Guest guest Posted January 22, 2006 Report Share Posted January 22, 2006 > > Congratulation April! You are starting a wonderful journey! I was > implanted in Knoxville, TN on 08/30/05 and activated three weeks later. Had to be at > the hospital by 6 a.m., surgery was at 8 a.m. and I was home by 4:30 p.m. > You don't need to be admitted a week early but you might need to have blood > work, etc. done ahead of time. > > Where in TN do you live? > > > Laurie in TN > Born with Severe/Profound hearing loss > Implanted with Freedom 08/30/05 > Activated 09/20/2005 > _http://lauriescidance.blogspot.com_ (http://lauriescidance.blogspot.com/) > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 Dear Irv, congrats on the birth of your little grandchild! hugs! Hugs c. Knight Deafblind since infancy, Reading e-mail via JAWS (screenreader), Bilateral C I, CII implant 03-11-02, activation-4-8-02 HiRes. 90K implant, 11-29-04, Activation (Auria) 2-8-05 with my special guide dog charcoal, and my heart, Precious Art Nolden Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2006 Report Share Posted April 13, 2006 Let me know how you like the muscle milk. I haven't tried that yet. I will have to investigate where I have to go to buy that. Hope you like the unjury I'd be curious to know how it goes for you. I'm on an unflavored kick right now with frozen strawberries and vanilla yogurt. And 8oz of milk. If you can do the bike successfully without pain to your knee or back. Go for it. Even if you have to start with only 5 or 10 mins and work up from there. Hopefully by summer you'll be back into those clothes. Keep the faith and keep in touch. Blessings Cheri -- Depressed > > Today was not a good day. I hardly ever post but need to today. I > just had to buy a size larger in clothing for summer. I had given all > my larger clothes away. > > I was reconciled to the fact that I wouldn't lose all the weight I > wanted to but I was hoping I wouldn't regain. I had my MGB in 2000 > and then a redo in 2002. After the first one I lost down from 270 to > about 195 and then regained to 225. After the second MGB I didn't > lose anything for four months and then finally lost down to settle at > about 182. I stayed this weight until about 3 months ago. All of a > sudden I am up to 194. I haven't changed the way or amount I eat or > anything else. The weight just jumped on. I feel like crying. > > I really don't understand why weight is coming back on when I haven't > changed anything I'm doing. As you all know the thought I regaining > the weight is the most frightening thing I can think of. After the > first MGB I could tell I could eat more after awhile. Now I still > can't eat that much and eat mostly healthy. > > I guess from the posts I need to try to get in more protein. What > kind of drinks do you recommend? I can't drink milk or eat eggs any > more. I can't eat that much meat and usually only chicken or fish. I > guess the best thing would be some kind of protein drink. Any ideas > would be much appreciated. > > Thanks. > Gould > MGB 9/00 & 5/02 Dr. R > > 270/182/194 > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2006 Report Share Posted May 31, 2006 I just sent off a post and forgot to add the most important bit: This group has been a big help to me in recent months and I wanted to say thanks. It's especially comforting to be a part of, as NZ is a small country and I haven't come across anyone with one of the spondy diseases so far! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2006 Report Share Posted June 25, 2006 Becky, I eat salad frequently. I like the munchies other stuff better than the lettuce. When I am out, I am extra careful with salad as it is one item that I have to actually shred to eat or may have sticking problem. Plus, can't eat much due to space problems. I eat chicken at home, but have problems with it when eating out. I can eat a bit of cooked mushrooms at home...again, it's one of those things I have trouble with when eating out. Who knows why? Work with finding out what you are comfortable eating. A good variety is best. Bet you can figure it out with plenty of choices that work for you. Kathy R. in Walla Walla 278/257/178/135 10/13/2005 --- shoeofglas@... wrote: //people say bandsters shouldn't eat > salad, //Now I don't dare eat a salad in public because > someone else may be > offended or upset. Great one more thing to add to > my anxiety disorder and make me > even more guilt ridden, possibly driving me back to > the weight gaining drugs! // > Becky in Tacoma > 21March2006 > 287/247/140 __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2006 Report Share Posted October 6, 2006 Hi Margie, I had my Hip replacement six years ago and my leg from the knee down is still sore and it feels numb and I have Arthritis in both my feet and they feel like two blocks I have feeling on the bottom of my feet so thats good I guess at least I feel something if I step on something I wear slip on House slippers in the house I also had my Knee replace at least I can bend it but I don't know what making my leg feeling numb my Hip or my knee operations I had both on my right side .Well I hope your hand feels better my hand goes numb if I'm holding the phone too long they I have to shake it , I also went to a second dr he told me to go back to the dr that did the operations on me He told me I have bad scar tissues and Bursitis in my new hip .Well you take care and have a nice day :-) SusieMargie <marga132003@...