New Member

[Guest guest]

Uh....RED FLAGS...you will NOT be back at work lifting and pulling in a week

after this kind of surgery.

Joi

Gizmo & Yoda, Papillons " The Girls "

Max, Blue Front Amazon

Jazzy, Crimson-bellied conure

Artemis, Painted conure

Shelby, Pineapple mutation Green-cheeked conure

Birdie, normal Green-cheeked conure

& Padme', rosirfons conure

" Helping Birds Find People "

New Member

Hi Everyone,

I'm new to the group but not to neck or back pain. I've had ongoing neck

problems for the past 20+ years.

In the beginning of Feb 2009 I was sitting here playing Solitaire on my

computer when I felt this intense pain between my shoulder blades. I

didn't think too much of it and figured it would feel better by the next

day. Unfortunately it didn't and got so bad I finally resorted to going

to my doctor. He gave me 4 shots of cortisone in my neck/shoulder blade

(right side) but it didn't help. A few days later I went back because of

the intense pain and he sent me for an MRI. The MRI showed I have a

" moderate herniation at C6-7 level. " By now the pain is going down my

arm and my thumb, index and middle fingers are tingling at times. My

regular MD didn't feel it was necessary to send me to an orthopedic so

he ordered Lortabs 10mg which did next to nothing for me.

I started seeing a Chiropractor who started using the Tens Unit(?) and

heat. This kind of felt good but as soon as I was back in my car the

pain returned. I called him the next day and then Spinal Decompression

was started. I found this to be very painful but he was persistent and

said it would help as long as I stuck with it.

After 5 visits I called my orthopedic md and he told me that nothing was

going to work and he was more than 99% sure I was going to need surgery.

Not what I wanted to hear. He did start me on the Medrol Pack and I got

some relief from the sterioids. Once they finished I called the

Neurosurgeon and got an appointment right away. As soon as he examined

me he said I needed surgery because my triceps muscle was not as it

should be and he was even more convinced once he looked at my MRI. He

showed me the herniation and showed where it was pressing on my spinal

cord and nerves. The pain I have been in for the past 6 - 8 weeks is

like nothing else I've ever felt. Having my gall bladder out was a

picnic compared to this.

I'm having surgery on April 7 and from what he told me I will also have

screws in my neck when he is done. I know the name of the procedure he

is doing but right now it has slipped my mind. He also says I will be

back to work (lifting, pulling etc) in a week.

I am wondering if anyone here has an encouraging words for me since all

my friends are telling me to think twice. I'm not so sure I can forego

this surgery. The pain is to the point where I want it gone.

Thank you in advance. []

Dianne

[Guest guest]

Hi Dianne,

I am so sorry you  are in so much pain and I sure hope surgery relieves it. As

other members have told you though, please be careful post op, you should not be

lifting & pulling a week after surgery if you are having a fusion, which it

sounds like you are having. Do you remember the name of the surgery? With the

description of having screws in your neck it sure sounds like a fusion. This is

a major operation and will take quite some time to recover from. Hopefully you

will have some immediate relief from the disc not touching any nerves anymore,

but you will need lots of time to recover. Please talk this over with your

surgeon before the surgery to get where he is coming from with his feelings you

could be back to work in a week. Also have you gotten a second opinion? Take

care and I hope your pain lessens.

 

Hugs,

 

 

From: Dianne <dianne12315@...>

Subject: New Member

neck pain

Date: Wednesday, April 1, 2009, 4:34 PM

Hi Everyone,

I'm new to the group but not to neck or back pain. I've had ongoing neck

problems for the past 20+ years.

In the beginning of Feb 2009 I was sitting here playing Solitaire on my

computer when I felt this intense pain between my shoulder blades. I

didn't think too much of it and figured it would feel better by the next

day. Unfortunately it didn't and got so bad I finally resorted to going

to my doctor. He gave me 4 shots of cortisone in my neck/shoulder blade

(right side) but it didn't help. A few days later I went back because of

the intense pain and he sent me for an MRI. The MRI showed I have a

" moderate herniation at C6-7 level. " By now the pain is going down my

arm and my thumb, index and middle fingers are tingling at times. My

regular MD didn't feel it was necessary to send me to an orthopedic so

he ordered Lortabs 10mg which did next to nothing for me.

I started seeing a Chiropractor who started using the Tens Unit(?) and

heat. This kind of felt good but as soon as I was back in my car the

pain returned. I called him the next day and then Spinal Decompression

was started. I found this to be very painful but he was persistent and

said it would help as long as I stuck with it.

After 5 visits I called my orthopedic md and he told me that nothing was

going to work and he was more than 99% sure I was going to need surgery.

Not what I wanted to hear. He did start me on the Medrol Pack and I got

some relief from the sterioids. Once they finished I called the

Neurosurgeon and got an appointment right away. As soon as he examined

me he said I needed surgery because my triceps muscle was not as it

should be and he was even more convinced once he looked at my MRI. He

showed me the herniation and showed where it was pressing on my spinal

cord and nerves. The pain I have been in for the past 6 - 8 weeks is

like nothing else I've ever felt. Having my gall bladder out was a

picnic compared to this.

I'm having surgery on April 7 and from what he told me I will also have

screws in my neck when he is done. I know the name of the procedure he

is doing but right now it has slipped my mind. He also says I will be

back to work (lifting, pulling etc) in a week.

I am wondering if anyone here has an encouraging words for me since all

my friends are telling me to think twice. I'm not so sure I can forego

this surgery. The pain is to the point where I want it gone.

Thank you in advance. []

Dianne

[Guest guest]

Think twice before letting them cut you. I have the same thing to the left arm

also. They are NOT recomending surgery its is not always needed. There are so

many needless back surgeries done in this country because its easy money for the

docs. I know what I am talking about I have had several and now know better. I

get trigger point injections and work out a bit to help the muscles and its

working. I have 3 bad disc. The first doc wanted to cut I went to another and

said it was not needed. What did the EMG/NCV say????????? If normal surgery

will do nothing. But make your future even more hell

____________________________________________________________

Protect your home before it is too late. Click here for homeowner insurance

information.

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dxcgnDMUOoTw3bFeKLwgp2o/

[Guest guest]

At 12:29 PM 4/16/2009, you wrote:

>Hi everyone,

>

>This is my first time in this group and I just wanted to introduce myself.

>after a fall at work 18 months ago where I fell face first into a

>wall, my Dr is recommending a triple fusion on my cervical area.

>Anyone familiar with this procedure and have some feedback?

>Sincerely,

I had work done on my neck and 2 levels fused. For me the operation

was not a success. But mine was a different situation. I have severe

pain under my right shoulder blade, and a sore neck. Imaging showed

bone spurs pushing on nerves, and a ruptured disk or two. They

thought for sure that cleaning out the spurs, the ruptured disks and

doing the fusion would give me relief. It didn't and that was now 8.5

years ago. Now keep in mind most people here are on the list because

they are in pain and pre-op, or not even considering an operation, or

they are post-op and still in pain. Those whose surgeries and or

treatments were a success don't have a need to be here. So the data

is skewed. Welcome to the group. Dave

[Guest guest]

At 12:29 PM 4/16/2009, you wrote:

>Hi everyone,

>

>This is my first time in this group and I just wanted to introduce myself.

