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Dr. Shy and CMTX

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Well I have just returned from my visit with Dr. Shy in Detroit.

What a wonderful experience!! (with the exception of the EMG and the

needle tests!!!!!!!!!!!!!) He was so kind and discussed everything

with me. It was interesting and helpful, he thinks that our family

might actually have CMTX instead of CMT 2A as most of my family

members have been told they have. The doc said that most of my nerve

damage was sensory nerve damage, and didn't fit into any of the

descriptions, anyone else have this?

Does anyone have any information on CMTX? Where could I find out

more about this type of CMT?

Thanks in advance, I would suggest that anyone who can, go to see Dr.

Shy in Detroit, this was an AWESOME experience, it was so great to

see someone who actually was knowledgeable about this disease.

Juli

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--- jochs83 <jochs83@...> wrote:

> It was interesting and helpful, he thinks

> that our family

> might actually have CMTX instead of CMT 2A as most

> of my family

> members have been told they have. The doc said that

> most of my nerve

> damage was sensory nerve damage, and didn't fit into

> any of the

> descriptions, anyone else have this?

> > Juli

> Juli, It's Jim;

Most of my problems are sensory. But the motor

problems are starting with me. My cousin has been DX'd

type 2. I have not been typed yet.(Should be type 2).

Also we have male to male transmission, ruling out

type X. By the way, my cousin(s) are in the care of

Dr. Shy.

Keep us posted!

Jim Nash

__________________________________________________

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