I should bring up with him.

> >

> > * Discuss the appointment we had with the ped. opthamol. last week and see

how often he wants us to be monitored by her

> > * Discuss 's apparent sun sensitivity (after the sunburn incident) and

see what he thinks we need to do as far as outside guidelines for daycare (other

than sunscreen - what spf - and hats)

> > * Discuss 's flushing incidents. Caused by the meds? Is it a new

symptom, etc.

> > * 1 fever incident since our last checkup. Last Friday had a highly

flushed cheek (one side only) and ran a fever of around 101.8 for the evening.

By Saturday am it was gone.

> > * Discuss the " moon face " he's gotten since being on the steroids

> > * What is the plan for reduction in his steroid dosage?

> > * Is the ~300mg of Folic Acid he's getting from is Flintstones My First

Vitamin adequate or should we get the liquid FA and up the dosage?

> >

> > I haven't talked with him yet about the flushing incidents has had.

It's weird - there are times I would swear he got sunburned again when picking

him up from daycare but it's just a flush that creeps up his face and head. It's

happened even on days when he doesn't go outside. We can't tell if it's just

when he gets warm or during activity, but we've definitely noticed something.

Dr. Google has mentioned in a few places that facial flushing can be a side

effect of the Prelone but I also know that Dr. Google isn't always accurate...

So I want to talk that over with him.

> >

> > Is there anything else that y'all think I should bring up with him? I know

it's a somewhat vague question to pose.

> >

> > Thanks and hugs to all.

> >

> > Sharon (, 17 months old, systemic)

> >

> >

>

>

>

[Guest guest]

Yes - long term/high amounts of steriods can damage the teeth - enamel

particularly if I remenber correctly. Consult your dentist.

Val

Rob's Mom (13, systemic)

Re: Appoint with the Ped. Rheum Tomorrow - Questions?

Oh, also thought of another one.

* Do we need to be concerned and/or do anything special to protect 's teeth

while on the Prelone? I have heard from some friends who have asthma that their

ped dentist feels that their teeth were damaged by the amounts of steroids they

were taking. already has an enamel issue (our middle son has it as well)

but we're hoping it doesn't progress as far as that.

>

> > Hi everyone!

> >

> > I hope that all is well with y'all today.

> >

> > Tomorrow has his next appointment with the ped. rheum. This will be

the first follow-up since he's stared his mtx regime. I have a list of questions

and/or discussion topics to bring to him but I wanted to see if y'all see

anything that I've missed or anything else I should bring up with him.

> >

> > * Discuss the appointment we had with the ped. opthamol. last week and see

how often he wants us to be monitored by her

> > * Discuss 's apparent sun sensitivity (after the sunburn incident) and

see what he thinks we need to do as far as outside guidelines for daycare (other

than sunscreen - what spf - and hats)

> > * Discuss 's flushing incidents. Caused by the meds? Is it a new

symptom, etc.

> > * 1 fever incident since our last checkup. Last Friday had a highly

flushed cheek (one side only) and ran a fever of around 101.8 for the evening.

By Saturday am it was gone.

> > * Discuss the " moon face " he's gotten since being on the steroids

> > * What is the plan for reduction in his steroid dosage?

> > * Is the ~300mg of Folic Acid he's getting from is Flintstones My First

Vitamin adequate or should we get the liquid FA and up the dosage?

> >

> > I haven't talked with him yet about the flushing incidents has had.

It's weird - there are times I would swear he got sunburned again when picking

him up from daycare but it's just a flush that creeps up his face and head. It's

happened even on days when he doesn't go outside. We can't tell if it's just

when he gets warm or during activity, but we've definitely noticed something.

Dr. Google has mentioned in a few places that facial flushing can be a side

effect of the Prelone but I also know that Dr. Google isn't always accurate...

So I want to talk that over with him.

> >

> > Is there anything else that y'all think I should bring up with him? I know

it's a somewhat vague question to pose.

> >

> > Thanks and hugs to all.

> >

> > Sharon (, 17 months old, systemic)

> >

> >

>

>

>

[Guest guest]

Sharon,

Good luck with the appointment tomorrow. I know there are so many questions to

ask. We also have a follow up appointment this week, with many questions and

concerns. Hope all of yours are answered!

Jeanette

>

> Hi everyone!

>

> I hope that all is well with y'all today.

>

> Tomorrow has his next appointment with the ped. rheum. This will be the

first follow-up since he's stared his mtx regime. I have a list of questions

and/or discussion topics to bring to him but I wanted to see if y'all see

anything that I've missed or anything else I should bring up with him.

>

> * Discuss the appointment we had with the ped. opthamol. last week and see how

often he wants us to be monitored by her

> * Discuss 's apparent sun sensitivity (after the sunburn incident) and

see what he thinks we need to do as far as outside guidelines for daycare (other

than sunscreen - what spf - and hats)

> * Discuss 's flushing incidents. Caused by the meds? Is it a new

symptom, etc.

> * 1 fever incident since our last checkup. Last Friday had a highly

flushed cheek (one side only) and ran a fever of around 101.8 for the evening.

By Saturday am it was gone.

> * Discuss the " moon face " he's gotten since being on the steroids

> * What is the plan for reduction in his steroid dosage?

> * Is the ~300mg of Folic Acid he's getting from is Flintstones My First

Vitamin adequate or should we get the liquid FA and up the dosage?

>

> I haven't talked with him yet about the flushing incidents has had.

It's weird - there are times I would swear he got sunburned again when picking

him up from daycare but it's just a flush that creeps up his face and head.

It's happened even on days when he doesn't go outside. We can't tell if it's

just when he gets warm or during activity, but we've definitely noticed

something. Dr. Google has mentioned in a few places that facial flushing can be

a side effect of the Prelone but I also know that Dr. Google isn't always

accurate... So I want to talk that over with him.

>

> Is there anything else that y'all think I should bring up with him? I know

it's a somewhat vague question to pose.

>

> Thanks and hugs to all.

>

> Sharon (, 17 months old, systemic)

>