ROCHELLE

[Guest guest]

Dear Annie,

A scratch from a dog is a roundabout way to get Brucellosis but it's

probably possible. There are other zoonoses (infections from animals) out there

that cause swollen lymph nodes and fevers. If you have lymph nodes swollen in

your lungs, you might have gotten the primary infection by breathing it in. Your

best bet would be to go to an infectious disease guy, but a pulmonologist may

also know how to diagnose infectious disease too. Don't pulmonologists treat

tuberculosis? Possibly you have an atypical mycobacterium. Do you have a

cough?

What you have is called an FUO, a Fever if Unknown Origin. Here's part of an

article found at the following web address.

http://emedicine.medscape.com/article/217675-overview

Fever of Unknown Origin

Fever of unknown origin (FUO) was defined in 1961 by sdorf and Beeson as

the following: (1) a temperature greater than 38.3°C (101°F) on several

occasions, (2) more than 3 weeks' duration of illness, and (3) failure to reach

a diagnosis despite one week of inpatient investigation.1

This article provides a review of the etiologies of FUO and a rational approach

to investigating a patient with this interesting condition.

Pathophysiology

FUOs are caused by infections (30-40%), neoplasms (20-30%), collagen vascular

diseases (10-20%), and numerous miscellaneous diseases (15-20%). The literature

also reveals that between 5 and 15% of FUO cases defy diagnosis, despite

exhaustive studies.

Variations in FUO, as found in the literature, reflect the populations and

periods studied. In children, infections are the most common cause of FUO,

whereas neoplasms and connective-tissue disorders are more common in elderly

persons. FUOs that persist for more than one year are less likely to be caused

by infections and neoplasms and much more likely to be due to granulomatous

diseases (the most common cause in these cases).

Diagnostic advances continuously modify the spectrum of FUO-causing diseases;

for example, serologic tests have reduced the importance of HIV and numerous

rheumatic diseases (eg, systemic lupus erythematosus [sLE], juvenile rheumatoid

arthritis , rheumatoid arthritis [RA]) as causes of FUO. Modern imaging

techniques (eg, ultrasonography, CT scanning, MRI) enable early detection of

abscesses and solid tumors that were once difficult to diagnose.

Patients with undiagnosed FUO (5-15% of cases) generally have a benign long-term

course, especially when the fever is not accompanied by substantial weight loss

or other signs of a serious underlying disease. These findings suggest that the

underlying cause is one of the more serious diseases that initially manifest as

FUOs. Such underlying diseases are usually diagnosed after an intensive and

rational diagnostic evaluation.

Age

More than 30% of FUO cases in persons older than 50 years are related to

connective-tissue disorders and vasculitic disorders. Giant cell arteritis (GCA)

and polymyalgia rheumatica (PMR) are the two principal connective-tissue

etiologies, accounting for 50% of the cases.

Rochelle

> > >

> > > hi all,

> > >

> > > I did go see my attorney Tuesday since she could never make it to my place

and we went

> > > over my court stuff.  My guy was there to help her understand my plight. 

I could hardly

> > > sit still and was in a lot of pain even on a nice plush couch, she could

see I was in bad pain.

> > > I burst out into tears during our conversations.  My guy confirmed I do

cry everyday from

> > > the pain and frustration/depression.  Very glad he was there to tell her

the attorney how this

> > > is wearing on our relationship. 

> > >

> > > MY Hearing is Tomorrow FRIDAY at 10am and we will leave with an hour to

spare in case of any road

> > > trouble/traffic, etc.  It is over an hour away, they will pay for gas,

reinbursment.

> > >

> > > I am so excited nervous.  Attorney said Judge is female, very nice.  I am

Judge's Only case that day!

> > > I hope that is a good sign.  I have a feeling I will win because of all

the documents, the fact that we drove

> > > up to see my attorney at her office when she could not make it to ours and

that my guy was there to

> > > really tell her how bad I am now and just getting worse.  I was miserable

in pain and crying in her office and

> > > moving around on the couch trying to get comfortable, she could see how

awful I felt.