>after a fall at work 18 months ago where I fell face first into a

>wall, my Dr is recommending a triple fusion on my cervical area.

>Anyone familiar with this procedure and have some feedback?

>Sincerely,

I had work done on my neck and 2 levels fused. For me the operation

was not a success. But mine was a different situation. I have severe

pain under my right shoulder blade, and a sore neck. Imaging showed

bone spurs pushing on nerves, and a ruptured disk or two. They

thought for sure that cleaning out the spurs, the ruptured disks and

doing the fusion would give me relief. It didn't and that was now 8.5

years ago. Now keep in mind most people here are on the list because

they are in pain and pre-op, or not even considering an operation, or

they are post-op and still in pain. Those whose surgeries and or

treatments were a success don't have a need to be here. So the data

is skewed. Welcome to the group. Dave

[Guest guest]

Hi, JK,

volts around 3 has been used, no reports of any issues. sometimes 6 volts gets

some sore skin or itching if used a long time, and sometimes 6 is too harsh even

a short time. You can easily change it.

reverse about every 5 minutes is what we have been testing. You cannot believe

that blood electrification will cure anything and everything, as Beck seemed to

be saying. If you test it, go very carefully since you have no idea what is

really going on with the child. It could be auto-immune, for example, or

allergy.

What if you get some toxins from electrical-chemical changes in the body that

the child is allergic to? At best, you should go very carefully, a child is a

precious thing!

I am no doctor, and I don't personally think you should act alone without a

doctor in this. If the child has a normal white count, for example, the

condition may be non-microbial, no infection. Beck was not a doctor, but his

tests were done with doctors who diagnosed the problems carefully before they

started. Now people are doing it without doctors, and it's possible to make

mistakes that way.

bG

>

> Dear MEGK forum members,

>

> I'am a mother with a child (5 years) who is overloaded with all kinds of

microbes. His development is delayed. He has severe gut issues (also gluten

casein allergies). We live in Europe, so our English is limited.

>

> I started reading everything I could find about Bob Becks protocol and

recently came across your group surrounding the use of Beck's technology

though the use of different kinds of self made (Godzilla) tools.

>

> One aspect is clear that the forum proposes to use lower voltages than Bob

Beck recommends. Personally I am more convenient with this because lower

voltages means that my son will probably tolerate the treatment better.

>

> I read the basic guidelines, can you give me some extra information how to

proceed with my son. Should I start with treating the gut and intestines area,

or just by treating the basic ankle veins?. What type of self made tool is the

best to choose?

>

> How to decide on voltage. I read that a voltage of 3 to 6 volts is enough.

What about treatment time and the time to change polarity? What can I Expect

when it comes to die off reactions.

>

> Thanks for your time and effort,

>

> Joke Kosten

>

[Guest guest]

Dear Joke, someone in the list will reply to your specific questions.

However, please keep in mind that there has to be a reason why your son

is " loaded " with all sorts of bacteria AND a second potential reason as

to whether his immune system is not fighting them.

At least you ought to concentrate in enhancing his immune system's

capability. If his then optimized natural defenses are yet insufficient

to fight the infections, the use of microbe-killers may be a good idea.

I am sure that we could help you more in this " work-with-the-body-front "

if you could elaborate more on his condition.

If you speak Spanish, comunicate conmigo en espanol.

Best regards,

jko1942 wrote:

>

>

> Dear MEGK forum members,

>

> I'am a mother with a child (5 years) who is overloaded with all kinds

> of microbes. His development is delayed. He has severe gut issues

> (also gluten casein allergies). We live in Europe, so our English is

> limited.

>

> I started reading everything I could find about Bob Becks protocol and

> recently came across your group surrounding the use of Beck's

> technology though the use of different kinds of self made (Godzilla)

> tools.

>

> One aspect is clear that the forum proposes to use lower voltages than

> Bob Beck recommends. Personally I am more convenient with this because

> lower voltages means that my son will probably tolerate the treatment

> better.

>

> I read the basic guidelines, can you give me some extra information

> how to proceed with my son. Should I start with treating the gut and

> intestines area, or just by treating the basic ankle veins?. What type

> of self made tool is the best to choose?

>

> How to decide on voltage. I read that a voltage of 3 to 6 volts is

> enough. What about treatment time and the time to change polarity?

> What can I Expect when it comes to die off reactions.

>

> Thanks for your time and effort,

>

> Joke Kosten

>

>

[Guest guest]

It sounds like you've been to lots of M.D.'s and not been correctly diagnosed.

Check out the probability that there as here - there is hardly any ability to

consider fungus infestations / yeasts / molds - which give the indication of

inflammation and infection. When antibiotics are prescribed, symptoms get worse

because they are made using fungi and are therefore fungus food - besides can be

highly toxic and seriously degrade his immune system. When present - can be

very persistent; mostly don't respond to typical routines. Look up " Aflatoxins;

mycobacteria " [related in toxicity].

Go to Amazon.com and do a search on Doug Kaufmann; has several books explaining

the junk science that passes for truth here, the diet changes needed to quit

feeding them to get some hope of improvement.

Our process generally is not very effective at attacking any fungus in the G.I.

tract because of multiple tissues forming boundaries that divert the current

flow around the intestines. Stealth Pathogens, Lida Mittman, Wayne State

University MI wrote a biology text for analysing the cells and includes at least

a chapter on fungus / molds / yeasts. Cost was US$178 last I checked; see if

you can get an interlibrary loan. It's a tough read, shows multiple cases of

" Not Invented Here " refusal to even look at this and other more devastating

data about Cell Wall Deficient mutations [CWD strains] that require special

staining to find, M.Dieties don't have a clue here after 19 years in print,

order the usual lab tests - that come back negative so they let the patient die

from their gross negligence and lack of proper treatment - then claim " We

applied the 'local standard of care', too bad , he died " - and escape any

consequences for the inadvertent murder by stupidity [the technical term for it

is 'iatrogeny']. It happens every day here.

There is a treatment that involves about times 10 the normal level of special

antibiotics, described. This is a specialist endeavor here; typically not

taught in ANY medical school.

The real fix is to starve the yeast / mold / fungus by restricive diets, no

antibiotics, added foods that have fungus killing properties, possibly some

antifungal drugs.

When all the standard stuff has been tried; no change resulted, assume there is

fungal infestation until you can eliminate the possibility. There are over 200

varieties, only about 8 are adequately documented.

Good luck; Joe.

> >

> >

> > Dear MEGK forum members,

> >

> > I'am a mother with a child (5 years) who is overloaded with all kinds

> > of microbes. His development is delayed. He has severe gut issues

> > (also gluten casein allergies). We live in Europe, so our English is

> > limited.

> >

> > I started reading everything I could find about Bob Becks protocol and

> > recently came across your group surrounding the use of Beck's

> > technology though the use of different kinds of self made (Godzilla)

> > tools.

