Thanks

[Guest guest]

Try not to get discouraged. Even if the treatment

does not get rid of the virus for you, it IS having a

lasting improvement on your liver condition. It does help

slow the progression to end stage damage, and that is

even more important than anything else. <br><br>Hang

in there !! <br><br>LeighAnn

[Guest guest]

Vicki

You poor thing my heart goes out to you. Hang in there!! When is the cat

scan scheduled for and will you see your doctor before this? Vioxx has never

helped my husband with the joint pain but I know it has helped others a lot.

It is one of the more expensive drugs to get also we know that ourselves. My

husband was very weak like you and couldn't hardly move or breath or raise

his arms after 4 years and finally getting to the right doctor and found the

Hep C. It is a very scary thing to go through but we kept after it and found

the answer. I still think you need a new doctor or keep after this one like

you have. Make sure he has run the right tests for the Hep C you never know

this may be your problem and may not I hope not for your sake and what you

have can be treated once they get it nailed but if it is Hep C you need to

find out soon and get started on helping your liver. Keep us posted and

don't give up we all know what you are going through and know it is scary

very very scary. Keep us posted. You are in our thoughts and prayers that

you get an answer soon. Don't give up you can't with the symptoms you have.

Try to stay positive which I know is hard to do at this time.

Winne

[Guest guest]

Hi Vicki,

I take Vioxx, have been taking it for several

months, and I took Celebrex before that. The Vioxx

has never upset my stomach, and it does help with pain

in my joints and muscles. It works very well, in

fact, at least for that type of pain. And when I saw

my GI on Monday and he found out my rheumatologist had

prescribed it he told me he was GLAD I was on it. I

didn't think to ask him why though!

Claudine

__________________________________________________

[Guest guest]

Thank you , and everyone else, for listening. It helps to know someone

cares and understands.Thanks again, Beth

[Guest guest]

Thanks for the congrats! Glad you're coming to the picnic. It's a long ways to

travel for a hamburger. LOL. But we'll all have fun!

Flo

> ** Original Subject: RE: One Year Today

> ** Original Sender: Thanks for > ** Original Date: Fri, 01 Jun 2001 15:28:06

-0600

> ** Original Message follows...

>

> Congratulations Flo!!! What a wonderful accomplishment. I can't wait to meet

you at the picnic.

>

> Christy / California

> MGB 11-8-00

> 240/150/??

>

>

[Guest guest]

Hello,

Glad you were able to make it to the doctor. At least

now you know that everything is as it should be at

this stage. It sure is better to know than not to

know.

Let us know how things progress.

Michele

--- debs4@... wrote:

> Hi Kim &

>

> Thanks for your help re my last message. This was my

> first surgery

> and as you can tell I wasn't told very much on what

> to expect. I went

> to accident & emergency last night and they

> reassured me that

> everything was ok and that what I was experiencing

> was not out of the

> ordinary. The doctor I saw had been through this

> with her husband so

> she ws able to inform me of everything my surgeon

> should have.

>

> Thanks again

>

> Debbie

>

>

=====

Call 911, some sucker just stole our water!!!!!!

__________________________________________________

[Guest guest]

Well I hope you can make it to the Christmas banquet, think you may be able to?

aW

Thanks

Thank you to all who wrote to me with prayers for me and my poor

re-couperating hubby, Big Al.

We are doing well, healing slowly, but at least healing. He has a few ups but

mostly a bunch of downs of late, and it takes as much strength as I can muster

to keep him cheered, clean, feed and doctored !! That's why I must stay close to

home. Nobody can do what I do right now, nobody! (not even his Momma< shhhh!)

Instead of sending each and everyone of you a thanks, you all know who you

are, just know that your friendship and warmth is felt all the way to this tiny

town in Indiana!

Much love, I'll be with you in spirit at the picnic!!

Trudy ))

[Guest guest]

We'll just have to see a... I know I'll certainly try!

*smiles Trudy

Thanks

Thank you to all who wrote to me with prayers for me and my poor

re-couperating hubby, Big Al.

We are doing well, healing slowly, but at least healing. He has a few ups

but mostly a bunch of downs of late, and it takes as much strength as I can

muster to keep him cheered, clean, feed and doctored !! That's why I must stay

close to home. Nobody can do what I do right now, nobody! (not even his Momma<

shhhh!)

Instead of sending each and everyone of you a thanks, you all know who you

are, just know that your friendship and warmth is felt all the way to this tiny

town in Indiana!

Much love, I'll be with you in spirit at the picnic!!

Trudy ))

[Guest guest]

Trude, you are so welcome. Hey do you have a pre-op pic of

Jude. I would love to see it!

BethBNNosy

[Guest guest]

Trude,

It was my pleasure to send them to you! If you go to Dr. R's site you

can see all the pictures that I took.

