Guest guest Posted January 15, 2002 Report Share Posted January 15, 2002 wrote: " I swear nobody has ever heard of the disease. It's pretty sad " . Exactly the same thing here. I use to look upon myself as a person who is interested in many things and who for example recognize at least the names of many known diseases. But when I got this diagnose at the age of 33 (I'm now 41) I had never heard of this and mostt doctors I met hadn't heard about it either. But I have noticed a change; nowadays many more doctors have at least heard about it and one doc. I know told me that CMT is more and more mentioned in magazines etc for doctors. So hopefully it's getting better. Regards Rose-Marie from Sweden Quote Link to comment Share on other sites More sharing options...
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