New Member

[Guest guest]

Been browsing a lot today, I just ran across this:

" Later, gold took over as the leading metal for health, as its

colloid form could remove fluoride and mercury from the body and

brain. " Located at the bottom area of:

http://members.aol.com/doewatch/cfs.html

I'm going to try adding the pantothenic acid w/calcium. Tried years

back for allergies, and didn't help even large doses, but I can use

some bp raising. Have almost passed out from it when trying oriental

herbs that as a sideline lower it or blood pressure at times.

Sometimes get the dizzy's getting up, like lately, other times not so

much.

~Snoshoe

I used to hardly be able to move without my blood pressure falling

thru the floor (due to adrenals), but then when I found pantethine

and calcium, a nutritionist told me to use them in combo when my bp

started falling and it would bring it back up.

[Guest guest]

I scanned the article. Not worth reading in my opinion. The guy is

another one of those conspiracy nuts working on the " grand unified

theory of everything conspiratorial. " Surprised he didnt' somehow

tie in the Kennedy assasination.

>

> I used to hardly be able to move without my blood pressure falling

> thru the floor (due to adrenals), but then when I found pantethine

> and calcium, a nutritionist told me to use them in combo when my bp

> started falling and it would bring it back up.

>

[Guest guest]

Thanks, Diane. I forgot about the CoQ10. My mother mentioned the pantethine. I

haven't

tried it yet as I have been megadosing on the B100s (all the Bs in 100mg

dosages..except

for folic).

My blood pressure has come up...from 72/58 or around 100 over 70. Not bad. Being

low

like that has caused me to " expire " . Just drop where I stand I do.....I woke up

in the shower

once...LOLOLOL When it drops it just tanks.

The low BP is accompanied by rapid heart rate which, only once mind you, hit 283

beets a

minute. They call that an atrial flutter and daNg it if I don't know why...it's

because with

the beating atrium it feels like a bird flapping like mad to get out of your

chest.

Irrespective of what they call it THAT is a scary experience.

Most of this symptom management has been commanding the courage. Not being

scared

or freaking out, like when your entire arm, or face or chest goes completely

numb.

Diane...I also Qi Gong, Yoga, stretch and have started some weight exercises

with my arms

with five pound weights. I tire easily but I try to do at least 6 to 12. Doesn't

sound like

much but man...for me I am Olympic material hitting 12!

Prior to my exposure I was very athletic. Ran about 15 to 20 k a week, rode my

horse for

about 17 to 20 hours. I worked full time...ran my house..you know the usual

Super Woman

stuff.

Thanks for your support and cheering. It helps.

> >

> > Hi,

> >

> > You have to believe there is a way out always, myself i could have easily

taken a

> diagnosis for an incurable condition. Only i do not believe in conditions (and

he didnt

> dare), Love is unconditional.

> >

> > remember reading somewhere (and posting here) that tamarind helps get

fluor out

of

> the system. If anything those samosa sauses are delicious; it is in a lot of

currie pastes

as

> well as the juice, could give it a try..

> >

> > Love

> > --------------------------------------------------------------

> >

> > I've not found anything I can recall to help get flouride out of your

> > bones. They seem to say once it's there, it's there.... however, if

> > all your cells have turned over in a 7 year period, I have to believe

> > there is a way to get it out.

> >

>

>

>

>

>

>

>

[Guest guest]

Hi again, ,

I took the pantethine in addition to the B100s I was also on. I personally

need the massive pantethine supplementation. Any strenuous exercise at all can

still drop me in my tracks if I am not on enough pantethine, CoQ10, and calcium;

even tho my regular bp is about the same as yours--100 over 68. Sounds like you

are doing well, tho, with what you have been doing.

I, too, had the atrial flutter. I got so used to weird and scary symptoms

that I got pretty unflappable. (I had MS symptoms all the time and was misdxed

with MS for awhile, so know what the numbness is like, too. The numbness was

scary to me, as I got it when I was younger. By the time I got the flutters, I

was well used to the thought that anything might happen at any time. lol)

Way to go with those weights! I have not gotten that far yet. My daily

exercise routine is still rebounding.

Sending healing thoughts,

Diane

tayloka_40 <tayloka_40@...> wrote:

Thanks, Diane. I forgot about the CoQ10. My mother mentioned the pantethine. I

haven't

tried it yet as I have been megadosing on the B100s (all the Bs in 100mg

dosages..except

for folic).

My blood pressure has come up...from 72/58 or around 100 over 70. Not bad. Being

low

like that has caused me to " expire " . Just drop where I stand I do.....I woke up

in the shower

once...LOLOLOL When it drops it just tanks.

The low BP is accompanied by rapid heart rate which, only once mind you, hit 283

beets a

minute. They call that an atrial flutter and daNg it if I don't know why...it's

because with

the beating atrium it feels like a bird flapping like mad to get out of your

chest.

Irrespective of what they call it THAT is a scary experience.

Most of this symptom management has been commanding the courage. Not being

scared

or freaking out, like when your entire arm, or face or chest goes completely

numb.

Diane...I also Qi Gong, Yoga, stretch and have started some weight exercises

with my arms

with five pound weights. I tire easily but I try to do at least 6 to 12. Doesn't

sound like

much but man...for me I am Olympic material hitting 12!

Prior to my exposure I was very athletic. Ran about 15 to 20 k a week, rode my

horse for

about 17 to 20 hours. I worked full time...ran my house..you know the usual

Super Woman

stuff.

