Re: Kaylee update was Joint Injections and First Remicade Infusion

[Guest guest]

Hi Amy!

I guess I need to post an update. Been at school taking final exams today and

studied last night so haven't posted an update.

So here goes: Kaylee had joint injections in her right knee and both ankles. The

right ankle had so much scar tissue the rheumy

had to make 2 insertions to get to the joint good. Other than that things went

good. The remicade infusion went great too. NO

problems and Kaylee was a real trooper; very brave and handled it all so well.

She was very strong and brave and I am so proud

of her. She didn't make it to school today as she was still tired. SHe slept

through most of the infusion; which took a little over

2 hours. She still can not play softball or dance until the rheumy says so. We

are hoping that will not be long.

All in all we had a great day!

, Kaylee

Joint Injections and First Remicade Infusion

Good Morning to everyone!

Today Kaylee is going to have joint injections in her ankles and possibly her

knees. She will also be getting her first Remicade infusion. We are hoping this

gets the JA and Uveitis under control quicker. She is nervous about the

Remicade, but I think she will be okay. She hates the Humira and having to do it

every week is really traumatizing. It is going to be a long day. We will be

leaving shortly to go to Duke, which is app. an hour and a half to two hour

drive. We have been making this trip quite regularly in the past few months. I

know some of your kids have had Remicade and are currently getting it.

Information from you all here has been very helpful in making the decision to go

to Remicade. Thanks for all the wonderful information and support you provide.

, Kaylee, 8, JA, Uveitis, ADHD, ODD

[Guest guest]

I hope it works fast!  Avery is on the Rolincacept and it took a little while

to start working.  Will she have to get the shots again?  I hope it didn't

hurt her too much.

Amy  mom to Avery 17 systemic

________________________________

From: Maydo65 <maydo65@...>

Sent: Wednesday, May 4, 2011 4:19 PM

Subject: Re: Kaylee update was Joint Injections and First Remicade

Infusion

 

Hi Amy!

I guess I need to post an update. Been at school taking final exams today and

studied last night so haven't posted an update.

So here goes: Kaylee had joint injections in her right knee and both ankles. The

right ankle had so much scar tissue the rheumy

had to make 2 insertions to get to the joint good. Other than that things went

good. The remicade infusion went great too. NO

problems and Kaylee was a real trooper; very brave and handled it all so well.

She was very strong and brave and I am so proud

of her. She didn't make it to school today as she was still tired. SHe slept

through most of the infusion; which took a little over

2 hours. She still can not play softball or dance until the rheumy says so. We

are hoping that will not be long.

All in all we had a great day!

, Kaylee

Joint Injections and First Remicade Infusion

Good Morning to everyone!

Today Kaylee is going to have joint injections in her ankles and possibly her

knees. She will also be getting her first Remicade infusion. We are hoping this

gets the JA and Uveitis under control quicker. She is nervous about the

Remicade, but I think she will be okay. She hates the Humira and having to do it

every week is really traumatizing. It is going to be a long day. We will be

leaving shortly to go to Duke, which is app. an hour and a half to two hour

drive. We have been making this trip quite regularly in the past few months. I

know some of your kids have had Remicade and are currently getting it.

Information from you all here has been very helpful in making the decision to go

to Remicade. Thanks for all the wonderful information and support you provide.

, Kaylee, 8, JA, Uveitis, ADHD, ODD