New Member

Posted December 21, 2001 · December 21, 2001

Send addy and tell me what to say. A belated welcome. I've been

Christmasing and haven't kept up with the e-mail very well. Merry Christmas

to all, Anne

Posted December 28, 2001 · December 28, 2001

yep be sure the drink is a virgin be strong ,at least we can fight this

monster many have passed without even this chance smile and pass them

on.....Jack

Posted December 28, 2001 · December 28, 2001

yep be sure the drink is a virgin be strong ,at least we can fight this

monster many have passed without even this chance smile and pass them

on.....Jack

Posted December 28, 2001 · December 28, 2001

Hi bigsal, I wish we could tell you that

you are going to be fine, but you know that isn't

going to happen. You still need to have faith, though.

My first question is Are you on a transplant list?

It sounds like you should be able to get on one. Is

there anyone you know who would be willing to share

their liver with you? The partial live transplants are

working very well. I'm sure you already know that there

are several stages of cirrhosis and I'm hoping you

are in the early stages. I'll also pray that the AFP

doesn't mean there are any tumors in your liver. Many

people with cirrhosis show a high AFP level so it may

not mean a tumor at all. I know what you mean

about the treatment. I'm a 1b and have done them all to

no avail too. I'm off treatment now and can only

offer to you what I feel. Enjoy each day as it

comes. Take time out for YOU and appreciate every day

simply for what it is - a new day. Give yourself some

QUALITY of life and the quantity will soon become less

important. While we all would love to live " forever " we know

that when it's our time - it's our time. Enjoy the

time you have now and the people in your life. Show

them how much you love them every day. My

thoughts and prayers are with you while you are going

through the toughest times in your life. Remember life is

only as tough as you allow it to be, so get all the

strife out of the way and enjoy the little things.

LeighAnn <a href=http://www.geocities.com/1Leighann

target=new>http://www.geocities.com/1Leighann</a>

Posted December 28, 2001 · December 28, 2001

Hi bigsal, I wish we could tell you that

you are going to be fine, but you know that isn't

going to happen. You still need to have faith, though.

My first question is Are you on a transplant list?

It sounds like you should be able to get on one. Is

there anyone you know who would be willing to share

their liver with you? The partial live transplants are

working very well. I'm sure you already know that there

are several stages of cirrhosis and I'm hoping you

are in the early stages. I'll also pray that the AFP

doesn't mean there are any tumors in your liver. Many

people with cirrhosis show a high AFP level so it may

not mean a tumor at all. I know what you mean

about the treatment. I'm a 1b and have done them all to

no avail too. I'm off treatment now and can only

offer to you what I feel. Enjoy each day as it

comes. Take time out for YOU and appreciate every day

simply for what it is - a new day. Give yourself some

QUALITY of life and the quantity will soon become less

important. While we all would love to live " forever " we know

that when it's our time - it's our time. Enjoy the

time you have now and the people in your life. Show

them how much you love them every day. My

thoughts and prayers are with you while you are going

through the toughest times in your life. Remember life is

only as tough as you allow it to be, so get all the

strife out of the way and enjoy the little things.

LeighAnn <a href=http://www.geocities.com/1Leighann

target=new>http://www.geocities.com/1Leighann</a>

Posted December 29, 2001 · December 29, 2001

Hi everyone I am a new member here but not new to the dangerous

effects of the SSRI's I just wanted to make my presence known in the

group and want to see these drugs abolished and to never see someone

ever go through what they can do to a peroson. Randy

Posted December 29, 2001 · December 29, 2001

Hi everyone I am a new member here but not new to the dangerous

effects of the SSRI's I just wanted to make my presence known in the

group and want to see these drugs abolished and to never see someone

ever go through what they can do to a peroson. Randy

Posted December 30, 2001 · December 30, 2001

Thanks, Leighann. I needed an attitude adjustment

and you came thru with one. I got my ultrasound test

results back and there was no tumors. My bloodcount is

very low and the doctor's taken me off the ribavarin

until mid-January, then I get another blood test and

see if I can go back on the pills. Of course, as much

as I hate those damn pills, I hope I can start back

up with them because there isn't anything else out

there to do. I really appreciate your answering my

message. Just being able to vent to someone that's been

there helps. Hope you have a very good 2002. I'm going

to hang tough. I will not let this miserable shit

beat me. Thanks, bigsal.

Posted December 30, 2001 · December 30, 2001

Thanks, Leighann. I needed an attitude adjustment

and you came thru with one. I got my ultrasound test

results back and there was no tumors. My bloodcount is

very low and the doctor's taken me off the ribavarin

until mid-January, then I get another blood test and

see if I can go back on the pills. Of course, as much

as I hate those damn pills, I hope I can start back

up with them because there isn't anything else out

there to do. I really appreciate your answering my

message. Just being able to vent to someone that's been

there helps. Hope you have a very good 2002. I'm going

to hang tough. I will not let this miserable shit

beat me. Thanks, bigsal.

Posted December 30, 2001 · December 30, 2001

Welcome Randy!