Thanks for your support and cheering. It helps.

> >

> > Hi,

> >

> > You have to believe there is a way out always, myself i could have easily

taken a

> diagnosis for an incurable condition. Only i do not believe in conditions (and

he didnt

> dare), Love is unconditional.

> >

> > remember reading somewhere (and posting here) that tamarind helps get

fluor out

of

> the system. If anything those samosa sauses are delicious; it is in a lot of

currie pastes

as

> well as the juice, could give it a try..

> >

> > Love

> > --------------------------------------------------------------

> >

> > I've not found anything I can recall to help get flouride out of your

> > bones. They seem to say once it's there, it's there.... however, if

> > all your cells have turned over in a 7 year period, I have to believe

> > there is a way to get it out.

> >

>

>

>

>

>

>

>

[Guest guest]

Hi, Sally

I think wacky is in the genes!!! I sure enjoy it as did my mother before me.

lol You are further along with this lovely disease than I, hope all goes well

for you. I've heard that new things might be available as early as next

summer!! I'm hoping for that anyway. Be sure to keep in touch and bitch as

much as you want. You're sure to feel like it on many days.

Be sure to drink and drink and then drink more water. I really does help with

the way you take the tx.

A laugh a day keeps the blues away.

Sharon

new member

Hello All,

I'm just joining this group and would like to meet you all. I'm a

54year old woman in Northern Californi. I was diagnosed with Hep C

back when it was non A/NonB , been27 years now. I never gave the

disease much thought as I always felt pretty good and did what I

wanted to. Well it's caught up with me and it's time I dealt with the

fact I have a serious disease; I have an appointment with my Internist

in March. I live alone and have been worrying who will take care of

me, I hope MediCare which I get from my late husband. He never got it

from me but ODed at the age of 39, ironic isn't it. I guess I'll stop

now but I've got a whole bunch more questions.

In Frith,

SAM

[Guest guest]

Thanks for the welcome! I didn't understand the first paragraph but I know I'll

learn. I know I'll be asking a zillion questions; hope you all don't mind. I

guess my first question, before I can even start treatment, is about In-Home

Care. It will quite an adjustment for me to make having anyone help with my day

to day things. I don't know anything about a health care worker.I do get

survivors benefits through my late husband so I have MediCare as well as

Medi-Cal. Will Medicare pay for in home help? If so, what kind, and I do I even

start this process?

Thanks,

SAM

Sally Hines <shines@...> wrote:

Hi SAM and Sharon,

I'm a 57 year old woman in NW Oregon, kinda in the middle. We have another

woman member in CA.

You may notice from other threads that I'm starting the tx. This is my

second round, but first with the pegylated INF. I have cirrhosis, but not

decompensated. No varicies, no acites.

I also live alone, but I have a pretty good support system growing. I am on

SSDI as of this month, and even though my case worker is less than helpful

my psychiatric counselor is on the advisory board to the DAVS office. If I

need special assistance or support she will see to it that it happens. It is

a bit worrisome to be alone during tx, but I have great hopes and outlook

for this round.

I figure I've had the virus since about 54 or 55. That puts me 50 years into

the disease. But I got my first elevated liver enzymes back in the early 70s

and that was the big notice there was liver problems looming. I'd already

had my gall bladder out at 18, which is pretty young for that surgery. So in

the early 70s I stopped drinking, stopped the recreational imbibing of all

sorts. I cleaned up my act and looked into nutritional support for the

liver. So I've been protecting my sick part for a long time, but the time

has run out. Doctor says that this liver won't last the 5 years until new

drugs for treatment are approved. I just hope I respond quickly as he's

going to take me off treatment if I am not non-detected at 12 weeks.

Welcome both of you to the list. We're a good group, even if a bit wacky at

times. Liver disease seems to do that to us. Or is it that wacky folk tend

be more susceptible?

Sally in the PDX area.

new member

Hello All,

I'm just joining this group and would like to meet you all. I'm a

54year old woman in Northern Californi. I was diagnosed with Hep C

back when it was non A/NonB , been27 years now. I never gave the

disease much thought as I always felt pretty good and did what I

wanted to. Well it's caught up with me and it's time I dealt with the

fact I have a serious disease; I have an appointment with my Internist

in March. I live alone and have been worrying who will take care of

me, I hope MediCare which I get from my late husband. He never got it

from me but ODed at the age of 39, ironic isn't it. I guess I'll stop

now but I've got a whole bunch more questions.

In Frith,

SAM

[Guest guest]

Sam,

Welcome, nice to meetcha. I live in So. Calif. now

but grew up in Sacramento and lived for 30 years in

Napa Valley. I came down here to be with my sister

when her husband died and I had just lost my job due

to illness, so it seemed like the right thing to do.

But I sure MISS northern Calif!

Is your internist someone who has a lot of experience

with HepC treatment? If not, I'd advise going to a

hepatologist, especially one connected to a transplant

center, because they are the ones who seem to be up on

all the newest ideas, treatments, and if you have

become cirrhotic, they are the best to treat end-stage

disease.

You'll want to know your genotype, viral count, stuff

like that. Get and keep copies of ALL your tests.

Amyway, ask your questions, we're happy to answer.

