Guest guest Posted January 5, 2002 Report Share Posted January 5, 2002 Well I have just returned from my visit with Dr. Shy in Detroit. What a wonderful experience!! (with the exception of the EMG and the needle tests!!!!!!!!!!!!!) He was so kind and discussed everything with me. It was interesting and helpful, he thinks that our family might actually have CMTX instead of CMT 2A as most of my family members have been told they have. The doc said that most of my nerve damage was sensory nerve damage, and didn't fit into any of the descriptions, anyone else have this? Does anyone have any information on CMTX? Where could I find out more about this type of CMT? Thanks in advance, I would suggest that anyone who can, go to see Dr. Shy in Detroit, this was an AWESOME experience, it was so great to see someone who actually was knowledgeable about this disease. Juli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2002 Report Share Posted January 6, 2002 --- jochs83 <jochs83@...> wrote: > It was interesting and helpful, he thinks > that our family > might actually have CMTX instead of CMT 2A as most > of my family > members have been told they have. The doc said that > most of my nerve > damage was sensory nerve damage, and didn't fit into > any of the > descriptions, anyone else have this? > > Juli > Juli, It's Jim; Most of my problems are sensory. But the motor problems are starting with me. My cousin has been DX'd type 2. I have not been typed yet.(Should be type 2). Also we have male to male transmission, ruling out type X. By the way, my cousin(s) are in the care of Dr. Shy. Keep us posted! Jim Nash __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.