Welcome Jo

[Guest guest]

Welcome, Jo;

I'm glad you have taken the time to read the old posts, I wish I had

when I joined. I read many but not all, and unfortunately went into

areas where we are not to go. I sure am sorry to hear about your

pain, but if there is one thing we all share it's our familiarity with

pain in all it's hideous dimensions. It sounds like your Doctors are

capable, and understand the CMT disease, that is something many of us

have problems with. Just remember we are here, to share the pain, to

listen, even to share tears, or laughter, sort of an extended family.

We try to help one another like the group " sister " who is struggling

with getting her SSI, we all look for answers to try and help her, or

anyone with a CMT related problem.

I hope you can find something for the pain, again we are a good

resource on what works and what doesn't, (for us individually anyway)

all you need do is ask.

Again Welcome, and I pray your pain is taken from you, and is

replaced by tranquility..

Dave

> Hi

> I'm new to the group I have been reading all the group messages

for the last 3 weeks it is nice to know that I am not the only one

out their. I aim lucking enough to be in Az for the winter I aim

staying at sunflower resort in Surprise Az.

> My story of cmt is a nightmare like so many more of you I'm 56

made fun of all my life because of the way I walked. Dig. about 6yr

ago after many Dr's biopsy that showed I have onion bulb formation

blood test not show anything and 6 emg test that showed a lot. I do

believe I have parallel and pressure point neuropathy. Thank you for

listening I have been a wake since 4:30 am with pain.

> Jo

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