> >

> > One aspect is clear that the forum proposes to use lower voltages than

> > Bob Beck recommends. Personally I am more convenient with this because

> > lower voltages means that my son will probably tolerate the treatment

> > better.

> >

> > I read the basic guidelines, can you give me some extra information

> > how to proceed with my son. Should I start with treating the gut and

> > intestines area, or just by treating the basic ankle veins?. What type

> > of self made tool is the best to choose?

> >

> > How to decide on voltage. I read that a voltage of 3 to 6 volts is

> > enough. What about treatment time and the time to change polarity?

> > What can I Expect when it comes to die off reactions.

> >

> > Thanks for your time and effort,

> >

> > Joke Kosten

> >

> >

>

[Guest guest]

Dear Bob and list members,

The last couple of years I dedicated my life, researching biomedical facts and

interventions surrounding autism and similar neurological conditions. And it has

become clearer the last 3 years or so, that (a subset of) children with autism

have under laying chronic microbial infection (viral, bacterial and fungal) and

consequently develop immune deficiencies. Alas all three types of chronic

microbal infections and overload apply to my son. Anti biotics are no option for

us because of the chronic karakter of the under laying biomedical issues.

For years he is on a restricted (gluten/casein free) diet with sugar and may

more reduction for yeast support. His metabolic pathway's for immune system

support including the main organs (pancreas, liver, kidney's and more) are very

well (orthomolecular) supported and is supervised by a MD.

After investigating the use of colloidal Silver again, I came across Bob Beck's

protocol. I researched Bob's material, used the protocol on myself and

eventually came across your group. Your suggestion surrounding Beck's program

make sense to me and can make the use of the theory of Kaali and Lyman easier

and safer to apply to my son

The microbial overload of my son reside for a part in the intestines (the gut

bugs as we cal the in our community). But also the rest of his body and

metabolic pathway's are probably overloaded with microbes.

Can someone give me some extra ideas on how to start? Should I start with the

electrodes on the ankles or wirst. Or is aiming on the gut the place to start?

Do you know of a similar cases using your suggestions for autism, developmental

delay, speech delay, ADD, ADHD? And if so what can we aspect?

I'm as they say a veteran mom when it comes to biomedical fact for autism and

types of (orthomolecular) intervention. So I know what to expect when it comes

to detoxification of the body and what you can do to support the body when it

comes to detox. Detoxification and the nasty side effects of it are certainly a

big issue for children with autism, ADD or ADHD. So we have to take it very very

slowly. That's also the main reason I have not used Beck's protocol on my son

yet. Detox will surely result in as we say detox related behavior (more intense

autistic and ADHD like behavior) and will upset his metabolic pathway's and

especially his gut even more.

Any ideas are welcome

Joke Koster

Europe

> > >

> > >

> > > Dear MEGK forum members,

> > >

> > > I'am a mother with a child (5 years) who is overloaded with all kinds

> > > of microbes. His development is delayed. He has severe gut issues

> > > (also gluten casein allergies). We live in Europe, so our English is

> > > limited.

> > >

> > > I started reading everything I could find about Bob Becks protocol and

> > > recently came across your group surrounding the use of Beck's

> > > technology though the use of different kinds of self made (Godzilla)

> > > tools.

> > >

> > > One aspect is clear that the forum proposes to use lower voltages than

> > > Bob Beck recommends. Personally I am more convenient with this because

> > > lower voltages means that my son will probably tolerate the treatment

> > > better.

> > >

> > > I read the basic guidelines, can you give me some extra information

> > > how to proceed with my son. Should I start with treating the gut and

> > > intestines area, or just by treating the basic ankle veins?. What type

> > > of self made tool is the best to choose?

> > >

> > > How to decide on voltage. I read that a voltage of 3 to 6 volts is

> > > enough. What about treatment time and the time to change polarity?

> > > What can I Expect when it comes to die off reactions.

> > >

> > > Thanks for your time and effort,

> > >

> > > Joke Kosten

> > >

> > >

> >

>

[Guest guest]

> > > >

> > > >

> > > > Dear MEGK forum members,

> > > >

> > > > I'am a mother with a child (5 years) who is overloaded with all kinds

> > > > of microbes. His development is delayed. He has severe gut issues

> > > > (also gluten casein allergies). We live in Europe, so our English is

> > > > limited.

> > > >

> > > > I started reading everything I could find about Bob Becks protocol and

> > > > recently came across your group surrounding the use of Beck's

> > > > technology though the use of different kinds of self made (Godzilla)

> > > > tools.

> > > >

> > > > One aspect is clear that the forum proposes to use lower voltages than

> > > > Bob Beck recommends. Personally I am more convenient with this because

> > > > lower voltages means that my son will probably tolerate the treatment

> > > > better.

> > > >

> > > > I read the basic guidelines, can you give me some extra information

> > > > how to proceed with my son. Should I start with treating the gut and

> > > > intestines area, or just by treating the basic ankle veins?. What type

> > > > of self made tool is the best to choose?

> > > >

> > > > How to decide on voltage. I read that a voltage of 3 to 6 volts is

> > > > enough. What about treatment time and the time to change polarity?

> > > > What can I Expect when it comes to die off reactions.

> > > >

> > > > Thanks for your time and effort,

> > > >

> > > > Joke Kosten

> > > >

> > > >

> > >

> >

>

[Guest guest]

hi, Nonni,

 

i had the same thing--power outage=no tinnitus.  i suspect there is a deep

jungle in the middle of nowhere which could do us all good. 

 

welcome to the group, Nonni,

diane

From: nonnijonsson <nonnijonsson@...>

Subject: new member

Date: Wednesday, July 1, 2009, 12:37 AM

Hello There

I joined a few weeks ago and have not introduced myself. I am Nonni and am in

northern Canada. Thanks to Shivani and Pink for early replies :-)

I have raging tinnitus sitting in front of my computer but that is not what

bothers me. I hear a low frequency like the Taos Hum that I have never been able

to figure out. My Dr assures me that it is tinnitus, but I have been able to

stop it several times so I am not sure it is, but it has always come back since

it is ubiquitous :-) don't you just love that word ?

In the summer I go to the lake and after a few days it will stop. It will be on

during the day but off at night. At home it is on at all times.

I wait for power failures as I am sure many others do. During a power failure I

always have this hum, except for once. During an extreme storm the power failed

and the noise stopped at the same time. The power was off for 8 hrs, 4 hrs into

the power failure the noise started again making me think that something had

been turned back on.

One year coming back from the lake I got home and determined to keep the peace I

unplugged the TV and the antenna for 1 night. That didnt work----and entire year

passed and I came home and unplugged the TV and antenna for 3 nights. My hum

stopped for 8 days and I felt great. (I think I have digestive problems from

this also) The noise started up again.

I patroled the house with am AM radio seeking out noise and removed the dimmer

swithches, and found that all our computers and TV give off a lot of noise when

they are plugged in but turned off. I unplugged the computers and Tv and went

for a week with no electronics and had the noise stop. It started up again, see

above under ubiquitous.

