Re: Re:using AFOs

[Guest guest]

Please do go get them and don't be like my son. He is

fitted for them, has them and WONT wear them. I

personally think this is foolish. It keeps him from

falling.

I thought I didn't or wouldn't have any problems with

CMT as I was past 50. Well I was VERY WRONG!!!.

About 2 months ago I started showing strong symptoms,

that were being diagnosed as something else. I went

home and thought it over, did some research here on

the computer and guess what?! I do have it and it is

progressing fast.

I had not fallen since I had ankle surgery in 1987 or

so and started it all over again. I can barely make it

up the 3 steps (steep ones) without holding on to the

rails and pulling myself up them. My waddle had

become worse, my knees are shot and my hands are

" going west when I am headed south " . I went back to

my doctor and told him about the CMT in my family. He

almost hit the roof, apologized for not making a note

in my file and misdiagnosing me.

I now have a tri-pod walker, because the cane didn't

keep me from falling. The next step I suppose is

AFO's when the time comes. I will wear them and my

purple ribbons, (which I have duplicated and made one

for every outfit I have) If you need AFO's WEAR them!

The consequences are worse than the embarrassment of

not wearing them.

OK I am off my soap box. God Bless you and keep you

from harm.

Susie

I am considering> ....and know I will

> go...at least to get fitted ....sooner THAN

> later....and then I will

> go from there. I know with time I will find the

> strength to

> sincerely say " to hell with what other people

> think " ....I am getting

> there.....but these are my first steps.

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