Guest guest Posted October 6, 2001 Report Share Posted October 6, 2001 Dear Doc, you are real sweet person! No kidding...I am so serious! Not too many folks would take the time and energy and $$$ to set up a site and keep it going...let alone answer questions! Persnally, I have been blessed by this site. I thank you for it. I think GI Hep and Hepatitis -Central really have pulled me thru from diagnosis-treatment and now slightly beyond. There was never a time that I felt alone...I always knew I could come to either site and find a compassionate friend. It has made all the difference. It was partly due to your influence that I decided to try treatment. It got me thinking about it and when the time became apparent that I needed to do it, I was ready. It wasn't pleasant in any way, shape or form....but i DID it...and when things got hard, I found solace in these 2 sites. Just alittle note to say 'THANKS DOC!' God Bless and take care, mzgee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2001 Report Share Posted October 9, 2001 I agree. It's been comforting to know there's someone to talk to, ask questions, get opinions and know that someone cares enough to listen. alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2001 Report Share Posted October 10, 2001 Just another view point. I don't post much but read everything, have gotten some valuable information/ insights from Claudine, Tatezi,the doctor and others, ( thanks to all ) wish the best for each of you on this list and believe we will all be ok at the end, but I think what the original poster on this meant is, most of us are dealing with severe fatigue, some of us are on other lists too so this is not the only mail list we are scanning for information. So when people are just answering each other in one liners, ( and I have even been guilty of that ) or not really info about the virus, its just that , although thats nice, it could be done in personal email. Not trying to create bad feelings, but it could just as easily be done that way and I don't think the original poster was asking too much. Maybe theres a way to do this with the subject line or something, where if its hep info, we put info in the subject line and if not, then people can delete that email if they dont want to read. One of the other lists I was on did something like that. Anyway, just an idea, theres usually a way to compromise on this stuff. blessings Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2001 Report Share Posted October 10, 2001 I agree with original poster, but understand the personal support some need from others. Being a Vietnam veteran with HCV, I also read a lot of military email. I only have a certain amount of time and think the idea of placing some sort of flag in the subject line is a great way of letting us know which emails will have essential information and which ones are " chit chat " that we can come back later to read when we have more time. Concerning the itching, I take one diphenhydramine (HCL 25MG) when I get up and one before I go to bed. It helps me control the condition somewhat. It really is terrible, isn't it?!! I empathize with everyone on the list and do enjoy reading all the emails when I have time. Problem is, sometimes I have to be selective with my time. Your friend, Gene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2001 Report Share Posted October 10, 2001 I agree with original poster, but understand the personal support some need from others. Being a Vietnam veteran with HCV, I also read a lot of military email. I only have a certain amount of time and think the idea of placing some sort of flag in the subject line is a great way of letting us know which emails will have essential information and which ones are " chit chat " that we can come back later to read when we have more time. Concerning the itching, I take one diphenhydramine (HCL 25MG) when I get up and one before I go to bed. It helps me control the condition somewhat. It really is terrible, isn't it?!! I empathize with everyone on the list and do enjoy reading all the emails when I have time. Problem is, sometimes I have to be selective with my time. Your friend, Gene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2001 Report Share Posted October 10, 2001 Yes, AlleyPat, I totally agree too!!!!! I think we should feel free to say what is on our minds without having to censor the non-hep sentences. This is still a supposedly free country and all us heppers I hope don't think about the illness 24/7. It's getting so I'm watching everything I write and wondering " does this fit the criteria " ? I hate that! Let's face it folks, we are sick enough without having to deal with this too. To make this " relevant " I am wondering how many heppers who aren't on treatment at this time are feeling lousy? By lousy, I mean feeling fatigued, can't sleep properly, feeling fluish 5 days a week and can't work, or have major difficulty working. Any takers? lol. Huggggs Alley Carol wrote: > > I agree. > > It's been comforting to know there's someone to talk to, ask > questions, get opinions and know that someone cares enough to listen. > > alley > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2001 Report Share Posted October 10, 2001 Yes sweetie..you are very right on this, I do understand the position of the original poster...like you said, I know we can come up with a peaceable solution. I meant no offense to anyone in anything I've said. Carol EnViolet@... wrote: > > Just another view point. I don't post much but read everything, have gotten > some valuable information/ insights from Claudine, Tatezi,the doctor and > others, ( thanks to all ) wish the best for each of you on this list and > believe we will all be ok at the end, but I think what the original poster on > this meant is, most of us are dealing with severe fatigue, some of us are on > other lists too so this is not the only mail list we are scanning for > information. So when people are just answering each other in one liners, ( > and I have even been guilty of that ) or not really info about the virus, its > just that , although thats nice, it could be done in personal email. Not > trying to create bad feelings, but it could just as easily be done that way > and I don't think the original poster was asking too much. > Maybe theres a way to do this with the subject line or something, where if > its hep info, we put info in the subject line and if not, then people can > delete that email if they dont want to read. One of the other lists I was on > did something like that. Anyway, just an idea, theres usually a way to > compromise on this stuff. > blessings > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2001 Report Share Posted October 10, 2001 Yes sweetie..you are very right on this, I do understand the position of the original poster...like you said, I know we can come up with a peaceable solution. I meant no offense to anyone in anything I've said. Carol EnViolet@... wrote: > > Just another view point. I don't post much but read everything, have gotten > some valuable information/ insights from Claudine, Tatezi,the doctor and > others, ( thanks to all ) wish the best for each of you on this list and > believe we will all be ok at the end, but I think what the original poster on > this meant is, most of us are dealing with severe fatigue, some of us are on > other lists too so this is not the only mail list we are scanning for > information. So when people are just answering each other in one liners, ( > and I have even been guilty of that ) or not really info about the virus, its > just that , although thats nice, it could be done in personal email. Not > trying to create bad feelings, but it could just as easily be done that way > and I don't think the original poster was asking too much. > Maybe theres a way to do this with the subject line or something, where if > its hep info, we put info in the subject line and if not, then people can > delete that email if they dont want to read. One of the other lists I was on > did something like that. Anyway, just an idea, theres usually a way to > compromise on this stuff. > blessings > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2001 Report Share Posted October 10, 2001 Carol said<<It's getting so I'm > watching everything I write and wondering " does this fit the > criteria>> Not me. I try to stay within the confines of the email list's parameters but I don't give it too much thot. On the sorbo_andromeda email list (about the tv show Andromeda starring (the hunk) Sorbo) we did get off on a " blow up doll " conversation that wasn't really relevant to a G rated list hahahahaa. um. .well... <<To make this " relevant " I am wondering how many heppers who aren't on > treatment at this time are feeling lousy? By lousy, I mean feeling > fatigued, can't sleep properly, feeling fluish 5 days a week and can't> work, or have major difficulty working. Any takers? lol.>> Carol that pretty much defines hep c doesn't it? I've been that way over 10 years now. I haven't seen much improvement at all, but a more gradual increase in all the symptoms. I work, but it takes all I got. I rely on herbal stimulants to make a week. Today I stayed until 7:30 pm at work, due to meetings. That's a 9 and 1/2 hour day, not including the hour for lunch and the hour to work and the hour home. so that's 12 or more hours nonstop. I've pretty much been able to cancel the hour for lunch and eat at my desk to reduce the amount of time I spend at work. Hubby drives to and from work (we ride together) so that allows me some time to rest, I keep a small pillow and throw in the car. But it doens't help much, even the car ride tires me. Carol, more heppers than not feel as you described. It's part of the hep c deal. alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2001 Report Share Posted October 10, 2001 I must have misunderstood the origin of the subject line! My apologies. I try to put " off topic " in the subject if I am posting something not hep/personal related. However, everything I do, feel, say, LIVE IS hep c related. Just no way around it. Sometimes we do stray and it's good to be re-focused by the list owner or someone who has noticed. I never stay.. never never ever!!!! NOT! alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2001 Report Share Posted October 10, 2001 Gene said <<> Concerning the itching, I take one diphenhydramine (HCL 25MG) when I get up > and one before I go to bed. It helps me control the condition somewhat. It > really is terrible, isn't it?!!>> No joke! I tried the Benadryl, but I'm so groggy with it there's no way I can work on it. My doc said he read some studies that were done with people taking benadryl versus people who drank a lot at nite and then did reaction tests the next morning. The people who did the benadryl the nite before scored decidedly poorer than the people who drank a lot the night before. (Now don't ask for specifics, this is second hand I'm givin' ya, so take that into acocunt k). << Problem is, sometimes I have to be selective with my time..