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AFOS

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Hi Everyone,

I couldn't let this subject pass by without letting you know what I've been

going thru getting someone who would listen to me and understand my needs.

For those that have been on the list for awhile, might remember that it has

taken me 3yrs. and 3 different companies to try and get this right. My braces

are the " old metal type " attached to one pair of shoes with the orthotics

inside.

As a matter of fact, I have another appt. this Thursday as my ankle is red and

sore from trying to wear them. He has mentioned that plastic afos are not for

me cause that would restrict my ankle movement and doesn't think they would

work cause of my severe turning of the ankles, and would make my condition speed

up. I sometimes feel like I must be the worst case in history, although

listening

to some of you, I don't think so. I use a cane (different colors to match my

clothing), also a walker with a seat when I'm going a long ways. When I see

my Neuro in March, I'm going to swallow my pride and ask about a scooter. I

would be so happy to wear the afos if only they felt good. It's bad enough

to have the pain that comes with CMT and even to have the added weight(5lbs)of

metal & shoes, I would gladly be happy to be able to walk easier and further.

Please keep me in your thoughts on Thursday. I'll keep you posted.

Barb

No.Calif.

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