Kara - and DIAGNOSIS AT YOUNG AGE

[Guest guest]

Kara, a neurologist told me when I was 27 I would be in a wheelchair by

the time I was 30. I am not 'there' yet and almost 50! (yikes!) I

worried my whole life growing up with CMT that I would be confined to a

wc. Hasn't happened. So, I know as parents you are concerned, but Drs.

miss the mark sometimes. And worry is stressfull for you and as my

mother did with me, projected that onto me. Fortunately, I got over the

worry myself, with the real help of my 12 step program and the help of

great Drs. who said " You are writing your own life story with CMT. Do

not let anyone predict or tell you what will happen. No one who offers

that wisdom can be considered an expert, YOU are the expert about you! "

Get Paolo's book, read it, and find out what can be done in

Rehabilitation Management. Give a book to your Dr. and PTs.

~ Gretchen

Kara Brisendine wrote:

> > I am as scared as you are that my daughter will be in a wheel chair by the

time she is 10