> wrote: I want to thank everyone who responded to my message. I spoke to the physical therapist and he said the numb fingers may be due to the fact that I am favoring that side, supposedly my good one. He gave me some suggestions to help and I'll try them. I've tried contacting a few people but everyone seems to be so busy, as I usually am, that it's difficult for them to call. I left a message at the doc's office today. Don't you know they wouldn't have office hours today so I have to see how that goes. I guess I'm just expecting too much from myself and I have to allow myself time to heal. The PT said to remember you have a broken bone and it takes 8-9 weeks to heal. Do your exercises and take it easy on yourself. You'll heal in your own time. I guess I just have to listen to his advise. Again, Thanks to all, Margie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2006 Report Share Posted October 6, 2006 Susie, Consider going to a chiropractor for the numbness. Sherry Re: Thanks Hi Margie, I had my Hip replacement six years ago and my leg from the knee down is still sore and it feels numb and I have Arthritis in both my feet and they feel like two blocks I have feeling on the bottom of my feet so thats good I guess at least I feel something if I step on something I wear slip on House slippers in the house I also had my Knee replace at least I can bend it but I don't know what making my leg feeling numb my Hip or my knee operations I had both on my right side .Well I hope your hand feels better my hand goes numb if I'm holding the phone too long they I have to shake it , I also went to a second dr he told me to go back to the dr that did the operations on me He told me I have bad scar tissues and Bursitis in my new hip .Well you take care and have a nice day :-) SusieMargie <marga132003 > wrote: I want to thank everyone who responded to my message. I spoke to the physical therapist and he said the numb fingers may be due to the fact that I am favoring that side, supposedly my good one. He gave me some suggestions to help and I'll try them. I've tried contacting a few people but everyone seems to be so busy, as I usually am, that it's difficult for them to call. I left a message at the doc's office today. Don't you know they wouldn't have office hours today so I have to see how that goes. I guess I'm just expecting too much from myself and I have to allow myself time to heal. The PT said to remember you have a broken bone and it takes 8-9 weeks to heal. Do your exercises and take it easy on yourself. You'll heal in your own time. I guess I just have to listen to his advise. Again, Thanks to all, Margie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2006 Report Share Posted October 6, 2006 Hi Sherry, Both my drs I have, never sent me to one or said anything and I told them about how my leg feels ;-) Well you take care :-) Susie"S.A.M." <blueopal@...> wrote: Susie, Consider going to a chiropractor for the numbness. Sherry Re: Thanks Hi Margie, I had my Hip replacement six years ago and my leg from the knee down is still sore and it feels numb and I have Arthritis in both my feet and they feel like two blocks I have feeling on the bottom of my feet so thats good I guess at least I feel something if I step on something I wear slip on House slippers in the house I also had my Knee replace at least I can bend it but I don't know what making my leg feeling numb my Hip or my knee operations I had both on my right side .Well I hope your hand feels better my hand goes numb if I'm holding the phone too long they I have to shake it , I also went to a second dr he told me to go back to the dr that did the operations on me He told me I have bad scar tissues and Bursitis in my new hip .Well you take care and have a nice day :-) SusieMargie <marga132003 > wrote: I want to thank everyone who responded to my message. I spoke to the physical therapist and he said the numb fingers may be due to the fact that I am favoring that side, supposedly my good one. He gave me some suggestions to help and I'll try them. I've tried contacting a few people but everyone seems to be so busy, as I usually am, that it's difficult for them to call. I left a message at the doc's office today. Don't you know they wouldn't have office hours today so I have to see how that goes. I guess I'm just expecting too much from myself and I have to allow myself time to heal. The PT said to remember you have a broken bone and it takes 8-9 weeks to heal. Do your exercises and take it easy on yourself. You'll heal in your own time. I guess I just have to listen to his advise. Again, Thanks to all, Margie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2006 Report Share Posted October 6, 2006 Doctors dislike chiropractors Susie. You have to go on your own. Sherry Re: Thanks Hi Margie, I had my Hip replacement six years ago and my leg from the knee down is still sore and it feels numb and I have Arthritis in both my feet and they feel like two blocks I have feeling on the bottom of my feet so thats good I guess at least I feel something if I step on something I wear slip on House slippers in the house I also had my Knee replace at least I can bend it but I don't know what making my leg feeling numb my Hip or my