Guest guest Posted January 15, 2002 Report Share Posted January 15, 2002 What is the Macrodantin connection with CMT? I took that drug numerous times for urinary tract infection over the last several years. Thanks, cindy ----- Original Message ----- From: <RAEick@...> < > Sent: Tuesday, January 15, 2002 9:25 AM Subject: [] cmt and why me > I dont post much but read them everyday. I work at a restaurant and I > bartend I find it harder and harder every week to not have to cut my > hours even more and IM only 31 and only working about 20 hours a week > now! I was diagnosed about two years ago,but always pretty much new I > had it. Mother , grandmother and sister have cm also. i took macrodantin > for over two years not knowing there was a drug list that we should not > take......I feel this is what onset my symptoms earlier and greater, > however it seems with each generation to affect us earlier.Ive never > asked why me, but sometimes wonder or wish that it was not me. I have > real real high arches drop foot , hands some what deformed with not much > control or muscle in hands and of course the leg pains and foot pains > from being on m feet alot...My biggestfear is all the questions people > ask ad telling my boss I need to cut my hours again...wondering what > others think of me I hate to be considered lazy!!!HAve not worn afos yet > I guess its a vain thing, IM young want to wear shorts summer and not > be stared at. I will keep going as long as I can just wish I never toook > that medication. Goodluck to all,great goup Rhonda > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2002 Report Share Posted January 15, 2002 Hi Rhonda, I did the same thing with that medication, and one other one that I can't think of right now, do know that I feel Exactly the same way as you do, and have to fight my body as well to go to work, but i have also been fighting my Dr to stay working. I also worry about what people think, and to tell ya the truth, I'm really very tired of worrying about it! I have decided to free up some of my sanity and reduce my stress levels even though I can't afford to do it and let my Dr. take me off work! Any bills that don't get paid from now on, oh well, sorry, take a number!!!! It's gonna have to be that way for awhile until my SSD gets approved, and until then, I guess we will have to deal with it, but hopefully it will be less stressfull than what I been going through! Okay, enough said! I send you a great BIG HUG, and know that you are not alone! Love, Tina!:-) ----- Original Message ----- From: RAEick@... Sent: Tuesday, January 15, 2002 10:25 AM Subject: [] cmt and why me I dont post much but read them everyday. I work at a restaurant and I bartend I find it harder and harder every week to not have to cut my hours even more and IM only 31 and only working about 20 hours a week now! I was diagnosed about two years ago,but always pretty much new I had it. Mother , grandmother and sister have cm also. i took macrodantin for over two years not knowing there was a drug list that we should not take......I feel this is what onset my symptoms earlier and greater, however it seems with each generation to affect us earlier.Ive never asked why me, but sometimes wonder or wish that it was not me. I have real real high arches drop foot , hands some what deformed with not much control or muscle in hands and of course the leg pains and foot pains from being on m feet alot...My biggestfear is all the questions people ask ad telling my boss I need to cut my hours again...wondering what others think of me I hate to be considered lazy!!!HAve not worn afos yet I guess its a vain thing, IM young want to wear shorts summer and not be stared at. I will keep going as long as I can just wish I never toook that medication. Goodluck to all,great goup Rhonda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2002 Report Share Posted January 15, 2002 Tina- I read your posting, don't worry about what people think. You have to do what you can to survive. I am working full time but not as many hours on my feet. If I am on my feet too long the pain is very hard to deal with. I hope that you get approved for SSD and your life comes together. By the way I like your name, my name is Traci Marie Denman. My sister is Tina Marie Torr. Kinda cool huh, ok I am 41 and it does not take much to excite me. Love Traci > -----Original Message----- > From: Tina Marie [sMTP:tbthomas@...] > Sent: Tuesday, January 15, 2002 11:09 AM > > Subject: Re: [] cmt and why me > > Hi Rhonda, > I did the same thing with that medication, and one > other one that I can't think of right now, do know that I feel Exactly the > same way as you do, and have to fight my body as well to go to work, but i > have also been fighting my Dr to stay working. I also worry about what > people think, and to tell ya the truth, I'm really very tired of worrying > about it! I have decided to free up some of my sanity and reduce my stress > levels even though I can't afford to do it and let my Dr. take me off > work! Any bills that don't get paid from now on, oh well, sorry, take a > number!!!! It's gonna have to be that way for awhile until my SSD gets > approved, and until then, I guess we will have to deal with it, but > hopefully it will be less stressfull than what I been going through! Okay, > enough said! I send you a great BIG HUG, and know that you are not alone! > Love, Tina!:-) > ----- Original Message ----- > From: RAEick@... > > Sent: Tuesday, January 15, 2002 10:25 AM > Subject: [] cmt and why me > > > I dont post much but read them everyday. I work at a restaurant and I > bartend I find it harder and harder every week to not have to cut my > hours even more and IM only 31 and only working about 20 hours a week > now! I was diagnosed about two years ago,but always pretty much new I > had it. Mother , grandmother and sister have cm also. i took macrodantin > for over two years not knowing there was a drug list that we should not > take......I feel this is what onset my symptoms earlier and greater, > however it seems with each generation to affect us earlier.Ive never > asked why me, but sometimes wonder or wish that it was not me. I have > real real high arches drop foot , hands some what deformed with not much > control or muscle in hands and of course the leg pains and foot pains > from being on m feet alot...My biggestfear is all the questions people > ask ad telling my boss I need to cut my hours again...wondering what > others think of me I hate to be considered lazy!!!HAve not worn afos yet > I guess its a vain thing, IM young want to wear shorts summer and not > be stared at. I will keep going as long as I can just wish I never toook > that medication. Goodluck to all,great goup Rhonda > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2002 Report Share Posted January 29, 2002 In a message dated 1/15/02 10:29:49 AM Eastern Standard Time, RAEick@... writes: > I work at a restaurant and I > bartend I find it harder and harder every week to not have to cut my > hours even more and IM only 31 and only working about 20 hours a week > now! Rhonda I am a 44 year old CMTer that tended bar for 17 years and if I had known that I had CMT and that is why I hurt so bad for all those years I would not have been behind that bar. Not only was I on my feet but stopping and going. Lifting, Manipulating with the hands, hands in the ice and water handling the bottles, etc., anyway. IF you would like to talk further you can email me privately, I don't want to scare you and I know it is your lively hood, but it is a very physically demanding job and you are in smoke filled room all the time. I chased this disease since I was in my early 20's and just am diagnosed clinically this pated summer and in the process of DNA now. Save your body, you only have one. I live in chronic pain (which is mostly excruciating) and there has to be a better way. I even have a suggestion if you care to email me @ leggylindars@... Quote Link to comment Share on other sites More sharing options...
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