Michele

__________________________________________________

[Guest guest]

Sharon, have you been evaluated for a transplant? Are

you on a waiting list somewhere? If not, run (don't

walk) to the nearest transplant center and get on a

list. Or at least be followed by a transplant doctor -

they have the most experience in handling end-stage

disease. My doctor has kept on the transplant list but

healthier - our goal is to delay the need for

transplant for ten years or so, and it looks like

we're doing it. I've relapsed after 3 treatments, but

my doc says I've responded biochemically: my white

blood count, platelets, albumin, have all normalized.

So that's given me more time even though I still have

the virus. And we're thinking of a long-term

maintenance program, kindof like the new

Schering-Plough ENDURE program.

I've got end-stage compensated disease also. The CAT

scan shows one of the biggest portal vens they've

seen, varices all the way through my abdomen up to my

heart, a huge spleen, and a liver that I visualize as

being like a piece of wood. But I've been this way

for 10 years now without decompensating - my doc says

I'm the healthiest person this sick she's seen. . .

Nice to meet you, too.

Michele

__________________________________________________

[Guest guest]

hi my name is Charlie and I to live in northern CA, Mckinleyville too be

specefic. I have had hep c and b for 20 years now.Oh dinner time more later.

Charlie

sam lashbrook <samlashbrook@...> wrote: Hello All,

I'm just joining this group and would like to meet you all. I'm a

54year old woman in Northern Californi. I was diagnosed with Hep C

back when it was non A/NonB , been27 years now. I never gave the

disease much thought as I always felt pretty good and did what I

wanted to. Well it's caught up with me and it's time I dealt with the

fact I have a serious disease; I have an appointment with my Internist

in March. I live alone and have been worrying who will take care of

me, I hope MediCare which I get from my late husband. He never got it

from me but ODed at the age of 39, ironic isn't it. I guess I'll stop

now but I've got a whole bunch more questions.

In Frith,

SAM

[Guest guest]

I used to be a Discharge Planner at a hospital,

helping people set up in-home care, so I know what the

Medicare regulations are. Medicare will pay for only

medical care, like if you need a nurse to give you

shots or change dressings, or you need a physical

therapist. Medicare does not pay for housekeeping,

grocery shopping, etc. BUT Medi-Cal has a program

where they intreview you, decide how many hours of

help you need a month, and will pay someone minimum

wag (I think - I know they don't pay much) for someone

to do those things for you. Medi-Cal is administered

differently in each county, so I don't know if your

count finds the worker for you, or if you can find

someone. In some counties it's safer to have a friend

or relative do it, because the people that will do

this work for such little pay will rip the patient

off. Not to scare you, but I've seen it happen in

counties near Napa County.

A doctor has to order Home Health Services from

Medicare, but remember, that's for some medical

procedure that needs to be at home.

You can apply for In-Home Support Services from any

Medi-Cal office, I'd call the nearest one and ask them

how/where to applyl.

GOOD LUCK!

Michele

__________________________________________________

[Guest guest]

Hi Charlie, the name McKinleyville rings a bell.

Where is it? And tell us more. . .

Michele

--- charles kitchel <gnarlie25@...> wrote:

> hi my name is Charlie and I to live in northern CA,

> Mckinleyville too be specefic. I have had hep c and

> b for 20 years now.Oh dinner time more later.

>

__________________________________________________

[Guest guest]

I worked as an in-home care giver. It's usually based on income, unless your

insurance will cover it. I have medicare and I don't think they would cover in

this situation. If you are low income, however, you can get care through the

catholic or lutheran churches. That's how I did the work. If you need help to

eat or to bathe, you qualify for house keeping and shopping and trips to the

doc.

A laugh a day keeps the blues away.

Sharon

new member

Hello All,

I'm just joining this group and would like to meet you all. I'm a

54year old woman in Northern Californi. I was diagnosed with Hep C

back when it was non A/NonB , been27 years now. I never gave the

disease much thought as I always felt pretty good and did what I

wanted to. Well it's caught up with me and it's time I dealt with the

fact I have a serious disease; I have an appointment with my Internist

in March. I live alone and have been worrying who will take care of

me, I hope MediCare which I get from my late husband. He never got it

from me but ODed at the age of 39, ironic isn't it. I guess I'll stop

now but I've got a whole bunch more questions.

In Frith,

SAM

[Guest guest]

I got the chills and aches about 2 hours after each shot. I took mine at

bedtime, didn't disturb the house as much and ached the night away. lol

Depression didn't set in for several weeks and then hit with a vengence. Are

you taking an anti depressent? It does help.

What is 5-HTP? Haven't heard the term. Is it a new release of something that

enhances the treatment or reduces the sides?

A laugh a day keeps the blues away.

Sharon

new member

Hello All,

I'm just joining this group and would like to meet you all. I'm a

54year old woman in Northern Californi. I was diagnosed with Hep C

back when it was non A/NonB , been27 years now. I never gave the

disease much thought as I always felt pretty good and did what I

wanted to. Well it's caught up with me and it's time I dealt with the

fact I have a serious disease; I have an appointment with my Internist

in March. I live alone and have been worrying who will take care of

me, I hope MediCare which I get from my late husband. He never got it

from me but ODed at the age of 39, ironic isn't it. I guess I'll stop

now but I've got a whole bunch more questions.

In Frith,

SAM

[Guest guest]

I've taken triptophan, it has a histamine affect on me. I can't sleep for the

stuffiness, although I'm VERY tired. lol

A laugh a day keeps the blues away.

Sharon

new member

Hello All,

I'm just joining this group and would like to meet you all. I'm a

54year old woman in Northern Californi. I was diagnosed with Hep C

back when it was non A/NonB , been27 years now. I never gave the

disease much thought as I always felt pretty good and did what I

wanted to. Well it's caught up with me and it's time I dealt with the

fact I have a serious disease; I have an appointment with my Internist

in March. I live alone and have been worrying who will take care of

me, I hope MediCare which I get from my late husband. He never got it

from me but ODed at the age of 39, ironic isn't it. I guess I'll stop

now but I've got a whole bunch more questions.

In Frith,

SAM

[Guest guest]

Yeah, I thought Nick LaShay was GREAT tonight, but I

voted for my all-time hero, Jerry Rice. He dances like

he played football - works hard to get better and

will, every week. Hamilton was funny, huh, but

his skin sure shows the sun damage from being so

tanned all those years.

Michele

--- Sally Hines <shines@...> wrote:

> Hi Sharon,

>

> Thanks, getting the water down. Diabetes helps with

> that. Makes me WAY

> thirsty. I don't have any problem wanting the

> liquids. And its water I

> drink, at least 90% of the time. Sometimes a little

> green or white tea.

>

> I thought the crazy emotions wouldn't hit the first

> day! Geez, I've been

> furious, elated, anxious.. all more than usual. At

> least no depression yet.

> Was more depressed yesterday. I think the 5-HTP is

> working.

>

> And now I'm enjoying Dancing With the Stars. I love

> that show. Its funny and

> fun.

>

> Sally

>

> Re: new member

>

>

> Hi, Sally

> I think wacky is in the genes!!! I sure enjoy it as

> did my mother before

> me. lol You are further along with this lovely

> disease than I, hope all

> goes well for you. I've heard that new things might

> be available as early

> as next summer!! I'm hoping for that anyway. Be

> sure to keep in touch and

> bitch as much as you want. You're sure to feel like

> it on many days.

>

> Be sure to drink and drink and then drink more

> water. I really does help

> with the way you take the tx.

>

>

> A laugh a day keeps the blues away.

>

> Sharon

> new member

>

>

> Hello All,

> I'm just joining this group and would like to meet

> you all. I'm a

> 54year old woman in Northern Californi. I was

> diagnosed with Hep C

> back when it was non A/NonB , been27 years now. I

> never gave the

> disease much thought as I always felt pretty good

> and did what I

> wanted to. Well it's caught up with me and it's

> time I dealt with the

> fact I have a serious disease; I have an

> appointment with my Internist

> in March. I live alone and have been worrying who

> will take care of

> me, I hope MediCare which I get from my late

> husband. He never got it

> from me but ODed at the age of 39, ironic isn't

> it. I guess I'll stop

> now but I've got a whole bunch more questions.

> In Frith,

> SAM

>

>

>

>

>

>

>

[Guest guest]

Hi ,

I'm sorry your daughter was diagnosed with Hep C. I was diagnosed at the age of

46 and had it for 20 years. Received it after getting a transfusion. I have

decided to not go with interferon and ribiviron which are some of the treatments

you may hear about. It's like cancer treatment and my dad had problems with

chemo - etc. and I won't put myself thru that.

I have dealt with fatigue for years. Also, have low thyroid, but am on

medication to boost that.

I will not take the usual treatment so far that the medical world offers,

because even if you take the interferon it may come back later. I know one

woman who was cleared of it for several years using homeopathic ways.

I haven't found the answer - my own way has been to live very cleanly. No

smoking or being around smokers, no drinking, eating well. I use supplements

such as Mega B-stress, NAC, and Milk Thistle. You can have her on Milk Thistle

as it's very useful for cleansing the liver.

The best and most comprehensive book I've found on Hep C is " The Hepatitis C

Handbook " , by: Dolan. Here's a link on Amazon for it:

http://www.amazon.com/gp/product/1556433131/104-0118529-9140712?v=glance & n=28315\

5<http://www.amazon.com/gp/product/1556433131/104-0118529-9140712?v=glance & n=283\

155> Get the used one if you can. I've found more help in that book than all

the other ones I've bought. He talks about alternative treatments and what

supplements to stay away from, and so much more. Also, if you choose interferon

- he has a 'what to expect' section that's very helpful.

There have been many that have made it thru the traditional medical treatment -

it's just that I have type 1a which is the most resistant to treatment.

Here's the name of Kitty in Washington State if you want to check out her

website and see more info.

Kitty Candelaria

Executive Director

National Hepatitis C Institute

candelarianhci@...<mailto:candelarianhci@...>

http://www.nationalHepatitis Cinstitute.org<http://www.nationalHepatitis Cinstitut\

e.org/>.

360-692-0795

Toll Free 866-902-HEPC (4372)

She is very helpful and will dialogue with you if you need it online.

