turn it into something positive!

[Guest guest]

You've got this right, Sue! Thank you for sharing this! ~ G

Sue Horder-Mason wrote:

> being part of support groups like etc not only (I hope) helps people now

but also will help change the future.

> I strongly believe in shouting, highlighting our condition and talking to

people about it, go for your local newspapers - I have. Tell people about CMT

and tell how it affects your life and keep on because if nothing else they'll

listen just to shut you up.

> You really need to read Paolo's book 'Rehabilitation Management of

Charcot-Marie-Tooth Disease. I read it and although I knew it didn't offer me

any hope I know it will help my boys.

> Sometimes we have to look beyond us but use our experience - our question 'why

me?' and turn it into something positive for those we love the most.