> > >

> > > AND............I NOW have an APPT to see a NEUROLOGiST  on the 13th of

August, next Thursday, (that happens

> > > to be my late birthfather's birthday SO there will be LOTs of tears shed

that day because he passed just last Nov)

> > > This back specialist is in ROseburg, Or. so we have to travel several

hours one way, gosh am I going to be sore!

> > > I am SO happy to be finally seeing a specialist so that I can get his

opinion and he can also offer other ideas too.

> > > I can't wait! )

> > >

> > > Tuesday next week I go back to the dentist and hope he takes out that back

molar that is nearly leveled and really

> > > abcessed, BUT I have been taking Amoxcillin (sp?)  3 times a day to be

ready for him to pull some more teeth!

> > > Then when I go see the specialist I will be sucking on that pad they put

in your mouth to protect the hole while it

> > > heals a bit.  Boy, what a week next week will be also!

> > >

> > > I am  still waiting to hear from a referral to another specialist in Coos

Bay, Oregon.

> > >

> > > Things are happening fast!  I am on my period too so I am even more

emotional and I am stressed out to the max

> > > anyways!  ANd the fact that my late birthfather's birthday is the day of

my neurologist appt is like, ok, I said to myself,

> > > thank you dad, he gave me a present on his birthday because he is looking

over me, oh gosh, here come the tears, I miss

> > > him so much.  He would be sooooooooooo happy for me, funny how it landed

on HIS Birthday and he was such a giver, he

> > > would always give me things, just the way he was, he said I was his

favorite person in the whole world.  Gosh, that was hard

> > > to type since he is gone now,  darn that hurts...ouch, my heart...but

there's something to my appt on his birthday I just

> > > know it.  kleeeeeenax

> > >

> > > Oh, I am going to try Celexa after my hearing, because I never had it

before.  does anyone have anything to say about it, likes or

> > > dislikes?  I haven't even looked it up yet, but Knew I could ask you guys

for your opinions.  My Nurse Practitioner who

> > > I just love, says it also raises your pain tolerance, besides the

depression part.  I want to wait until after my hearing

> > > Friday for SS Disability because I don't know how it will affect me, you

see.  I also imagine I will get Supplemental

> > > Security Income, correct, I am only 46yo, haven't paid much into the

system.  I definitely have a physical disability as well

> > > as a mental disability right now due to the bad Chronic back/hip/leg pain

and depression from it.  I feel so useless and

> > > I can not do much to help to chores without getting hurt.

> > >

> > > I know a neurologist may  not be the exact specialist for me But it will

be a start and he can give me an opinion, hopefully

> > > order a new MRI, tell me who he thinks I should see.  My Oregon Health

Plan Plus OPen Card pays for this.  Thank goodness.

> > >

> > > ALSO,  if and when I get surgery (I got to get fixed somehow somewhat

sometime soon, can't take it much longer)

> > > I wonder if I can hire someone to come out to help care for me because I

imagine I will be pretty much bed bound.

> > > MY guy even wanted me to show him how to make me coffee for when the time

comes I can't make it myself, isn't that

> > > so sweet, he cares so much for me as I do for him and this stupid

back/hip/leg pain on mine is making our relationship

> > > hard on us.    He has his own health issues and needs someone to help me

after surgery.  I am sure I will be sore for

> > > awhile right?  I am so scared of the idea of being cut on, especially

those sore nerves back there, but very excited as well.

> > > My emotions right now are going crazy, my poor guy is about to lose it. 

He told me to try to keep my emotions under control

> > > a little bit more for another week until I see my specialist.  I don't

blame him, I feel like I am going crazy with pain, feeling useless, bedbound,

can't hardly walk, so painful to even sit.  I will get better, I know I will! 

Something has to change or I

> > > will crack and he will too!  We don't want that do we ....lol   He puts on

his headphones and sits out on the covered porch

> > > watching tv listening to music and doing odds and ends.  I have to lay

down most the time.  I hate it!  I want to cook and walk and camp and

fish.............LOL     )

> > >

> > > Oh yes, if I dO win this case I am going for that darned Toshiba 17 "

laptop at Walmart probably for sure, I am getting soooo

> > > bedbound that I think I deserve at least that.   Don't you think so?   