There were a number of electrical cables going around the outside of the bedroom

under the head of the bed. I spent a week in the basement moving them so that

they route around the inside of the bedroom leaving the bedroom effectively

outside of the electrical system. This gave me no improvement except about half

way through this I woke up one morning feeling as if one side of my head was

going to explode. That feeling was gone by nightime, but I had the feeling that

I had triggered an elecromagnetic event.

I have been reading about this stuff for years now, and still know very little.

Any ideas :-)

I was thinking about Stetzer filters but dont realy want to spend so much on

something that may not work ??

Thanks, Nonni

[Guest guest]

> If anyone has an answer as to how to be able to use a computer once

> again, I am very interested. (I can't enter a room if a computer is on

> within the room.)

Welcome to the group, .

Yes, we have a variety of people here who have used a variety of means

to tolerate computer use. Sometimes you may just have to switch to

a different computer, and see if it less bothersome than the one you

have been using. Other solutions involve:

-- moving the monitor and the computer as far away from you as

possible. You may need to buy longer cables to your keyboard,

mouse, and monitor to do this.

-- plug equipment into power strips which filter the RF noise

from the electricity

-- experiment with EMF protection devices, either on the incoming

power, on top of the equipment, or on your person

-- experiment with shielding materials, like something in front

of the monitor screen, something around the cables, etc.

-- wear less metal on your person, as it may aggravate the problems.

This may include metal-framed eyeglasses, belt buckles,

metal dental work, etc.

-- experiment with nutritional supplementation, including various

vitamins, minerals, antioxidants you may see mentioned here

My computer tolerance has gone way up by doing some of the above

things, so maybe it will for you as well!

Marc

[Guest guest]

Hello, ,

Welcome to the Esens Forum!  I am sorry to hear you are homebound; I personally

know how hard that can be (I am no longer homebound, but was a decade ago).

 

You wrote:

If anyone has an answer as to how to be able to use a computer once again, I am

very interested. (I can't enter a room if a computer is on within the room.)

 

My reply:

We just discussed this subject in some detail recently.  If you are able to

access the forum’s archives in the “Esens Filesâ€, you might want to read

the posts from Nov. 11, 2009 and there abouts.  And also check the forum’s

various documents pages for this specific topic.  (You can get to these areas

by clicking on “Visit Your Group†at the end of my post where it says,

“Recent Activityâ€.)

 

Also, it is most important for you to determine exactly what about the computer

it is that is bothering you.... if you have wireless internet, it is likely that

is at least a large part of it.  If your computer has wireless and

broadband cards in it, you can be reacting to those broadcasting frequencies. 

You can react to the processor speed and the fan (not much you can do about the

fan, but you can try to lighten your computer's load so that the processor runs

cooler and doesn't work as hard.)  wrote a good post about various

things one might react to on a computer recently and which types of items to use

instead.  (This was posted before a week ago, but since Nov. 11th).

This is a copy of a post I wrote at that time to another new member asking for

specific computer help.  Some of this might not apply to you right now, but I

have left it as I originally wrote it. 

 

“You can write and reply to posts in Microsoft Word off-line, and save emails

to reply to, online pages, and sites to read off-line there, as well.  (When I

am done pasting posts and sites to Word, online, I totally unplug from DSL

and work off-line.)   

 

I personally changed all sorts of settings on my computer, as well—I disabled

anything to do with wireless and removed wireless cards (Dell techs talked me

thru this).  A lot of little things helped me....  I have a laptop and

here told me that the direction that I plugged it in would make a difference

(because it has no polarized plug) and so I marked it with a paint pen so I

always know which direction it goes.  Also, I unplug my laptop, the DSL box,

the ethernet cable into the computer, and the phone line to the DSL box every

time I quit using my computer.  It sounds like a pain, but it takes less than

30 seconds and it makes a big difference for me.  Also, not plugging the laptop

into the same outlet as the DSL box makes a difference and keeping all of

these--DSL box, puter, and phone/cord 6 feet apart from each other and not

plugged in with or near other electronics makes a difference.  (The Dell techs

told me that idea.)  I

personally find I can tolerate DSL better than cable internet and found I did

not tolerate any type of wireless internet.

 

I personally find it better not to use my laptop on battery (mainly because I

react badly to charging the battery and have no good place to do this remotely),

so I removed the battery entirely and disabled that.  But a lot of EMS people

like laptops especially for the purpose of using them on battery only. 

 

With the help of the Dell techs, I went systematically over my entire computer

and addressed settings--anything which pertained to wireless, any settings which

made the computer work harder (powered up the processor or made the fan kick

on), we simplified the start-up and shut-down menus, made everything I could

possibly make manual rather than automatic, so the computer isn't downloading

things, etc, all the time while I am on it, removed pop-ups, got rid of as many

unnecessary programs as possible (or at least made them not start till I wanted

them to).....  All of these are little things, and yet the combined effect was

great.  I can use my computer without reacting to it at all most of the time

now.  (I no longer have to remain off-line as much as possible.)

 

If you are involved in detoxing you will need to especially limit your time

online and on your computer (actually you will need to limit anything involving

electricity).  I only react to my computer now when I detox.  I also use

supplements, " ground " myself, and do various energy exercises, all of which

have helped me physically to tolerate my computer and electricity and emfs in

general better.  One of the best things you can do is unplug everything you can

in your house and only plug things in when you are actually using them.  Beyond

that, shutting off breakers at your electrical panel when you can do so is also

very beneficial.  These measures can help your body restabilize, especially if

you are able to detox your body successfully and improve your nutrition during

this same period.  Everybody is a little different as to why they have EMS, but

toxic exposures, amalgam fillings, as well as bad nutrition, and gut damage are

all examples of

things we often have to address to get better.â€Â   

 

Hope this helps you,

Diane

[Guest guest]

I too became ES in 2006 and at one point was unable to use the computer at all,

could not even have it on in the house... now I can write to you wihtout too

much bother, I am still pretty much home-bound but I have improved with the

things inside the house and you will too. You must give yourself time to rest

and repair, start vitamins, maybe wear a protection device (I wear an Earthcalm

Resonator), I use NCD Zeolite, green vegetable juice daily, take probiotics,

hormones etc etc.. there is so much to try but you need to take one day at a

time.

There is so much great advice on the group, have a look through the posts and

try some things and I really think there is a good chance you will use a wired

computer again... just give it time.

Take care

Alison

>

> Hello,

>

> I'm and I just joined this group. I became electrically sensitive at

the end of 2006. I react to power and radio frequency and am homebound due to

this situation. I had to discontinue working in May, 2007.

>

> If anyone has an answer as to how to be able to use a computer once again, I

am very interested. (I can't enter a room if a computer is on within the room.)

>

>

>

>

[Guest guest]

Hello Meg (and your kind scribe) - welcome to the group (from some fellow UK

members). Certainly many people in the group share your EHS, ME and MCS at

varying levels of severity. There's a huge amount of discussion and advice

in the ESens archives, the difficult bit is finding the right bit. Good

luck in your battle.

