Guest guest Posted December 4, 2000 Report Share Posted December 4, 2000 LOL Debra, It is like when you have to have a tooth extracted and you on your way to the dentist. No more pain. Same with you. Psychological, i think. Don't worry, you will be fine. Take care. Rose Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2000 Report Share Posted December 4, 2000 Rose, Thanks for your continued kind words. Debra ________________________________________________________________________________\ _____ Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2000 Report Share Posted December 4, 2000 Debra, it is normal to second guess yourself at a time like this. I know that this group strongly suggests keeping the gallbladder, but I know what it's like to have done your best and still need it removed. Like I said before, having this pain and caring for a child (and in your case, three of them) is so difficult (and I'm not saying that people here doing other things with this pain ISN'T equally difficult...just wanting you to know I understand your specific situation). I am learning that you will ALWAYS hear about someone's horror story, but in reality this is extremely rare. And you are right that the dangers are greater with keeping the diseased organ when it is too late. I can't even count on two hands the amount of people I know that had their gallbladder removed. Sure, this is a statement on the fact that too many people have it out. But that's not to say that everyone that has it out was an unnecessary removal. AND they are ALL doing VERY well. I'll be perfectly honest, I never heard of anyone having trouble with gallbladder removal until I found this group. And even then it wasn't from people who had experienced it firsthand...it was all hearsay. Please don't get me wrong, I don't mean to discredit anything anyone has said here, because I have learned a lot. I only say this because I want you to know that you are not alone and that everything will be OK. In a few days you will be writing us to tell you how wonderful you feel, I'm sure! ) Please keep us posted. You'll be in my prayers!! - ----- Original Message ----- From: D B <fairyflight@...> <gallstonesegroups> Sent: Sunday, December 03, 2000 10:11 PM Subject: Re: Re: Update > >>Besides the possibilities of 'complications' and fatal > infection, in truth the result is that even greater care will be > required in diet afterwards, otherwise the liver could be next and in > this case you can't just 'have it out'.<< > > There is a much greater risk of having a stone caught in the common bile > duct, leading to serious liver damage or pancreatitus, or of having a stone > caught in the cystic duct, and ending up with a gagrenous gallbladder. My > surgeon said that unfortunately, the majority of gallbladder removals he > does are emergency operations on people who have waited too long, and often > damage to other organs has already been done. > > Thanks for you reassuring words during this time of stress. (Sarcasm > intentional.) > > Debra > > ____________________________________________________________________________ _________ > Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com > > > > Collected testimonials: > http:///messages/gallstones-testimonials > You are receiving this email because you elected to subscribe to the gallstonesegroups. To unsubscribe: Mailto:gallstones-unsubscribeegroups > To subscribe again: Mailto:gallstones-subscribeegroups > To change status to digest: Mailto:gallstones-digestegroups > To change status to normal: Mailto;gallstones-normalegroups > By joining the list you agree to hold yourself FULLY responsible FOR yourself! > List Archives: http:///messages/gallstones > Web Sites: http://home.online.no/~dusan/gallstones/ > Have a nice day ! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2000 Report Share Posted December 4, 2000 Debra - I see you are sure of your path and I wish you every success. Perhaps it is the right thing to do in some cases. Don't forget the vit C, Echinacea or Grapefruit seed extract, and plenty of water before and after. Best wishes, K > Rose, > > Thanks for your continued kind words. > > Debra > ______________________________________________________________________ _______________ > Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2000 Report Share Posted December 4, 2000 , Thanks, and {{{{hugs}}}}! Debra ________________________________________________________________________________\ _____ Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2000 Report Share Posted December 4, 2000 Dear Debra, As one mother of 3 to another, (home educating too, right?) ... I understand your resolve completely. I'll be doing the very same thing if a series of flushes and this new way of eating don't help. I really admire you for having tried the 'alternative natural' (there's an oxymoron!) route first. It's been an encouragement to others. (Me!!!) Please don't be be discouraged by those who don't understand, who have NOT walked a mile in your shoes, .....being a single mother of three dear children, ...being a mother ...who will do/sacrifice whatever it takes to be there for her children. Of course you will do what's right for *you* and not what was right for other people on the list! I'm pulling for you, I'll be remembering you tomorrow, praying for a safe procedure, good care, and a speedy recovery. I'll be excited to hear how well it all comes out... pun intended... Go girl!!! Best wishes, Jynene (doing her first flush tonight...) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2000 Report Share Posted December 4, 2000 Thanks, Jynene. I just keep telling myself how this timw tomorrow I'll probably be out of recovery and in my room. I met the head of anesthesiology this morning. He knew there was nothing he could say to take away my fear. He told me that it had to be general anesthesia for this type of surgey, and that yes, I had to have a breathing tube. The nurse I met with had this procedure done in March. She feels great. I asked her how often she dealt with peole insane with fear like me. She said every day. She said she has had general anesthesia six times, and she still goes in in tears every time. I understand where this fear comes from. Although I may be safer under anesthesia than I am driving my car, I at least have an illusion of control in my car, whereas here, all the control is in someone elses hands. After talking to a whole lot of other people, I at leasst know that there are lots of people who are this scaared going into it, so at leasst I don't feel totally abnormal. Debra ________________________________________________________________________________\ _____ Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2000 Report Share Posted December 4, 2000 Oh yeah, I forgot to mention that last night I had my first attack in two weeks. It reminded me why I'm doing this. Debra ________________________________________________________________________________\ _____ Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2000 Report Share Posted December 5, 2000 Read Dr. Hulda 's book. She advises to keep doing the flush until you get at least 2000 stones out. Your bursitis and such will likely stick around until you're totally clean. -----Original Message----- From: <gmrosario@...> gallstonesegroups <gallstonesegroups> Date: Monday, December 04, 2000 10:45 AM Subject: Update >Hi All, > I just finished my 3rd flush. Stones came out but not as much >as the first time. I feel better but I still have pains on my right >shoulder. Side pains come and go. I feel it more when I am walking a >lot. But let me tell you, I feel much better now than 2 months ago >when I didn't know anything about the cleansing. I felt so helpless >then because the doctor/surgeon just recommended to remove it. They >could not tell me how many stones I have. I had the ultrasound and >the CT Scan. I even had the second opinion. All I got as an answer >was to remove it. So, I tried the cleansing method. It works, but I >don't know if this is temporary or the pains will be gone permanently. >Does anyone know if the pain will go away after so many flushes? So >far I've been doing it every 2 weeks. Any other suggestions to rid >the pains permanently? > > > > > >Collected testimonials: >http:///messages/gallstones-testimonials >You are receiving this email because you elected to subscribe to the gallstonesegroups. To unsubscribe: Mailto:gallstones-unsubscribeegroups >To subscribe again: Mailto:gallstones-subscribeegroups >To change status to digest: Mailto:gallstones-digestegroups >To change status to normal: Mailto;gallstones-normalegroups >By joining the list you agree to hold yourself FULLY responsible FOR yourself! >List Archives: http:///messages/gallstones >Web Sites: http://home.online.no/~dusan/gallstones/ >Have a nice day ! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2000 Report Share Posted December 5, 2000 It might be that the hard calcified type of stone are harder to flush. But in any case, it takes quite a few flushes to get the majority of stones out. Digestive enzymes can be useful after a flush and a two week gap between is wise. Surgeons are always likely to say 'surgery' - its their business. Modern medicine is one big profit- oriented business. Not that 'modern' or science is bad - far from from it - but we are talking 'business', not science, not goodwill to all. The money lies in endless treatment of symptoms rather than prevention or cure. And the promotion of patented or specialised procedures when simpler solutions are available. Nutrition is the key to good health yet doctors dont spend even an hour on the topic at most medical schools. K > Hi All, > I just finished my 3rd flush. Stones came out but not as much > as the first time. I feel better but I still have pains on my right > shoulder. Side pains come and go. I feel it more when I am walking a > lot. But let me tell you, I feel much better now than 2 months ago > when I didn't know anything about the cleansing. I felt so helpless > then because the doctor/surgeon just recommended to remove it. They > could not tell me how many stones I have. I had the ultrasound and > the CT Scan. I even had the second opinion. All I got as an answer > was to remove it. So, I tried the cleansing method. It works, but I > don't know if this is temporary or the pains will be gone permanently. > Does anyone know if the pain will go away after so many flushes? So > far I've been doing it every 2 weeks. Any other suggestions to rid > the pains permanently? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2000 Report Share Posted December 5, 2000 Kim and e - That is a long time between casting the getting the band. Sorry, you didn't mention how old is, right? If like the 4-6 month age, they grow so fast that they should have had an adjustment made the day you got it. Remember, some of the young ones grow out of these band in 8-12 weeks. If it takes 3 weeks to get, you lost that much more time. We grew out of our DOC Band in 7 1/2 weeks and we only waited 8 days for our band to come in. Our STAR Band it took 3 weeks. I guess a problem with UPS. Wasn't so concerned because is almost 1 and growing has slowed down. The orthotics people can make adjustments. Just insist. Go with your gut. I wish I had opened my mouth more about not liking our DOC Band. It was never right!!!! Should old the prominent parts and allow growth in flat areas.! Yes, watch those red spots. Make sure not in flat areas. Good luck and keep us posted! Tammy & 12/8/99 PS Study that head and know exactly what you want from that band. Be 's head shaping expert! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2000 Report Share Posted December 5, 2000 Kim, I am so sorry for your experience!! Hang in there! I believe you are a wonderful mommy!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2000 Report Share Posted December 5, 2000 Kim, So sorry that you have had such a horrible experience starting out with the STARband. It's so good that you could recognize the problems with the fit of 's band and are getting those concerns addressed. If the adjustments did not correct the problem, definitely get him casted again. I know it'll be traumatic for you to see him get casted again, but realize that he will not remember it right after it's done! And you will get used to the band very quickly. And to the stares and questions when you go out in public. Every day it gets easier. Soon you will think looks like he's missing something when his band is off. When others said that they got so used to the band on their babies heads, I didn't believe it until I started getting so used to it on my daughter's head that I thought she looked weird without it! It's true! Just keep an eye out on how the band fits.... if it doesn't seem right let your orthotist know of your concerns. Good luck! You'll feel so much better when you start to see the improvement! Amy Kropka Charlotte, NC -----Original Message----- From: justbryandkim@... [mailto:justbryandkim@...] Sent: Tuesday, December 05, 2000 1:44 PM Plagiocephalyegroups Subject: Update Sorry everyone. I have been out of commission since mid November and have not had a chance to respond - but I have been thinking of this group everyday. Well, we were casted for the STARband Nov 10. We just received the band Friday Dec 1. I was not pleased with the way it fit and immediately expressed my concerns. During the casting, the mark they made for his nose shifted. I feel they made the band from the wrong marks. The band pushes his right eye in, and there is a lot of pressure on his right cheek. The left side of the band does not touch his face. His face is symetrical - so now I am worried that this will distort his face!!! They said that it was fine. I went home and cried and cried. I got the band to help my child, and now it may hurt him in the long run. I did not see pink areas where they said it should be pushing. We left for a trip Saturday morning and did not make it home until late yesterday (Monday). I did not let wear the band at all. My husband and I felt that they messed it up. I took in this morning and spoke to a different person. He agreed that the band was pushing too hard over his eye and after speaking with the head person at OrthoAmerica, made some adjustments. They feel that his head has reshaped since the casting, and that is causing the problems. Also, the ear holes are too big and now they are worried that his head may try to grow through the open areas around his ears. We go back in two days to have it rechecked. If they do not feel the adjustments from today are enough - then we will have to re-cast. I hate the idea of putting him through that again! He still cries when I pull a shirt over his head! But, I would rather do a recasting and get a band that fits, than find out 2 months from now that he needs plastic surgery from the wrong pressure of the first band. I know that he needs the band. Although his head has reshaped by itself slightly, it is still extremely noticeable. I would rather suffer through this for a few months, than have him teased his whole life. I keep blaming myself - and I feel like a horrible mother. I have not been able to talk about his helmet without crying. But today I had my first question. Someone said, " What is wrong with him? " I explained it without tears!! I guess I need to get used to it! Sorry for rambling! Kim and Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2000 Report Share Posted December 5, 2000 Kim- You are certainly not a horrible mother. You are doing great things for your baby!! You are being proactive about the problems you think you have with the band and that is GREAT!! Keep after them Kim - you are the very BEST advocate your baby will ever have. A proactive mother can move mountains!! Your gut instinct is your best weapon - if you feel it is wrong, it probably is! Make them listen to you and make them fix the problem - you are the consumer and you are paying for a service. They should be serving you and satisfying you for the money you (or your insurance company) are giving them. You aren't a horrible mother - you are a good mother. Keep your chin up and meet those stares and comments knowing that you are doing the right thing!! Marci (Mom to ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2000 Report Share Posted December 5, 2000 Marci, I really enjoyed reading your message!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2000 Report Share Posted December 7, 2000 Kim: What an ordeal you have been through. While the thought of recasting is hard, that is what it will take to get it right. I can look at today (he wore the DOC band this summer) and I know there is NO way he remembers the casting or the exit casting (or the last long screaming plane ride home!). I sure do, but he doesn't. Hang in there and keep doing what you are doing....being the best mommy for !! Sue Luck mom to , DOC band graduate Cleveland, OH ----- Original Message ----- From: <justbryandkim@...> <Plagiocephalyegroups> Sent: Tuesday, December 05, 2000 1:44 PM Subject: Update > Sorry everyone. I have been out of commission since mid November and > have not had a chance to respond - but I have been thinking of this > group everyday. > > Well, we were casted for the STARband Nov 10. We just received the > band Friday Dec 1. I was not pleased with the way it fit and > immediately expressed my concerns. During the casting, the mark they > made for his nose shifted. I feel they made the band from the wrong > marks. The band pushes his right eye in, and there is a lot of > pressure on his right cheek. The left side of the band does not > touch his face. His face is symetrical - so now I am worried that > this will distort his face!!! They said that it was fine. I went > home and cried and cried. I got the band to help my child, and now > it may hurt him in the long run. I did not see pink areas where they > said it should be pushing. We left for a trip Saturday morning and > did not make it home until late yesterday (Monday). I did not let > wear the band at all. My husband and I felt that they messed > it up. I took in this morning and spoke to a different > person. He agreed that the band was pushing too hard over his eye > and after speaking with the head person at OrthoAmerica, made some > adjustments. They feel that his head has reshaped since the casting, > and that is causing the problems. Also, the ear holes are too big > and now they are worried that his head may try to grow through the > open areas around his ears. We go back in two days to have it > rechecked. If they do not feel the adjustments from today are > enough - then we will have to re-cast. I hate the idea of putting > him through that again! He still cries when I pull a shirt over his > head! But, I would rather do a recasting and get a band that fits, > than find out 2 months from now that he needs plastic surgery from > the wrong pressure of the first band. I know that he needs the > band. Although his head has reshaped by itself slightly, it is still > extremely noticeable. I would rather suffer through this for a few > months, than have him teased his whole life. I keep blaming myself - > and I feel like a horrible mother. I have not been able to talk > about his helmet without crying. But today I had my first question. > Someone said, " What is wrong with him? " I explained it without > tears!! I guess I need to get used to it! > > Sorry for rambling! > > Kim and > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2001 Report Share Posted July 11, 2001 Well I stopped the sublingual NADH to give the oral a shot, and so far I am feeling very energized but my head has gotten a bit wierd on me a couple of times the last few days. Of course I am working 12 hour shifts at a new job and it is very busy and stressfull. I like it though as it keeps my mind off things and goes by fast, and also because I am making new friends and getting to know people here in Idaho. I am wondering however why I am in so much pain, esp in the am when I get up, it is awful, my hands and feet are super achey. I just wonder if this stuff will ever completely go away. I also wonder how come everyone else with the brain fog stuff doesn't have the pain too, I would give anything to be able to get rid of it. I take msm glucosamine, and other supplements, and also still take pain pills for my constant pain, I wish I had answers. I mean I am better than with the implants, because as I have said before I couldn't see straight when I was still implanted, but the pain is not much better than it was, if it is better at all. Thanks for listening Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2001 Report Share Posted July 11, 2001 , For pain, you really should be taking lots of magnesium. One lady I know has claimed that the product Homozon has taken away her pain. It is a magnesium product that gets alot of raves on other newsgroups that I belong to. I have it, and have taken it, but it gets chalky tasting, and I have to stop it for awhile. I would suggest magnesium supplements, or magnesium injections, as well as epsom salt baths and Homozon. Give these a try and see if they eliminate your pain. You can find Homozon here: (Cheapest price on net) http://www.azurefarm.com/ProductDetails.cfm?catalogue_no=HP055 Best description: http://www.oxystore.com/homozon.asp By the way, I remember you commenting about constipation--that is another sign that you need more magnesium. Magnesium will " move it on out! " I'll bet you will feel better just being able to get rid of the constipation. Patty ----- Original Message ----- From: <carrie_martinez64@...> < > Sent: Wednesday, July 11, 2001 8:22 AM Subject: update > Well I stopped the sublingual NADH to give the oral a shot, and so > far I am feeling very energized but my head has gotten a bit wierd on > me a couple of times the last few days. Of course I am working 12 > hour shifts at a new job and it is very busy and stressfull. I like > it though as it keeps my mind off things and goes by fast, and also > because I am making new friends and getting to know people here in > Idaho. I am wondering however why I am in so much pain, esp in the am > when I get up, it is awful, my hands and feet are super achey. I just > wonder if this stuff will ever completely go away. I also wonder how > come everyone else with the brain fog stuff doesn't have the pain > too, I would give anything to be able to get rid of it. > > I take msm glucosamine, and other supplements, and also still take > pain pills for my constant pain, I wish I had answers. I mean I am > better than with the implants, because as I have said before I > couldn't see straight when I was still implanted, but the pain is not > much better than it was, if it is better at all. > Thanks for listening > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2001 Report Share Posted July 12, 2001 , I am also having severe pain all over. I am taking MSM and malic acid. Initially, I saw an improvement, but now I'm not seeing any benefit. I'm so tired of hurting all the time. I also wake up so stiff, and it takes a couple of hrs before the stiffness goes away. My fingers are always swollen, from the lupus, and I'm taking a ton of ibuprofen (800mg at a time). That actually seems to help more than anything else. But I've just had it. I had lab work done in ton before I left, but I left before I got the results back and I haven't asked my rheumy to get it. I had the mycoplasma IgG AB done, and I'm real curious to see if that comes out + or -. Anyway, I just had to put in my two cents. e > Well I stopped the sublingual NADH to give the oral a shot, and so > far I am feeling very energized but my head has gotten a bit wierd on > me a couple of times the last few days. Of