Increase in CMT in last 50 years

January 25, 2002

----- Original Message -----

From: " Gretchen Glick " <liliwigg@...>

" ers at groups " < >

Sent: Thursday, January 24, 2002 7:30 PM

Subject: [] Increase in CMT in last 50 years

" the fact that in the last 50 years (1951 to 2001) there has been a

> 62.5% INCREASE in the number of CMT cases alarms me "

**This not only alarms you, but myself as well! We do need to inform not

only physicians about CMT, but the public in general. Thanks for the

calculations.

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January 25, 2002

Gretchen,

I in no way want to appear jocular, but I have to wonder where you get

your data. May we see the raw data used? If one assumes that CMT is

hereditary, and the total Earth population has increased during the

period you mentioned by 27% (Oh Henry Almanac) one has to assume this

dramatic increase is do to spontaneous mutations, and everyone should

be alarmed by that. (Unless CMT'ers are extremly prolific) Can we see

a breakdown by country, to see this anomaly in different area's of the

planet?

Is your analytical data available to us? Or your source material?

Thanks

Dave

> I have been doing some background work for a presentation I am giving,

> and the fact that in the last 50 years (1951 to 2001) there has been a

> 62.5% INCREASE in the number of CMT cases alarms me. Even with CMT

> affecting about 4% of the population, a fifty year increase like this,

> with a disease like ours demonstrates research and treatment is lagging

> far behind. Granted, the 'boomer generation' grew up and had their

> children: nonetheless, why do we have professionals who have never heard

> of CMT; or why can't people get a definite diagnosis; or why can't those

> of you with AFO dilemma's get what you need done -right- AND now?

>

> Something's wrong. That's why we, at the Foundation, are stepping

> up Awareness big time. More Awareness for CMT = more dollars for CMT

> Research, NOT clumped in with other neuromuscular diseases....CMT needs

> its own lobby, and I am working for this. If anyone is interested in

> 'coming along' please email me privately.

>

> ~ Gretchen

January 25, 2002

Hi Gretchen,

Owen here,

I have a question. Do you suppose that maybe more people are being diagnosed

because more Doctors are becoming aware of CMT?

Happy Trails,

Owen

Gretchen Glick wrote: