What CAN be done for CMT

[Guest guest]

And Sue, I should have added MORE CMT AWARENESS CAN be done and WILL be

for CMT, but I think that Kara was referring to the physical aspects we

live with. ~ G

Sue Horder-Mason wrote:

> but your health and well being is so important and as some one who has been

neglected through no fault of their own - I do feel so passionately about people

getting help for their CMT when there is so much available especially by

learning from others on this site.

[Guest guest]

I guess I should have worded that phrase diffrently! I did not mean to imply

that there was nothing that could be done but that there is no cure for this

disease. I am quite certain that meds and AFO's will help and proper excerise

as well as weight management. I know that I will do everything in my power to

help my daughter with CMT. Although me on the other hand am just, I guess you

would say HARD HEADED.

Please forgive what I said if I have offended anyone. I know that most of us

with CMT has some pain if not alot. It is just how people choose to deal with

it. Me, I am scared that if any of my doctors find out that I can not afford

insurance. And my daughter and myself need it soo badly. SO Sorry if I made

anyone upset by my remark!!!

Kara

----- Original Message -----

From: Gretchen Glick

Sent: Wednesday, January 09, 2002 1:02 PM

Subject: [] What CAN be done for CMT

What? As I see evidence in my own life, I feel much has been done for my

CMT. Starting with surgery when I was a kid, plenty of different

physical therapies over 39 years, various helpful medications for

fatigue, tremors, pain, wearing in-shoe orthotics and proper footwear,

watching my diet, some supplements (potassium and Vit E.); I could go on

and on. When I read the CMT Rehabilitation Management Book I discovered

even more that could be done. Don't give in to resignation! ~

Gretchen

Kara Brisendine wrote:

> but there is really nothing that can be done for CMT

for CMT AWARENESS; Wear Your Violet Ribbons,

more awareness of CMT equals more research funds and

more knowlege of Charcot Marie Tooth Disease!

is the SOLE authentic ribbon distributor! Get

your's today! Email the moderator with your request!