Update on me and a favor

February 21, 2011

I am still on this group. I am a lurker here. I am still in a lot of pain. I

am 32 years old and have osteogenisis imperfecta (OI). A fancy word for

brittle bones, I have had over a 100 breaks and fractures in my life. I have

severe pain in my neck with lots of muscle knots and severe pain in my

shoulder blade area and upper back mostly on my right side. I had an x-ray

that has showed nothing, bone density test, and a bone scan on my neck area

that showed a previous healed fracture in the area I am experiencing pain. I

had a nerve test that showed a mild pinch nerve but no other damage. My pain

management doctor just ordered an MRI of the shoulder area. I have been dx

with osteoarthritis, osteoporosis (worse on my right side) and myofacial

pain syndrome. I have been getting Lidocaine shots in the knots once a

month. Pain management has me on Ultram, a muscle relaxer, an anti

inflammatory and 15 Perocet a month for the severe pain. I am also on

Fosamax, calcium and Vitamin D3 for the osteoporosis. I have tried

everything PT, trigger point massage, patches, creams, exercise, heat and

cold packs and a TENS Unit. So far nothing is really helping. L I am hoping

that the MRI shows something that they can fix. At 32 I feel like I am 92

and I hate trying to manage my pain all the time. Is anyone in the same

boat? The pain in my shoulder blade is on the inside of the blade kind of

where the part that sticks out if that makes any sense. It constantly cracks

and the pain is a hot searing pain that sometime causes my right arm and

hand to go numb.

Also something off topic and something I could use some help with. I am a

mom of 5 children and one of my children my 5 year old daughter (a triplet)

has severe cerebral palsy (which I am sure doesn't help my pain). She is

total care and cannot sit, crawl, stand, walk or talk. However she is very

bright and is not affected in that area. We entered her in a contest to win

an Ipad on facebook. All you have to do is like the page and scroll down

(you may have to click view more posts) and click like under the picture of

my 5 kids with my name ( Cavanna). The person with the most likes

wins. We are currently in second place and down by 300 votes. The contest

ends on the 28th. If you would be so kind to vote for her it would mean so

much to us. An Ipad can be used as a communication device and help her

talk. Please feel free to post it as your status and ask your friends and

family to vote. We need all the help we can get. You do not need to friend

me to vote. The link is <http://www.facebook.com/molenorthodontics>

http://www.facebook.com/molenorthodontics and click like then again scroll

down to my name and click like again.

Thanks for all your help. Wishing you all a pain free day.

February 21, 2011

OK, you have a like from me... good luck..

In a message dated 2/21/2011 10:23:25 A.M. Mountain Standard Time,

Nov03Baby@... writes:

I am still on this group. I am a lurker here. I am still in a lot of pain.

I

am 32 years old and have osteogenisis imperfecta (OI). A fancy word for

brittle bones, I have had over a 100 breaks and fractures in my life. I

have

severe pain in my neck with lots of muscle knots and severe pain in my

shoulder blade area and upper back mostly on my right side. I had an x-ray

that has showed nothing, bone density test, and a bone scan on my neck area

that showed a previous healed fracture in the area I am experiencing pain.

I

had a nerve test that showed a mild pinch nerve but no other damage. My

pain