Peggy )

[Guest guest]

Aww Geez, Trude. You're embarassing me! You sent the pics on to me, and I

downloaded them and now I can't get them open. Any suggestions anyone? PJ

[Guest guest]

Jude,

Could be cause they are quite large!!

I had a heck of a time sending them out.. If so I'm not the one to give you any

answers on bringing them up! LOL

Love to 'ya.

Trude

Re: THANKS

Aww Geez, Trude. You're embarassing me! You sent the pics on to me, and I

downloaded them and now I can't get them open. Any suggestions anyone? PJ

[Guest guest]

Beth,

I definately have a pre-op of Jude but let me ask her if it's okay that I send

it to you..... Not that she looks bad or anything.... God knows she only weighed

a little more than I do now!! LOL, but it is her and I respect her opinion on

whether or not she wants me sending it out. I am sure you understand.

*hugs,

Trude

Re: THANKS

Trude, you are so welcome. Hey do you have a pre-op pic of

Jude. I would love to see it!

BethBNNosy

[Guest guest]

The people who back away from you, and trust me

I've had my share!! Are simply ignorant in that they

aren't educated on the disease, my advice is to try to

do that, I have, I've given pamplets, articles from

these clubs, etc. I have found nothing but support.

Anyway it worked for me, you might think about it. I do

know how you feel though. It will get better. I know

your mind is going 90 to nothing as mine did when I

was diagnosed, but it really will get better, it will

just take some time, in the mean time we are all here

for you.<br>Debi

[Guest guest]

The people who back away from you, and trust me

I've had my share!! Are simply ignorant in that they

aren't educated on the disease, my advice is to try to

do that, I have, I've given pamplets, articles from

these clubs, etc. I have found nothing but support.

Anyway it worked for me, you might think about it. I do

know how you feel though. It will get better. I know

your mind is going 90 to nothing as mine did when I

was diagnosed, but it really will get better, it will

just take some time, in the mean time we are all here

for you.<br>Debi

[Guest guest]

Hi ,<br>Did you ask your bishop how he

thought you should handle it? After all, he knows the

people best. Maybe he could suggest a way to introduce

the situation. The pamphlets sound like a good idea.

Better then explaining it to a few houndred seperatly.

If you don't feel comfortable telling HCV, I just

tell people I'm not close to I have a liver disease &

leave it at that. Like what was said before. This

situation shows you who your true friends will be in this

church. Take advantage of it. In some strange way this

virus has helped me judge people in a whole different

light too. Hope this helps.<br>WE ARE here for you.

Good luck & God bless.<br>Reg

[Guest guest]

Hi ,<br>Did you ask your bishop how he

thought you should handle it? After all, he knows the

people best. Maybe he could suggest a way to introduce

the situation. The pamphlets sound like a good idea.

Better then explaining it to a few houndred seperatly.

If you don't feel comfortable telling HCV, I just

tell people I'm not close to I have a liver disease &

leave it at that. Like what was said before. This

situation shows you who your true friends will be in this

church. Take advantage of it. In some strange way this

virus has helped me judge people in a whole different

light too. Hope this helps.<br>WE ARE here for you.

Good luck & God bless.<br>Reg

[Guest guest]

Thanks for all the help, guys...I guess it is too good to be true, and at

$400 an hour I didn't want to take the chance. I am sensitive to even a lot

of the HB so was hoping for a short cut. Thanks

Kae

PS Turkey recipe sounds WONDERFUL!!

>

[Guest guest]

" " " " " I am sensitive to even a lot of the HB so was hoping for a short

cut. " " " " "

increase your sodium level

RE: thanks

Thanks for all the help, guys...I guess it is too good to be true, and at

$400 an hour I didn't want to take the chance. I am sensitive to even a

lot

of the HB so was hoping for a short cut. Thanks

Kae

PS Turkey recipe sounds WONDERFUL!!

>

[Guest guest]

Thanks for the info , I was supposed to go to Holland this year

before all this treatment stuff came up. I have a friend who lives in

Delft (I think that's right). You're lucky to live there. Maybe next

year or the year after, I'll make it there. It's good to know I need a

medical passport if I do travel this year though, I didn't know that.

Hugggggs

Carol

willem landstra wrote:

> Hi.Regarding travelling with medication.The interferon has to be

> cooled.You can use a thermo-bottle.From yr farmacist you can get a

> international medecal pasport in which the interferon and other med.

> are listed.Otherwise you might have a problem,especially in the US

> where they are so hang up about drugs.(which is good because in

> holland you can buy anything around the corner).If you come to holland

> get this pasport because control on schiphol is very strict now.If you

> are here call me,Amsterdam 6680020.Have a nice trip..

> Re: side effects combo

>

>

> How absolutely true this is Alley.....well-said! And yes, we still

> try

> no matter how hard it gets. I was wondering if we were allowed to

> travel on airlines with interferon, but I guess you answered my

> question. I was picturing the interferon getting zapped with x-ray

> machines and making it " radioactive " . lol.

