Guest guest Posted October 28, 2001 Report Share Posted October 28, 2001 Hello ers, Someone recently asked about going to the hospital as this was a first for them. While reading " How to Survive in Today's Medical System - The Patients' Book " , I came across a very good section on this topic (remember I am in the U.S. so this is about that). Subjects about going to the hospital include: 1) preparing for the hospital (includes talking with the surgeon AND anesthesiologist 2) choosing the hospital 3) What hospitals are like 4) what you will need and what you won't 5) about your room 6) surgery, intensive care, 7) taking care of yourself-making notes, bathing, questioning Drs, keeping your wits, 8) going home Plus more! This has much too much more info to go into here. I DO recommend this book for the above, butt mainly because of the advocacy and self care it teaches (the authors both have chronic kidney illness). I learned a lot about how they live and some things I can use in my own life. Well worth $12.00 and a few night's reading. Available from http://www.amazon.com I am going to contact the authors and inquire about reprints on the 'hospital stay' section. They are connected with Colorado HealthNet http://www.coloradohealthnet.org I also asked if some CMT info. could be listed, as other illnesses are, as all I could find was one year old forum post with incorrect information! ~ Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2009 Report Share Posted September 22, 2009 MJ, you are in my prayers! Fight hard, girlfriend!! ~a ________________________________ From: MJ Purk <TWEETYROLL88@...> smasupportgooglegroups; npventsupport ; Sent: Monday, September 21, 2009 5:13:23 PM Subject: Going to the Hospital well, we've made the decision to go to the hospital tonight. It isn't what anyone wanted to do but my body is overtired and needs IV antibiotics. I'm being admitted to Nationwide Children's Hospital in Columbus Ohio. I don't know what floor I'll be on or for how long. We'll try to keep everyone updated...If possible, please don't call us (we are taking both cells and my laptop) until we are settled in. Please continue your good thoughts and prayers. MJ Purk SMA type I+, 21 years old " You must not let your life run in the ordinary way; do something that nobody else has done, something that will dazzle the world. Show that God's creative principle works in you. " ~ Paramahansa Yogananda Ask me about B4SMA – Blankets for SMA kids, Our-SMA-Angels websites, and Personalized Merchandise! www.our-sma- angels.com/ b4sma - B4SMA, My organization www.our-sma- angels.com/ Margaret - My website www.cafepress. com/b4sma - My Shop Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2009 Report Share Posted September 23, 2009 Ughh! You were doing so well! Hope you feel better soon!!! Lori ________________________________ From: althegrrl <alrt@...> Sent: Tuesday, September 22, 2009 1:22:41 PM Subject: Re: Going to the Hospital Hope all goes well, MJ. I just started my own course of IV antibiotics on Friday. Not fun. Don't let them stab you too much. Alana Quote Link to comment Share on other sites More sharing options...
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