course I am working 12 > hour shifts at a new job and it is very busy and stressfull. I like > it though as it keeps my mind off things and goes by fast, and also > because I am making new friends and getting to know people here in > Idaho. I am wondering however why I am in so much pain, esp in the am > when I get up, it is awful, my hands and feet are super achey. I just > wonder if this stuff will ever completely go away. I also wonder how > come everyone else with the brain fog stuff doesn't have the pain > too, I would give anything to be able to get rid of it. > > I take msm glucosamine, and other supplements, and also still take > pain pills for my constant pain, I wish I had answers. I mean I am > better than with the implants, because as I have said before I > couldn't see straight when I was still implanted, but the pain is not > much better than it was, if it is better at all. > Thanks for listening > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2001 Report Share Posted July 12, 2001 e, It has been my experience also that after taking a supplement for a period of time, it seems to plateau, and benefits aren't as noticeable. I take supplements for a period of time, then back off of them for awhile. I think a schedule of dosages where you take breaks keeps your body from building up resistance to the beneficial effects. Maybe I am wrong, but I prefer to do it this way. I am concerned about the amount of ibuprofen you are taking. That has got to be bad for your liver, and we need to treat our livers to some TLC after our silicone exposure. Have you tried magnesium at all? As for the mycoplasma, remember that there are 200 strains of mycoplasma, and they are in everyone. For the most part, they are innocuous and do no harm. But there are also the rogue strains-- only four or five are pathogenic--those are the ones that your labs should be testing for. Dr. Nicolson talks about mycoplasma infections on his website www.immed.org, and it seems that the Mycoplasma fermentans is one of those culprits. He states, "M. fermentans can cause severe, fatal neurological and respiratory signs and symptoms after injection into the cerebral fluid of rats." There's more about M. fermentans on his website. Others: "M. hominis and U. urealyticum have been implicated in a wide variety of urogenital diseases, such as pelvic inflammatory disease, infertility, non-gonococcal urethritis (NGU) and other genital infections, pyelonephritis, Reiter's syndrome, and peritonitis. " Some Mycoplasma species, M. fermentans, M. penetrans, and M. pirum, have been implicated as infectious cofactors in HIV-AIDS." "In animal models of RA, M. arthritidis-related superantigens were found to compromise T-cells, and they can trigger and exacerbate autoimmune arthritis. Furthermore, M. arthritidis can release substances that can act on polymorphnuclear granulocytes, such as oxygen radicals and chemotactic and aggregating substances. Also, the isolated membranes of M. arthritidis possessed toxic effects when injected into various animals." "Mycoplasmal infections of the heart have been reported in patients with different types of carditis. The most common association was with M. pneumoniae infection. Endocarditis and myocarditis associated with M. pneumoniae infections appear to be an important cause of death in M. pneumoniae infections. Direct bacterial invasion of M. pneumoniae into pericardial tissue appears to be more likely to cause pericarditis than autoimmune phenomena. Viral and bacterial (Mycoplasma, Chlamydia and Mycobacterium tuberculosis) infections appear to be common causes of myocarditis and/or pericarditis, and this is just beginning to be appreciated by infectious diesase specialists." Let us know as soon as you find out anything! Patty ----- Original Message ----- From: <eRene@...> < > Sent: Wednesday, July 11, 2001 4:29 PM Subject: Re: update > I am also having severe pain all over. I am taking MSM > and malic acid. Initially, I saw an improvement, but > now I'm not seeing any benefit. I'm so tired of hurting > all the time. I also wake up so stiff, and it takes a > couple of hrs before the stiffness goes away. My > fingers are always swollen, from the lupus, and I'm > taking a ton of ibuprofen (800mg at a time). That > actually seems to help more than anything else. But > I've just had it. I had lab work done in ton > before I left, but I left before I got the results back > and I haven't asked my rheumy to get it. I had the > mycoplasma IgG AB done, and I'm real curious to see if > that comes out + or -.> > Anyway, I just had to put in my two cents. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2001 Report Share Posted July 13, 2001 Patty, I bet that the rheumy I saw in ton didn't test for the " bad " strains of mycoplasma. I need to call my rheumy here in Denver and ask him to get the lab results. I will let you know when I get the results. I prefer not to try Mg as my serum levels of Mg have always been normal. And you can get too much Mg and that can be very dangerous, resulting in musculoskeletal problems and cardiac problems, plus many others. And as long as my Mg levels are normal, there's no reason I need to supplement. However, I think that I will stop the MSM and malic acid for a while and then restart and see if there's a difference. But when you do this, do you notice that when you go back on the supplements that it takes several wks to regain the therapeutic benefit, or do you feel the results quicker than when you first started them? Thanks for the info on mycoplasma. I'm going to print it out and show it to my rheumy when I see him next. Take care, e > e, > It has been my experience also that after taking a supplement for a period of > time, it seems to plateau, and benefits aren't as noticeable. > > I take supplements for a period of time, then back off of them for awhile. I > think a schedule of dosages where you take breaks keeps your body from building > up resistance to the beneficial effects. Maybe I am wrong, but I prefer to do > it this way. > > I am concerned about the amount of ibuprofen you are taking. That has got to be > bad for your liver, and we need to treat our livers to some TLC after our > silicone exposure. > > Have you tried magnesium at all? > > As for the mycoplasma, remember that there are 200 strains of mycoplasma, and > they are in everyone. For the most part, they are innocuous and do no harm. But > there are also the rogue strains-- only four or five are pathogenic--those are > the ones that your labs should be testing for. > > Dr. Nicolson talks about mycoplasma infections on his website www.immed.org, and > it seems that the Mycoplasma fermentans is one of those culprits. He states, > > " M. fermentans can cause severe, fatal neurological and respiratory signs and > symptoms after injection into the cerebral fluid of rats. " There's more about M. > fermentans on his website. Others: > > " M. hominis and U. urealyticum have been implicated in a wide variety of > urogenital diseases, such as pelvic inflammatory disease, infertility, > non-gonococcal urethritis (NGU) and other genital infections, pyelonephritis, > Reiter's syndrome, and peritonitis. " > > Some Mycoplasma species, M. fermentans, M. penetrans, and M. pirum, have been > implicated as infectious cofactors in HIV-AIDS. " > > " In animal models of RA, M. arthritidis-related superantigens were found to > compromise T-cells, and they can trigger and exacerbate autoimmune arthritis. > Furthermore, M. arthritidis can release substances that can act on > polymorphnuclear granulocytes, such as oxygen radicals and chemotactic and > aggregating substances. Also, the isolated membranes of M. arthritidis possessed > toxic effects when injected into various animals. " > " Mycoplasmal infections of the heart have been reported in patients with > different types of carditis. The most common association was with M. pneumoniae > infection. Endocarditis and myocarditis associated with M. pneumoniae infections > appear to be an important cause of death in M. pneumoniae infections. Direct > bacterial invasion of M. pneumoniae into pericardial tissue appears to be more > likely to cause pericarditis than autoimmune phenomena. Viral and bacterial > (Mycoplasma, Chlamydia and Mycobacterium tuberculosis) infections appear to be > common causes of myocarditis and/or pericarditis, and this is just beginning to > be appreciated by infectious diesase specialists. " > > Let us know as soon as you find out anything! > > Patty > > ----- Original Message ----- > > From: <eRene@...> > < > > Sent: Wednesday, July 11, 2001 4:29 PM > Subject: Re: update > > > > I am also having severe pain all over. I am taking MSM > > and malic acid. Initially, I saw an improvement, but > > now I'm not seeing any benefit. I'm so tired of hurting > > all the time. I also wake up so stiff, and it takes a > > couple of hrs before the stiffness goes away. My > > fingers are always swollen, from the lupus, and I'm > > taking a ton of ibuprofen (800mg at a time). That > > actually seems to help more than anything else. But > > I've just had it. I had lab work done in ton > > before I left, but I left before I got the results back > > and I haven't asked my rheumy to get it. I had the > > mycoplasma IgG AB done, and I'm real curious to see if > > that comes out + or -. > > > > Anyway, I just had to put in my two cents. > > Quote Link to comment Share on other sites More sharing options...
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