What CAN be done for CMT

[Guest guest]

Hey Kara, I for one, am not upset:) I just wanted you to know things can

be done and wasn't sure if you knew. If you do not have insurance, why

not take you and your daughter to your local MDA clinic? Also, Drs. DO

have a responsibility to treat people who need medical care, even

without insurance. You can also make a promise (best in writing) to the

Dr. that you will pay $10.00 a month till the bill is paid. That keeps

collectors off your back, as long as you stick to your promise/contract.

Shriners and Easter Seals too can help those with CMT. Please DO get the

care you need. ~ Gretchen

Kara Brisendine wrote:

> It is just how people choose to deal with it. Me, I am scared that if any of

my doctors find out that I can not afford insurance. And my daughter and myself

need it soo badly.

[Guest guest]

Kara,

Why do you think your health insurance premiums will increase if you're

diagnosed with CMT? Do you have group coverage through an employer or

spouse's employer, or is your insurance policy something you pay for

privately? In either case, you're not talking about car insurance here.

As far as I know your premiums can't increase just because you have an

illness, like they can if you have excess claims with car insurance. Why not

make an anonymous call to your insurance provider with your scenario if

you're concerned? The bottom line, in my opinion, is that you need to be

under a doctor's care. The management of your disease should be your

priority here.

----- Original Message -----

From: Kara Brisendine <karabrisendine@...>

< >

Sent: Wednesday, January 09, 2002 3:03 PM

Subject: Re: [] What CAN be done for CMT

> I guess I should have worded that phrase diffrently! I did not mean to

imply that there was nothing that could be done but that there is no cure

for this disease. I am quite certain that meds and AFO's will help and

proper excerise as well as weight management. I know that I will do

everything in my power to help my daughter with CMT. Although me on the

other hand am just, I guess you would say HARD HEADED.

>

> Please forgive what I said if I have offended anyone. I know that most of

us with CMT has some pain if not alot. It is just how people choose to deal

with it. Me, I am scared that if any of my doctors find out that I can not

afford insurance. And my daughter and myself need it soo badly. SO Sorry

if I made anyone upset by my remark!!!

>

> Kara

>

> ----- Original Message -----

> From: Gretchen Glick

> Sent: Wednesday, January 09, 2002 1:02 PM

>

> Subject: [] What CAN be done for CMT

>

> What? As I see evidence in my own life, I feel much has been done for my

> CMT. Starting with surgery when I was a kid, plenty of different

> physical therapies over 39 years, various helpful medications for

> fatigue, tremors, pain, wearing in-shoe orthotics and proper footwear,

> watching my diet, some supplements (potassium and Vit E.); I could go on

> and on. When I read the CMT Rehabilitation Management Book I discovered

> even more that could be done. Don't give in to resignation! ~

> Gretchen

>

> Kara Brisendine wrote:

> > but there is really nothing that can be done for CMT

>

>

> for CMT AWARENESS; Wear Your Violet Ribbons,

> more awareness of CMT equals more research funds and

> more knowlege of Charcot Marie Tooth Disease!

>

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>