> > >

> > > I would imagine I will get the minimum on SSI or SSDI or whatever it is I

am going after, you know what I mean.

> > > I will probably get what around500$ a month?  If that?  I really don't

know.

> > >

> > > It says they will mail the results of my hearing, I can't wait!  Wish me

luck, I have a good feeling about this but could

> > > be wrong. 

> > > I also told my attorney that I quit smoking 2 months now as well as not

drinking (which I am not a big drinker at all, just doesn't mix

> > > with medications I take because of the severe pain)..........AND I am

going to call that Psychologist who tested me for

> > > Oregon HEalth PLan PLus mental part and get a referral from him on who to

see as my Psychologist so I can have some

> > > one to talk to instead of wearing out my guys ears with my tears and fears

of pain and surgery and mental confusion.

> > >

> > > boy, this is a long one, hope you read all of it, I had a lot to tell you

all and some good stuff too! )   

> > >

> > > MY hearing the 7th, another tooth going to be pulled 11th and then the

13th, a 3+ hour trip to Roseburg from Port Orford, Or.

> > > to Finally see a Specialist for my back pain!  May not be a neurosurgeon

but he can help me and refer me to someone else

> > > if need be.

> > >

> > > Any comments, ideas, and/or suggestions are always appreciated, let me

know what you think ok? 

> > >

> > > Thanks, sincerely, and gentle hugs, Coleen

> > >

> > > ps. do I sound crazy or what?  Take away this pain and I would be a normal

crazy lol, get back to my normal silly crazy me )

> > > oh yeah, he has to take our car to get the A/C checked out because of the

possible HEat in Roseburgk, Or. next week, I hate

> > > HOT, gosh I hope the a/c will get fixed or it won't be in the 90's or

100's over there inland! Ug.

> > >

> > >

> > >       

> > >

> > >

[Guest guest]

>

>I am scraping the bottom of the barrel, I want DR HOUSE!

>Love, Annie

Unfortunately he has been cancelled. Dave

[Guest guest]

Yo Rochelle,

You got it! Strength and prayers coming his way. Pleas let us know how

it goes.

HRH

> I have not been able to post much lately. Been really busy but I have a

> favor. My great nephew was born almost two weeks ago at 26 weeks gestation

> and is very sick. He has a intestinal disease call NEC. He has not

> responded to the antibiotics so they are going to be doing surgery either

> tonight or tomorrow morning. We need all the prayers we can get for this

> little guy for him to pull through and recover.

>

> Thanks,

>

> Rochelle mom to Devyn 4yrs Infantile Scoliosis(currently 0 degrees),

> Chiari 1

>

>

[Guest guest]

Sending up lots of prayers. God works miracles and can do anything! Amy J mom to Allie(3) in 3rd cast down to 13* from 56*Sent from my Verizon Wireless BlackBerryFrom: heather@...Date: Mon, 26 Apr 2010 12:12:33 -0400<infantile scoliosis treatment >Subject: Re: Rochelle Yo Rochelle,You got it! Strength and prayers coming his way. Pleas let us know howit goes.HRH> I have not been able to post much lately. Been really busy but I have a> favor. My great nephew was born almost two weeks ago at 26 weeks gestation> and is very sick. He has a intestinal disease call NEC. He has not> responded to the antibiotics so they are going to be doing surgery either> tonight or tomorrow morning. We need all the prayers we can get for this> little guy for him to pull through and recover.>> Thanks,>> Rochelle mom to Devyn 4yrs Infantile Scoliosis(currently 0 degrees),> Chiari 1>>

[Guest guest]

?? ugh....Im sorry hon. I'de rather live in mtns anyday! Yea lets catch

up.

HRH

> No problem . I will look forward to your call. P.S. we are moving

> to the city.

