Guest guest Posted January 17, 2002 Report Share Posted January 17, 2002 I was diagnosed with RSD in 1987. I have had several years of Physical therapy and several surgeries for this decease. I have it in both legs. In march of 2001 I was diagnosed with CMT by 2 doc. now last tuesday I saw a Doc. in Santa Ynez Ca. He tells me he doesn't think that I have either disease, and that he is'nt dure what I have but he doesn't think it is what Iv'e been told all these years. I ahve agreed to go see another Doctor { this is number 32} this Doc. is a pain specialist in Santa Barbara Ca. I'am sechedualed to have a interveinas Lidocaine Infusion nexy Tuesday for the RSD and the Cmt pain that Iam having I take oxicontin everday 240 milligrams. Now I'm not sure of what to do next. Has anyone been told they have this disease and then told they don't, I have been in this group for awhile and have learned alot about this disease and identified with so many of you. Don't get me wrong I would be happy to find out everyone is wrong and what I have is fixable but then am afraid to get my hopes shattered again Iam in my 50's and would like good news for a change. have any of you been thruogh anything similar Quote Link to comment Share on other sites More sharing options...
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