Ian and Sue

_____

From: [mailto: ] On Behalf Of

megcharmouth

Sent: 01 January 2010 12:59

Subject: New member

Hello, I am a new member and someone is typing this for me. I am from the UK

and currently very severely challenged by ME/MCS and extreme electrical

hypersensitivity. EMFs appear to interfere with my brain and trigger very

severe neurological symptoms. Currently trying to solve issues surrounding

an electric wheelchair, flourescent lighting (I live in a housing

association property) and a fridge, though any energy field however subtle

appears to brain. I would love to hear from anyone with advice on these

matters. Thank you very much. Please get in touch via my email and someone

will check it for me.

[Guest guest]

First of all it is important to know what state you are in.

If in CA it at this time accepts PTCB only.

If your state recently placed into law CPhT by PTCB only they have that right.

If at the time you got hired your boss did not care if it was PTCB or ICPT that

was their right unless your state had a requirement.

The state of Oregon requires either exam. The courts have deemed them

equivalent.

1. State has right to require one or the other or NONE!

2. Employer must follow state law. May make policy.

3. For example if the state says either test will do, but employer says only the

PTCB exam you may have a CASE because the employer can not go over the state and

say that they will not accept ICPT when the state does. If one was more

stringent exam then the employer could. But the courts have held them

equivalent. Then again I am not an attorney. I can say trying to fight your

employer if the above is the case will be a long haul,and in the end you may

wish you had just taken the exame that they asked for, rather than fight it.

That being said, if your state does not require any specific exam and your

employer wants one of the exams they have the right to require a specific exam.

If the state says the CPhT must be ASHP approved or accredited, then PTCB is the

only one that is ASHP accredited.

Does the employer have the right to require an ASHP accredited certification?

Yes, because that would make a more stringent criteria. Althougth it does not

mean at this time that PTCB is better than ExCPT because at this time the courts

have deemed them equivalent. So in a court of law again you may win, on the fact

that the courts have deemed them equivalent and therefore ASHP accreditation

means little, but it will be an up hill battle.

I wish it was not so complicated. I want ALL of you reading this that I

PREDICTED this very scenario two to three years ago when they were in court

tryin gto decide and BEFORE when I said that the CPhT would have to be changed

to ExCPT CPhT or PTCB CPhT as a title and some techs would try to say that their

CPhT was better or higher or that they should be paid more etc . The next thing

we knew they were in court to fix this very problem. UNTIL someone can show that

these two exams are not equal, then the state can choose which one they want,

the state can ask for either, the employer can only request one of them if the

State does not have a requirement. Employers have the right to change policy,

which must still be within the state law.

Remember this is not a definite answer to a law question, it is my opinion and

speculation to the best of my knowledge based upon what law and pharmacy I do

know.

So I think to answer your question I would have to know your state and take it

from there.

Respectfully,

Jeanetta Mastron CPhT BS

Founder Owner

>

> Hi! I am a new member and trying to find some information. I am a CPhT who

received my national certification through ICPT. My employer hired me as such. A

year and a half later now, they are demanding I become certified through PTCB

and accredited with the ASHP. I am very frustrated at this point. I paid for my

previous certification myself. They now want me to sit for a number of classes,

a pre-test and then the test itself in order to continue to work. I am

frustrated and offended at this point mainly because they are acting as if my

ICPT was obtained through the mail after sending in my UPC codes off my cereal

boxes! I am willing to put out the money to take the PTCB because I do need my

job. I am dragging my feet on the classes however. I work 40+ hours a week and

have 2 small children at home I rarely see. The classes are every week, approx

an hour both ways to the site, and 3 to 4 hours long at a time. All of this for

a certification I already have and accreditation. So, after all my whining ;-),

my question to you is do you know if going through an actual training program

such as theirs is the only way to become accredited? It would seem that since I

did the other it would work. I had never even heard of it before. I have worked

as a tech since 2000. Thank you so much for your time, and I look forward to

hearing from you!

> Sincerely,

> Lena

>

[Guest guest]

what are you learning in the clases?  are they paying for you to take them? 

Are the classes ASHP accredited?  PCTB is the older test and therefore more

respected. 

 

Hi! I am a new member and trying to find some information. I am a CPhT who

received my national certification through ICPT. My employer hired me as such. A

year and a half later now, they are demanding I become certified through PTCB

and accredited with the ASHP. I am very frustrated at this point. I paid for my

previous certification myself. They now want me to sit for a number of classes,

a pre-test and then the test itself in order to continue to work. I am

frustrated and offended at this point mainly because they are acting as if my

ICPT was obtained through the mail after sending in my UPC codes off my cereal

boxes! I am willing to put out the money to take the PTCB because I do need my

job. I am dragging my feet on the classes however. I work 40+ hours a week and

have 2 small children at home I rarely see. The classes are every week, approx

an hour both ways to the site, and 3 to 4 hours long at a time. All of this for

a certification I already

have and accreditation. So, after all my whining ;-), my question to you is do

you know if going through an actual training program such as theirs is the only

way to become accredited? It would seem that since I did the other it would

work. I had never even heard of it before. I have worked as a tech since 2000.

Thank you so much for your time, and I look forward to hearing from you!

Sincerely,

Lena

[Guest guest]

Betty, I can so relate to your situation.  I've had hep c for about 30 years,

only recently did tests come back " active " .  The medicine was out of my

pocketbook, and i had not heard anyone with good results anyway.  I contacted a

lady in Mandeville that is a clinical practitioner, good honest christian woman,

her name is Cassidy and you can contact her on optimalhealthonline.com. 

She's also known as 'the mercury lady "  

 

God bless and keep in touch.  Something has to work for us out here....Jackie

From: Betty <almonrode.betty@...>

Subject: New Member

Hepatitis C

Date: Wednesday, March 31, 2010, 2:17 PM

 

My name is Betty. I have had hepatitis sence 2003. I have went through the

treatment and it failed. I am all so a diabetic type 2. I at the point now that

no one is wanting to me any more. Whrer do I go next? I could use some help.

Thank you.

[Guest guest]

Hi Debbie!

Welcome! The group can correct me if I am wrong but I don't think an x-ray can

show slipped, bulging or herniated discs. Also, a chiropractor is not qualified

to make such a diagnosis for you. You need to go see a neurosurgeon or even an

orthopedist and have an MRI done to find out the exact cause of all your pain. I

know it can be frustrating when doctors don't seem to listen but if you feel

that there is truly something wrong then you should seek out other doctors that

will listen to you.

Good luck!!!!

Sent via BlackBerry by AT & T

New member

Hi, my name is Debbie.  I am so glad y'all are here.  

I am so tired of the " reasons " my doctors have given me over the years, yes

years, of pain and suffering.  I was told I needed a reduction mammoplasty,

which I had, it didn't help.  I was told I was deficient in vitamin B, so I take

shots.  I was told it will go away.  When I continued to complain, I was told I

was a complainer.  I finally was able to get a doctor to run an x-ray on my

neck.  I had asked for both neck and back, but all I got was the neck.  I took

the x-ray to my chiropractor and he told me there is definitely cause for all of

the pain.  I think he said it was a bulging disk in my neck.  He mentioned 2

other things, sorry I cannot remember them, sometimes the pain is so bad, it

shuts my brain down.