>> Same here! I've put almost all my email lists on " no mail " so my mailbox program doesn't get bogged down. Then I can go into any specific group thru the website and ketchup if I have time or just jump in like I have this week. Some days I just really need to vent to other heppers who understand the frustrations, sometimes I need specific info, sometimes I just wanna say HI! Whicher reason, it's good to know yall are here alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2001 Report Share Posted October 22, 2001 Dear Ally, Gee I wish you hadn't said that about Benedryl. However, I only take 1/2 tablet at night. That seems to settle things down enough to let me sleep without putting me in a blanket of fog the next morning. Good thing, since I've pretty much given up caffiene. We're always here. I appologize for disappearing for so long. We have completed the move. Obviously the computer desk arrived and the computer is set up. Somebody give me an overview of what's up with everybody so I can catch up. LOL, Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2001 Report Share Posted October 22, 2001 Anne, Glad you mad the move ok! Nothing much to catch up on with me. Working, resting, working lol. I did get a black mole cut off my leg Friday. I should know this week if it is cancerous or just a black mole. Also enjoying the mild autumn we are having in Dallas, in the lower 80's till Thursday they say then the upper 60's. I hate cold weather! haha take care alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2001 Report Share Posted October 22, 2001 Have you tried Melatonin? --- AVansi7465@... wrote: > Dear Ally, > > Gee I wish you hadn't said that about Benedryl. > However, I only take 1/2 > tablet at night. That seems to settle things down > enough to let me sleep > without putting me in a blanket of fog the next > morning. Good thing, since > I've pretty much given up caffiene. > > We're always here. > > I appologize for disappearing for so long. We have > completed the move. > Obviously the computer desk arrived and the computer > is set up. Somebody > give me an overview of what's up with everybody so I > can catch up. > > LOL, > Anne > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2001 Report Share Posted October 22, 2001 Have you tried Melatonin? --- AVansi7465@... wrote: > Dear Ally, > > Gee I wish you hadn't said that about Benedryl. > However, I only take 1/2 > tablet at night. That seems to settle things down > enough to let me sleep > without putting me in a blanket of fog the next > morning. Good thing, since > I've pretty much given up caffiene. > > We're always here. > > I appologize for disappearing for so long. We have > completed the move. > Obviously the computer desk arrived and the computer > is set up. Somebody > give me an overview of what's up with everybody so I > can catch up. > > LOL, > Anne > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2001 Report Share Posted October 22, 2001 Have you tried Melatonin? --- AVansi7465@... wrote: > Dear Ally, > > Gee I wish you hadn't said that about Benedryl. > However, I only take 1/2 > tablet at night. That seems to settle things down > enough to let me sleep > without putting me in a blanket of fog the next > morning. Good thing, since > I've pretty much given up caffiene. > > We're always here. > > I appologize for disappearing for so long. We have > completed the move. > Obviously the computer desk arrived and the computer > is set up. Somebody > give me an overview of what's up with everybody so I > can catch up. > > LOL, > Anne > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2001 Report Share Posted October 22, 2001 Have you tried Melatonin? --- AVansi7465@... wrote: > Dear Ally, > > Gee I wish you hadn't said that about Benedryl. > However, I only take 1/2 > tablet at night. That seems to settle things down > enough to let me sleep > without putting me in a blanket of fog the next > morning. Good thing, since > I've pretty much given up caffiene. > > We're always here. > > I appologize for disappearing for so long. We have > completed the move. > Obviously the computer desk arrived and the computer > is set up. Somebody > give me an overview of what's up with everybody so I > can catch up. > > LOL, > Anne > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2001 Report Share Posted November 3, 2001 In a message dated 10/22/2001 10:01:15 PM Eastern Standard Time, constance_clearwater_florida@... writes: > > Have you tried Melatonin? > No I haven't. In fact, I hadn't even thought of it. Thanks for the idea. Round 4,363 at the drug store. LOL, Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2001 Report Share Posted November 3, 2001 In a message dated 10/22/2001 10:01:15 PM Eastern Standard Time, constance_clearwater_florida@... writes: > > Have you tried Melatonin? > No I haven't. In fact, I hadn't even thought of it. Thanks for the idea. Round 4,363 at the drug store. LOL, Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2001 Report Share Posted November 3, 2001 In a message dated 10/22/2001 10:01:15 PM Eastern Standard Time, constance_clearwater_florida@... writes: > > Have you tried Melatonin? > No I haven't. In fact, I hadn't even thought of it. Thanks for the idea. Round 4,363 at the drug store. LOL, Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2001 Report Share Posted November 3, 2001 In a message dated 10/22/2001 10:01:15 PM Eastern Standard Time, constance_clearwater_florida@... writes: > > Have you tried Melatonin? > No I haven't. In fact, I hadn't even thought of it. Thanks for the idea. Round 4,363 at the drug store. LOL, Anne Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.