God bless and I hope you are encouraged some,

Bevinne

Does not godly Wisdom cry out, and understanding raise her voice? On the top of

the heights beside the way, where the paths meet, stands Wisdom; at the gates at

the entrance of the town, at the coming in at the doors, she cries out: to you,

Oh men & women, I CALL, and my voice is directed to the sons of men. ... be of

an understanding heart. Hear, for I will speak excellent things; and the

opening of my lips shall be for right things. For my mouth shall utter truth,

and wrong doing is detestable to my lips. All the WORDS OF MY MOUTH are

righteous; there is nothing contrary to truth in them. ... Receive my

instruction in preference to striving for silver and knowledge rather than

choice gold. For Skillful and godly Wisdom is better than rubies or pearls, and

ALL the things that may be desired are not to be COMPARED to it. Proverbs

8:1-11 parts

Visit my website at:

http://MargraveArtStudio.tripod.com<http://margraveartstudio.tripod.com/>

Member of the Yee-Haw Sisterhood

Check out my new blog:

http://margraveartstudio.tripod.com/YeeHawSisterhood/<http://margraveartstudio.t\

ripod.com/YeeHawSisterhood/>

I have Hepatitis C - Check out this website to see if you may have it to:

http://www.nationalHepatitis Cinstitute.org/<http://www.nationalHepatitis Cinstitu\

te.org/>

New Member

Hi all. My name is Bob and my daughter who is 23 just received her

conformation test which shows that she is positive for hep c. Needless to

say my wife , I and daughter are devastated. Our daughter is a very quiet

girl who just graduated from college and is working at a school. We don't

have a real good feel about what we are up against as the 1st appointment

with the specialist is next Friday April 6. She wants us involved so we

are going with her for support. I feel so helpless because Ive always been

able to fix or help her with any problems. I've been online and have been

checking out the treatment but the more I read the more upset I get. Please

feel free to give any advise to me about what to expect with the 1st visit

and any questions that should be asked. I have a feeling that Im gonna be

on this board a lot.

Thanks in advance Bob W

[Guest guest]

Thank you for the information. Ill get the book tomorrow.

Bob

_____

From: Hepatitis C

[mailto:Hepatitis C ] On Behalf Of Bevinne Morse

Sent: Friday, March 31, 2006 4:23 PM

Hepatitis C

Subject: Re: New Member

Hi ,

I'm sorry your daughter was diagnosed with Hep C. I was diagnosed at the

age of 46 and had it for 20 years. Received it after getting a transfusion.

I have decided to not go with interferon and ribiviron which are some of the

treatments you may hear about. It's like cancer treatment and my dad had

problems with chemo - etc. and I won't put myself thru that.

I have dealt with fatigue for years. Also, have low thyroid, but am on

medication to boost that.

I will not take the usual treatment so far that the medical world offers,

because even if you take the interferon it may come back later. I know one

woman who was cleared of it for several years using homeopathic ways.

I haven't found the answer - my own way has been to live very cleanly. No

smoking or being around smokers, no drinking, eating well. I use

supplements such as Mega B-stress, NAC, and Milk Thistle. You can have her

on Milk Thistle as it's very useful for cleansing the liver.

The best and most comprehensive book I've found on Hep C is " The Hepatitis C

Handbook " , by: Dolan. Here's a link on Amazon for it:

http://www.amazon.com/gp/product/1556433131/104-0118529-9140712?v=glance

<http://www.amazon.com/gp/product/1556433131/104-0118529-9140712?v=glance & n=

283155>

& n=283155<http://www.amazon.com/gp/product/1556433131/104-0118529-9140712?v=

glance

<http://www.amazon.com/gp/product/1556433131/104-0118529-9140712?v=glance & n=

283155> & n=283155> Get the used one if you can. I've found more help in

that book than all the other ones I've bought. He talks about alternative

treatments and what supplements to stay away from, and so much more. Also,

if you choose interferon - he has a 'what to expect' section that's very

helpful.

There have been many that have made it thru the traditional medical

treatment - it's just that I have type 1a which is the most resistant to

treatment.

Here's the name of Kitty in Washington State if you want to check out her

website and see more info.

Kitty Candelaria

Executive Director

National Hepatitis C Institute

candelarianhci@...<mailto:candelarianhci@...>

http://www.nationalHepatitis Cinstitute.org<http://www.nationalHepatitis Cinst

itute.org/>.

360-692-0795

Toll Free 866-902-HEPC (4372)

She is very helpful and will dialogue with you if you need it online.

God bless and I hope you are encouraged some,

Bevinne

Does not godly Wisdom cry out, and understanding raise her voice? On the top

of the heights beside the way, where the paths meet, stands Wisdom; at the

gates at the entrance of the town, at the coming in at the doors, she cries

out: to you, Oh men & women, I CALL, and my voice is directed to the sons of

men. ... be of an understanding heart. Hear, for I will speak excellent

things; and the opening of my lips shall be for right things. For my mouth

shall utter truth, and wrong doing is detestable to my lips. All the WORDS

OF MY MOUTH are righteous; there is nothing contrary to truth in them. ...

Receive my instruction in preference to striving for silver and knowledge

rather than choice gold. For Skillful and godly Wisdom is better than

rubies or pearls, and ALL the things that may be desired are not to be

COMPARED to it. Proverbs 8:1-11 parts

Visit my website at:

http://MargraveArtStudio.tripod.com<http://margraveartstudio.tripod.com/>

Member of the Yee-Haw Sisterhood

Check out my new blog:

http://margraveartstudio.tripod.com/YeeHawSisterhood/<http://margraveartstud

io.tripod.com/YeeHawSisterhood/>

I have Hepatitis C - Check out this website to see if you may have it to:

http://www.nationalHepatitis Cinstitute.org/<http://www.nationalHepatitis Cins

titute.org/>

New Member

Hi all. My name is Bob and my daughter who is 23 just received her

conformation test which shows that she is positive for hep c. Needless to

say my wife , I and daughter are devastated. Our daughter is a very quiet

girl who just graduated from college and is working at a school. We don't

have a real good feel about what we are up against as the 1st appointment

with the specialist is next Friday April 6. She wants us involved so we

are going with her for support. I feel so helpless because Ive always

been

able to fix or help her with any problems. I've been online and have been

checking out the treatment but the more I read the more upset I get.