>

>

>> >>

>> >> >>

>> >>

>> >> >> So, they are doing Risser in Boston? Its def not Early Treatment

>> w/

>> >> EDF

>> >>

>> >> >> (applied under age 2, when its most effective)..

>> >>

>> >> >> I agree that its promising and hopeful for future children w/

>> slowly

>> >>

>> >> >> progressing curves perhaps, but clearly they are not applying ET.

>> Im

>> >>

>> >> >> actually saddened by this article as well.

>> >>

>> >> >> HRH

>> >>

>> >> >>

>> >>

>> >> >>

>> >>

>> >> >> >

>> >>

>> >> >> > I know there are some patients of Dr E's in the group. Perhaps

>> >> their

>> >>

>> >> >> > kiddos were included in this study.

>> >>

>> >> >> > Not a lot of new information...(more success when treated young

>> and

>> >>

>> >> >> with

>> >>

>> >> >> > smaller curves) as we already know. Still, it's always nice to

>> see

>> >>

>> >> >> > published research supporting casting.~

>> >>

>> >> >> >

>> >>

>> >> >> > Risser Casting for Infantile Idiopathic Scoliosis: Efficacy

>> >>

>> >> >> > andComplicationsSunday, October 3, 2010: 8:28 AM Union Square

>> >>

>> >> >> > (Intercontinental Hotel) M. Baulesh, BA, Judkins,

>> MD

>> >> and

>> >>

>> >> >> Mark

>> >>

>> >> >> > A. kson, MD,Orthopaedics, The Children's Hospital, Aurora,

>> >>

>> >> >> COPurpose:

>> >>

>> >> >> > To evaluate the complication rate associated with Rissercasting

>> >> when

>> >>

>> >> >> > managing progressive infantile idiopathic scoliosis (IIS),and to

>> >>

>> >> >> determine

>> >>

>> >> >> > if Risser casting can effectively correct or diminishthe

>> >> progression

>> >>

>> >> >> of

>> >>

>> >> >> > these scoliotic curves in the 30 day-old to 3year-old infant

>> >>

>> >> >> > population.Methods: For this retrospective study, charts and

>> >>

>> >> >> radiographs

>> >>

>> >> >> > of 22patients who underwent serial Risser casting for the

>> >> management

>> >>

>> >> >> > ofprogressive IIS from January 2005 – December 2009 were

>> >>

>> >> >> reviewed.Patients

>> >>

>> >> >> > were excluded if they did not have IIS, did not start

>> >>

>> >> >> castingmanagement

>> >>

>> >> >> > before the age of 4 years-old, or did not finish theirtreatment

>> at

>> >> our

>> >>

>> >> >> > facility.Pre-casting and post-casting Cobb angles and rib

>> vertebral

>> >>

>> >> >> > angledifferences (RVAD) were measured from pre-existing

>> radiographs

>> >>

>> >> >> taken

>> >>

>> >> >> > aspart of routine clinical care. Charts were reviewed for age,

>> >>

>> >> >> > diagnosis,outcomes, complications, number of casts, and length

>> of

>> >>

>> >> >> > casting.Results: The average age at time of first casting was 24

>> >>

>> >> >> months [3

>> >>

>> >> >> > –47 months]. The average number of casts used per patient was

>> 7.4

>> >> [2–

>> >>

>> >> >> 20

>> >>

>> >> >> > casts] over an average timeframe of 13 months [2 – 48months].The

>> >> mean

>> >>

>> >> >> Cobb

>> >>

>> >> >> > angle pre-casting was 46.64 degrees [26 – 70, SD11.99] compared

>> to

>> >>

>> >> >> 28.27

>> >>

>> >> >> > degrees [5 – 65; SD 15.97] post-casting,revealing an average

>> >>

>> >> >> improvement

>> >>

>> >> >> > of 18.37 degrees [p<0.0001]. The meanRVAD pre-casting was 25.90

>> >>

>> >> >> degrees [8

>> >>

>> >> >> > – 50; SD 11.37] compared to21.55 degrees [2 – 45; SD 13.83]

