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Re: Jim-MDA Clinic

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Ditto to Judy's reply, Jim.

My dr. didn't know about the MDA support for CMT at all. I see on

his medical records he wrote that he referred me to them, but he

didn't - I did it myself. He has always felt I needed to go to some

higher authority, but he doesn't realize he (a physiatrist) has given

me better treatment than they ever did, both psychologically and

physically.

Regards,

Melody

> I have avoided checking myself into MDA hoping that

> the good Doctor would see fit to do so. Experience is

> telling me that I might have to be an (A-word again)

> and just check myself in. If any of you have any

> experience in this please drop me a line.

>

> Hi Jim, it's Judy g., I know in California, you call the MDA and

tell

> them you need to

> 'Register' to be seen in Clinic. They will send you a simple form

that

> your doc needs to just put your diagnosis, why you need to be seen

(he

> can just put progressive weakness, just about anything is fine) and

then

> he signs it. You mail it in, call and make sure they received it and

> they will call you for an appointment - does that help? I hope so ;)

> Peace & Love

> Judy g.

> P.S. If your neurologist or specialist gives you a problem, go to

your

> primary care physician - they KNOW they don't KNOW much and are

usually

> happy to send one off to the MDA Clinic.

> P.S.S. Oh yeah, I had another thought, since Dr's HATE paperwork -

as

> long as the form doesn't need a 'diagnosis CODE,' he can just sign

it

> and you can fill in the rest.

>

>

>

>

> >

> >

> >

> >

> > __________________________________________________

> >

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