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Alisha/Awareness!

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Oh Alisha, my heart aches for you. If it is any consolation, I had some

of the same troubles and with the pain issue tried several before I

found THE ONE! Of course my feet still burn but I learned ice is their

friend LOL It took me years to realize Sleep was my friend too for the

fatigue issue, even short naps, not necessarily long periods.

I think your idea of showing that video for an assembly is terrific! I

have seen it and it gets right to the heart of what CMT is and what we

live with. You go girl! How 'bout I send you a Fact Sheet, and you can

make copies and hand out so everyone has something to read about it

'later'? Want some for CMT ribbons for this too? This idea of

yours is GREAT - for those of you in school, why not?

If I may offer one small suggestion try not to lash out at others. They

just need to be 'educated' and you and your friend can do this! They

also might be 'fearful' CMT can happen to them. Great Awareness idea! DO

IT! ~ Gretchen:)

Alisha Peckham wrote:

>I have this 17 minute video from

> CMTInternational, I was thinking about having an assembly and having the

> video played and explain to my entire school what's wrong with me, etc then

> have my friend come also and do a bit on CMT and her life.

> Sometimes I lash back out at them

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