knee operations I had both on my right side .Well I hope your hand feels better my hand goes numb if I'm holding the phone too long they I have to shake it , I also went to a second dr he told me to go back to the dr that did the operations on me He told me I have bad scar tissues and Bursitis in my new hip .Well you take care and have a nice day :-) SusieMargie <marga132003 > wrote: I want to thank everyone who responded to my message. I spoke to the physical therapist and he said the numb fingers may be due to the fact that I am favoring that side, supposedly my good one. He gave me some suggestions to help and I'll try them. I've tried contacting a few people but everyone seems to be so busy, as I usually am, that it's difficult for them to call. I left a message at the doc's office today. Don't you know they wouldn't have office hours today so I have to see how that goes. I guess I'm just expecting too much from myself and I have to allow myself time to heal. The PT said to remember you have a broken bone and it takes 8-9 weeks to heal. Do your exercises and take it easy on yourself. You'll heal in your own time. I guess I just have to listen to his advise. Again, Thanks to all, Margie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2006 Report Share Posted October 7, 2006 Hi Sherry, I think your right :-) Susie"S.A.M." <blueopal@...> wrote: Doctors dislike chiropractors Susie. You have to go on your own. Sherry Re: Thanks Hi Margie, I had my Hip replacement six years ago and my leg from the knee down is still sore and it feels numb and I have Arthritis in both my feet and they feel like two blocks I have feeling on the bottom of my feet so thats good I guess at least I feel something if I step on something I wear slip on House slippers in the house I also had my Knee replace at least I can bend it but I don't know what making my leg feeling numb my Hip or my knee operations I had both on my right side .Well I hope your hand feels better my hand goes numb if I'm holding the phone too long they I have to shake it , I also went to a second dr he told me to go back to the dr that did the operations on me He told me I have bad scar tissues and Bursitis in my new hip .Well you take care and have a nice day :-) SusieMargie <marga132003 > wrote: I want to thank everyone who responded to my message. I spoke to the physical therapist and he said the numb fingers may be due to the fact that I am favoring that side, supposedly my good one. He gave me some suggestions to help and I'll try them. I've tried contacting a few people but everyone seems to be so busy, as I usually am, that it's difficult for them to call. I left a message at the doc's office today. Don't you know they wouldn't have office hours today so I have to see how that goes. I guess I'm just expecting too much from myself and I have to allow myself time to heal. The PT said to remember you have a broken bone and it takes 8-9 weeks to heal. Do your exercises and take it easy on yourself. You'll heal in your own time. I guess I just have to listen to his advise. Again, Thanks to all, Margie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2006 Report Share Posted October 25, 2006 , You are welcome. When I lived in Portland, I did this a lot, saving what juice was left for crossing streets. This is harder tho if one has no usable vision left. I could do it and turn on the CI when the light was green, thus could listen for sirens before actually crossing. Other times I would just work the CI until I could find a good place to stop and change the batteries. The longer you leave the CI off before turning it back on, the longer it stays on...to a point. LOL *---* *---* *---* *---* *---* It is far more impressive when others discover your good qualities without your help. --Judith S. & Dreamer Doll (Guide Dawggie) Newport, Oregon N24C 3G 8/2000 Hookup rclark0276@... http://webpages.charter.net/dog_guide/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2006 Report Share Posted October 30, 2006 Hi If you haven't check it out yet, there are two Chapters of the Scoliosis Association in Canada. I lead the one for BC and the other Chapter is in Ontario, if you are wanting additional Canadian support and information. You can contact me privately for the Chapter information (mad.monk@... or the BC's e-mail scoliosisassn.bc@...). Llweyn From: [mailto: ] On Behalf Of C MSent: October 30, 2006 4:59 PM Subject: thanks Hi - thanks for the responses! I think part of the reason they are skipping the osteonomy at this point is several fold - first of all, I didn't have traditional Harrington rods, but CD isntrumentation - the rods were bent to align my spine, therefore, I don't have the traditionally viewed, visible "flat" back - I am off with my sagital balance, but the features aren't as visible. and it isn't typically associated with those newer procedures. Rather, it has come from having large curves fused at a young age, and the result of a large fusion. Second, it was my age - I'm 31, and I had severe scoliosis correction at 13. The thought is that if they do the full osteonomy now, it wouldn't leave much options for down the road. How will I be at 50? He believes that they can get enough correction by doing a decompression to alieviate the symptoms at this point. Too - I'm in Canada - we don't have as much opportunity to go from specialist to specialist with our medical system. I know he's a top notch surgeon, but it's hard to move around. Thanks for the thoughts though, and I appreciate the comments! I think the thing that scares me the most is the complications - I've had a transfusion and infection, but the anasthesiologist mentioned about blindness and breathing complications as well with prone procedures. That's scary. Thanks again, and I enjoy hearing from you! Chris Experience Live Search from your PC or mobile device today. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2007 Report Share Posted February 3, 2007 Deb I'm kicking around several places, one of them is a place called ana's and then Chitica, that one seems to be pretty good, it is the furthers out, but not that far out, but it is quiet and I think that is important to for when you need the rest. Her nursing staff is supposed to be grade a, and her and her husband are just super from what everone says. So far it looks like that will be the place. FL RNY 10 Jan 07 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2007 Report Share Posted February 9, 2007 Bill, Thanks for coming on board. Very nice to find out about the remedies. I can use them more when I understand them better. I'll be seeing you/meeting you SAt-Sun in LA. thanks for the seminar as well. With appreciation and joy, Dr. Cary Birch, PhD, Homeopathy, Quantum Biofeedback, EFT, NES. ~SMILE~ Stress Management Institute for Living Empowered 661 942-4220 www.eftsmile.com Your Peace is Our Product Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2007 Report Share Posted February 21, 2007 thank you for your attentive attendance!, bc Re: Thanks Bill,Thanks for coming on board. Very nice to find out about the remedies. Ican use them more when I understand them better. I'll be seeingyou/meeting you SAt-Sun in LA. thanks for the seminar as well.With appreciation and joy,Dr. Cary Birch, PhD, Homeopathy, Quantum Biofeedback, EFT, NES.~SMILE~ Stress Management Institute for Living Empowered 661 942-4220 www.eftsmile.com Your Peace is Our Product Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2007 Report Share Posted February 28, 2007 Bettie, I have been told by experts that pentostatin is less damaging to the T cells even it is in the same family as Fluradabine, it has been given to me as an option to consider now that my marrow is heavily infiltrated. Dr. Byrd has written a paper on Blood magazine with good results, I have not seen the paper so I can't comment on that. regards chonette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2007 Report Share Posted February 28, 2007 > > Thanks to all who gave information on my question about shrinking nodes. Special thanks to Dr. Furman. > > My regimen of FCR was not difficult at all - no hair loss, not much difference in how I felt (except that I gained some weight because of the Dexadron - steroid - given with the FCR. I had to have extra because I get hives from Rituxan. I also had some problem with low blood pressure so was taken off my blood pressure medicine during treatment). From the little I have heard of Pentostatin, I would probably opt for that if given the choice. My white blood counts remain fairly low, but I have not had any infections and have not had to limit activities. I do use Purell on my hands regularly and wipe things down with alcohol wipes. I achieved complete remission from the regimen - going on a year and a half so far. Maybe this will be of some help to Jean. > > Bettie Jane Thank you Bettie Jane for sharing your experience and good advice about alcohol wipes. I do use them myself. Best to you. Jean > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2007 Report Share Posted March 21, 2007 Alyce, glad to hear things are looking better for you and Candyce. When I had an unfill he took it from 2.7 to 2.3 and it did wonders. That is where I am at now and I still don't think I need another fill although I am not losing weight as fast as I would like. That could be because I am not getting enough exercise. Keep us posted. Candyce s <puglover_44@...> wrote: Thanks to all of you, we're back and Candyce looks and is doing fine. The radiologis withdrew .4 and I hope she will have restriction, which we will not know for a couple of days. She will be on liquids for awhile. She was so dry, her lips eyes, and she said she dreamed of drinking water and said she would never take water for granted again. Everytime we go to the radiologist it is a new one, but they have all done a great job. The fill doc went out of town on emergency, which got me thinking if maybe in an emergency I wonder if our local radiologist would take an order from another Dr. in another town. I did ask the one who gave her the unfill and he said he would take orders from an out of town doc. We could of saved ourselves a long trip, anyway it is too late and everything is good. Alyce __________________________________________________________ TV dinner still cooling? Check out " Tonight's Picks " on TV. http://tv./ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2007 Report Share Posted March 22, 2007 Alyce and Candyce - Great news! Glad all is well now! It's wise to think ahead and plan for possible problems. Do call the local radiologist and ask if he would be willing to do an unfill if it's needed. He/she will NOT be band-trained at all, but