Guest guest Posted January 17, 2002 Report Share Posted January 17, 2002 Hello all, It has been quite awhile since I posted, but I am back. I appreciate all of the information and support I get from this group. My daughter has cmt type 1a as do I. She was diagnosed at the age of 4 and is doing very well. She is now 11, wears AFOs everyday and is very happy. Any concerns I had about an early diagnosis have all been put to rest. She will not have all of the compression fractures in her back because her AFOs keep her foot from droping and keep from falling. Neurontin is the most wonderful drug that I curently take. I also take Vioxx because of arthitis, but neurontin has help me with the nerve pain and my dreams are pretty good also. If anybody has any other question about what I have said or just want to talk about a young diagnosis feel free to contact me at fan_of_45_2002@... Dawn Quote Link to comment Share on other sites More sharing options...
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