I am assuming you received my invitation? Glad you've come aboard! Your name rings some familiarity to me, although I cannot remember if I first read one of your posts on the prozactruth group or the PROZACAWARENESS group... Sorry.. too many victims now..

Can you please share your personal story with the group members here? Are you in a position to help us fight back? This is the fighter's group, you know!!

If you can contribute any time in our drug war, please let us know. I am sure General Tim will have something for you to do!

Warmest Regards,The Avenging Angel

Please sign the petiton at

http://www.petitiononline.com/lilpro

>From: "rs10rs10"

>Reply-SSRI medications >SSRI medications >Subject: Re: new member >Date: Sat, 29 Dec 2001 16:57:40 -0000 > Get your FREE download of MSN Explorer at http://explorer.msn.com.

Hi everyone I am a new member here but not new to the dangerous

effects of the SSRI's I just wanted to make my presence known in the

group and want to see these drugs abolished and to never see someone

ever go through what they can do to a peroson. Randy

Posted December 30, 2001 · December 30, 2001

Welcome Randy!

I am assuming you received my invitation? Glad you've come aboard! Your name rings some familiarity to me, although I cannot remember if I first read one of your posts on the prozactruth group or the PROZACAWARENESS group... Sorry.. too many victims now..

Can you please share your personal story with the group members here? Are you in a position to help us fight back? This is the fighter's group, you know!!

If you can contribute any time in our drug war, please let us know. I am sure General Tim will have something for you to do!

Warmest Regards,The Avenging Angel

Please sign the petiton at

http://www.petitiononline.com/lilpro

>From: "rs10rs10"

>Reply-SSRI medications >SSRI medications >Subject: Re: new member >Date: Sat, 29 Dec 2001 16:57:40 -0000 > Get your FREE download of MSN Explorer at http://explorer.msn.com.

Hi everyone I am a new member here but not new to the dangerous

effects of the SSRI's I just wanted to make my presence known in the

group and want to see these drugs abolished and to never see someone

ever go through what they can do to a peroson. Randy

Posted February 27, 2002 · February 27, 2002

Hi Ocean, Your husband is going through a

very difficult time and you are too. Treatment is very

hard to do, to say the least. The mood swings are huge

and wanting to quit is normal. I went through that

over and over. Have him talk to his dr about the mood

swings. They may be able to help him deal with them. You

should talk to the dr too, because he can help you help

your husband, and help you get through this difficult

time too. The caregivers of those of us with

HCV are the most wonderful people out there. You put

up with our moods, our crabbiness, our illness, and

you are always there for us. I wish we could always

be there for you, and acknowledge your help. Once he

is done with treatment, he will realize how

wonderful you have been. Luck to you

both, LeighAnn <a href=http://www.geocities.com/1Leighann

target=new>http://www.geocities.com/1Leighann</a>

Posted February 27, 2002 · February 27, 2002

Hi Ocean, Your husband is going through a

very difficult time and you are too. Treatment is very

hard to do, to say the least. The mood swings are huge

and wanting to quit is normal. I went through that

over and over. Have him talk to his dr about the mood

swings. They may be able to help him deal with them. You

should talk to the dr too, because he can help you help

your husband, and help you get through this difficult

time too. The caregivers of those of us with

HCV are the most wonderful people out there. You put

up with our moods, our crabbiness, our illness, and

you are always there for us. I wish we could always

be there for you, and acknowledge your help. Once he

is done with treatment, he will realize how

wonderful you have been. Luck to you

both, LeighAnn <a href=http://www.geocities.com/1Leighann

target=new>http://www.geocities.com/1Leighann</a>

Posted February 27, 2002 · February 27, 2002

Hi ,

I'm glad you found us, and glad you've found some helpful info

here. The Peg-combo is still a new thing for us, not too many have

experience with it, so it's good to know you're there if we have

questions about it. As far as side effects, do you notice a

difference between the two treatments?

Good luck, hopefully this will be the last treatment you ever

need!

Take care,

Claudine

__________________________________________________

Posted February 27, 2002 · February 27, 2002

Hi , welcome to the group. I'm so glad that Holland has the peg

now, Canada still doesn't :-( I'm looking at going on the old combo as

soon as possible. I have a good friend in Holland, she works for

foreign affairs. Hope to get there someday.

Carol

willem landstra wrote:

> Hello everyone.My name is ,I live in Holland,diagnosed

> HCV-1b.After standard treatment and a lot of other things!!!!! I am

> now on the Peg-combo.I already got a lot of info from the

> group.Fantastic!.I wish everyone goodluck and will gladly share my

> experiences with you..

>

Posted February 27, 2002 · February 27, 2002

Hi , welcome to the group. I'm so glad that Holland has the peg

now, Canada still doesn't :-( I'm looking at going on the old combo as

soon as possible. I have a good friend in Holland, she works for

foreign affairs. Hope to get there someday.