with a fluoro, ANY good radiologist can get a needle into a port and withdraw the saline in an urgent situation. They are familiar with these same ports with the chemo patients most treat. THis is the ONLY time, imo, a person NOT well-trained with the Band ever should be near our bands! Never alllow an ER doc or nurse to mess with our bands, or ANY un- band-trained person. SAndy r > > Thanks to all of you, we're back and Candyce looks and is doing fine. The radiologis withdrew .4 and I hope she will have restriction, which we will not know for a couple of days. She will be on liquids for awhile. She was so dry, her lips eyes, and she said she dreamed of drinking water and said she would never take water for granted again. Everytime we go to the radiologist it is a new one, but they have all done a great job. The fill doc went out of town on emergency, which got me thinking if maybe in an emergency I wonder if our local radiologist would take an order from another Dr. in another town. I did ask the one who gave her the unfill and he said he would take orders from an out of town doc. We could of saved ourselves a long trip, anyway it is too late and everything is good. Alyce > > > > ______________________________________________________________________ ______________ > TV dinner still cooling? > Check out " Tonight's Picks " on TV. > http://tv./ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2007 Report Share Posted May 29, 2007 > > Dear Sir/Mam, > > Thank you very much for offering this service.It has really helped.Kindly > include me in the list for sending similar messages in future. > > Regards]S V G Menon] > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2007 Report Share Posted June 13, 2007 Dear JacKie and Anne, Thanks for tips on diabetic shoes and healing oils for diabetic neuropathy. (moderator edited to cut out digest tagging along) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2007 Report Share Posted June 22, 2007 Anupama Good intentions are alaways appreciated. Do search and post. I look forward to it. Vijay > > Hi Chetna madam, Dr Vijay, > Thanks for moderating such a nice discussion.I am still searching for the survey reports on ethics committees. I will post them on netrum soon. > Anupama. > > > > --------------------------------- > Here's a new way to find what you're looking for - Answers > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2007 Report Share Posted July 23, 2007 hi karin your liver is probably not able to oxidize your endogenous etoh due to previous injury you describe thus defaulting to more EtG...despite what your doctors are telling you liver never returns completely to normal after massive tylenol OD..your drugs are liver drugs making your underlying situation worse further inhibiting normal endogenous etoh oxidative metabolism increasing upregulating EtG...%CDT test might be an option see posts on this site but you have an uphill battle with your regulators and the board who would probably not be willing to accept %CDT as valid even though unlike EtG it is federally approved...a break to keep your recovery first certainly would simplify things...all the best,regards,Karin <k_n_perez@...> wrote: thanks for the responses. i am in san jose and my DEC was in Emeryville. My case was transferred from diversion in march of 2006. my suspension started in jan of this year. i did go into complete liver failure in january because of an OD of tylenol. i was in the ICU for 6 days receiving mucomist IV. my doctors say that my liver is back to normal. the only meds i take are wellbutrin and depakote. i have a cardiac history so many of the mood stabilizers are out for me. my doctor doesn't know anything about the etg but said she would look into it. since i have good insurance, do you think i should go to my lab every day and have them test me through blood and urine? would that help our case? i have never been a drinker, opiates were my drug of choice so if i was going to relapse, even if it started with alcohol, it would be the opiates and i have never had a positive test other than the etg. my recovery is strong now and i am married to one of us with 4 years. i just dont want this controlling my life and putting my marraige in jepoardy by not knowing what comes next. if i surrender atleast i know what the future holds. the paperwork i got said i can reapply for my NCLEX in two years. maybe by then something will be worked out with the etg. i am happy to help in any way possible. i am currently on disability for a back injury so i have time on my hands if you need anything done.thanks again...i always think about "courage to change the thing i can"karin/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2007 Report Share Posted September 13, 2007 think in positive... you will really love ittoty s <totty_1346@...> wrote: hello i like your group Don't let your dream ride pass you by. Make it a reality with Autos. Got a little couch potato? Check out fun summer activities for kids. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2007 Report Share Posted September 14, 2007 > > hello i like your group > > --------------------------------- > Don't let your dream ride pass you by. Make it a reality with Autos. > hello i also like Quote Link to comment Share on other sites More sharing options...
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