Please

feel free to give any advise to me about what to expect with the 1st visit

and any questions that should be asked. I have a feeling that Im gonna be

on this board a lot.

Thanks in advance Bob W

[Guest guest]

You're welcome!

Bevinne

Does not godly Wisdom cry out, and understanding raise her voice? On the top of

the heights beside the way, where the paths meet, stands Wisdom; at the gates at

the entrance of the town, at the coming in at the doors, she cries out: to you,

Oh men & women, I CALL, and my voice is directed to the sons of men. ... be of

an understanding heart. Hear, for I will speak excellent things; and the

opening of my lips shall be for right things. For my mouth shall utter truth,

and wrong doing is detestable to my lips. All the WORDS OF MY MOUTH are

righteous; there is nothing contrary to truth in them. ... Receive my

instruction in preference to striving for silver and knowledge rather than

choice gold. For Skillful and godly Wisdom is better than rubies or pearls, and

ALL the things that may be desired are not to be COMPARED to it. Proverbs

8:1-11 parts

Visit my website at:

http://MargraveArtStudio.tripod.com<http://margraveartstudio.tripod.com/>

Member of the Yee-Haw Sisterhood

Check out my new blog:

http://margraveartstudio.tripod.com/YeeHawSisterhood/<http://margraveartstudio.t\

ripod.com/YeeHawSisterhood/>

I have Hepatitis C - Check out this website to see if you may have it to:

http://www.nationalHepatitis Cinstitute.org/<http://www.nationalHepatitis Cinstitu\

te.org/>

New Member

Hi all. My name is Bob and my daughter who is 23 just received her

conformation test which shows that she is positive for hep c. Needless to

say my wife , I and daughter are devastated. Our daughter is a very quiet

girl who just graduated from college and is working at a school. We don't

have a real good feel about what we are up against as the 1st appointment

with the specialist is next Friday April 6. She wants us involved so we

are going with her for support. I feel so helpless because Ive always

been

able to fix or help her with any problems. I've been online and have been

checking out the treatment but the more I read the more upset I get.

Please

feel free to give any advise to me about what to expect with the 1st visit

and any questions that should be asked. I have a feeling that Im gonna be

on this board a lot.

Thanks in advance Bob W

[Guest guest]

Dear Bob and your Family,

It is very nice to meet you, but I am sorry it has to under these

circumstances. I want to start out by saying that you have come to a great

place for lots of knowledge and support, and there are also many other

support groups to help also. Keep in mind it never hurts to join a few

groups, the more people - the more knowledge and the better off you and your

family are.

The first thing you are doing and I am sure everyone will tell you - you

must become your own advocate. I was diagnosed almost 4 years ago, I am 41

years young right now, unfortunately I knew exactly when I received it and

where. At that point, I had only had it for about 16 months, which was good

because very little damage.

I decided right away to undergo the chemotherapy, and you must remember that

the treatment for Hep-C is a form of chemotherapy. I was stage1 and grade1,

almost the best shape a liver could be under the circumstances. I cleared

the virus in 11 weeks and stayed on treatment for 5 months total, although I

was to do 48 weeks, as I am geno 1a, and that is the course of treatment for

it, however I lost my insurance due to moving out of state. I have stayed

clear over a year and half now, and had my last test in July of 2005 and was

still clear at that time.

If you would have asked me while I was on treatment if I would do it again -

I would have told you " Hell No " , as I had every side affect possible and

then some... I think I found some new ones... LOL

But if you were to ask me a year ago if I would do it again - in a heart

beat, as I had forgotten how wonderful it truly felt to be healthy,

energetic, no more fatigue, no depression, the list was endless. The

hepatitis had taken a quality of life from me that after I became hep-c free

- I would never give up that quality of life again.

Now here is what is happening with me now - I just found out 3 weeks ago,

that not only am I out of remission, but it has come back with a vengeance -

from last July to February 2006 - I have gone from grade 1 stage 1 to -

grade 3 stage 2. There are only 4 stages - and I have to beautiful grand

daughter that I want to see grow up. I also want to give my body every

fighting chance possible, so I am currently fighting to keep a cobra so that

I may start chemotherapy again. I have had to quit work, as the hepatitis-C

and I also have Rheumatoid Arthritis, have somewhat disabled me, hopefully

just temporarily, until I fight it again and beat it again. Nonetheless - I

am trying to do everything I can to get the treatment.

It is a poison, just like all chemotherapy, but for me, it was so worth it

in the end.

They don't know why I came out of remission, I don't drink, I don't do drugs

I do smoke cigs however, but that is my worse vice.

The decision to do treatment is such a personal one, and should be given

allot of thought, weigh the good and bad, discuss it over with a very good

Gastro or Hep Doctor that you trust or comes highly recommended.

This will inevitably be a decision that your daughter must make.

Okay - well I have talked long enough - I did want to let you know that I

have names of some more groups with allot of knowledge also - not taking

anything away from this one please.

Let me know if you would like those names.

May God Bless You,Your Daughter, Your Wife and the rest of your family.