Carol

willem landstra wrote:

> Hello everyone.My name is ,I live in Holland,diagnosed

> HCV-1b.After standard treatment and a lot of other things!!!!! I am

> now on the Peg-combo.I already got a lot of info from the

> group.Fantastic!.I wish everyone goodluck and will gladly share my

> experiences with you..

>

Posted February 27, 2002 · February 27, 2002

Wow...another welcome. Glad you found us! I personally consider the

Netherlands to be the most civilized country in the world and will be

interested in learning how they are approaching Hep C. Have they

legalized pegasys there yet?

For years I've been trying to find a way to get to move to

Netherlands....I had a dutch neighbor and tried to get him to marry me

so I could become a citizen of Holland. But he and his partner were

afraid of tax issues in the US....

Glad to have you with us!

Blessings

Tatezi

willem landstra wrote:

> Hello everyone.My name is ,I live in Holland,diagnosed

> HCV-1b.After standard treatment and a lot of other things!!!!! I am

> now on the Peg-combo.I already got a lot of info from the

> group.Fantastic!.I wish everyone goodluck and will gladly share my

> experiences with you..

>

Posted February 27, 2002 · February 27, 2002

Wow...another welcome. Glad you found us! I personally consider the

Netherlands to be the most civilized country in the world and will be

interested in learning how they are approaching Hep C. Have they

legalized pegasys there yet?

For years I've been trying to find a way to get to move to

Netherlands....I had a dutch neighbor and tried to get him to marry me

so I could become a citizen of Holland. But he and his partner were

afraid of tax issues in the US....

Glad to have you with us!

Blessings

Tatezi

willem landstra wrote:

> Hello everyone.My name is ,I live in Holland,diagnosed

> HCV-1b.After standard treatment and a lot of other things!!!!! I am

> now on the Peg-combo.I already got a lot of info from the

> group.Fantastic!.I wish everyone goodluck and will gladly share my

> experiences with you..

>

Posted March 12, 2002 · March 12, 2002

In a message dated 2/27/2002 2:33:33 PM Eastern Standard Time,

wmland@... writes:

> Hello everyone.My name is ,I live in Holland,diagnosed HCV-1b.After

> standard treatment and a lot of other things!!!!! I am now on the

> Peg-combo.I already got a lot of info from the group.Fantastic!.I wish

> everyone goodluck and will gladly share my experiences with you..

>

Hi ,

And welcome. I am considering going on the peg-combo. I really had a bad

reaction to the ribaviron with the original combo. Any info from you would

be appreciated.

I haven't been to Holland in many years. It's a beautiful country. I still

have my very own pair of wooden shoes, which I wear here when it rains. They

are better than boots.

Good luck and God bless,

Anne

Posted March 12, 2002 · March 12, 2002

In a message dated 2/27/2002 2:33:33 PM Eastern Standard Time,

wmland@... writes:

> Hello everyone.My name is ,I live in Holland,diagnosed HCV-1b.After

> standard treatment and a lot of other things!!!!! I am now on the

> Peg-combo.I already got a lot of info from the group.Fantastic!.I wish

> everyone goodluck and will gladly share my experiences with you..

>

Hi ,

And welcome. I am considering going on the peg-combo. I really had a bad

reaction to the ribaviron with the original combo. Any info from you would

be appreciated.

I haven't been to Holland in many years. It's a beautiful country. I still

have my very own pair of wooden shoes, which I wear here when it rains. They

are better than boots.

Good luck and God bless,

Anne

Posted March 13, 2002 · March 13, 2002

Hi Anne.I was three times on standard treatment.Interferon and Ribavarine.I have

been in a trial with the first two weeks 6 million units of interferon EVERYDAY

plus 1000 mg.Ribavarine.Boy was a sick.Every time my PCR was undetectable after

12 wks.However a relapsed after stopping treatment.I have some things against

me,age 60,1b,and male.Woman do better.Now I am in my 15month of

Peg-Combo.100mg,1000 mg. Rebetol.Another 3 months to go.Side effects depend

largly on the individual.Brainfog is the worse side effect I

experience.Forgetting things etc.Can.t play chess.I strongely advise you to do

the Peg-Combo and if your Doc and insurance agree take one year of treatment.I

take paracetamol for the flu-like sympthons and it works.The side-effects

are,however,considerably less then the standard treatment.Goodluck .

Re: New member

In a message dated 2/27/2002 2:33:33 PM Eastern Standard Time,

wmland@... writes:

> Hello everyone.My name is ,I live in Holland,diagnosed HCV-1b.After

> standard treatment and a lot of other things!!!!! I am now on the

> Peg-combo.I already got a lot of info from the group.Fantastic!.I wish

> everyone goodluck and will gladly share my experiences with you..

>

Hi ,

And welcome. I am considering going on the peg-combo. I really had a bad

reaction to the ribaviron with the original combo. Any info from you would

be appreciated.

I haven't been to Holland in many years. It's a beautiful country. I still

have my very own pair of wooden shoes, which I wear here when it rains. They

are better than boots.

Good luck and God bless,

Anne

Posted March 13, 2002 · March 13, 2002