>> >>

>> >> >> post-casting,

>> >>

>> >> >> > showing an averageimprovement of 4.35 degrees [p=0.087].Two

>> >> patients'

>> >>

>> >> >> > curves (9.1%) progressed despite casting and wereconverted to

>> >> surgical

>> >>

>> >> >> > intervention. The remaining 20 patients (90.9%)were successfully

>> >>

>> >> >> managed

>> >>

>> >> >> > with Risser casting until conversion toremovable braces.Overall,

>> >> two

>> >>

>> >> >> minor

>> >>

>> >> >> > but noteworthy complications were seen; pulmonaryconstriction

>> and

>> >>

>> >> >> > pneumonia that improved after the removal of the cast,and the

>> need

>> >> for

>> >>

>> >> >> > immediate repeat casting due to curve decomposition.Both

>> patients

>> >>

>> >> >> > recovered completely and went onto continue management viaRisser

>> >>

>> >> >> > casting.Conclusion: Risser body casting is a safe and effective

>> >>

>> >> >> > alternative formanaging progressive IIS, successfully staving

>> off

>> >>

>> >> >> surgery

>> >>

>> >> >> > in over 90%of patients and therefore allowing for more normal

>> >> spinal

>> >>

>> >> >> > growth. Astatistically significant improvement in Cobb angle of

>> >> over

>> >>

>> >> >> 18

>> >>

>> >> >> > degreeswas observed. However, patients with Cobb angles greater

>> >> than

>> >>

>> >> >> 55

>> >>

>> >> >> > degreesand large RVAD measurements are at risk for cast

>> management

>> >>

>> >> >> > failure.Risser cast management is not without risks and early

>> >> surgery

>> >>

>> >> >> > maybebeneficial for select patients

>> >>

>> >> >> >

>> >>

>> >> >> > ~

>> >>

>> >> >> > Noah 5 years old

>> >>

>> >> >> > 9 months of casting in SLC; 2 1/2 years of bracing; Currently

>> >>

>> >> >> > treatment-free at 8*

>> >>

>> >> >> > And Mariella 1 yr old - resolved Infantile Scoliosis

>> >>

>> >> >> >

>> >>

>> >> >> >

>> >>

>> >> >> >

>> >>

>> >> >> >

>> >>

>> >> >>

>> >>

>> >> >

>> >>

>> >> >

>> >>

>> >> >

>> >>

>> >

>> >

>> >

>>

>

>

>

[Guest guest]

Gosh time goes by fast. Its wonderful to see him growing straight and

going to school!

Are you packing yet?

HRH

> ,

> I can't remember if we talked about this before, but after Devyn

> was decompressed they have always said that being on the autism

> spectrum in some way would not be uncommon. Any time they do

> something with the cerebellum there is the chance. Devyn has not

> been diagnosed but I do believe he has a small sensory problem do

> to the chiari. He still hates loud noises and hates to have

> clothes shoes and socks on. He is 5yrs old now and. As soon as we

> get home he strips down to his underwear. He hates wearing

> clothes but knows he has to to go out and to school. He also has

> had a very hard time learning colors and writing his name. Just

> little things we watch.

>

> Rochelle

>

>

>> >>

>> >> Hello,

>> >>

>> >> We went to see Kieran's doctor in Canada yesterday who was wanting to

>> put rods into our son and indulging our desire to try casting, which

>> wasn't expected to meet his expectations. That was how he felt when

>> we first met him in March, which was fine by us as the previous

>> doctor did " wait and see " from four months of age until eighteen

>> months of age for our high COBB hough RVAD son and then put him in an

>> very ill- fitting and damaging brace.

>> >>

>> >> Anyways, the doctor he sees in Vancouver Canada is very happy with

>> what casting is doing for Kieran and will be attending training with

>> DR D of SLC this December in Halifax, Canada -- therefore there is

>> some training going on this December in Halifax, though I don't know

>> the details of it, just that it is adequate enough for the doctor

>> here to at the very least get a better idea of casting, if not

>> better. I was given the impression that it is a proper training

>> program for casting and also that the doctor here hasn't decided how

>> useful this training will be or how much further he will persue it as

>> of yet.