I will keep you all in my prayers.

What is your daughters first name - if you don't mind, just for prayer

purposes.

Keep your chins up and know that we are all here for you all...

Love, hugs and prayers

Marie

-- New Member

Hi all. My name is Bob and my daughter who is 23 just received her

conformation test which shows that she is positive for hep c. Needless to

say my wife , I and daughter are devastated. Our daughter is a very quiet

girl who just graduated from college and is working at a school. We don't

have a real good feel about what we are up against as the 1st appointment

with the specialist is next Friday April 6. She wants us involved so we

are going with her for support. I feel so helpless because Ive always been

able to fix or help her with any problems. I've been online and have been

checking out the treatment but the more I read the more upset I get. Please

feel free to give any advise to me about what to expect with the 1st visit

and any questions that should be asked. I have a feeling that Im gonna be

on this board a lot.

Thanks in advance Bob W

[Guest guest]

Nice to have you here as a new member . Please let us know if you are

also in a pharm tech program or not. Also are you in Alburqurque? and can you

tell us the law requirements for becoming a tech in New Mexico?

Respectfully,

Jeanetta Mastron CPhT BS

Founder/Owner

ENOLOC <enoloc@...> wrote: Hello, I just signed up to the group,

and it already

looks like its going to be just the thing I need to

help prepare for the PTCB test. My name is

, I am currently working for Kroger at s

Pharmacy in New Mexico. I love my job so far and I am

having a great time learning everything while I am

planning on taking the September test. I look forward

to getting to know everyone in the group.

__________________________________________________

[Guest guest]

Hi Robin, my name is Rhonda and i am not very good on this computer yet

but bare with me. I just found out in Feburary that i have this GOD FOR

SAKEN NIGHTMARE!!! I am at a lose for words about it . I have been with

the same man for 5 years until June 1 st .We have talked but he just

dont have a clue what i " m going through! It " s Unbeleiveable , i never

thouhgt he would abanden me and be so mean and self centered. I CAN ONLY

HOPE YOUR NOT ALONE !! Mybe i have made you feel better . GOOD LUCK ! I

hope to hear back from you-- I will be thinking of you!!!!!! rhondaIn

Hepatitis C , " Robin McCulley "

<lizairelizard@...> wrote:

>

> Hello everyone, I am Robin. I am new to this chat board stuff so

please

> excuse any wrongs I might write here. I was diagnosed two years ago

> with hep c. well, i was so freaked out, trying to figure out what i

did

> to get it, to actually attempt to find out about the desease. now that

> I am done freaking out and have figured out that there is no real way

> of telling how I got it, I would like to address the healing of this

> stuff. I have recently moved to a new area and would like to find a

doc

> here that can deal with someone who panics easily and doesn't speak

> very well to regular folks, much less to a doc. I do not knwo what

> kinds of questions to ask a doc to determine if he/she is the one for

> me. Can anyone help me? I know almost mothing about the desease, much

> less the cure. It seems everyone I talk to has a different myth or

idea

> of how to get it, and how or if it can be cured. I want facts, not

> myths and legends. I am willing to listen to anyone, but please do not

> give me any mis info. I am so confused I do not know where to turn for

> the truth. Anyone is welcome to email me at the email on my profile.

> And thanks for any help you can provide...Robin

>

[Guest guest]

Hi Robin, welcome to the board. I too have been recently diagnosed

with Hep C and have a lot of questions. When my Dr told me, he asked

me if I had any questions. I told him my head was still spinning and

didn't know what to ask. I am scheduled to see a Heptologist in

Houston on July 12 and hope to find more answers. after doing some

research, I have seen numerous claims of certain herbs that can help

improve the immune system. I am not personally promoting these

herbs, but I did go to the local drug store and purchase, vitamin C,

vitam E, and alpha Lipotic acid. I have just strted taking them,

along with my regular multi vitamin. I figured it couldn't hurt.

Beating yourself up about where you got it is not going to help, as

you have already seen. Search the web, search your local library,

and anytime you have a doubt or concern, write it down, or copy and

pste. I have a folder I created on my pc about various information.

There are no local support groups where I live, so I am depending on

each and everyone one of you for information and support. Odd that

we have to look to strangers for help, but we share a common bound,

so it doesn't make us strangers any more. I wish you the best of

luck and am willing to share the info I have if you like. Keep the

faith up, believe in yourself, and try to live a healthy lifestyle.

I have never been a health nut, so changing my way of eating and my

way of life is going to be hard, but life is so precious it is worth

it. Good luck, any questions or if you'd like to leave a personsal

comment you can email me at ma53or@.... Love your sister

[Guest guest]

Hi Lynne,

Marilyn sounds like she knows her stuff. I only know this is not a

death sentence and you have a long future ahead of you. Surely you

will see your grandchildren someday. As Marilyn said, get the tests.

I ams scheduled to see a heptologist in July, and am not looking

forward to it, but the not knowing will be worse on me. There are

still a lot of questions I need answereed about the geno type,

prognosis of treatment, etc. We can walk hand in hand in this group

and get through it. Try to stop crying, I know it's hard. Look

forward and believe in yourself. You do have the strength to go in.

It is within each and everyone of us. My best to you Lynne, you will

overcome!