>

> Connie, you are right too, Cher and I came on this forum around the

> same

> time, here she is almost done and I'm just getting started :-( Her

>

> time seem to go by fast for me though lol.

>

> Huggggs

> Carol

>

> wrote:

>

> > said <<The first thing my Doc told me to go on with my

> life

> > as

> > before and put this illness second not first in yr life and that

> my

> > friends

> > is difficult>>

> >

> > Boy howdy ain't it tho!

> >

> > That is pretty much what I've done with my hep and melanoma

> treatment.

> > I

> > think I'd go crazy, having too much of my waking time worrying

> about

> > it, so

> > I dropped a LOT of email lists and forums on both problems and

> just

> > kept a

> > few.

> >

> > When I told my oncologist I want to travel to Holland this summer

> and

> > is

> > there a problem carrying my meds with me, he says no we encourage

> > patients

> > to live a full life. Course, that's if you have the ENERGY to do

> it.

> > I am

> > waiting to see what the increased dosage of interfern will do to

> me

> > before I

> > make those flight reservations, ya know?

> >

> > It's difficult to live a " full " life when we are not " full of "

> life.

> > But we

> > keep trying

> >

> > alley

> >

> >

> >

[Guest guest]

What is a medical passport and why do you need it? Is it somethig I will

need?

alley

[Guest guest]

thanks

Dear Dayu,

I feel so much better and centered today and rested. I was able to use some of

the techniques with an existing client today......you are very good, I'm honored

to know you and call you my teacher.

My TESTIMONIAL

" I participated in Dayu's workshop on Muscle Test for Success on the week end,

it was a Godsent to me. I have cleared birth issues that have stifled my growth

forever it seems. I also cleared many issues of the past. I now FEEL ready to

move forward in my life, with ease and confidence.

Dayu is a wonderful teacher, what I like most about her is her huge HEART and

her generosity to share her tools and skills. Whatever the person needs, Dayu is

committed to supporting that process all the way.

I am also blessed to have learned so much more about Energy Therapies. Dayu

draws from her many years of studies, accumulating a wealth of knowledge from

various sources. What makes her work powerful is that she adds Spirituality in

her practices.

I have been blessed to have trained with Dayu and to have her as a teacher and

friend. I can't wait for the next course.

With much gratitude, Suzanne Proulx, Toronto "

[Guest guest]

Thanks

> Thanks Phil. I am not sure which procedures I had. When I had my

> first surgery he said the c-toma was very large and the inner ear

> bones were grown to my skull and he rebuilt them from my cartilage.

> The second surgery he said he took the wall down. I thought he just

> meant that he had scraped the canal wall down. He never told me I

> couldn't swim or wear an ear plug even when I told him it made me

> nautious and dizzy to go under water. I was going every six months

> to get it cleaned and the last time I went he said we would wait 2

> years and then he retired last spring. When I asked him how I would

> know if it came back his answer was just " It won't " . I will be

> seeing a new ENT on Wednesday. I have tons of questions after

> reading posts on the message boards. I wish I had found this

> before : ) Thanks again! Angie

>

[Guest guest]

Hello again Angie

The dizziness would be caused by the coldness of the water affecting the labyrinth: the water itself is bad news because it makes infection more likely. The research suggests that infected or inflamed ears activate certain c-toma cells which produce bone destroying enzymes. It sounds as if you don't have an intact eardrum and that plus the regular ear cleanings are certainly features of Canal Wall Down Mastoidectomy. Clearly the recurrence rates are much lower after a CWD (10 or 20% perhaps) - not non-existent. Perhaps the doctor thought that it genuinely wouldn't recur in your case or maybe he was just doing a some 'psychological management' on you - so you wouldn't worry about it!

Phil

> Thanks Phil. I am not sure which procedures I had. When I had my > first surgery he said the c-toma was very large and the inner ear > bones were grown to my skull and he rebuilt them from my cartilage. > The second surgery he said he took the wall down. I thought he just > meant that he had scraped the canal wall down. He never told me I > couldn't swim or wear an ear plug even when I told him it made me > nautious and dizzy to go under water. I was going every six months > to get it cleaned and the last time I went he said we would wait 2 > years and then he retired last spring. When I asked him how I would > know if it came back his answer was just "It won't". I will be > seeing a new ENT on Wednesday. I have tons of questions after > reading posts on the message boards. I wish I had found this > before : ) Thanks again! Angie>

[Guest guest]

Its nice to someone who knows much more then me..I do know I have

geno-type 1a. And I would love some help to find a good doctor I live

in Texas around the Austin area.Its nice to know someone knows how

you feel.And after hearing from everyone I do think I will go ahead

with the biospy as soon as I find a good Doctor. Thanks for all the

help and God Bless

Jana