>> >>

>> >> The good news for my son is no one is looking to make incisions in

>> him and add gear. So we have a considerable amount of time to help

>> improve an otherwise healthy little boy's scoliosis in a non-invasive

>> fashion.

>> >>

>> >> Kieran is scheduled to get his forth cast in Salt Lake City November

>> 22.

>> >>

>> >> Shauna

>> >> Mother of Kieran (2 yrs old in 3rd cast at 59 degrees), Kelsey and

>> .

>> >>

>> >

>> >

>>

>

>

>

[Guest guest]

I know it goes way to quickly. I can't believe he has been straight

for 2years already.

We started packing last week and can hopefully get moved before thanksgiving. We

are trying for a place in golden by heritage square. If we get it you and Liv

will have to stop by since we will be closer. It also has a pool so you guys

could come over in the summer to swim since that is he favorite thing to do.

Give me a call when you have a chance.

Rochelle

> >> >>

> >> >> Hello,

> >> >>

> >> >> We went to see Kieran's doctor in Canada yesterday who was wanting to

> >> put rods into our son and indulging our desire to try casting, which

> >> wasn't expected to meet his expectations. That was how he felt when

> >> we first met him in March, which was fine by us as the previous

> >> doctor did " wait and see " from four months of age until eighteen

> >> months of age for our high COBB hough RVAD son and then put him in an

> >> very ill- fitting and damaging brace.

> >> >>

> >> >> Anyways, the doctor he sees in Vancouver Canada is very happy with

> >> what casting is doing for Kieran and will be attending training with

> >> DR D of SLC this December in Halifax, Canada -- therefore there is

> >> some training going on this December in Halifax, though I don't know

> >> the details of it, just that it is adequate enough for the doctor

> >> here to at the very least get a better idea of casting, if not

> >> better. I was given the impression that it is a proper training

> >> program for casting and also that the doctor here hasn't decided how

> >> useful this training will be or how much further he will persue it as

> >> of yet.

> >> >>

> >> >> The good news for my son is no one is looking to make incisions in

> >> him and add gear. So we have a considerable amount of time to help

> >> improve an otherwise healthy little boy's scoliosis in a non-invasive

> >> fashion.

> >> >>

> >> >> Kieran is scheduled to get his forth cast in Salt Lake City November

> >> 22.

> >> >>

> >> >> Shauna

> >> >> Mother of Kieran (2 yrs old in 3rd cast at 59 degrees), Kelsey and

> >> .

> >> >>

> >> >

> >> >

> >>

> >

> >

> >

>

[Guest guest]

ROCHELLE.

IT HAS NEARLY BEEN 4 YEARS! I MIGHT HAVE PUNCHED IT UP A FEW MONTHS-- AND I CANT

TAKE LYRICA IT AFFECT BI POLAR AND MY BI POLR IS MANAGABLE SO GREATLY NOW, AFTER

I WORKED HARD WITH THE DEPAKOTE AND THERAPAY FOR 21 YEARS.

sO MEDS THAT AFFECT IT RE OFF LIMITS AND THERE RE OTHERS THAT INTERFERE TOO--

LIKE CYMBALTA AND NEUROTYN-- THE SSRI'S ETC.

THIS SI JOINT IS BEHIND THE HIP, LIKE ON THE BUTTOCK AND IT WILL BE 40 MGS OF A

STERIOD LIKE MEDICATION, HE SAID.

 I LOVE THE LIFT A STERIOD GIVES ESPECIALLY IN THE MOOD-- I FEL SO TIRED ALL THE

TIME -- CHRONIC FATIGUE AND I PUSH MYSELF TO DO THINGS EACH DAY, SWIM IN PT, GO

OUT, SING AND WRITE-- BUT HOUSEWORK IS NEARLY OUT AND I HAD TO HIRE A

HOUSEKEEPER WHO COMES 2 TIMES A MONTH.

