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MICHELE T

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Hi Michele:

It's been a while since I've posted because Hannah has been so stable.  However,

she has some new symptoms that are appearing and we are trying to figure things

out.  Can you remind me again how was diagnosed?

In chatting with , Hannah seem to have some symptoms similar to what Rob

was like at her age.  I remember also being similar.  Hannah is seeing an

orthopedic specialist (this is 100% unrelated to her foot fracture from last

Oct) to rule anything obvious out.  She is also doing PT with an amazing

therapist who is very concerned with her knee/foot/hip on her right side.

Thanks, hope all is well.  How is that grand baby!!

 Beth & Hannah, 14, not sure what she has anymore

" We cannot control the wind, but we can adjust our sails "

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