Guest guest Posted July 2, 2009 Report Share Posted July 2, 2009 So here is the newbie question- Do patients with PID need to be on any meds (like antibiotics) prior to dental appointment? I was just making the kids annual dental appointment (thanks for reminding me!) and realized we haven't been to the dentist since the Dx or starting IVIG. Anything out of the norm we need to do? Thanks! On Thu, Jul 2, 2009 at 11:28 AM, Amy <mom2lilnick@...> wrote: > > > Interestingly, Nick has perfect teeth.. that is about the only time I like > taking him to see a dr. lol He sees a ped. dentist that specializes in > special needs kids. We talked about his " poster child for good dentistry " > teeth since his siblings have horrible teeth. She felt it might be due to > all the antibotics he has been on and that it could be killing off the > bacteria in is mouth as well. > > Amy, mom to Nick 6.5 CVID. > Re: Dental > > --- > Do you find that CVID kids have more dental issues? Brennans(7) dentist has > asked me this more than once, if his medical issues could be contributing to > his dental health. He did have some sensory issues when he was littler and > had a lot of trouble finding a toothpaste he could stand in his mouth(mint > burns him) but I have always taken him to the dentist since he turned three, > regularly. I brush his teeth for him still and use mouthwash. But he has > already had several cavities, between his two front teeth has a really bad > cavity that cant even be bonded anymore so its just sitting there, causing a > giant gap until those two teeth fall out, and in late April, he had a > horrible tooth abcess, that required two different rounds of Clinda(two > weeks each), and now it looks like its starting to come back. I asked our ID > last time we saw him and while he did start him on abx for the abscess the > second time, he said he thought he just needed more " aggressive dental > care " , and that usually kids with dental problems from neutropenia have far > lower counts than his. > I dont know how much more " aggressive " I can be with a 7 yr old kid, as far > as taking care of his teeth. > His dentist and I have both noticed that his teeth just arent that > structurally sound. They look almost clear and they just arent strong at > all. > > valarie > mom to 3 w/cvid > > In <%40>, Ursula Holleman > <uahollem@...> wrote: > > > > > > Macey went to the dentist today and has 3 cavities. She will have 2 of > them filled and has been refered to an endodotist for the last one for a > root canal. > > > > I have emailed her immunologist to let her know what is going on. THe > last major dental work Macey had to have was when she was 4 or so and it was > in another city at a Dental school and she was put to sleep. > > > > > > Ursula Holleman > > > > mom to (16) and Macey (14) > > > > www.caringbridge.org/visit/maceyholleman > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2009 Report Share Posted July 2, 2009 Mark has a lot more plaque, our doc says it's common in PID kids. For dental visits, when Mark was on IVIG, we scheduled a cleaning within 7 days of a treatment. And we always premedicate. mom to Mark 8 CVID > > > > > > > > > Macey went to the dentist today and has 3 cavities. She will have 2 of > > them filled and has been refered to an endodotist for the last one for a > > root canal. > > > > > > I have emailed her immunologist to let her know what is going on. THe > > last major dental work Macey had to have was when she was 4 or so and it was > > in another city at a Dental school and she was put to sleep. > > > > > > > > > Ursula Holleman > > > > > > mom to (16) and Macey (14) > > > > > > www.caringbridge.org/visit/maceyholleman > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2009 Report Share Posted July 2, 2009 - our dentist always puts on antibiotics before cleanings and appointments for her braces. The dentist is the one who insisted on this- we did not even consult with our immunologist because we were happy with our dentist taking extra precautions-especially since always has mouth ulcers /canker sores. Hope this helps- wishing you all the best - Sue Petrelli mom to 17 yr old Krisitn w CVID > > > > > > Macey went to the dentist today and has 3 cavities. She will have 2 of > them filled and has been refered to an endodotist for the last one for a > root canal. > > > > I have emailed her immunologist to let her know what is going on. THe > last major dental work Macey had to have was when she was 4 or so and it was > in another city at a Dental school and she was put to sleep. > > > > > > Ursula Holleman > > > > mom to (16) and Macey (14) > > > > www.caringbridge. org/visit/ maceyholleman > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2011 Report Share Posted February 17, 2011 Yes, I'd be interested in this too. My dentist is providing me with samples to suck on for immediate sensitivity but I'd love to know the medium and longer term issues. Thanks, Jacqui > > Hello > > Does anyone know which dental chat groups are happening discussing various dentists and health problems /dental materials? > > I'm seeking info on dentists in CA or NM > thank you, > Amy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2011 Report Share Posted February 18, 2011 Check " non toxic dental associations " for referrals. There might be an association related to Dr. Huggins?and his work. There is a blood test which tells the dentist what materials are most compatible to be used in your mouth. Be careful with dentist who say they are non toxic, but don't follow correct procedure. God Bless, Sara > > > > Hello > > > > Does anyone know which dental chat groups are happening discussing various dentists and health problems /dental materials? > > > > I'm seeking info on dentists in CA or NM > > thank you, > > Amy > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2011 Report Share Posted June 6, 2011 I was using my 2 sponge unit yesterday for jawbone infection. This is an ongoing thing for me. Sinuses too. I had failed to use the device for quite a while so I really needed it. Anyhoo, I spent about 40 min. total doing jawbones and sinuses. Sponges were in front and behind the neck trading places every 10 min. The last few minutes I moved the sponge in front here and there over the whole face area including forehead. Then I began pressing it down and releasing it quickly several times. Soon I began to get a metallic taste. I had large mercury fillings for many years. So I am wondering if this could be driving some mercury out of tissue. Or maybe it is some copper from the wire?? Any ideas?? At any rate, the whole head area is lots better today so we can rack up one more successful use of this handy dandy device. I need to use it more often. But when I get to feeling real good I will get busy doing things and neglect it. But I never fail to check each email from this group. I never just delete it as I do for many. So thanks very much for continuing the group. It is truly a life saver. I tell people about it all the time. Thanks so much. pj Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2011 Report Share Posted June 6, 2011 hi, shirley metallic taste is not from mercury. It happens to people with no fillings at all. It is some sort of electro-stim effect. if concerned abt mercury take some dmsa,(not dmso) from health food stores. dmsa is what is used in hospitals for heavy metals poisoning, it will chelate mercury out, as well as lead, cadmium, etc. bG > > I was using my 2 sponge unit yesterday for jawbone infection. This is an ongoing thing for me. Sinuses too. I had failed to use the device for quite a while so I really needed it. Anyhoo, I spent about 40 min. total doing jawbones and sinuses. Sponges were in front and behind the neck trading places every 10 min. The last few minutes I moved the sponge in front here and there over the whole face area including forehead. Then I began pressing it down and releasing it quickly several times. Soon I began to get a metallic taste. I had large mercury fillings for many years. So I am wondering if this could be driving some mercury out of tissue. Or maybe it is some copper from the wire?? Any ideas?? At any rate, the whole head area is lots better today so we can rack up one more successful use of this handy dandy device. > I need to use it more often. But when I get to feeling real good I will get busy doing things and neglect it. But I never fail to check each email from this group. I never just delete it as I do for many. So thanks very much for continuing the group. It is truly a life saver. I tell people about it all the time. Thanks so much. pj > Quote Link to comment Share on other sites More sharing options...
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