I STIULL CLIMB STAIRS.

I HAVE NERVE PAIN TOO, FROM INFLAMED NERVES-- AND NERVE ENDINGS THAT ARE

INFLAMED. I NEVER SAW ANY BRUISING FROM THE HEART CATH-- BUT THE INNER GROIN

PAIN IS BAD--

HOW ARE YOU?

ANNIE

A poet is, most of all , to see

From: Rochelle <rccoc1977@...>

neck pain

Sent: Friday, August 5, 2011 3:40 PM

Subject: Re: HEY??? fellow pains in the necks? how are you

all feeling?

Dear Ann,

Has it already been 4 years with the steroids? I remember when you first started

with that " overdose " one doctor prescribed. My sister was also prescribed a

large dose of steroids for her back pain, but I told her what happened to you.

She's had some mental health issues (PTSD also plus other stuff) and when I told

her about your reaction, she decided to tell her psychiatrist, who said no way

should she take that much steroid. She went to another doctor and started with

the epidurals.  Too bad the first epidural didn't help at all.

Ann, did you have a lot of bruising from the Cath? Pain from early May!  They

must have done a lousy job. The inner thigh/groin is such a sensitive area to

begin with.  Does the area spasm? Is there a lump where they put the catheter?

My sister's pain doctor gave her a prescription for Lyrica. He says her

widespread pain is probably fibromyalgia.  My sister has to check that med out

with her psychiatrist too. She's on psychoactive ones that may preclude it.

Does the SI joint cause problems with the hip? or is the arthritic hip causing

problems in the SI joint?  Do they give steroid injections in the hip?

The body is wonderfully clever in all it's interconnections, but once one thing

goes wrong, watch out.

Take care,

Rochelle

 

> >

> > From: and Dave <woody1014@>

> > Subject: HEY??? fellow  pains in the necks? how are you

all feeling?

> > neck pain

> > Date: Thursday, July 14, 2011, 2:10 PM

> >

> >  

> >

> > Hey how is everone feeling and making out these days? i am no better? how

are you all doing? cindy

> >

> >

[Guest guest]

Nice to see you on CAST!  Lets do lunch sometime soon…HRH From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of coolesttwinkieSent: Monday, October 10, 2011 7:25 PMinfantile scoliosis treatment Subject: Re: My Daughter Anniston Christy,My son Devyn has Chiari 1 and Infantile Scoliosis. He is now 6yrs old and is doing great. If you haven't already you can read his story on the ISOP website under congenital scoliosis stories. He was decompressed at 18months old and wore three casts for a total of 6months and then a brace for 1yr. So far his surgery has been successful and there has been no signs of the Chiari at this time. We always just monitor him since there is no cure for Chiari just treatments. He does not have a syrinx but there are a few websites I would recommend. One is a support group for Chiari and syringomyelia called wacmaparents the other is www.asap.org this site has a lot of good info and Dr's that are very good in the treatment. Hoping the best for you please feel free to contact me personally if you have any questions.Rochelle mom to Devyn 6yrs old Infantile Scoliosis currently 0 degrees 3 yrs cast and brace free, Chiari 1 Decompressed >> Good luck, tomorrow! Pls keep us posted.> HRH> > > My son is 7 and we also see Dr. K at Riley. He has syringomelia and> > progressive scoliosis. He is at 35 degrees and going to get his first cast> > on Monday Oct. 10th.> >> > > >> >> > ________________________________> > From: Christy <christyflrtcher@...>> > infantile scoliosis treatment > > Sent: Friday, October 7, 2011 5:53 PM> > Subject: My Daughter Anniston> >> >> > Â > > My daughter Anniston is 4 yes old she has Infantile Progressive Scoliosis,> > Chiari and Syringomelia she is at 34% curve right now and is going to be> > put in her first Mehta Cast on Nov 3 2011..we live in Indiana she will be> > going to Riley and Dr Kishan is her Orthopedic surgeon. Does anyone have> > a child with all of these Diagnoses?> >> > Thanks Christy> >> >> >>