I do not leave my home very often because that requires wearing clothes.  Any

pressure on my neck/shoulders/back causes me pain.  If I do put on clothes I

have to make sure I have taken at least an aspirin to make it back home.  I just

do not know what to do. 

I live southeast of Houston.  I do not drive into Houston because it is very

difficult for me to turn my head enough.  Is there a list of doctors without

having to give out my name and address? 

I apologize for all of the complaining.  Thanks for being here.

Debbie

[Guest guest]

Hi Debbie, I'm cindy, I go to my chiro all the time. I just adore him because he

is honest and gives me the skinny on things. I'll ask him. Does your chiro Help

you at all? what kind of chiropracter is he? Vitamin B is good for nerve

healing. I take them also. hope you feel better.Sounds like you are having bad

sensitive nerve pain? does it burn? describe the pain type? if you describe it,

folks here maybe will have more of an idea what you are feeling for pain? Then

maybe they can help more. cindy

>

> Hi, my name is Debbie.  I am so glad y'all are here.  

> I am so tired of the " reasons " my doctors have given me over the years, yes

years, of pain and suffering.  I was told I needed a reduction mammoplasty,

which I had, it didn't help.  I was told I was deficient in vitamin B, so I take

shots.  I was told it will go away.  When I continued to complain, I was told I

was a complainer.  I finally was able to get a doctor to run an x-ray on my

neck.  I had asked for both neck and back, but all I got was the neck.  I took

the x-ray to my chiropractor and he told me there is definitely cause for all of

the pain.  I think he said it was a bulging disk in my neck.  He mentioned 2

other things, sorry I cannot remember them, sometimes the pain is so bad, it

shuts my brain down.

> I do not leave my home very often because that requires wearing clothes.  Any

pressure on my neck/shoulders/back causes me pain.  If I do put on clothes I

have to make sure I have taken at least an aspirin to make it back home.  I just

do not know what to do. 

> I live southeast of Houston.  I do not drive into Houston because it is very

difficult for me to turn my head enough.  Is there a list of doctors without

having to give out my name and address? 

> I apologize for all of the complaining.  Thanks for being here.

> Debbie

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Hi Debbie,

For years I've had neck and upper back problems. My MRIs look terrible -

extensive bone spurs at C4-C7 and narrowing of nerve canals and spinal canal to

where the disc is pancaked right against my spinal cord but not quite squeezing

it. I've also had the burning pain in my neck, shoulders and upper back (lower

back too but that's another problem - lumbar MRI is a mirror image of my neck

MRIs) Then for several months I had such bad spasms in my neck that I couldn't

turn my head at all. I finally went to a rheumatologist, who took pity on my,

and put me on low dose prednisone for 3 months and physical therapy for 2

months. Well I got better to a point and I was on high dose Celebrex after the

prednisone. The pain was mostly gone until I reacted to the Celebrex and had to

go off it. The pain came back but not as bad. But as a result of the prednisone,

I got instability in my shoulder joints (frozen shoulder) and two inflamed

(maybe torn) rotator cuffs. I did physical therapy with a PT who really knew his

stuff. He showed me an exercise for my shoulders called " shoulder blade

fixation " While doing it at home in front of a mirror, I realized how very bad

my posture was. The " shoulder blade fixation " when I looked at a side view of

myself fixed my posture to something normal looking. (so I wasn't hunched over

and my head jutting forward, which puts tremendous strain on the muscles at the

back of the neck and upper back) Well I worked on the shoulder blade fixation

and tried to be conscious every moment to keep my shoulders blades strong and

together in back and my chest forward, which puts the head in the right

alignment. Well after 2 or 3 months of this, my pain dissappeared. I am in less

pain now than I had been in 30 years every since the accident that messed up my

discs.

Funny thing is with all the spine doctors, pain doctors (epidurals and facet

joint injections and ablations), and PTs I went to for my neck no one ever said

" YOUR POSTURE SUCKS AND THAT IS WHAT IS CAUSING YOUR PAIN " Everyone immediately

thinks because they have bad looking MRIs that's why they are in pain. However,

lots of people have bad MRIs but many don't have pain. Spinal degeneration is

normal with age -- although I must admit, mine are a lot worse than most, but

that's because I have diffuse developmental narrowing of the spinal canal

precisely at the cervical and lumbar regions that give the most problems.

In the shoulder blade fixation exercise, you pull your shoulder blades together

in back and pull them down. ***The pulling down is most important part and takes

a while to get the hang of. You can see that pull down in the mirror as the

curve between neck and shoulder lowering. Then hold for 10 and repeat a few

times. And then do this 2-3 times a day. And be conscious of standing straight

during the day. Check your posture out in a mirror, if you can set up a couple

mirrors to see back and side without turning your head that would be good.

Having forward head is very stressing on one's neck and upper back (the back

neck muscles are really extensions of your upper back.) and leads to spasming

and the burning feeling of lactic acid in overworked muscles.

Also to get a feel for what it is like to stand up straight, stand against a

wall. Heels and shoulders/upper back touching the wall. That was a revelation to

me.

Hope this helps,

Rochelle

>

> Hi, my name is Debbie.  I am so glad y'all are here.  

> I am so tired of the " reasons " my doctors have given me over the years, yes

years, of pain and suffering.  I was told I needed a reduction mammoplasty,

which I had, it didn't help.  I was told I was deficient in vitamin B, so I take

shots.  I was told it will go away.  When I continued to complain, I was told I

was a complainer.  I finally was able to get a doctor to run an x-ray on my

neck.  I had asked for both neck and back, but all I got was the neck.  I took

the x-ray to my chiropractor and he told me there is definitely cause for all of

the pain.  I think he said it was a bulging disk in my neck.  He mentioned 2

other things, sorry I cannot remember them, sometimes the pain is so bad, it

shuts my brain down.

> I do not leave my home very often because that requires wearing clothes.  Any

pressure on my neck/shoulders/back causes me pain.  If I do put on clothes I

have to make sure I have taken at least an aspirin to make it back home.  I just

do not know what to do. 

> I live southeast of Houston.  I do not drive into Houston because it is very

difficult for me to turn my head enough.  Is there a list of doctors without

having to give out my name and address? 

> I apologize for all of the complaining.  Thanks for being here.

> Debbie

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Thanks Rochelle, I will try this.