[Guest guest]

Hi, Dee

It is hard to be supportive of people who have hepc, because a lot of us don't

look sick. And for some they believe the person got it thru drug use. That is

true is some cases but not in all. I got mine from a tranfusion, my girl friend

thinks she may have gotten it when she was fifteen from transfusion. Police,

fireman, nurses get it from being exposed to blood and needle picks. GI get it

from being exposed to blood, the inject, and the haircuts. Tatoos from dirty

places, sharing needles, or tooth brushed or razors and introvenus drug use. We

have immediate the stigma of being drug users. Most medical people don't like

to deal with us because they are afraid to catch it. Some families are so

afraid they isolate the person.

I would tell you to treat you brothers like you normally would, yell at them,

love them and when they tell you they don't want to do something understand that

they can't. I love to shop but two days I am wiped out for a week. If I over

do something. I pay for it. When I get a cold it last longer. Be

understanding.

IBut a hug and how are you doing make me feel wonderful.My sisters and I love

the books of tape, I love to lay in bed when a feel blah and listen to them. I

love mazagine and my sisters get them for me. I can't concrete on a book.but

like short articles. I crossword puzzles. Love people to call me. That is a

great help. I get mad at my husband who say I should do more. I know he loves me

and worries. My husband is the kind of guy that if he doen't admit it, it

doesn't exist. But he had taken a lot of the drudery out of my hands. I still

dabble in my business. and have alway be able to entain myself. I taken

antipression for my years that has help too. If you brothers go on treatment

they will be sick, they tell you it's a flu like systoms but its more like

chemo. Then they will really need help.

Dee it is nice to meet such a carrying person. I will pray for your family and

you

drobinsonblue <drobinsonblue@...> wrote:

Hello, My name is Dee and I am new to the group. I do not have the

disease. But my older brother and my brother in law have the disease. I

found out that my brother had the disease a year ago. I wanted to be

very supportive but, did not know a lot about the disease. I did go on

line and got some information. He has had to switch his treatments over

the last 2 months due to lack of improvement. I do not know his type.

He is starting to open up a little bit and share. I joined the group to

hopefully learn. So that I can be even more supportive. I would love

for anyone to tell me what other things I can do. I do not want him to

feel uncomfortable. Should I ask him details?

---------------------------------

Sneak preview the all-new .com. It's not radically different. Just

radically better.

[Guest guest]

Dee,

First of all I would like to say that I think that is wonderful that you

are here to help your brother and brother in-law, we all would be so lucky

and blessed to have family like you. I am sorry that we are meeting here

this way, however I want to tell you that you have come to the right place

for support, encouragement, and knowledge.

As far as how you should approach your brother - I really can't tell you

exactly, as I don't know the relationship you two have. But I can tell you

what it was like for me, and what I needed and wanted desperately, although

at times, my being stubborn and bull headed, would may not have admitted it.

And I think we can all pretty much agree - that it is only in the male

genders nature to prideful and to exhibit their own strength and courage.

As far as my case, I found out over 4 years ago, and did treatment ASAP,

cleared it in 11 weeks - I am geno 1a, so I was to stay on chemo for 48

weeks, but as luck or fate would have it, I had to move and lost my

insurance and couldn't get state help in the state I was moving to.

I only stayed on it for 16 weeks, stayed undetectable for 2years and just

found out it is back with a vengeance. So I will be starting treatment

again. Did I have a difficult time - YES, absolutely the hardest thing I

had to endure in my 42 years - I swore I would never do it again. But here

I am faced with the decision and now knowing just how bad it was - I am

doing it.

I have a enormous story to tell - but maybe for another time.

But I can tell you that I needed to talk about it, I needed someone to care

and more importantly I needed to know my family cared. Unfortunately in my

case - I didn't have family to back me, and I have 5 siblings, I did however

have my kids phone calls, and my friends on line, and that was enough for

me.

I wanted my family to say " it was okay " , " we would get through this together "

" that they loved me " . I got nothing. And I am sure at times, I may have

been standoffish, or maybe tried to pull away and say I can handle it on my

own. But deep down - we need our families, we need you all to care, to love

us no matter what, to more importantly let us know that your trying to

understand, and that you will be there for them, encourage, and support him

anyway you can.

I hope this helps Dee - it is hard for me to say exactly what you should do

in approaching him. Only you can answer that question as to how you should

do it, however know that he does need your support and understanding.

I will be praying for you, your brother, and brother in-law.

I know some other forums you might enjoy also, let me know if you would like

the names.

Take care of you, and know that you are an angel...

May God Bless You all

Love, Hugs. Prayers, and Peace...

Marie

-- New Member

Hello, My name is Dee and I am new to the group. I do not have the

disease. But my older brother and my brother in law have the disease. I

found out that my brother had the disease a year ago. I wanted to be

very supportive but, did not know a lot about the disease. I did go on

line and got some information. He has had to switch his treatments over

the last 2 months due to lack of improvement. I do not know his type.

He is starting to open up a little bit and share. I joined the group to

hopefully learn. So that I can be even more supportive. I would love

for anyone to tell me what other things I can do. I do not want him to

feel uncomfortable. Should I ask him details?

Messages in this topic (70) Reply (via web post) | Start a new topic

Messages | Files | Photos | Links | Polls | Members | Calendar

You are receiving Individual Emails Change Delivery Settings

Visit Your Group | Terms of Use | Unsubscribe New Message

Search

Find the message you want faster. Visit your group to try out the improved

message search.

Share feedback on the new changes to Groups

Recent Activity

11New Members

Visit Your Group