Debbie

From: Rochelle <rccoc1977@...>

Subject: Re: New member

neck pain

Date: Wednesday, August 25, 2010, 10:18 AM

 

Hi Debbie,

For years I've had neck and upper back problems. My MRIs look terrible -

extensive bone spurs at C4-C7 and narrowing of nerve canals and spinal canal to

where the disc is pancaked right against my spinal cord but not quite squeezing

it. I've also had the burning pain in my neck, shoulders and upper back (lower

back too but that's another problem - lumbar MRI is a mirror image of my neck

MRIs) Then for several months I had such bad spasms in my neck that I couldn't

turn my head at all. I finally went to a rheumatologist, who took pity on my,

and put me on low dose prednisone for 3 months and physical therapy for 2

months. Well I got better to a point and I was on high dose Celebrex after the

prednisone. The pain was mostly gone until I reacted to the Celebrex and had to

go off it. The pain came back but not as bad. But as a result of the prednisone,

I got instability in my shoulder joints (frozen shoulder) and two inflamed

(maybe torn) rotator cuffs. I

did physical therapy with a PT who really knew his stuff. He showed me an

exercise for my shoulders called " shoulder blade fixation " While doing it at

home in front of a mirror, I realized how very bad my posture was. The " shoulder

blade fixation " when I looked at a side view of myself fixed my posture to

something normal looking. (so I wasn't hunched over and my head jutting forward,

which puts tremendous strain on the muscles at the back of the neck and upper

back) Well I worked on the shoulder blade fixation and tried to be conscious

every moment to keep my shoulders blades strong and together in back and my

chest forward, which puts the head in the right alignment. Well after 2 or 3

months of this, my pain dissappeared. I am in less pain now than I had been in

30 years every since the accident that messed up my discs.

Funny thing is with all the spine doctors, pain doctors (epidurals and facet

joint injections and ablations), and PTs I went to for my neck no one ever said

" YOUR POSTURE SUCKS AND THAT IS WHAT IS CAUSING YOUR PAIN " Everyone immediately

thinks because they have bad looking MRIs that's why they are in pain. However,

lots of people have bad MRIs but many don't have pain. Spinal degeneration is

normal with age -- although I must admit, mine are a lot worse than most, but

that's because I have diffuse developmental narrowing of the spinal canal

precisely at the cervical and lumbar regions that give the most problems.

In the shoulder blade fixation exercise, you pull your shoulder blades together

in back and pull them down. ***The pulling down is most important part and takes

a while to get the hang of. You can see that pull down in the mirror as the

curve between neck and shoulder lowering. Then hold for 10 and repeat a few

times. And then do this 2-3 times a day. And be conscious of standing straight

during the day. Check your posture out in a mirror, if you can set up a couple

mirrors to see back and side without turning your head that would be good.

Having forward head is very stressing on one's neck and upper back (the back

neck muscles are really extensions of your upper back.) and leads to spasming

and the burning feeling of lactic acid in overworked muscles.

Also to get a feel for what it is like to stand up straight, stand against a

wall. Heels and shoulders/upper back touching the wall. That was a revelation to

me.

Hope this helps,

Rochelle

>

> Hi, my name is Debbie.  I am so glad y'all are here.  

> I am so tired of the " reasons " my doctors have given me over the years, yes

years, of pain and suffering.  I was told I needed a reduction mammoplasty,

which I had, it didn't help.  I was told I was deficient in vitamin B, so I

take shots.  I was told it will go away.  When I continued to complain, I was

told I was a complainer.  I finally was able to get a doctor to run an x-ray on

my neck.  I had asked for both neck and back, but all I got was the neck.  I

took the x-ray to my chiropractor and he told me there is definitely cause for

all of the pain.  I think he said it was a bulging disk in my neck.  He

mentioned 2 other things, sorry I cannot remember them, sometimes the pain is so

bad, it shuts my brain down.

> I do not leave my home very often because that requires wearing clothes.  Any

pressure on my neck/shoulders/back causes me pain.  If I do put on clothes I

have to make sure I have taken at least an aspirin to make it back home.  I

just do not know what to do. 

> I live southeast of Houston.  I do not drive into Houston because it is very

difficult for me to turn my head enough.  Is there a list of doctors without

having to give out my name and address? 

> I apologize for all of the complaining.  Thanks for being here.

> Debbie

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Rochelle,

One other thing, I was taught to stand straight, arms at my side, fingers folded

up, thumbs out.  Then you take the thumbs and turn them out.  And this is to

help your posture.

Debbie

From: Rochelle <rccoc1977@...>

Subject: Re: New member

neck pain

Date: Wednesday, August 25, 2010, 10:18 AM

 

Hi Debbie,

For years I've had neck and upper back problems. My MRIs look terrible -

extensive bone spurs at C4-C7 and narrowing of nerve canals and spinal canal to

where the disc is pancaked right against my spinal cord but not quite squeezing

it. I've also had the burning pain in my neck, shoulders and upper back (lower

back too but that's another problem - lumbar MRI is a mirror image of my neck

MRIs) Then for several months I had such bad spasms in my neck that I couldn't

turn my head at all. I finally went to a rheumatologist, who took pity on my,

and put me on low dose prednisone for 3 months and physical therapy for 2

months. Well I got better to a point and I was on high dose Celebrex after the

prednisone. The pain was mostly gone until I reacted to the Celebrex and had to

go off it. The pain came back but not as bad. But as a result of the prednisone,

I got instability in my shoulder joints (frozen shoulder) and two inflamed

(maybe torn) rotator cuffs. I

did physical therapy with a PT who really knew his stuff. He showed me an

exercise for my shoulders called " shoulder blade fixation " While doing it at

home in front of a mirror, I realized how very bad my posture was. The " shoulder

blade fixation " when I looked at a side view of myself fixed my posture to

something normal looking. (so I wasn't hunched over and my head jutting forward,

which puts tremendous strain on the muscles at the back of the neck and upper

back) Well I worked on the shoulder blade fixation and tried to be conscious

every moment to keep my shoulders blades strong and together in back and my

chest forward, which puts the head in the right alignment. Well after 2 or 3

months of this, my pain dissappeared. I am in less pain now than I had been in

30 years every since the accident that messed up my discs.

Funny thing is with all the spine doctors, pain doctors (epidurals and facet

joint injections and ablations), and PTs I went to for my neck no one ever said

" YOUR POSTURE SUCKS AND THAT IS WHAT IS CAUSING YOUR PAIN " Everyone immediately

thinks because they have bad looking MRIs that's why they are in pain. However,

lots of people have bad MRIs but many don't have pain. Spinal degeneration is

normal with age -- although I must admit, mine are a lot worse than most, but

that's because I have diffuse developmental narrowing of the spinal canal

precisely at the cervical and lumbar regions that give the most problems.

In the shoulder blade fixation exercise, you pull your shoulder blades together

in back and pull them down. ***The pulling down is most important part and takes

a while to get the hang of. You can see that pull down in the mirror as the

curve between neck and shoulder lowering. Then hold for 10 and repeat a few

times. And then do this 2-3 times a day. And be conscious of standing straight

during the day. Check your posture out in a mirror, if you can set up a couple

mirrors to see back and side without turning your head that would be good.

Having forward head is very stressing on one's neck and upper back (the back

neck muscles are really extensions of your upper back.) and leads to spasming

and the burning feeling of lactic acid in overworked muscles.

Also to get a feel for what it is like to stand up straight, stand against a

wall. Heels and shoulders/upper back touching the wall. That was a revelation to

me.

Hope this helps,

Rochelle

>

> Hi, my name is Debbie.  I am so glad y'all are here.  

> I am so tired of the " reasons " my doctors have given me over the years, yes

years, of pain and suffering.  I was told I needed a reduction mammoplasty,

which I had, it didn't help.  I was told I was deficient in vitamin B, so I

take shots.  I was told it will go away.  When I continued to complain, I was

told I was a complainer.  I finally was able to get a doctor to run an x-ray on

my neck.  I had asked for both neck and back, but all I got was the neck.  I

took the x-ray to my chiropractor and he told me there is definitely cause for

all of the pain.  I think he said it was a bulging disk in my neck.  He

mentioned 2 other things, sorry I cannot remember them, sometimes the pain is so

bad, it shuts my brain down.

> I do not leave my home very often because that requires wearing clothes.  Any

pressure on my neck/shoulders/back causes me pain.  If I do put on clothes I

have to make sure I have taken at least an aspirin to make it back home.  I

just do not know what to do. 

> I live southeast of Houston.  I do not drive into Houston because it is very

difficult for me to turn my head enough.  Is there a list of doctors without

having to give out my name and address? 

> I apologize for all of the complaining.  Thanks for being here.

> Debbie

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

I certainly hope that everyone in this group discusses with their doctor any

advice from other members before they try anything.  Many of us have severe

enough deterioration and spinal problems that chiropractors & physical

therapists manipulations and even trying to " have good posture " is either not

possible or can even be dangerous. I have been told by a reputable

Rheumatologist & 2 Orthopedists that to see a chiropractor could be the last

straw that puts me in a wheelchair for the rest of my life.  I don't discourage

anyone from giving or taking advice, much of what I have read here has helped me

in some way, but we are all different with different ailments.

Jane H.

From: Rochelle <rccoc1977@...>

Subject: Re: New member

neck pain

Date: Wednesday, August 25, 2010, 10:18 AM

 

Hi Debbie,

For years I've had neck and upper back problems. My MRIs look terrible -

extensive bone spurs at C4-C7 and narrowing of nerve canals and spinal canal to

where the disc is pancaked right against my spinal cord but not quite squeezing

it. I've also had the burning pain in my neck, shoulders and upper back (lower

back too but that's another problem - lumbar MRI is a mirror image of my neck

MRIs) Then for several months I had such bad spasms in my neck that I couldn't

turn my head at all. I finally went to a rheumatologist, who took pity on my,

and put me on low dose prednisone for 3 months and physical therapy for 2

months. Well I got better to a point and I was on high dose Celebrex after the

prednisone. The pain was mostly gone until I reacted to the Celebrex and had to

go off it. The pain came back but not as bad. But as a result of the prednisone,

I got instability in my shoulder joints (frozen shoulder) and two inflamed

(maybe torn) rotator cuffs. I

did physical therapy with a PT who really knew his stuff. He showed me an

exercise for my shoulders called " shoulder blade fixation " While doing it at

home in front of a mirror, I realized how very bad my posture was. The " shoulder

blade fixation " when I looked at a side view of myself fixed my posture to

something normal looking. (so I wasn't hunched over and my head jutting forward,

which puts tremendous strain on the muscles at the back of the neck and upper

back) Well I worked on the shoulder blade fixation and tried to be conscious

every moment to keep my shoulders blades strong and together in back and my

chest forward, which puts the head in the right alignment. Well after 2 or 3

months of this, my pain dissappeared. I am in less pain now than I had been in

30 years every since the accident that messed up my discs.

Funny thing is with all the spine doctors, pain doctors (epidurals and facet

joint injections and ablations), and PTs I went to for my neck no one ever said

" YOUR POSTURE SUCKS AND THAT IS WHAT IS CAUSING YOUR PAIN " Everyone immediately

thinks because they have bad looking MRIs that's why they are in pain. However,

lots of people have bad MRIs but many don't have pain. Spinal degeneration is

normal with age -- although I must admit, mine are a lot worse than most, but

that's because I have diffuse developmental narrowing of the spinal canal

precisely at the cervical and lumbar regions that give the most problems.

In the shoulder blade fixation exercise, you pull your shoulder blades together

in back and pull them down. ***The pulling down is most important part and takes

a while to get the hang of. You can see that pull down in the mirror as the

curve between neck and shoulder lowering. Then hold for 10 and repeat a few

times. And then do this 2-3 times a day. And be conscious of standing straight

during the day. Check your posture out in a mirror, if you can set up a couple

mirrors to see back and side without turning your head that would be good.

Having forward head is very stressing on one's neck and upper back (the back

neck muscles are really extensions of your upper back.) and leads to spasming

and the burning feeling of lactic acid in overworked muscles.

Also to get a feel for what it is like to stand up straight, stand against a

wall. Heels and shoulders/upper back touching the wall. That was a revelation to

me.

Hope this helps,

Rochelle

>

> Hi, my name is Debbie.  I am so glad y'all are here.  

> I am so tired of the " reasons " my doctors have given me over the years, yes

years, of pain and suffering.  I was told I needed a reduction mammoplasty,

which I had, it didn't help.  I was told I was deficient in vitamin B, so I

take shots.  I was told it will go away.  When I continued to complain, I was

told I was a complainer.  I finally was able to get a doctor to run an x-ray on

my neck.  I had asked for both neck and back, but all I got was the neck.  I

took the x-ray to my chiropractor and he told me there is definitely cause for

all of the pain.  I think he said it was a bulging disk in my neck.  He

mentioned 2 other things, sorry I cannot remember them, sometimes the pain is so

bad, it shuts my brain down.

> I do not leave my home very often because that requires wearing clothes.  Any

pressure on my neck/shoulders/back causes me pain.  If I do put on clothes I

have to make sure I have taken at least an aspirin to make it back home.  I

just do not know what to do. 

> I live southeast of Houston.  I do not drive into Houston because it is very

difficult for me to turn my head enough.  Is there a list of doctors without

having to give out my name and address? 

> I apologize for all of the complaining.  Thanks for being here.

> Debbie

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[Guest guest]

Yes, we should all know what limitations the doctor advises. Chiropractors

shouldn't be manipulating the back/neck if you have certain spine conditions.

Also, if you haven't yet been fully examined and a diagnosis made, just assume

there are limitations or possible dangers involved in doing certain exercises

involving the back or going to a chiropractor for a back/neck manipulations.

I'm not one of those " believers " of chiropractors personally, my experiences

aren't positive.

Jennette

________________________________

From: Jane <borlan9191962@...>

neck pain

Sent: Wed, August 25, 2010 1:03:08 PM

Subject: Re: Re: New member

I certainly hope that everyone in this group discusses with their doctor any

advice from other members before they try anything. Many of us have severe

enough deterioration and spinal problems that chiropractors & physical

therapists manipulations and even trying to " have good posture " is either not

possible or can even be dangerous. I have been told by a reputable

Rheumatologist & 2 Orthopedists that to see a chiropractor could be the last

straw that puts me in a wheelchair for the rest of my life. I don't discourage

anyone from giving or taking advice, much of what I have read here has helped me

in some way, but we are all different with different ailments.

Jane H.